Attride-Stirling J. (2001). Thematic networks: an analytic tool for qualitative research. Qualitative Research, 1, 385–405.
Australian Institute of Health and Welfare (2012). Dementia in Australia. Cat. no. AGE 70. Canberra: AIHW.
Biegel D. E., Bass D. M., Schulz R. and Morycz R. (1993). Predictors of in-home and out-of-home service use by family caregivers of Alzheimer's disease patients. Journal of Aging and Health, 5, 419–438.
Black B. S.
et al. (2013). Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing Independence at home study. Journal of the American Geriatrics Society, 61, 2087–2095.
Braun V. and Clarke V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.
Brodaty H., Thomson C., Thompson C. and Fine M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537–546.
Conde-Sala J. L., Garre-Olmo J., Turró-Garriga O., Vilalta-Franch J. and López-Pousa S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design. International Journal of Nursing Studies, 47, 1262–1273.
Done D. and Thomas J. (2001). Training in communication skills for informal carers of people suffering from dementia: a cluster randomized clinical trial comparing a therapist led workshop and a booklet. International Journal of Geriatric Psychiatry, 16, 816–821.
et al. (2007). Effective caring: a synthesis of the international evidence on carer needs and interventions. Centre for Health Service Development, University of Wollongong.
Egan M., Bérubé D., Racine G., Leonard C. and Rochon E. (2010). Methods to enhance verbal communication between individuals with Alzheimer's disease and their formal and informal caregivers: a systematic review. International Journal of Alzheimer's Disease, 2010.
Eggenberger E., Heimerl K. and Bennett M. I. (2013). Communication skills training in dementia care: a systematic review of effectiveness, training content, and didactic methods in different care settings. International Psychogeriatrics, 25, 345–358.
et al. (2016). Consumer directed care in Australia: early perceptions and experiences of staff, clients and carers. Health and Social Care in the Community.
Greenwood N. and Smith R. (2015). Barriers and facilitators for male carers in accessing formal and informal support: a systematic review. Maturitas, 82, 162–169.
Health Outcomes International. (2011). Review of Social Support and Respite in Home and Community Care (HACC) and Aged Care. Kent Town, South Australia: Victorian Department of Health.
Hepburn K. W., Tornatore J., Center B. and Ostwald S. W. (2001). Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49, 450–457. doi:10.1046/j.1532-5415.2001.49090.x.
Hochgraeber I., Von Kutzleben M., Bartholomeyczik S. and Holle B. (2015). Low-threshold support services for people with dementia within the scope of respite care in Germany – a qualitative study on different stakeholders' perspective. Dementia (London, England).
Johansson A. (2014). Remaining connected despite separation – former family caregivers' experiences of aspects that facilitate and hinder the process of relinquishing the care of a person with dementia to a nursing home. Aging and Mental Health, 18, 1029.
Kosloski K. and Montgomery R. J. (1994). Investigating patterns of service use by families providing care for dependent elders. Journal of Aging and Health, 6, 17–37.
Kosloski K., Montgomery R. J. and Youngbauer J. G. (2001). Utilization of respite services: a comparison of users, seekers, and nonseekers. Journal of Applied Gerontology, 20, 111–132.
Losada A., Montorio I., Knight B. G., Márquez M. and Izal M. (2006). Explanation of caregivers distress from the cognitive model: the role of dysfunctional thoughts. Psicología Conductual, 14, 115.
Low L.-F., Chilko N., Gresham M., Barter S. and Brodaty H. (2012). An update on the pilot trial of consumer-directed care for older persons in Australia. Australasian Journal on Ageing, 31, 47–51. doi:10.1111/j.1741-6612.2011.00572.x
Márquez-González M., Losada A., Izal M., Pérez-Rojo G. and Montorio I. (2007). Modification of dysfunctional thoughts about caregiving in dementia family caregivers: description and outcomes of an intervention programme. Aging & Mental Health, 11, 616–625.
Morhardt D. (2011). Accessing community-based and long-term care services: challenges facing persons with frontotemporal dementia and their families. Journal of Molecular Neuroscience, 45, 737–741.
Morris J. C. (1997). Clinical dementia rating: a reliable and valid diagnostic and staging measure for dementia of the Alzheimer type. International Psychogeriatrics, 9, 173–176.
Neville C., Beattie E., Fielding E. and Macandrew M. (2015). Literature review: use of respite by carers of people with dementia. Health and Social Care in the Community, 23, 51–63.
O'Connell B., Hawkins M., Ostaszkiewicz J. and Millar L. (2012). Carers' perspectives of respite care in Australia: an evaluative study. Contemporary Nurse: A Journal for the Australian Nursing Profession, 41, 111–119.
Ottmann G. and Mohebbi M. (2014). Self-directed community services for older Australians: a stepped capacity-building approach. Health and Social Care in the Community, 22, 598–611.
Parker D., Mills S. and Abbey J. (2008). Effectiveness of interventions that assist caregivers to support people with dementia living in the community: a systematic review. International Journal of Evidence-Based Healthcare, 6, 137–172.
Phillipson L., Jones S. C. and Magee C. (2014). A review of the factors associated with the non-use of respite services by carers of people with dementia: implications for policy and practice. Health and Social Care in the Community, 22, 1–12.
et al. (2015). The global impact of dementia: an analysis of prevalence, incidence, cost and trends. World Alzheimer Report.
Selwood A., Johnston K., Katona C., Lyketsos C. and Livingston G. (2007). Systematic review of the effect of psychological interventions on family caregivers of people with dementia. Journal of Affective Disorders, 101, 75–89.
et al. (2012). A qualitative study into the use of formal services for dementia by carers from culturally and linguistically diverse (CALD) communities. BMC Health Services Research, 12, 354–354.
Tilly J. and Rees G. (2007). Consumer-directed care: a way to empower consumers. Alzheimer's Australia.
Winslow B. W. (2003). Family caregivers' experiences with community services: a qualitative analysis. Public Health Nursing, 20, 341–348.