Hostname: page-component-8448b6f56d-c47g7 Total loading time: 0 Render date: 2024-04-23T13:43:54.661Z Has data issue: false hasContentIssue false

HOW TO ALLOCATE SCARCE HEALTH RESOURCES WITHOUT DISCRIMINATING AGAINST PEOPLE WITH DISABILITIES

Published online by Cambridge University Press:  23 November 2016

Tyler M. John
Affiliation:
Clinical Center Department of Bioethics, Building 10 Room 1C118, Bethesda, MD 20892, USA. Email: tyler.john@rutgers.edu.
Joseph Millum
Affiliation:
Clinical Center Department of Bioethics and Fogarty International Center, Building 10 Room 1C118, Bethesda, MD 20892, USA. Email: joseph.millum@nih.gov. URL: http://www.bioethics.nih.gov/people/millum-bio.shtml
David Wasserman
Affiliation:
Clinical Center Department of Bioethics, Building 10 Room 1C118, Bethesda, MD 20892, USA. Email: david.wasserman@nih.gov. URL: http://www.bioethics.nih.gov/people/wasserman-bio.shtml

Abstract:

One widely used method for allocating health care resources involves the use of cost-effectiveness analysis (CEA) to rank treatments in terms of quality-adjusted life-years (QALYs) gained. CEA has been criticized for discriminating against people with disabilities by valuing their lives less than those of non-disabled people. Avoiding discrimination seems to lead to the 'QALY trap': we cannot value saving lives equally and still value raising quality of life. This paper reviews existing responses to the QALY trap and argues that all are problematic. Instead, we argue that adopting a moderate form of prioritarianism avoids the QALY trap and disability discrimination.

Type
Articles
Creative Commons
This is a work of the U.S. Government and is not subject to copyright protection in the United States.
Copyright
Copyright © Cambridge University Press 2016

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

REFERENCES

Albrecht, G. L. and Devlieger, P. J.. 1999. The disability paradox: high quality of life against all odds. Social Science and Medicine 48: 977988.Google Scholar
Arrow, K. J. 1963. Social Choice and Individual Values (2nd edn). New Haven, CT: Yale University Press.Google Scholar
Barnes, E. 2009. Disability, minority, and difference. Journal of Applied Philosophy 26: 337355.Google Scholar
Barnes, E. 2014. Valuing disability, causing disability. Ethics 125: 88113.CrossRefGoogle Scholar
Beckstead, N. 2013. On the Overwhelming Importance of Shaping the Far Future (Dissertation).Google Scholar
Beckstead, N. and Ord, T.. 2013. Rationing and rationality: the cost of avoiding discrimination. In Inequalities in Health: Concepts, Measures, and Ethics, ed. Eyal, N., Hurst, S., Norheim, O. and Wikler, D., 232239. Oxford: Oxford University Press.Google Scholar
Bognar, G. 2010. Does cost effectiveness analysis unfairly discriminate against people with disabilities? Journal of Applied Philosophy 27: 394408.Google Scholar
Brazier, J. 2005. Evaluating the 'disability paradox' in conjunction with resource allocation. Virtual Mentor 7.Google Scholar
Brock, D. 2006. Ethical issues in the use of cost effectiveness analysis for the prioritization of health care resources. In Public Health, Ethics, and Equity, ed. Anand, S., Peter, F. & Sen, A., 201224. Oxford: Oxford University Press.Google Scholar
Brock, D. 2009. Cost-effectiveness and disability discrimination. Economics and Philosophy 25: 2747.CrossRefGoogle Scholar
Broome, J. 1990. Rationality and the sure-thing principle. In Thoughtful Economic Man, ed. Meeks, G., 74102. Cambridge: Cambridge University Press.Google Scholar
Broome, J. 1991. Weighing Goods: Equality, Uncertainty and Time. Oxford: Blackwell.Google Scholar
Broome, J. 2002. Measuring the burden of disease by aggregating well-being. In Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications, ed. Murray, C. J., Salomon, J. A., Mathers, C. and Lopez, A. D., 91113. Geneva: World Health Organization.Google Scholar
Broome, J. 2004. Weighing Lives. Oxford: Oxford University Press.Google Scholar
Buchak, L. 2013. Risk and Rationality. Oxford: Oxford University Press.Google Scholar
Dorsey, D. 2009. Headaches, lives and value. Utilitas 21: 3758.Google Scholar
Fleurbaey, M., Tungoddena, B. and Vallentyne, P.. 2009. On the possibility of nonaggregative priority for the worst off. Social Philosophy and Policy 26: 258285.CrossRefGoogle Scholar
Gustafsson, J. E. 2010. A money-pump for acyclic intransitive preferences. Dialectica 64: 251257.Google Scholar
Harris, J. 1987. QALYfying the value of life. Journal of Medical Ethics 13: 117123.Google Scholar
Harris, J. 1995. Double jeopardy and the veil of ignorance: a reply. Journal of Medical Ethics 21: 151157.CrossRefGoogle ScholarPubMed
Harsanyi, J. 1975. Nonlinear social welfare functions. Theory and Decision 6: 311332.CrossRefGoogle Scholar
Johri, M. and Norheim, O. F.. 2012. Can cost-effectiveness analysis integrate concerns for equity? Systematic review. International Journal of Technology Assessment in Health Care 28: 125132.CrossRefGoogle ScholarPubMed
Kamm, F. 2009. Aggregation, allocation of scarce resources, and the disabled. Social Philosophy and Policy 26: 148197.Google Scholar
Kamm, F. 2013. Bioethical Prescriptions. Oxford: Oxford University Press.CrossRefGoogle Scholar
Lin, M.R., Hwang, H. F., Chung, K. P., Huang, C. and Chen, C. Y.. 2006. Rating scale, standard gamble, and time trade-off for people with traumatic spinal cord injuries. Physical Therapy 86: 337344.Google Scholar
Marinić, M. and Brkljačić, T.. 2008. Love over gold – the correlation of happiness level with some life satisfaction factors between persons with and without physical disability. Journal of Developmental and Physical Disabilities 20: 527540.Google Scholar
National Institute of Health and Clinical Excellence. 2005. Social Value Judgements: Principles for the Development of NICE Guidance. London: NICE.Google Scholar
Norcross, A. 1997. Trading lives for convenience: it's not just for consequentialists. Southwest Philosophical Review 13: 2937.Google Scholar
Norcross, A. 1998a. Great harms from small benefits grow: how death can be outweighed by headaches. Analysis 58: 152158.Google Scholar
Norcross, A. 1998b. Speed limits, human lives, and convenience: a reply to ridge. Philosophy and Public Affairs 27: 5964.Google Scholar
Norcross, A. 1999. Comparing harms: headaches and human lives. Philosophy and Public Affairs 26: 135167.CrossRefGoogle Scholar
Nord, E., Daniels, N. and Kamlet, M.. 2009. QALYs: some challenges. Value in Health 12: S10–S15.CrossRefGoogle ScholarPubMed
Ottersen, T., Førde, R., Kakad, M., Kjellevold, A., Melberg, H. O., Moen, A., Ringard, A. and Norheim, O. F.. 2016. A new proposal for priority setting in Norway: open and fair. Health Policy 120: 246251.Google Scholar
Peeters, Y., Smith, D. M., Loewenstein, G. and Ubel, P. A.. 2012. After adversity strikes: predictions, recollections and reality among people experiencing the onset of adverse circumstances. Journal of Happiness Studies 13: 589600.CrossRefGoogle Scholar
Quigley, M. and Harris, J.. 2008. Personal or public health. In International Public Health and Ethics, ed. Boylan, M., 1530. New York, NY: Springer Science + Business Media B.V.CrossRefGoogle Scholar
Rawls, J. 1971. A Theory of Justice. Cambridge, MA: Harvard University Press.Google Scholar
Sharp, D. and Millum, J.. 2015. Prioritarianism for global health investments: identifying the worst off. Journal of Applied Philosophy. doi: 10.1111/japp.12142.Google Scholar
Singer, P. 1993. Practical Ethics (2nd edn). Cambridge: Cambridge University Press.Google Scholar
Singer, P., McKie, J., Kuhse, H. and Richardson, J.. 1995. Double jeopardy and the use of QALYs in health care allocation. Journal of Medical Ethics 21: 144150.Google Scholar
Temkin, L. 1987. Intransitivity and the mere addition paradox. Philosophy and Public Affairs 16: 138187.Google Scholar
Temkin, L. 1993. Inequality. Oxford: Oxford University Press.Google Scholar
Temkin, L. 1996. A continuum argument for intransitivity. Philosophy and Public Affairs 25: 175210.Google Scholar
Temkin, L. 2012. Rethinking the Good. Oxford: Oxford University Press.Google Scholar
Ubel, P. A., Richardson, J. and Prades, J. P.. 1999. Life-saving treatments and disabilities: are all QALYs created equal? International Journal of Technology Assessment in Health Care 15: 738748.Google Scholar
Ubel, P. A., Nord, E., Gold, M., Menzel, P., Prades, J. L. and Richardson, J.. 2000. Improving value measurement in cost-effectiveness analysis. Medical Care 38: 892901.Google Scholar
Ubel, P. A., Loewenstein, G., Schwarz, N. and Smith, D.. 2005. Misimagining the unimaginable: the disability paradox and health care decision making. Health Psychology 24: S57–62.CrossRefGoogle ScholarPubMed
Voorhoeve, A. 2014. How should we aggregate competing claims? Ethics 125: 6487.Google Scholar
Voorhoeve, A. and Fleurbaey, M.. 2016. Priority or equality for possible people? Ethics 126: 929954.Google Scholar
Wolff, J. and de-Shalit, A.. 2007. Disadvantage. Oxford: Oxford University Press.Google Scholar