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Lessons learned from developing and sustaining a community-research collaborative through translational research

Published online by Cambridge University Press:  08 August 2018

Amy LeClair*
Affiliation:
Tufts Medical Center, Boston, MA, USA Tufts University School of Medicine, Boston, MA, USA
Jean J. Lim
Affiliation:
Tufts University School of Medicine, Boston, MA, USA
Carolyn Rubin
Affiliation:
Tufts University School of Medicine, Boston, MA, USA
*
*Address for correspondence: A. LeClair, Ph.D., Tufts Medical Center, 800 Washington St., Box #63, Boston, MA 02111, USA. (Email: aleclair@tuftsmedicalcenter.org)
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Abstract

Introduction

The goal of this project was to document the current state of a community-academic partnership, identifying early successes and lessons learned.

Methods

We employed qualitative methods, semi-structured interviews and document analysis, from 2 data sources to (1) show how the principles of community-based participatory research are enacted through the activities of Addressing Disparities in Asian Populations through Translational Research (ADAPT) and (2) elucidate the barriers and facilitators to adhering to those principles from the perspectives of the members themselves.

Results

In addition to established community-based participatory research values, understanding individuals’ motivations for participation, the challenges aligning the priorities of community organizations and academic partners, and definitions of success are themes that emerged as key to the process of maintaining this partnership.

Conclusion

As the emphasis on community-academic partnerships grows, there is potential for clinical and translational science awards to use community engagement to facilitate translational research beyond the traditional medical spheres of influence and to forge relationships with affected communities.

Information

Type
Education
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
© The Association for Clinical and Translational Science 2018
Figure 0

Fig. 1 Addressing Disparities in Asian Populations through Translational Research (ADAPT) mission and vision statements.

Figure 1

Fig. 2 Evidence of community and academic partnership.

Figure 2

Fig. 3 Addressing Disparities in Asian Populations through Translational Research (ADAPT’s) governance structure.