Hostname: page-component-cb9f654ff-nr592 Total loading time: 0 Render date: 2025-08-08T17:35:59.641Z Has data issue: false hasContentIssue false
  • English
  • Français

Revisiting caregiver burden among family carers of people with dementia

Published online by Cambridge University Press:  10 May 2021

C. T. Penteado ,
O. G. Ribeiro  and
O. V. Forlenza
C. T. Penteado
Affiliation:
Laboratory of Neuroscience (LIM-27), Department and Institute of Psychiatry, Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo (HCFMUSP), Sao Paulo, Brazil
O. G. Ribeiro
Affiliation:
Laboratory of Neuroscience (LIM-27), Department and Institute of Psychiatry, Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo (HCFMUSP), Sao Paulo, Brazil
O. V. Forlenza*
Affiliation:
Laboratory of Neuroscience (LIM-27), Department and Institute of Psychiatry, Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo (HCFMUSP), Sao Paulo, Brazil
*
Email: forlenza@usp.br
Get access

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'

Information

Type
Commentary
Information
International Psychogeriatrics , Volume 33 , Special Issue 4: Issue Theme: Caring for Caregivers of People with Dementia , April 2021 , pp. 315 - 317
Copyright
© International Psychogeriatric Association 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Article purchase

Temporarily unavailable

References

Amorim, F. A., Giorgion, M. C. P. and Forlenza, O. V. (2017). Social skills and well-being among family caregivers to patients with Alzheimer’s disease. Archives of Clinical Psychiatry, 44(6), 159–61. https://doi.org/10.1590/0101-60830000000143 CrossRefGoogle Scholar
Carvalho, C. L., Ardore, M. and Castro, L. R. (2015). Family caregivers and the aging of the person with intellectual disabilities: implications to care [Article in Portuguese]. Revista Kairós Gerontologia, 18(3), 333–352. https://doi.org/10.23925/2176-901X.2015v18i3p333-352 Google Scholar
Connors, M. H., Seeher, K., Teixeira-Pinto, A., Woodward, M., Ames, D. and Brodaty, H. (2019). Mild cognitive impairment and caregiver burden: a 3-year-longitudinal study. American Journal of Geriatric Psychiatry, 27(11), 1206–1215. https://doi.org/10.1016/j.jagp.2019.05.012 CrossRefGoogle ScholarPubMed
CSO, Central Statistics Office. (2017). Dublin: Census 2016.Google Scholar
Dekker, A. D. et al. (2015). Behavioural and psychological symptoms of dementia in down syndrome: early indicators of clinical Alzheimer’s disease? Cortex, 73, 36–61. https://doi.org/10.1016/j.cortex.2015.07.032CrossRefGoogle ScholarPubMed
Dodel, R. et al. (2015). Determinants of societal costs in Alzheimer’s disease: GERAS study baseline results. Alzheimers & Dementia, 11(8), 933–945. https://doi.org/10.1016/j.jalz.2015.02.005 CrossRefGoogle ScholarPubMed
Dos Santos, G. D. et al. (2017). Caregiver burden in older adults with bipolar disorder: relationship to functionality and neuropsychiatric symptoms. Psychogeriatrics, 17(5), 317–323. https://doi.org/10.1111/psyg.12241CrossRefGoogle ScholarPubMed
Dos Santos, G. D. et al. (2018). Caregiver burden regarding elderly with bipolar disorder: an underrecognized problem. General Hospital Psychiatry, 51, 134–135. https://doi.org/10.1016/j.genhosppsych.2017.10.011 CrossRefGoogle Scholar
Garre-Olmo, J., Vilalta-Franch, J., Calvó-Perxas, L., Turró-Garriga, O., Conde-Sala, L. and López-Pousa, S. (2016). A path analysis of patient dependence and caregiver burden in Alzheimer’s disease. International Psychogeriatrics, 28(7), 1133–1141. https://doi.org/10.1017/S1041610216000223 CrossRefGoogle ScholarPubMed
Liu, S. et al. (2018). Caregiver burden, sleep quality, depression, and anxiety in dementia caregivers: a comparison of frontotemporal lobar degeneration, dementia with Lewy bodies, and Alzheimer’s disease. International Psychogeriatrics, 30(8), 1131–1138. https://doi.org/10.1017/S1041610217002630CrossRefGoogle ScholarPubMed
McCarron, M. et al. (2018). Quality care for people with intellectual disability and advanced dementia: guidance on service provision. Journal of Palliative Medicine, 21(9), 1344–1352. https://doi.org/10.1089/jpm.2017.0442CrossRefGoogle ScholarPubMed
McGlinchey, E., McCallion, P. and McCarron, M. (2020). Down syndrome and dementia: advances in the field. Current Opinion in Psychiatry, 33(3), 278–283. https://doi.org/10.1097/YCO.0000000000000589 CrossRefGoogle ScholarPubMed
Molyneux, G. J., McCarthy, G. M., McEniff, S., Cryan, M. and Conroy, R. M. (2008). Prevalence and predictors of carer burden and depression in carers of patients referred to an old age psychiatric service. International Psychogeriatrics, 20(6), 1193–1202. https://doi.org/10.1017/S1041610208007515CrossRefGoogle Scholar
Park, M., Sung, M., Kim, S. K., Kim, S. and Lee, D. Y. (2015). Multidimensional determinants of family caregiver burden in Alzheimer’s disease. International Psychogeriatrics, 27(8), 1355–1364. https://doi.org/10.1017/S1041610215000460 CrossRefGoogle ScholarPubMed
Pinquart, M. and Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychology and Aging, 18(2), 250. https://doi.org/10.1037/0882-7974.18.2.250 CrossRefGoogle ScholarPubMed
Riffin, C., Van Ness, P. H., Wolff, J. L. and Fried, T. (2019). Multifactorial examination of caregiver burden in a national sample of family and unpaid caregivers. Journal of the American Geriatrics Society, 67(2), 277–283. https://doi.org/10.1111/jgs.15664 CrossRefGoogle Scholar
Teahan, A. et al. (2020). Psychosocial interventions for family carers of people with dementia: a systematic review and meta-analysis. Journal of Aging and Health, 1–16 [E-pub ahead of print]. https://doi.org/10.1177/0898264319899793 Google ScholarPubMed
Teahan, A., Lafferty, A., Cullinan, J., Fealy, G. and O’Shea, E. (2021). An analysis of carer burden among family carers of people with and without dementia in Ireland. International Psychogeriatrics, 33, 347–358. https://doi.org/10.1017/S1041610220000769 Google Scholar
Tolkacheva, N., Van Groenou, M. B., De Boer, A. and Van Tilburg, T. (2011). The impact of informal care-giving networks on adult children’s care-giver burden. Ageing & Society, 31(1), 34–51. https://doi.org/10.1017/S0144686X10000711 CrossRefGoogle ScholarPubMed
UNDP, United Nations Development Programme. (2019). Human Development Index Ranking. http://hdr.undp.org/en/content/2019-human-development-index-ranking; accessed June 9, 2020.Google Scholar