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The National Institute of Mental Health (NIMH), established at the end of World War II, had an important influence on the growth of medical sociology and especially on social research in mental health. Its first director, Robert Felix, sought to include the social sciences as basic sciences for the study of mental health issues and problems. He strongly supported PhD training and extramural research and contributed to the growth of sociology, anthropology, and psychology as disciplinary areas. The fact that initially public support for sociology largely came through NIMH rather than other disease-oriented institutes explains the dominance of mental health concerns within the development of medical sociology. With increasing numbers of sociologists trained in NIMH programs, medical sociology became one of the largest and most active sections of the American Sociological Association (ASA). Felix was committed to bringing a public health perspective to the study and treatment of persons with mental illness, a viewpoint that began to erode during the Reagan administration when politics forced NIMH into a more insular disease perspective. The public health view has now again gained traction on the nation's health agenda, with a renewed interest in social determinants of health and socioeconomic and ethnic/racial disparities.
In earlier decades, training programs encompassed broad areas of social psychology, social organization, and social methodology; this breadth encouraged the wide range of substantive interests and theoretical and methodological approaches exhibited in this Handbook. NIMH predoctoral and postdoctoral awards supported my training in the 1950s, and probably many, if not most, of the contributors to this Handbook had similar support during their disciplinary training. I have been involved for more than fifty years in running such training programs at the University of Wisconsin and Rutgers University; in the earlier decades these programs had a strong focus on promoting and expanding knowledge and methods in the basic areas of the discipline. Many of those who participated in these and related programs have contributed importantly not only to mental health but also to their disciplines. Programs funded today are much more focused on problem areas and interdisciplinary efforts, but it remains essential for researchers to be strongly involved with the conceptual, theoretical, and methodological advances in their disciplines if they are to be effective partners in interdisciplinary collaborations.
Most mental health care today takes place not in hospital settings, but rather in a range of community-based organizations. This chapter lays out the scope of community mental health care and outlines the major approaches and findings in social scientific and organizational research done on specialist mental health care settings. While the average (non-office-based) specialty community mental health organization is private and nonprofit, public funds make up a large portion of the support for community care. While psychiatrists continue to play a prominent role in community mental health, there are a range of workers providing services in non-hospital settings. The chapter groups existing research on community mental health care organizations by the theoretical lens the studies use in their analysis. The approaches differ in levels of analysis as well as in which “slice” of organizational life they focus on. Important insights into the operation of community mental health care come from research in each theoretical tradition. For discussion, readers might ask what a client presenting for mental health care in the community can expect to encounter. How is the clinical work of mental health care workers shaped by the type of organization where they provide care?
Introduction
In an era when the mental hospital was the most common organization for treating mental illness in the US, some of the most durable contributions to social scientific and organizational thought arose from studies of these settings (Belknap, 1956; Caudill, 1958; Goffman, 1961; Perrow, 1965; see Scheid & Greenberg, 2007). Further, using the tools from social science and organization studies gave a different understanding of these facilities than a solely clinical view would afford, and these investigations led to changes in how mental health care is delivered (see, for instance, Grob, 1991a; Lieberman & Ogas, 2015).
The system of today is much different, with a wider, more diverse array of organizations providing mental health care, many of which are non-institutional and community-based. Understanding these community-based organizations – their nature, their challenges – through the lens of social science and organizational studies holds the same potential for insight (and perhaps change) as those classic studies. This chapter aims to outline what we know about the organizations providing mental health care today, with an emphasis on community-based specialty facilities.
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Part I
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Theoretical Perspectives on Mental Health and Illness: Introduction to Part I
By
Jerome C. Wakefield, University Professor, Silver School of Social Work and Department of Psychiatry, School of Medicine, New York University,
Mark F. Schmitz, Associate Professor, School of Social Administration, Temple University, Philadelphia, PA
This chapter examines the assessment and measurement of mental disorders. Researchers must distinguish between clinical prevalence (people who are treated for mental disorder) and true prevalence (the actual rate of disorder in a community, including those not in treatment). The measurement of mental illness must be conceptually valid; that is, there must be criteria that successfully distinguish cases of disorder from cases of non-disorder. In the past, researchers relied upon general symptom checklists, which identify a threshold above which an individual is considered disordered, but without specifying a particular disorder. An alternative to checklists is provided by the American Psychiatric Association's Diagnostic and Statistical Manual (DSM) of mental disorders, which provides sets of diagnostic criteria for specific disorders. The assumption behind the DSM is that mental disorders result from internal psychological dysfunctions (i.e., failures of proper functioning of mental processes), a presumption that Wakefield and Schmitz accept but demonstrate is often violated by the DSM's own criteria for mental disorder. Their critique of the DSM's approach to measurement is illustrated with several DSM diagnoses. In addition to thoroughly discussing the conceptual basis of the DSM, Wakefield and Schmitz provide examples of the attempts to use DSM-derived criteria to measure prevalence of mental disorder in the community. These examples demonstrate the recurrent problems with creating conceptually valid measures for use in psychiatric epidemiology. It is unclear whether these problems can be overcome or circumvented with methodological innovations. The student should consider why it is so difficult to determine who is mentally disordered, and to distinguish mental disorder from intense normal distress. Is a conceptually valid resolution of these problems possible?
Introduction
How many people in the United States suffer from mental disorder in general and from each specific mental disorder, and what characteristics are correlated with each disorder? The answers to such questions are important in formulating mental health policy, in evaluating theories of the causes of disorder, in planning efficient distribution of mental health care, and in justifying funding for mental health services and research. Thus, there have long been efforts to measure the rate, or prevalence, of mental disorder both in the population as a whole and in various segments of the population. Psychiatric epidemiology, the discipline that pursues such studies, is logically part of medical epidemiology, the study of the occurrence and correlates of medical disorders in various populations.
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Part II
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The Social Context of Mental Health and Illness: Introduction to Part II
By
Verna M. Keith, Professor, Department of Sociology, Texas A & M University,
Diane R. Brown, Professor, Health Education and Behavioral Science, Rutgers School of Public Health
Keith and Brown present a conceptual model for understanding the way in which the interrelationships among race, gender, and socioeconomic status (SES) influence mental well-being for African American women. Mental well-being is affected by social, cultural, and psychological factors as well as by physical health and health behavior; in turn these factors are influenced by one's social status (i.e., race, gender, SES). African American women are subject to racism, sexism, and for some, heterosexism, which diminish their educational attainment, personal and household incomes, occupational status, wealth accumulation, and opportunities for socioeconomic advancement. Consequently, African American women have fewer resources than their white counterparts and are far more limited in their capacity to cope with crises and adversities. Stressors such as poverty and economic hardship also challenge the adaptive abilities of many African American women. They are less likely to be married and, if married, more likely to be employed and responsible for more household chores than white married women. Parenthood often is another source of stress as many African American women are single parents. The particular set of roles that African American women must fulfill may also expose them to more stressful life circumstances. Combining employment and parenthood roles increases the likelihood that they will experience role overload and role conflict, especially when coping resources are limited. A key argument made by Keith and Brown is that there is a strong connection between mental and physical health. African American women have poorer physical health with higher rates of diabetes, hypertension, HIV infection, and lupus, which lead to higher mortality rates than white women. Additionally, African American women are less likely to use health care, which may be due to a lack of access, among other factors. However, the extended social networks of African American women may provide important sources of social support. What other types of social support would help African American women cope with the many sources of stress in their lives and would immigrant and LGBT women need additional supportive resources?
Introduction
African American women, including immigrants, are disproportionately challenged by a host of social conditions that are linked to higher risk for poor mental health, including low incomes, high levels of poverty and unemployment, single motherhood, poor physical health, and residence in economically disadvantaged neighborhoods where these problems are compounded (Murry et al., 2008; Schulz et al., 2000).
How mental distress is understood and defined has significant social and political implications. For this reason, psychiatric nosology – the classification of mental disorders – has come to occupy a central role in debates over mental health policy, patient identity politics, and the professional authority of psychiatry. This chapter explores the sociological research on psychiatric nosology. The first section examines the history of classification of mental disorders in the United States, focusing on the professional dynamics that have shaped the Diagnostic and Statistical Manual of Mental Disorders (DSM). The second section describes three key areas of sociological research on psychiatric nosology – medicalization, diagnostic practice, and patient identity – that highlight the manner in which social and political factors influence the classification of mental disorders and the concomitant effects of psychiatric nosology. How does medicalization impact our understanding and classification of mental health disorders? How do social and political factors affect the categorization of mental disorders? Specifically, how has the production, use, and reception of the DSM shaped political (professional or otherwise) considerations?
Introduction
In the early 1970s, fresh off the dramatic events of the Stonewall Riots, gay activists converged on the typically staid meetings of the American Psychiatric Association (APA) to challenge the classification of homosexuality as a mental disorder. The second edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM) defined homosexuality as a sexual deviation on par with pedophilia and, in turn, subject to psychiatric treatment that included aversion therapy, electroconvulsive therapy (ECT), and even lobotomy. Although an improvement on the traditionally held view of homosexuality as an abomination, activists derided psychiatry's diagnosis of homosexuality as a disease, arguing that it unjustly pathologized sexual orientation. They descended upon the APA's annual meetings to pressure psychiatrists to remove homosexuality from the DSM-II. Supportive psychiatrists, some of them homosexuals themselves, joined the protest. At the 1972 meeting, psychiatrist John E. Fryer – using the pseudonym of “Dr. Anonymous” – spoke eloquently of his struggles as a gay psychiatrist, while donning a mask to maintain his anonymity so as to avoid any professional repercussions that might stem from his testimonial. Eventually the disruptive tactics worked.
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Part II
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The Social Context of Mental Health and Illness: Introduction to Part II
By
Laura Limonic, Assistant Professor, Sociology, College at Old Westbury, State University of New York,
Mary Clare Lennon, Professor, PhD Program in Sociology and DPH Program in Public Health, The Graduate Center, City University of New York
Limonic and Lennon examine the mental health consequences of work and unemployment. The authors discuss the different theoretical models for understanding the relationship between work and psychological well-being. Changes in the nature of work, the stability of the labor market, and the involvement of women in the workforce have had important consequences for psychological well-being. Jobs that are demanding and precarious, and provide few opportunities for control, have negative consequences for mental health. Limonic and Lennon also consider the effect of unpaid work, specifically housework, on mental health and well-being. Like paid work, housework involves varying levels of control and stressful demands. Unemployment has a negative effect on well-being because it may reduce self-esteem and economic security, and thus produce anxiety and depression. Yet it is important to examine the economic context within which individuals experience unemployment. Several recent approaches, which integrate community-level conditions and individual characteristics, are described. The authors conclude by providing an overview of the current research on the effects of unemployment during the Great Recession. New research points to long-lasting consequences of job displacement for the individuals affected as well as their families and communities. What are some of the impacts of the Great Recession on labor market outcomes for young job seekers? How do these possible outcomes affect mental health trajectories?
Background
This chapter considers some of the mental health consequences of work and unemployment. In examining the effects of work, it focuses on specific work conditions that both theoretical and empirical studies indicate are important for psychological well-being, defined as the absence of mental health symptoms such as anxiety or depression. Rather than restrict attention to paid work, this chapter will also consider research on unpaid work. In examining unemployment, attention is given to the effects of individual job loss as well as community-level unemployment.
Americans spend large portions of their adult life working. Considering waged work, the average work week is about 34.5 hours (US Department of Labor, 2015a). Since approximately 90 percent of men and three-quarters of women aged 25–54 are in the paid labor force (US Department of Labor, 2015b), jobs hold a central place in the daily lives of most of the adult population. Recently, various social and economic changes have affected the availability and quality of jobs for a substantial number of workers.
from
Part II
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The Social Context of Mental Health and Illness: Introduction to Part II
By
Robert J. Johnson, Department of Sociology, University of Miami,
Stevan E. Hobfoll, The Judd and Marjorie Weinberg Presidential Professor and Chair, Rush Medical College,
Isabelle Beulaygue, University of Miami
This chapter investigates the amount of research interest in the relationship between mental health and terrorism. In addition, Johnson and colleagues have begun to identify the seminal research in the field as the frequency of publications increased allowing dominant and coherent trends of study to emerge. Both broad theoretical advances and focused conceptual refinements have been identified and discussed. The authors have also sought to identify the broader lacunae in the field and suggest future directions for research. Their results reveal that the dramatic increase in research focusing on the topics of terrorism and mental health reached their highpoints five to ten years after the September 11, 2001, attacks on the World Trade Center in New York and the Pentagon in Washington, DC, and the hijacked plane that crashed in Pennsylvania. The first highpoint occurred after five years with respect to health and terrorism specifically, while research on terrorism in general continued to rise in the social science literature for another five years before its first major descent was recorded in 2012. The reaction to those attacks themselves dominated much of the research. In addition to ongoing attention to mental health topics and risk behaviors occurring as a result of those attacks, a developing trend in positive outcomes such as post-traumatic growth (PTG) and especially resilience have been noted.
While the frequency of published research generally has started to wane in the second decade following the September 11 attacks, many of the questions raised by the research in the first decade remain unanswered. Will new tragedies in understudied parts of the world demand resurgence in research focusing on the association between mental health and terrorism, or will it take another crisis among Western nations (e.g., the current wave of refugees into Europe from non-European Union nations)? With waves of terrorism washing over large regions of the globe, what factors determine who and what topics are drawing the attention of mental health researchers? How would you define resilience in the face of terrorism and what examples of it can you provide? What work remains to be done on resilience to broaden its application to sociology?
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Part II
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The Social Context of Mental Health and Illness: Introduction to Part II
By
Kristi Williams, Associate Professor Sociology, Department of Sociology, The Ohio State University,
Adrianne Frech, Assistant Professor, Sociology, The University of Akron,
Daniel L. Carlson, Assistant Professor, Sociology, Georgia State University
Williams, Frech, and Carlson examine the evidence for an effect of marital status on mental health, with a particular focus on the factors that identify who benefits from marriage, who suffers from marital dissolution, and under what circumstances. They evaluate three possible explanations for observed associations of marital status with mental health: (1) the marital resource model; (2) the marital crisis model; and (3) selection bias. They conclude that the best recent evidence suggests that, on average, entering marriage improves mental health and exiting marriage undermines mental health, at least in the short run. However, their central argument is that these average associations obscure a great deal of heterogeneity in the experience of marriage and in its consequences for mental health. The authors consider a range of individual, demographic, and relationship characteristics that are likely to moderate the effect of marriage and marital dissolution on mental health. These include gender, marital quality, age / life course, race/ethnicity, values and beliefs, and prior mental health. Students should discuss what other factors are likely to influence whether marriage and divorce are beneficial, neutral, or harmful for mental health. How might the impact of marriage and divorce on mental health change with the times, particularly as alternative family forms become more prevalent?
Introduction
A general consensus exists among social scientists and the public at large that marriage provides substantial benefits to mental health. For many years, this conclusion was based on cross-sectional studies comparing the average mental health of the married to that of the unmarried at a single point in time. This research clearly showed that married individuals report lower average levels of depression, psychological distress, and psychiatric disorder, and higher levels of life satisfaction and subjective well-being (see Umberson & Williams, 1999 and Waite & Gallagher, 2000 for reviews) than the unmarried. The consistency and relatively large magnitude of observed differences, as well as their persistence across time and in numerous countries (Mastekaasa, 1994; Stack & Eshleman, 1998), led to the conclusion that marriage improves mental health for most people.
Research findings about marital status differences in mental health strongly resonate with cultural views about the individual and societal importance of marriage. Perhaps as a result, they are frequently heralded by the news media with headlines like “Stressed Out?
Social context defines not only the sources of stress, but also the social relationships within which stress is developed and mitigated. In addition to describing sources of stress and social support, the considerations of social context in Part II situate stress that accompanies social status (e.g., social class, gender, race, age) as well as role occupancy (e.g., spouse, worker). We begin with a review of the historical development of what is now referred to as the stress process model, originating with work of Leonard Pearlin. Aneshensel and Avison (2015) have provided an excellent overview of Pearlin's body of work, and Deborah Carr (2014) offers a very concise and readable overview of sociological research on stress in her book Worried Sick: How Stress Hurts Us and How to Bounce Back.
The sociological study of stress and social support has been dominant in mental health research since the 1960s. Thirty years of research has demonstrated a consistently positive relationship between life stress and psychological distress. In the 1970s, researchers modified the life stress model to take into account the important role that social support and other resources play in assisting individuals to cope with the stressful events in their lives. Intervening models, or coping theories, focus on how coping resources are mobilized after the stressful event, whereas distress-deterring models argue that coping resources (such as a supportive family) may actually reduce the likelihood of external stress occurring, or else can help alter the meaning of stress.
Because stress does not affect everyone the same way, researchers must also take into account vulnerability to stress. Vulnerability was originally conceived as a purely psychological concept; sociologists view it as a group concept as well. For example, membership in some social categories (minority status or gender) provides an individual with differential access to resources, as well as a different socialization experience which may structure one's reaction to both stress and illness, and consequently result in very different mental health experiences. Link and Phelan (1995) identify access to resources as a fundamental cause of disease because such access influences your exposure to various risk factors (for example, stress) and your ability to either avoid or cope with psychological distress.
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Part III
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Mental Health Systems and Policy: Introduction to Part III
By
Bongki Woo, Boston College,
Emily Walton, Assistant Professor, Dartmouth College,
David T. Takeuchi, Professor and Dorothy Book Scholar, Associate Dean for Research, Boston College
In this chapter, Woo, Walton, and Takeuchi examine and summarize some cultural issues in the treatment of racial and ethnic minorities with mental health problems. They review some key data on the use of mental health services by ethnic minorities including consideration of access to services, use of services, and service outcomes. Many geographic areas have been dramatically altered by the rising racial, ethnic, and cultural diversity of the United States, creating different and sometimes novel approaches to the prevention and treatment of mental health problems. The authors examine a range of efforts to address these needs at provider, agency, and community levels. They ask you to consider the following questions in reading the chapter. As a society, how broadly are we willing to recognize and respond to growing culturally diverse mental health needs? What efforts can be made to resolve the mental health disparities among racial and ethnic minorities?
The Changing Demographics of the United States
The US population has become increasingly racially, ethnically, and culturally diverse. At the turn of the twentieth century and continuing until the 1950s, racial and ethnic minority groups, primarily consisting of African Americans, represented approximately 10–12 percent of the adult population (US Census Bureau, 1975). The number of immigrants has grown since the US Immigration Act of 1965, which replaced the national origin quota system favoring prioritized and skilled labor needed by the economy and family unification (Gordon, 1998; Keely, 1971). Representing a radical departure from the population at the beginning of the 1990s, racial and ethnic minorities were projected to comprise 38 percent of the total population in the year of 2015 and to reach 56 percent in 2060: Hispanic white, 25 percent; black, 14 percent; American Indian and Alaska Native, 1 percent; Asian, 9 percent; Native Hawaiian and other Pacific Islander, 0.29 percent; two or more races, 6 percent (US Census Bureau, 2014a). Though there have been changes in the manner in which the US Census Bureau defined racial categories (e.g., the 2000 Census allowed respondents to choose more than one racial group and created a new racial category encompassing Native Hawaiian/Pacific Islander), the shift in the population characteristics encompasses a dramatic change in the US demography.
Although many disciplines study mental health, not every discipline thinks of mental health in the same way. This chapter considers how decisions regarding outcomes – that is, what scientists are trying to explain or, in quantitative studies, the dependent variable – affect conclusions regarding what we think causes mental illness. The chapter considers various axes along which outcomes are considered, focusing on three of the most prominent: categorical versus dimensional, symptoms versus syndromes, and functioning versus disorders. The chapter then reviews the consequences of decisions regarding these axes. Decisions regarding outcomes have important consequences, many of which are quite subtle. Yet decisions are often justified on an ad hoc basis and, indeed, there may be no objectively correct way to measure psychiatric disorders. To be sure, the natural sciences can reveal something about the true nature of mental illness, including research on genes that speaks to the boundaries between psychiatric disorders, but much of the emerging evidence in this regard fails to provide clear guidance. Long-standing controversies regarding outcomes are unlikely to be resolved anytime soon, but research will continue to study psychiatric disorders. In the end, what is the best way to conceptualize and measure mental health?
Introduction
A core aspect of the sociology of mental health is to understand the social and environmental determinants of mental illness. This distinguishes sociology from much of, say, psychology or genetics, where the emphasis is on influences internal to the individual. Many chapters in this handbook explore this focus, discussing research on the effects of, for example, social support, socioeconomic status, and life events. In this chapter, I want to take a step back and think about how decisions regarding what to explain – that is, decisions regarding the outcome or the dependent variable – influence conclusions about what causes it. In this way, this chapter attempts to bridge two strands of research: research on what constitutes mental illness – including, for example, research on the history of the Diagnostic and Statistical Manual of the American Psychiatric Association (DSM) or, more generally, research on medicalization – and research on the causes of mental illness. These two areas of study are rarely in dialog – most research on the causes of major depression, for example, accepts the DSM criteria for the disorder as given – but it is important to think about how the two intersect.
from
Part I
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Theoretical Perspectives on Mental Health and Illness: Introduction to Part I
By
Allan V. Horwitz, Board of Governors Professor of Sociology, Acting Director, Institute for Health, Health Care Policy and Aging Research, Rutgers University
Sociological approaches regard mental health and illness as aspects of social circumstances. One type of sociological study examines the sorts of social conditions that influence levels of mental health and illness such as negative life events, ongoing stressful circumstances, demanding social roles, levels of social support, and the strength of cultural systems of meaning. Another type of study focuses on how social and cultural influences shape the definitions of and responses to mental health problems. These kinds of studies show how key recent trends including the medicalization of a growing number of conditions, the increased use of prescription drugs to deal with mental health problems, and a greater willingness to identify emotional suffering as mental illnesses that require professional help, are transforming how modern societies deal with psychological problems. The sociological study of mental health and illness is both distinct from and complementary to more individualistic psychological and biological approaches to these topics. What would be an example of the difference between how a sociologist and a psychiatrist might view someone's mental health problems? What are the advantages and disadvantages of each approach? Some people think that using prescription drugs for mental health problems is a helpful way of responding to suffering while others emphasize the dangers involved in growing rates of prescription drug use. Which view do you think is best supported?
Introduction
Why do some people seem to be always cheerful while others are often sad? Most of us believe that our moods have to do with aspects of our personalities that make us more or less depressed, anxious, or exuberant. Others might think that temperaments result from biological factors such as our genes and neurochemicals. People usually also assume that therapies that change their states of mind are the natural response to mental problems. These treatments might involve psychotherapies that modify the way people view the world or drugs that alter their brain chemistry. Typical approaches to the nature, causes, and cures of various states of mind emphasize individual traits, temperaments, and behaviors.
Sociological approaches to psychological well-being are fundamentally different. Unlike psychological and biological perspectives that look at personal qualities and brain characteristics, sociologists focus on the impact of social circumstances on mental health and illness.
For the last 150 years in the United States, people who had been committed to psychiatric hospitals and treated against their will have championed the cause for social justice and the right of all persons to exercise self-determination and choice over their bodies and minds. These persons have mobilized political support for change through what is now called the mental health consumers/survivors movement. This chapter briefly reviews the early roots of that movement and then focuses on changes in its development and both its accomplishments and challenges faced in the modern period from about 1970 to 2015. It discusses how, despite differences within the movement, recovery has become a rallying theme, promoted by peer experts as well as non-consumer supporters. Why, then, are its decades of accomplishments and recovery agenda currently at risk of being dismantled by impending federal legislation?
Background
The mental health consumer/survivor movement is the modern expression of a 150-year-old social justice, human rights movement devoted to securing the rights and just treatment of persons identified as mentally ill. The movement was initially fueled by reformers in the mid 1800s wanting to improve services and treatments for the indigent insane; these reformers were calling for a person's right to treatment. A second impetus came from those seeking protection from incarceration and treatment against their will. It also had its early expression in the mid 1800s in the writings of women committed by their husbands, without due process, to asylums. These women and their legal backers were promoting the right to refuse treatment.
During the early 1800s persons involuntarily committed to asylums objected to “moral treatment” as an oppressive form of social control (Hubert, 2002). By the mid-century, as conditions changed, inmates objected instead to abusive treatment by asylum attendants and institutionalized “management” in oversized, impersonal, and inhumane settings. The restriction of human rights had its stark expression in differences in power between the committed and those who committed them – power defined by differences in gender, race, nationality, wealth, ideology, mental health status, and status in the family. Thus the mental health movement has been embedded from the start within deeper social and political struggles.