Hostname: page-component-76fb5796d-2lccl Total loading time: 0 Render date: 2024-04-26T02:54:32.123Z Has data issue: false hasContentIssue false

Responding to the financial abuse of people with dementia: a qualitative study of safeguarding experiences in England

Published online by Cambridge University Press:  02 April 2012

Jill Manthorpe*
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
Kritika Samsi
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
Joan Rapaport
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
*
Correspondence should be addressed to: Jill Manthorpe, Professor of Social Work and Director of Social Care Workforce Research Unit, Social Care Workforce Research Unit, King's College London, 5th floor, Melbourne House, Aldwych, London WC2R 2LS. Phone: +44(0)20 7848 1683; Fax: +44(0)20 7848 1866. Email: jill.manthorpe@kcl.ac.uk.

Abstract

Background: The risks of financial exploitation and abuse of people with dementia remain under-researched. Little is known of the views of those responsible for local adult safeguarding systems about prevention and redress. We explore current repertoires of responses of such persons and consider barriers and facilitators to minimizing risks of financial abuse for people with dementia.

Methods: Fifteen qualitative interviews were undertaken with a purposively sampled group of Adult Safeguarding Co-ordinators in England in 2011. Framework analysis delineated themes in the transcripts; these were included in an iteratively developed coding framework.

Results: Five themes were explored: (1) incidence of financial abuse; (2) impact of dementia on safeguarding responses; (3) warning signs of financial abuse, including neglect, unpaid bills, limited money for provisions; (4) encouraging preventive measures like direct debit to pay for bills, advance care plans, appointing Lasting Power of Attorney; and (5) barriers and facilitators in safeguarding, including the practice of financial agencies, cultural barriers, other systemic failures and facilitators. Not all systems of financial proxies are viewed as optimally effective but provisions of the Mental Capacity Act 2005 were welcomed and seen as workable.

Conclusions: Healthcare professionals may need to be more alert to the signs and risks of financial abuse in patients with dementia both at early and later stages. Engaging with safeguarding practitioners may facilitate prevention of abuse and effective response to those with substantial assets, but the monitoring of people with dementia needs to be sustained. In addition, professionals need to be alert to new risks from electronic crime. Researchers should consider including financial abuse in studies of elder abuse and neglect.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2012

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Acierno, R., et al. (2010). Prevalence and correlates of emotional, physical, sexual, and financial abuse and potential neglect in the United States: the National Elder Mistreatment Study. American Journal of Public Health, 100, 292297.CrossRefGoogle ScholarPubMed
Alves, L. and Wilson, S. R. (2008). The effects of loneliness on telemarketing fraud vulnerability among older adults. Journal of Elder Abuse and Neglect, 20, 6382.CrossRefGoogle ScholarPubMed
Arksey, A., Corden, A., Glendinning, C. and Hirst, M. (2008). Managing money in later life: help from relatives and friends. Benefits, 16, 4759.Google Scholar
Baxter, K., Glendinning, C. and Clarke, S. (2008). Making informed choices in social care: the importance of accessible information. Health and Social Care in the Community, 16, 197207.CrossRefGoogle ScholarPubMed
Cambridge, P., Beadle-Brown, J., Milne, A., Mansell, J. and Whelton, B. (2006). Exploring the Incidence, Risk Factors, Nature and Monitoring of Adult Protection Alerts. Canterbury: Tizard Centre.Google Scholar
Clancy, M., McDaid, B., O'Neill, D. and O'Brien, J. (2011). National profiling of elder abuse referrals. Age and Ageing, 40, 346352.CrossRefGoogle ScholarPubMed
Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R. and Livingston, G. (2009). Abuse of people with dementia by family carers: representative cross sectional survey. BMJ, 338, b155.CrossRefGoogle ScholarPubMed
Cooper, C., Selwood, A. and Livingston, G. (2008). The prevalence of elder abuse and neglect: a systematic review. Age and Ageing, 37, 151–60.CrossRefGoogle ScholarPubMed
Davies, M. et al. (2011). Factors used in the detection of elder financial abuse: a judgement and decision-making study of social workers and their managers. International Social Work, 54, 404420.CrossRefGoogle Scholar
Department of Health and Home Office (2000). No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults from Abuse. London: TSO.Google Scholar
Dixon, J. et al. (2010). Defining elder mistreatment: reflections on the United Kingdom Study of Abuse and Neglect of Older People. Ageing and Society, 30, 403420. doi:10.1017/S0144686X0999047X.CrossRefGoogle Scholar
Irvine, A., Drew, P. and Sainsbury, R. (2010). Mode Effects in Qualitative Interviews: A Comparison of Semi-structured Face-to-face and Telephone Interviews Using Conversation Analysis. Research Works, 03. York: University of York.Google Scholar
Kemp, B. J. and Mosqueda, L. A. (2005). Elder financial abuse: an evaluation framework and supporting evidence. Journal of the American Geriatrics Society, 53, 11231127.CrossRefGoogle ScholarPubMed
Langan, J. and Means, R. (1996). Financial management and elderly people with dementia in the UK: as much a question of confusion as abuse? Ageing and Society, 16, 287314.CrossRefGoogle Scholar
Mansell, J., Beadle-Brown, J., Cambridge, P., Milne, A. and Whelton, B. (2009). Adult protection: incidence of referrals, nature and risk factors in two English local authorities. Journal of Social Work, 9, 2339.CrossRefGoogle Scholar
Manthorpe, J., Rapaport, J., Harris, J. and Samsi, K. (2009). Realising the safeguarding potential of the Mental Capacity Act 2005: early reports from adult safeguarding staff. Journal of Adult Protection, 11, 1324.CrossRefGoogle Scholar
Manthorpe, J., Samsi, K. and Rapaport, J. (in press). “Capacity is the key”: investigating new legal provisions in England and Wales for adult safeguarding. Journal of Elder Abuse and Neglect.Google Scholar
Manthorpe, J., Samsi, K. and Rapaport, J. (2012). “Inherently risky?”: personal budgets for people with dementia and the risks of financial abuse. Findings from an interview-based study with adult safeguarding co-ordinators. British Journal of Social Work, 1–15, doi:10.1093/bjsw/bcs023.CrossRefGoogle Scholar
Mulroy, M. and O'Neill, D. (2011). Elder abuse. BMJ, 343, d6027.CrossRefGoogle ScholarPubMed
O'Keeffe, M. et al. (2007). UK Study of the Abuse and Neglect of Older People. London: NatCen. Available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_076197; last accessed 17 January 2012.Google Scholar
Payne, B. and Gainey, R. (2009). Mapping elder mistreatment cases: interactions between mistreatment, dementia, service utilization, access to services and disadvantage. Journal of Human Behavior in the Social Environment, 19, 10251041.CrossRefGoogle Scholar
Pinsker, D. M. (2011). Clinical application of the Social Vulnerability Scale: three illustrative case reports of patients with dementia. Clinical Psychologist, 15, 3343. doi: 10.1111/j.1742–9552.2011.00003.x.CrossRefGoogle Scholar
Pope, C., Ziebland, S. and Mays, N. (2000). Analyzing qualitative data. BMJ, 320, 114116.CrossRefGoogle Scholar
Rabiner, D. J., O'Keeffe, J. and Brown, D. (2006). Financial exploitation of older persons: challenges and opportunities to identify, prevent, and address it in the United States. Journal of Aging and Social Policy, 18, 4768.CrossRefGoogle ScholarPubMed
Razani, J. et al. (2007). Predicting caregiver burden from daily functional abilities of patients with mild dementia. Journal of the American Geriatrics Society, 55, 14151420.CrossRefGoogle ScholarPubMed
Samsi, K., Manthorpe, J., Nagendran, T. and Heath, H. (2011). Challenges and expectations of the Mental Capacity Act 2005: the perspectives of community-based specialist nurses working in dementia care. Journal of Clinical Nursing, doi: 10.1111/j.1365–2702.2011.03912.x.CrossRefGoogle Scholar
Sethi, D. et al. (eds) (2011). European Report on Preventing Elder Maltreatment. Geneva: World Health Organization.Google Scholar
Setterlund, D., Telse, C., Wilson, J., McCawley, A. and Rosenman, L. (2007). Understanding financial elder abuse in families: the potential of routine activities theory. Ageing and Society, 27, 599614.CrossRefGoogle Scholar
Sulmasy, D. P. and Snyder, L. (2010). Substituted interests and best judgements: an integrated model of surrogate decision-making. JAMA, 304, 19461947. doi: 10.1001/jama.2010.1595.CrossRefGoogle Scholar
Tilse, C., Wilson, J., Setterlund, D. and Rosenman, L. (2005). Older people's assets: a contested site. Australasian Journal on Ageing, 24 S1, S51S56.CrossRefGoogle Scholar
Triebel, K. L. et al. (2009). Declining financial capacity in mild cognitive impairment: a 1-year longitudinal study. Neurology, 73, 928934.CrossRefGoogle ScholarPubMed
Webber, L. S., Reeve, R. A., Kershaw, M. M. and Charlton, J. L. (2002). Assessing financial competence. Psychiatry, Psychology and Law, 9, 248256.CrossRefGoogle Scholar
Widera, E., Steenpass, V., Marson, D., Sudore, R. (2011). Finances in the older patient with cognitive impairment: “He didn't want me to take over.” JAMA, 305, 698706. doi: 10.1001/jama.2011.164.CrossRefGoogle Scholar
World Health Organization (2008). A Global Response to Elder Abuse and Neglect: Building Primary Health Care Capacity to Deal with the Problem Worldwide: Main Report. Geneva: World Health Organization.Google Scholar