Skip to main content Accessibility help

Genetic Services, Economics, and Eugenics

  • Diane B. Paul (a1)



Hide All
Andrews, L. B., Fullarton, J. E., Holtzman, N. A., and Motulsky, A. G., eds. 1994. Assessing Genetic Risks: Implications for Health and Social Policy. Washington, D.C.: National Academy Press.
Annas, G. J. 1989. “Who's Afraid of the Human Genome?Hastings Center Report (July/ August), 1921.
Andreano, R. L. and McCollum, D. W.. 1983. “A Benefit-Cost Analysis of Amniocentesis.” Social Biology 30:347373.
Bishop, J. E. and Waldholz, M.. 1990. Genome. New York: Simon and Schuster.
Boone, C. K., 1988. “Bad Axioms in Genetic Engineering.” Hastings Center Report (August/September), 913.
Caplan, A. C., 1993. “Neutrality Is Not Morality: The Ethics of Genetic Counseling.” In Prescribing the Future: Ethical Challenges in Genetic Counseling, edited by Bartels, D. M.,LeRoy, B. S., and Caplan, A. C., 149165. New York: Aldine de Gruyter.
Chadwick, R. F. 1993. “What Counts as Success in Genetic Counselling?Journal of Medical Ethics 19:4346.
Clarke, A. 1990. “Genetics, Ethics, and Audit.” Lancet 335:11451147.
Conley, R. W. 1985. “Down Syndrome: Economic Burdens and Benefits of Prevention.” In Aneuploidy: Etiology and Mechanisms, edited by Dellarco, V. L., et al. , 3559. New York: Plenum.
Conley, R. and Milunsky, A.. 1975. “The Economics of Prenatal Genetic Diagnosis.” In Prevention of Genetic Disease and Mental Retardation, edited by Milunsky, A., 442455. Philadelphia: W. B. Saunders.
Cowan, R. S. 1992. “Genetic Technology and Reproductive Choice: An Ethics for Autonomy.” In The Code of Codes: Scientific and Social issues in the Human Genome Project, edited by Kevles, D. J. and Hood, L., 245263. Cambridge: Harvard University Press.
Crandall, B. F.,Lebhertz, T. B., and Tabsh, K.. 1986. “Maternal Age and Amniocentesis: Should this Be Lowered to 30 Years?Prenatal Diagnosis 6:237242.
Duster, T. 1990. Backdoor to Eugenics. London: Routledge.
Edel, C. K. and Edel, M.. 1985. “Economic Costs of Aneuploidy: Some Problems of Measurement and Conceptualization.” In Aneuploidy: Etiology and Mechanisms, edited by Dellarco, V. L., Voytek, P. E., and Hollaender, A., 6173. New York: Plenum.
Falk, R. 1998. “Eugenics Denied.” New York Review of Books. (Jan. 15) 35:61.
Goldstein, H. and Philip, J.. 1990. “A Cost-Benefit Analysis of Prenatal Diagnosis by Amniocentesis in Denmark.” Clinical Genetics 37:241263.
Green, R. M. 1997. “Parental Autonomy and the Obligation not to Harm One's Child Genetically.” Journal of Law, Medicine & Ethics 25:515.
Haddow, J. E., Palomaki, G. E., Knight, G. J., Cunningham, G. C., Lustig, L. S., and Boyd, P. A.. 1994. “Reducing the Need for Amniocentesis in Women 35 Years of Age or Older with Serum Markers for Screening.” New England Journal of Medicine (April 21) 330:11141118.
Haggard, S. and Carter, F. A.. 1976. “Preventing the Birth of Infants with Down's Syndrome: A Cost-Benefit Analysis.” British Medical Journal (27 March), 753756.
Harris, J. 1992. Wonderwoman and Superman: The Ethics of Human Biotechnology. New York: Oxford University Press.
Healthy Children 2000: National Health Promotion and Disease Prevention Objectives Related to Mothers, Infants, Children, Adolescents, and Youth. 1991. Rockville, MD: U.S. Dept. of Health and Human Services, Public Health Service, Maternal and Child Health Bureau.
Heyd, David. 1992. Genethics: Moral Issues in the Creation of People. Berkeley: University of California Press.
Hook, E. B. 1979. “Genetic Counseling and Prenatal Genetic Services: Cost-Benefit Considerations and Policy Implications.” In Service and Education in Medical Genetics, edited by Porter, I. H. and Hook, E. B., 2954. New York: Academic Press.
Hubbard, R. and Wald, E.. 1993. Exploding the Gene Myth. Boston: Beacon Press.
Johnson, M. 1990. “Defective Fetuses and Us.” Disability Rag (March/ April), 34.
Karjala, D. 1992. “A Legal Research Agenda for the Human Genome Initiative.” Jurimetrics 32:121222.
Kitcher, P. 1996. The Lives to Come: The Genetic Revolution and Human Possibilities. New York: Simon and Schuster.
Lippman, A. 1992. “Mother Matters: A Fresh Look at Prenatal Genetic Testing.” Issues in Reproductive and Genetic Engineering 5:141154.
Maddox, J. 1994. “Adventures in the germ line.” New York Times (Sunday, December 11), Section IV, 15.
Marfatia, L., Punales-Morejon, D., and Rapp, R.. 1990. “Counseling the Under-served: When an Old Reproductive Technology Becomes a New Reproductive Technology.” Birth Defects: Original Article Series 26:109136.
Morris, D. T. 1994. “Cost Containment and Reproductive Autonomy: Prenatal Genetic Screening and the American Health Security Act of 1993.” American Journal of Law and Medicine 20:295316.
Morton, O. 1998. “Overcoming Yuk.” Wired (Jan.), 4448.
Motulsky, A. G. 1980. “Governmental Responsibilities in Genetic Diseases.” In Genetics and the Law II, edited by Milunsky, A. and Annas, G. J., 237244. New York: Plenum Press.
Neel, J. V. 1994. Physician to the Gene Pool. New York: Wiley.
OTA (Office of Technology Assessment), U. S. Congress. 1988. Mapping our Genes-Genome Projects: How Big, How Fast? OTA-BA-373. Washington, D.C.: USGPO.
OTA (Office of Technology Assessment), U.S. Congress. 1992. Cystic Fibrosis and DNA Tests: Implications of Carrier Screening. OTA-BA-532. Washington, D.C.: USGPO.
Parfit, D. 1976. “On Doing the Best for our Children.” In Ethics and Population, edited by Bayles, M D.. Cambridge, MA: Schenkman.
Parfit, D. 1984. Reasons and Persons. Oxford: Oxford University Press.
Paul, D. B. 1992. “Eugenic Anxieties, Social Realities, and Political Choices.” Social Research 59:663683.
Paul, D. B. 1995. Controlling Human Heredity: 1865 to the Present. Amherst, NY: Prometheus Books.
Paul, D. B. 1997. “From Eugenics to Medical Genetics.” Journal of Policy History 9:96116.
Pfaff, W. 1997. “Eugenics, Anyone?New York Review of Books (Oct. 23) 34:2324.
Robertson, J. A. 1996. “Genetic Selection of Offspring of Characteristics.” Boston University Law Review 76:421482.
Sadovnick, A. D. and Baird, P. A.. 1981. “A Cost-Benefit Analysis of Prenatal Detection of Down Syndrome and Neural Tube Defects in Older MothersAmerican Journal of Medical Genetics 10:367378.
Shackley, P. 1996. “Economic Evaluation of Prenatal Diagnosis: A Methodological Review,” Prenatal Diagnosis 16:389–95.
van der Riet, A. P. M., van Hout, B. A., and Rutten, F. F. H. 1997. “Cost-Effectiveness of DNA Diagnosis for Four Monogenic Diseases.” Journal of Medical Genetics 34:741745.
Waitzman, N. J., Romano, P. S., and Scheffler, R. M.. 1994. “Estimates of the Economic Costs of Birth Defects.” Inquiry 31:188205.
Wertz, D. C. 1997. “Society and the Not-so-New Genetics: What are We Afraid of? Some Future Predictions from a Social Scientist.” Journal of Contemporary Health Law and Policy 13:299346.
Wikler, D., forthcoming. In In the Shadow of Eugenics (tentative title), edited by Buchanan, A. E., Brock, D., Daniels, N., and Wikler, D..


Full text views

Total number of HTML views: 0
Total number of PDF views: 0 *
Loading metrics...

Abstract views

Total abstract views: 0 *
Loading metrics...

* Views captured on Cambridge Core between <date>. This data will be updated every 24 hours.

Usage data cannot currently be displayed