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7 - Effect on the families

Published online by Cambridge University Press:  06 July 2010

Janet Carr
Affiliation:
St George's Hospital Medical School, University of London
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Summary

Families are not static but constantly evolve as the members of it alter. Starting as a couple, most will then experience a profound change in the structure of their lives with the birth of their first baby; further changes take place with the arrival of other children, and with their development from babyhood to childhood to adolescence, each new stage necessitating shifts in the roles, responsibilities and concerns of each family member and, pre-eminently, in those of the parents. These stages are followed by those in which the ‘children’ become adults and move away from the family home, perhaps to start families of their own. The parents are left to some extent bereft, but they also have the chance, perhaps for the first time in 20 years or so, of consulting their own wishes and following their own preferred pursuits, rather than these being as a rule subordinated to those of the family. All these stages have their advantages and drawbacks – the child who grows beyond the stage of needing to be fed and dressed and bathed now wants a bicycle, worse still wants to ride it on the roads, with all the gut-wrenching anxiety that this entails – but they are seen as the normal progression, observed in and discussed with other families all around. When a child has a disability this normal ‘life-cycle’ (Farber 1959) is interrupted; the stages are not reached at the usual times, some may never be reached at all.

Type
Chapter
Information
Down's Syndrome
Children Growing Up
, pp. 119 - 149
Publisher: Cambridge University Press
Print publication year: 1995

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  • Effect on the families
  • Janet Carr, St George's Hospital Medical School, University of London
  • Book: Down's Syndrome
  • Online publication: 06 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511581779.007
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  • Effect on the families
  • Janet Carr, St George's Hospital Medical School, University of London
  • Book: Down's Syndrome
  • Online publication: 06 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511581779.007
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • Effect on the families
  • Janet Carr, St George's Hospital Medical School, University of London
  • Book: Down's Syndrome
  • Online publication: 06 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511581779.007
Available formats
×