5.1 Introduction
While it is accepted that individuals diagnosed with neurological impairments such as dementia have less reliable access to the same communicative and cognitive resources as individuals who are not living with dementia, it has also been recognized that “deviation from what is normal does not necessarily equate with failure or communicative ineffectiveness” (Perkins et al., Reference Perkins, Whitworth and Lesser1998: 37). Accordingly, naturalistic discourse and conversation analytic studies examining the interactional achievements of individuals diagnosed with dementia have been increasingly of interest: Documenting the embodied and situated nature of collaborative human action has offered insights not only about disease-related deficits but also preserved competencies and emerging strategies individuals develop in the face of challenges they likely did not experience before disease onset (see Dooley et al., Reference Dooley, Bailey and McCabe2015; Kindell et al., Reference Kindell, Keady, Sage and Wilkinson2017).
Using Conversation Analysis (CA), supplemented with ethnographic data, this chapter examines a single discourse practice – the use of the phrase “now what” – recurrently employed by an individual with the pseudonym Robert (age 63) who was diagnosed with behavioral variant frontotemporal dementia (bvFTD). As Majlesi and Ekström (Reference Majlesi and Ekström2016) discuss, when a practice produced by one individual is examined in its situated context, it becomes evident that the practice is not simply produced by a single individual but also arises from the context itself. That is, one’s abilities are not only “dependent on individual resources, but contingent on contextual properties” (p. 39). While “now what” is certainly not produced in a vacuum, its recurrent use helps illuminate challenges Robert is facing that are likely dementia-related (though with the data drawn upon, one cannot know this with certainty). Indeed, his use of “now what” seems to be compensatory, assisting him in navigating around particular kinds of cognitive and communicative difficulties. Moreover, the situated and sequentially sensitive examination of “now what” that CA affords allows one to more readily grasp the analytic difficulty of identifying a practice like “now what” as indicative of either “deficit” or “skill,” and I will consider how Robert’s use of “now what” is essentially a marker of both.
5.2 Recruiting Assistance from Others: “Atypical” Practices as Compensatory
The larger study from which these data stem followed five families, each with a member diagnosed with bvFTD. Across the data, the phrase “now what” is recurrently observed only in the interactions involving Robert and thus appears to be idiosyncratic to him. I investigated this particular usage because I was interested in discursive practices individuals systematically employed to navigate various challenges that they regularly confront. “Now what” appears to be a compensatory practice that enables Robert to actively draw on his collaborators as resources to participate appropriately in tasks and activities. As Kendrick and Drew (Reference Kendrick and Drew2016) discuss, recruiting others to help resolve troubles is ubiquitous in human interaction and interlocutors deploy both linguistic and embodied practices to achieve this, from direct requests to “subsidiary actions” that “publicly expose troubles and thereby create opportunities for others to assist” (p. 1). For Robert, such a wide array of recruitment resources may not consistently and readily be available, but “now what” effectively calls on his collaborators to identify and articulate the next step of an activity for which Robert requires clarification, and this collaborative assistance often comes in the form of directives. Thus, “now what” provides a powerful resource for Robert to navigate difficulties that likely reflect executive cognitive limitations associated with frontal lobe functioning (Alvarez & Emory, Reference Alvarez and Emory2006; Torralva et al., Reference Torralva, Roca, Gleichgerrcht, Bekinschtein and Manes2009; see also Mikesell, Reference Mikesell, Schrauf and Müller2014) so that he can more appropriately contribute to daily tasks.
A growing body of work explores how collaboration and coordination are achieved to carry out joint activities that involve individuals living with dementia (Hydén, Reference Hydén2014; Majlesi & Ekström, Reference Majlesi and Ekström2016; Mikesell, Reference Mikesell2016). Collectively, this work shows the importance of collaborator-initiated instructions to direct the engagement of the individual diagnosed with dementia for the achievement of everyday activities. However, individuals living with dementia are not entirely dependent on others; they also actively draw on the sequential organization of activities and other resources to competently participate (Majlesi & Ekström, Reference Majlesi and Ekström2016). This chapter contributes to this body of work that examines coordinated engagement involving individuals living with dementia by showing how Robert strategically makes use of the phrase “now what” to solicit instruction from his collaborators.
Identifying how Robert uses “now what” to recruit assistance provides a lens with which to consider preserved competencies as well as disease-related deficits. His reliance on “now what” to do the work of recruiting assistance shows his resourcefulness in managing his participation and ability to recognize that his participation is required, while also revealing the broader sociocognitive challenges “now what” addresses, namely that he is not always able to identify the required steps to navigate multi-step activities (see Mikesell, Reference Mikesell, Schrauf and Müller2014). To afford a better lens on the compensatory nature of “now what,” I tracked its use over a year as Robert’s dementia progressed. Initially, Robert deploys a range of recruitment practices to solicit help from others. However, over time he more regularly makes use of “now what,” a presumably more readily available linguistic resource, to solicit help when facing trouble. Although over time “now what” maintains this function of recruiting others to help navigate well-defined tasks, Robert also begins to employ this same resource to navigate non-task-based activities, showing how this compensatory strategy extends in usage as he faces new challenges that he may lack resources to effectively address. Overall, as “now what” is extended to non-task-based contexts, its interactional import appears less well-suited to these moments, and it is often less effective at recruiting assistance from interlocutors who tend not to respond to “now what” when it is employed in such sequences.
In sum, this chapter details the sequential contexts in which “now what” is employed to explore the challenges that Robert works to navigate and consider how “now what” affords Robert a resource to actively participate. Additionally, a longitudinal view of this practice shows how its use varies over time as Robert’s disease progresses and as his situational and activity contexts change. I show how this practice serves as a resource, assisting Robert in discursively managing evolving challenges (many of which appear to be dementia-related), and may also serve as a potential observable marker of his disease progression. This idiosyncratic use of “now what” reveals Robert’s capacity to recognize when and in what ways he requires help and also reflects a certain level of impairment, suggesting that a dichotomous framing of atypical behavior – as either a deficit or skill, as either functional or nonsensical – may be an oversimplified approach.
5.3 Behavioral Variant Frontotemporal Dementia: Naturalistic and Longitudinal Explorations
The young onset (<65 years) neurodegenerative disorder bvFTD targets the frontal and/or temporal lobes and is characterized by changes in personality and social and emotional behavior (Mendez et al., Reference Mendez, Fong, Shapira, Jimenez, Kaiser, Kremen and Tsai2014) including interpersonal and personal conduct (Kipps et al., Reference Kipps, Knibb, Hodges and Hobbs2007). Presenting clinical features include social disengagement, disinhibition, apathy, compulsive behaviors, and loss of social tact and social emotions for others (Desmarais et al., Reference Desmarais, Lanctot, Masellis, Black and Herrmann2018; Roscovsky et al., Reference Roscovsky, Hodges and Knopman2011; Shany-Ur & Rankin, Reference Shany-Ur and Rankin2011). Because “loss of insight” is also common to bvFTD (O’Keefe et al., Reference O’Keefe, Murray, Coen, Dockree, Bellgrove, Garavan, Lynch and Robertson2007), much of what is known about sociobehavioral changes associated with bvFTD stems from second-hand reports of caregivers, which may highlight especially problematic experiences and gloss behaviors at a gross level (Mikesell, Reference Mikesell, Mates, Mikesell and Smith2010a), and from structured assessments in clinic settings, which “may omit, minimize, control or overlook typical bvFTD behaviors” (Mendez et al., Reference Mendez, Fong, Shapira, Jimenez, Kaiser, Kremen and Tsai2014: 219). As such, “the natural course of bvFTD is less well known” than for other dementias such as Alzheimer’s disease (Diehl-Schmid et al., Reference Diehl-Schmid, Bornschein, Pohl, Förstl, Jurz and Jahn2011: 231). As a result, there have been efforts to explore sociobehavioral changes in bvFTD from naturalistic vantage points including ethnographic observations, real-time behavioral coding, and discourse and conversation analysis (see Barsuglia et al., Reference Barsuglia, Nedjat-Haiem, Shapira, Valasco, Jimenez, Mather and Mendez2014; Guendouzi & Müller, Reference Guendouzi and Müller2006; Mates et al., Reference Mates, Mikesell and Smith2010; Mendez et al., Reference Mendez, Fong, Shapira, Jimenez, Kaiser, Kremen and Tsai2014).
Barsuglia et al. (Reference Barsuglia, Nedjat-Haiem, Shapira, Valasco, Jimenez, Mather and Mendez2014), for instance, developed a coding system of naturalistic bvFTD behaviors as observed by researchers during ordinary activities. From transcribed fieldnotes, three “social themes” were identified: (1) diminished relational interest, (2) lack of social synchrony/intersubjectivity (for establishing/maintaining relationships),Footnote 1 and (3) poor awareness and adherence to social norms. The authors concluded that these themes, which categorize deficits, correspond to caregiver reports and formalized behavioral scales, arguing that this observational work validates the diagnostic criteria of bvFTD, which have been previously questioned (Roscovsky et al., Reference Roscovsky, Hodges and Knopman2011). These three thematic categories, however, constitute broader abstractions of the moment-by-moment behaviors and practices that field researchers observed and thus potentially capture quite diverse sorts of social and communicative behaviors that were categorized as qualitatively similar. Coding social behaviors at such a “thematic” level may wash out the interactional achievement or function of the observed behaviors.
Complementing these efforts are video-based studies using discourse and conversation analytic approaches. Such studies provide contextualized analyses of discrete interactional practices that illustrate the difficulty of identifying a single interactional practice or behavior as either a deficit or skill (see Mikesell, Reference Mikesell2016, Reference Mikesell, Wilkinson, Rae and Rasmussen2020; Mikesell & Bromley, Reference Mikesell, Bromley, O’Reilly and Lester2016). For instance, Mikesell (Reference Mikesell2010b) examined repetitional responses of two individuals diagnosed with bvFTD, finding that these responses were not echolalic in form (a previous diagnostic criterion; Neary et al., Reference Neary, Snowden, Gustafson, Passant, Stuff and Black1998) and were systematically employed, similar to neurotypicals (Stivers, Reference Stivers2005), to communicate resistance to caregivers’ infantile directives concerning everyday functioning (e.g., directives to take pills with liquid). Importantly, however, these forms were also employed when diagnosed individuals were demonstrably not engaged in the normative practices for carrying out tasks (e.g., putting a pill in one’s mouth without any liquid), showing that caregivers’ “infantile” directives were responsive to how the individual in their care engaged in everyday tasks that they were carefully monitoring. A CA-informed approach thus demonstrated how these forms were not random or nonsensical (which is how echolalia is defined); they were systematically employed to counter assumptions about one’s lack of capacity. However, these forms simultaneously pointed to possible challenges individuals had in recognizing their own shortcomings in managing daily tasks.
There is also developing interest in longitudinal work to document disease progression. Much of this work utilizes formal assessment measures of cognitive behavior. For instance, Diehl et al. (Reference Diehl-Schmid, Bornschein, Pohl, Förstl, Jurz and Jahn2011) examined cognitive decline measured by the CERAD-NAB over a 13-month period and found that cognitive changes in a homogenously defined group of patients were “very heterogeneous” (p. 230) and progressed non-linearly over time (see Diehl et al., Reference Diehl-Schmid, Monsch, Aebi, Wagenpfeil, Krapp, Grimmer, Seeley, Förstl and Kurz2005). This heterogeneity was also demonstrated in changes in behavior. While the authors acknowledge that this might in part be due to the small sample size, they concluded that these findings likely reflect that bvFTD is “very heterogeneous regarding symptom profile and disease course” (Diehl et al., Reference Diehl-Schmid, Bornschein, Pohl, Förstl, Jurz and Jahn2011: 235), another reason why case studies may be particularly useful.
Longitudinal case studies, such as the one presented here, are of course limited in scope and generalizability; nevertheless, they provide a window into the natural course of bvFTD. Such work may provide insights about how social engagement and interactional practices progress over time and how families navigate them. Additionally, using CA to carefully examine the sequentially situated, moment-by-moment production of social practices and behaviors provides a nuanced lens into the functionality of a particular practice, and thus allows us to see how it may both constitute a dementia-related challenge and simultaneously demonstrate an individual’s skill and resourcefulness. Although researchers are often quick to identify behaviors as problematic, the fact that a single practice can demonstrate both deficit and skill suggests that we need to be especially careful in how we label and categorize, a process to which CA can significantly contribute.
5.4 Methods
The video data stem from an ethnographic study of five families whose length of participation ranged from between three months and two years. The data include ethnographic observations with corresponding fieldnotes from five researchers and video recordings of everyday events including mealtimes, common routines such as running errands, and a range of activities. Field researchers wrote down brief, bulleted observations during visits when feasible, which they elaborated into fieldnotes immediately after visits to share with the research team. Fieldnotes often described activities and interactions from the vantage point of the researcher, detailed the personal and emotional perspective of the researcher, identified observed challenges families and individuals faced and how they navigated these challenges, and often included references to common understandings of bvFTD as described in the literature.
As mentioned, this chapter focuses on Robert (age 63) who was diagnosed with bvFTD approximately two years prior to the collection of the data. Robert and his wife, Juliet, participated in the study for one year (November 20, 2006 until November 30, 2007) before they moved across country to be near family. The same researcher (identified as “ET” in the transcripts) regularly visited Robert and Juliet throughout the year and then again in March 2008 after their move. The study was approved by University of California, Los Angeles IRB.
This chapter draws heavily on CA to analyze Robert’s in situ uses of “now what.” CA provides a discursive lens with which to analyze both the composition of Robert’s “now what”, such as how its semantic meaning and turn design may contribute to its functional deployment in a particular activity or conversational turn, as well as its sequential positioning, that is, what “now what” is produced in response to and how it, in turn, is responded to. Recognizing the broader activity and sequential positioning is important for understanding what this (or any) practice achieves interactionally. Only by coming to terms with a practice’s interactional achievement can we begin to understand what the recurring use of a phrase like “now what” demonstrates about Robert’s interactional competencies and what it might reveal about the emerging difficulties Robert may be confronting (Erickson & Schultz, Reference Erickson, Schultz, Cole, Engeström and Vasquez1997). In addition to CA, I occasionally draw on ethnographic fieldnotes to complement the interactional analysis by reporting what the field researcher observed or experienced that helps contextualize Robert’s challenges and how they were perceived.
5.5 Findings: The Evolving Interactional Work of “Now What”
I tracked Robert’s use of “now what” from the first 62 minutes (the length of one tape) of video-recorded interactions from eight visits taking place between November 2006 and November 2007Footnote 2 (Table 5.1). The eight visits were selected to provide a window into the family’s interactions in roughly equal intervals of time covering ET’s second visit through her nineteenth visit. Perfect equal time intervals were not always possible; for example, there were no visits made in April, June, or July 2007.
Table 5.1 Frequency of “now what” across eight 62-minute intervals
| Visit# | 2 | 7 | 10 | 13Footnote 1 | 14 | 163 | 17 | 19 |
|---|---|---|---|---|---|---|---|---|
| Date | 21 Nov. 2006 | 17 Jan. 2007 | 15 Feb. 2007 | 15 Mar. 2007 | 4 May 2007 | 22 Aug. 2007 | 6 Sept. 2007 | 30 Nov. 2007 |
| Uses | 0 | 1 | 6 | 0 | 5 | 0 | 5 | 0 |
Activity Contexts | Rob making breakfast; seeks assistance | Running errands; Waiting in line at pharmacy to pay | Juliet reprimanding Rob; Rob making lunch with ET | Rob & ET watching TV | Setting table for dinner | Rob & ET watching TV | Making lunch | Conversation between ET and Juliet; Rob is co-present |
1 During Visits 13 and 16 Robert was not involved in any recorded activities and rarely engaged in conversation. He spent most of the hour watching television.
Table 5.1 presents the larger activity contexts of those first 62 minutes of recorded interactions, which included preparing meals, a minor conflict between Juliet and Robert, purchasing items at the pharmacy, and watching television. The table also includes the number of times Robert produced “now what” during those interactions. The data analysis that follows presents the excerpts in temporal sequence (i.e., in the time order in which they occurred).
As mentioned, Robert’s practices for soliciting assistance and his use of “now what” evolve over time. During early visits, Robert seeks assistance to complete tasks, but he notably does not draw on “now what” to solicit help, as he does in later visits. Rather, he verbalizes specific requests for help or describes the problem he is facing (e.g., Extract 1, line 1). Over time his use of direct requests and problem descriptions to solicit assistance diminishes, and in later visits he employs “now what” to achieve similar interactional work. Initially, Robert employs “now what” to elicit verbal assistance from his interlocutor in the form of instructions when he is asked to accomplish specific, well-defined tasks. As an interactional resource, “now what” thus draws on a basic positional “device” of natural interaction that CA has described in some detail: the workings of adjacency pairs (Schegloff Reference Schegloff2007; Schegloff & Sacks Reference Schegloff and Sacks1973). Paired actions are a fundamental organizational unit of natural interaction whereby an interlocutor launches an initiating action – a first-pair part (FPP) – and the receiver provides a responsive action – a second-pair part (SPP). “Now what” provides Robert a readily available and “generic” FPP that creates a sequential context that makes conditionally relevant (Schegloff Reference Schegloff1968) an SPP that provides the subsequent required step that a current activity requires.
Over time, Robert’s use of “now what” continues to evolve, as he extends its use not only to when he is facing challenges completing the next steps of an activity, but also to situations in which he faces interactional difficulty outside of well-defined tasks, such as when he is reprimanded by his wife (e.g., Extract 4). Later in the year, his productions of “now what” extend even further when they are not obviously directed to a particular interlocutor but come off as self-talk and occur in moments of seeming frustration or restlessness. Thus, throughout the year Robert consistently draws on “now what” to recruit assistance, but his later uses extend to non-task-based activities that seem less well-fitted to the interactional contexts in which they are produced.
5.5.1 Visit 2: November 21, 2006: Describing a Problem to Recruit Assistance during a Routine Activity
Extract 1 occurs early in the year and shows how Robert handles a problem he encounters when making breakfast (a routine activity) and how he recruits assistance to solve it. Here, he solicits assistance by describing the problem he is facing to his collaborator (ET) when he cannot find the colander for the blueberries. Before Extract 1, Juliet tasks Robert with making breakfast with ET’s help so she can finish some work. Juliet tells him to “try to follow what she (ET) says,” displaying her understanding that Robert is likely to need guidance (not shown). Robert begins preparing fruit and quickly runs into a problem when he cannot find the colander. After searching for it, he eventually solicits help from ET by describing the problem he is facing (line 1) – “I don’ see the thing for the blueberries.”
Extract 1 – RO=Robert; ET=researcher
01 RO: I don’ see the thing for the blueberries. 02 ro (9.1) looking in cupboards 03 ET: No blueberries? 04 ro (5.2) opens fridge, gets blueberries 05 RO: .hh No(h) (I) got blueberries. 06 (2.6) 07 ET: (But) I don’t (.) see the thing for them. 08 RO: What’s the thing for them look like. 09 (0.4) 10 RO: It’s the) red thing. 11 (3.2) 12 ro clears throat 13 (2.7) 14 RO: (I-/W’l) 15 (0.4) 16 RO: (I) don’ see it. 17 ro looking in cupboards; pacing kitchen
Although Robert’s problem description contains an imprecise referent – he refers to the colander as “the thing” – his FPP makes evident that he has identified a specific obstacle to completing the activity. After observing Robert search the cupboards (line 2), ET works to clarify the problem (lines 3–10). ET’s “no blueberries?” may be hearable as repair on his problem description. Robert responds by retrieving the blueberries from the refrigerator (line 4), thereby demonstrating to ET that this is not the problem he is facing. He also rejects the implication in ET’s turn that there might not be blueberries (with turn-initial “no”) and verbally confirms that he has them. He then repeats the description of the problem (line 7), retaining the vague referent – “thing” – for the colander that he cannot locate. ET works to clarify what “thing” means (line 8), which Robert describes a bit more precisely as “the red thing.” As a newcomer to the home without shared knowledge, ET is unable to offer adequate assistance and Robert eventually seeks assistance from Juliet, which he does in much the same way, by describing to Juliet the problem he is facing (“I can’t find the thing for the blueberries”).
During these early visits, when Robert is tasked with a routine activity, he independently identifies the appropriate steps. That is, he does not seek assistance or need to be told what items are required or what order the steps should follow (compare Extract 3). When he does run into trouble, Robert troubleshoots first on his own, working to resolve the problem. For instance, in Extract 1 he searches the cupboards, and when his efforts are unsuccessful, he solicits help by identifying the nature of the trouble he has run into, in this case by describing the problem to his collaborator. Although he demonstrates difficulty clarifying what the “thing” is that he cannot find, he shows resourcefulness in problem solving, recruiting assistance, and working to repair misunderstanding.
5.5.2 Visit 7: January 17, 2007: Using “Now What” to Seek Clarification about a Nonroutine Task
The following extract takes place about two months later and constitutes the first observed use of “now what” to solicit assistance. Here, “now what” seems to be employed to help orient to the purpose of a vaguely defined and nonroutinized task that Juliet has instructed him to do – “stand there” – while they are in the pharmacy picking up prescriptions.
Extract 2 – RO=Robert; JU=Juliet
01 JU: Can you stand there? I’m gonna sit for a moment. 02 ju sighs, sits down 03 ro (0.9) standing in line; turns to look at JU 04 RO: Now what. 05 (1.6) 06 JU: Just wait our tu:rn. 07 ro returns to facing front 08 JU: We’re waiting our turn. 09 (3.2) 10 RO: (You) wan’ me to use the credit card? 11 ro (0.5) wallet is in hand 12 JU: Yeah. 13 ro opens wallet 14 JU: [>Ya don’ need to bring it out yet,<Rob=
As Robert and Juliet approach the line to pay, Juliet asks Robert to stand in line so she can sit in a nearby chair (line 1). After standing in line for nearly a second (line 3), Robert turns to Juliet and asks “now what” (line 4), an FPP that provides the sequential context for Juliet to articulate the (next) action he is to attend to. Juliet responds by directing him to “just wait our tu:rn.” (line 6) and then draws on the present progressive tense to orient him to the immediate task at hand, suggesting that this is what he should be attending to for now: “we’re waiting our turn” (line 8). This first observed use of “now what” thus allows Robert to point to a possible problem orienting to the current activity and also works to solicit a response from Juliet that provides clarification about the nature of the task he is engaged in.
Notably waiting in line is not an activity that Robert is often asked to perform and it is in a context outside of the home, which may be less familiar or routinized. Juliet asks him to stand, perhaps the simplest task Robert is charged with in the eight hours of data examined. It is also a task without a clearly defined next step or endpoint. Robert’s “now what” may thus orient, not to the complexity or multi-step nature of the task, but to its vagueness or indefiniteness. While in Extract 1 Robert’s description of the trouble demonstrates his ability to independently identify the next steps required of a larger activity and solicit help in accomplishing this next step, here his use of “now what” seems to orient to a less precise understanding of the activity he is to be completing and serves as a resource to solicit specific instructions to resolve his uncertainty. Once Juliet orients him to the task he is attending to – “waiting our turn” (line 8) – he demonstrates both understanding of the larger project that standing/waiting in line is in service to and his ability to identify a likely next step to accomplish that larger project when he asks Juliet if she wants him to use the credit card (line 10) (see Mikesell, Reference Mikesell2016).
5.5.3 Visit 10: February 15, 2007: Using “Now What” to Solicit Direct Instructions during a Routine Activity
Robert’s use of “now what” becomes more commonplace over the next couple of months. In ET’s fieldnotes, she first mentions Robert’s use of “now what” after her eighth visit (January 24, 2007), three weeks before Extract 3 (Visit 10; February 15, 2007), when she writes: “Robert was always asking this question. He kept wanting to know what was next.” During Visit 10, Robert employs “now what” six times in one hour. Both the increasing frequency of use and the sequential contexts in which “now what” is used suggest that he may be facing more difficulty independently accomplishing even routine activities. Additionally, while the first observed use of “now what” (shown in Extract 2) seemed to function as a generic request for clarification when the task was vague or unclear, in Extract 3 “now what” works to elicit specific instructions from interlocutors that precisely explicate the next steps of a multi-step activity that he seems unable to identify on his own. In other words, his use of “now what” similarly recruits others to provide assistance, but that assistance now takes the form of precisely articulating his required next actions so that he can perform them. Here, he is tasked with making sandwiches for lunch, and, after yelling to Juliet who is on the phone in another room, ET offers her help and directs him to complete the first step to make the sandwich. Following this sequence, Robert produces “now what,” which prompts ET to produce a series of directives, one following the other, to guide Robert through the activity.
((Juliet asks ET to help Robert make sandwiches)) Extract 3 – RO=Robert; JU=Juliet; ET=researcher
01 JU: Can you sorta guide him on it, because I often. 02 have to guide him on it 03 ju answers phone 04 ET: Yea yea. 05 lines omitted; JU in office 06 RO: Ju::les! 07 ET: W- what kinda help do you nee:d. 08 ? ( ) 09 RO: I need- I need her help. 10 ET: W’l she’s busy right now.<Can I help?<I think (that looks) 11 |(0.5) 12 ro |inspecting sandwich 13 ET: Okay, you can have one mo:re. (referring to lunch meat) 14 ro puts lunch meat on sandwich 15 ET: Good. 16 RO: Now what. 17 ET: How ‘bout some lettuce and tomata. 18 ((lines omitted; RO gets lettuce and tomato; 19 ET and RO take sandwich to JU who asks for 20 less tomato, more lettuce, and fruit)) 21 ET: °Okay let’s put that on the plate over the:re. 22 RO: Okay. 23 et follows RO as he walks across kitchen; leans 24 over to watch RO plate tomatoes 25 et steps back 26 ET: Okay. An’ then- an’ then what e- what else did 27 she want=did she want b- lettuce? 28 RO: Uh (0.2) I don’ know. 29 ET: She wanted one more big piece of lettuce so 30 give her another piece of lettuce. 31 et steps back, watches RO get more lettuce 32 ro (9.0) puts lettuce on sandwich 33 ET: °What ‘bout for the other side? 34 ro (gets more lettuce 35 RO: Oh uh: ( ) 36 (3.2) 37 ET: Okay, 38 RO: Now what. 39 ET: And then she said she wanted some kind of fruit. 40 <d’you remember what kind of fruit she wanted?= 41 RO: =Yeah, an apple 42 ET: An apple. 43 ro gets an apple 44 JU: Can you sorta guide him on it, because I often.
Just before Extract 3, Juliet asks Robert to make sandwiches for lunch and asks ET if she “can help him do that.” She explains how she wants her sandwich (not shown) to ET (via eye gaze and bodily orientation), but RO is gazing at Juliet during her explanation and is thus an observable overhearer. At the start of making lunch, Robert calls out to Juliet (line 6). ET attempts to intervene by asking what kind of help he needs (line 7), to which Robert describes somewhat vaguely that he “need[s] her help” (line 9). In response, ET offers help (line 10) and immediately begins to assess the sandwich verbally (lines 10, 11) while visually inspecting it (line 12). After her assessment, she provides instructions to add one more slice of lunchmeat (line 13). Robert follows ET’s first instruction (line 14) and, after ET’s positive assessment (line 15), Robert produces “now what” (line 16), which then prompts additional step-by-step instructions from ET. She first formulates her instructions as a suggestion to add lettuce and tomato (line 17), possible next steps of sandwich construction, and later produces known-answer questions (lines 26–27, 39–40) to prompt Robert to recall Juliet’s preferences as she had earlier described.
Although during ET’s early visits Robert independently initiates the steps for making meals, over time he elicits instructions from interlocutors with his use of “now what.” Additionally, interlocutors begin to pre-empt next steps by providing instructions even when unsolicited. For instance, in Extract 3 Robert indicates that he needs help and ET offers her own. As soon as that initial help is offered, Robert then recruits ET’s assistance again with “now what.” From then on, ET prompts Robert at nearly every next step, one after the other, even before Robert has an opportunity to recruit her assistance (see Majlesi & Ekström, Reference Majlesi and Ekström2016): She tells him where to put the plate on the counter to ensure there is enough counter space (line 21), monitors his cutting and plating (lines 23–24), and instructs him about what items to put on Juliet’s sandwich (e.g., lines 29–30). As compared to Extract 1, Robert initiates less of the meal assembly independently, in part because his adoption of “now what” as a recruitment device is particularly effective in prompting collaborators to guide him in a step-by-step fashion.
5.5.4 Visit 10: February 15, 2007: Using “Now What” to Exit Interactionally Delicate Moments
Although Robert’s uses of “now what” most frequently recruit assistance (and most often in the form of specific instructions), it is around the time of Visit 10 that its use seems to broaden in scope: In addition to task- or activity-based interactions where “now what” solicits specific instructions, he now also employs “now what” in interactions that are interactionally sensitive and emotionally charged. In Extract 4.1, Juliet animatedly reprimands Robert for several minutes, which ET describes in fieldnotes as “totally flip[ing] out,” because he turned off her television recordings. Although Robert aligns with Juliet’s directives to not touch the television and apologizes on several occasions, his contributions generally go unacknowledged by Juliet who continues reprimanding him. Perhaps because his acknowledgements and apologies are ineffective in closing this delicate sequence, Robert produces “now what,” presumably in an attempt to shift away from the current interactional sequence by recruiting Juliet to launch a next action.
Extract 4.1 – RO=Robert; JU=Juliet
01 JU: Rob. Yur- drivin me nuts, Rob. 02 I told you not to touch tha:t. 03 .hh I told you not >to touch it in any way shape 04 or fo:rm=.hh that you weren to touch it today at 05 a::ll. 06 RO: Oka:[y. 07 JU: [R↑o::b yu- you [ca:nt (keep) ] touchin’ it. 08 RO: [I’m so::rry Jules.] 09 RO: I’m sorry I’m SOrry. I’m SORRY. 10 JU: Rob, I have programs I’ve- I- I- did last nigh:- 11 that I taped last nigh:t, 12 (29 seconds omitted – Juliet continues reprimanding) 13 JU: You are not allowed to touch this. At a:ll. 14 JU: Anytime. Anyway. 15 JU: You’re not allowed to touch it. 16 RO: Okay. Now what. 17 ro/ju (3.6) looking at television 18 JU: Gahh(d).hh 19 (0.2) 20 JU: I’m sta- I’m supposed to be at work. 21 She thinks I’m doing something right no:w. 22 RO: Whatur you doin’. 23 ju (4.4) ((attending to television)) 24 JU: I’m- I’m- I’m f:- I’m putting it so that I don’t mi:ss 25 all the stuff I taped last night. 26 RO: .hh hah 27 ro crosses legs and looks on
Juliet launched her reprimand about 13 seconds before line 1 in which she articulates her frustration with Robert. She then explicates the source of her frustration (lines 2–5), reminding him that he was told not to touch the television (because Juliet was recording). Although Robert acknowledges her reprimand with “okay” (line 6), Juliet continues, producing a directive to not touch the television (line 7). Robert apologizes once in overlap with her directive (line 8) and then says “I’m sorry” three more times in the clear, with each production getting louder and more forceful (line 9). Juliet does not acknowledge his apologies but continues explaining the difficulty that his actions have caused her (lines 10–11), which continues for about 29 seconds (not shown). Juliet then produces a series of emphatic directives banning Robert from touching the television (lines 13–15), which Robert accepts with “okay.” He then produces “now what” (line 16). Juliet does not respond to his “now what” but remains focused on the television with remote in hand (line 17). She then continues with her reprimand by remarking on what she should be doing instead, highlighting the negative consequences of Robert’s actions (lines 20–21).
The sequential context of “now what” in line 16 is notably different than the contexts previously examined: It is not produced when Robert is engaged in accomplishing a task-based activity and needs assistance. Rather, it is used in an interactionally sensitive moment when Juliet is demonstrably upset with him. The prior task-based uses of “now what” tend to prompt his interlocutor to articulate the next step of an activity, and thus work to progress the activity-in-progress. Its use here may be an attempt to achieve the opposite, that is to not progress the current engagement underway, but to shift focus away from it. Whereas FPP “now what” in well-defined activity contexts works to elicit instructions that move the activity forward, here it can set up a sequential context that provides Juliet the opportunity to move away from the current interactionally sensitive sequence. Importantly, Robert does not produce “now what” immediately following Juliet’s first reprimand to “not touch it.” Rather, he draws on other resources to engage in this interactional moment by acknowledging/aligning with her reprimands and apologizing. Only upon not receiving any uptake does he work to shift the conversation to what might be a next, perhaps less emotionally charged direction with “now what.”
Moments later, Juliet continues with her admonishment with explicit directives (Extract 4.2, lines 25–26, 29, 31–32, 35) and Robert continues to acknowledge them (lines 27–28, 31, 33–34, 37). Again, Juliet provides no recognition of his acknowledgements but continues with her reprimand, giving him further instructions to not touch the television. Following Juliet’s exasperated “Gahwhd” (line 39), Robert produces “now what” (line 40), which he repeats two more times after gaps of silence (line 41 ff.) in which Juliet continues to attend to fixing Robert’s error.
Extract 4.2 – RO=Robert; JU=Juliet
27 JU: Rob you cannot touch this. 28 JU: You’[re not allowed to touch this EVer.= 29 RO: [Okay. 30 RO: Okay. 31 JU: EVer. For Any reason. 32 RO: Okay=[okA:Y. ] 33 JU: [<if you think] you have to touch it, you have to 34 come git me. 35 RO: O[kay. ] 36 JU: [Okay?] 37 JU: You can’t do it. 38 ju (0.8) attending to television 39 JU: °Gahwhd 40 RO: Now what. 41 ju (5.0) attending to television 42 RO: Now what. 43 ju (2.5) attending to television 44 RO: Now what. 45 ju (0.8) attending to television 46 JU: I shouldn’t even be doin’ this. 47 (2.0)
These “extensions” in use outside of well-defined tasks may show how this practice is now not only being employed to solicit assistance to complete a multi-step activity but also works to close a current interactional sequence by attempting to shift the interactional focus away from sensitive moments that are challenging to exit. Notably, in this emotionally charged moment Juliet does not respond to Robert’s “now whats” or allow them to derail her from her reprimand, just as she does not respond to his apologies. That Juliet maintains focus on her reprimand may put demands on Robert, during an already taxing situation, to figure a way out of this sequence when his brief acknowledgements and apologies fail to do so. However, he may not have a readily available repertoire of interactional resources to draw on for effectively navigating this interaction and relies on “now what” to encourage a topic shift. In this way, Juliet’s lack of response contributes to his repeated uses of “now what” as a (failed) exit strategy.
5.5.5 Visit 17: September 6, 2007: “Now What” as Self-Talk
By September (seven months later) Robert is still employing “now what” to solicit assistance to navigate multi-step activities, although he is now asked to complete very few tasks and mostly routine ones. As a consequence, his use of “now what” in activity contexts is less frequent, but his use of “now what” in non-activity contexts (Extract 5), particularly when he appears distressed, anxious, or bored is more prevalent. During Visit 17, four of the five uses occurred in the context of watching television and did not appear to be directed toward an interlocutor, and as such they come off as self-talk.
Extract 5 – RO=Robert; JU=Juliet; ET=researcher
01 JU: Ro:b, I’m gonna get you something-<a little something<I’ll 02 get you a little dessert. 03 (0.3) 04 JU: How’s that. 05 |( ? ) 06 ju |leaves room 07 ET: Have you had enough water? Toda:y? 08 RO: Yea. 09 ro sips from water glass in front of him 10 ro (30.0) watching TV; shaking foot, fidgets with hands 11 RO: |Now what. Now what ( ). 12 ro |looking toward television 13 (0.5) 14 ro (0.3) stands up, |starts walking out of living room 15 ET: |Whaddaya want. 16 RO: I want chips. 17 ET: She’s gettin you dessert. You wanna sit do:wn?<She’s 18 gonna come back with it. 19 ro (29.0) sits down, resumes TV watching 20 RO: |Now what. 21 ro |looking toward kitchen 22 et looks toward kitchen, resumes TV watching 23 (0.9) 24 RO: |Now what ( Liff |y ). 25 ro |looking toward kitchen |looking toward TV 26 ro/et (32.1) watching TV 27 JU: ET do you think you can take him for a wa:lk? ((from 28 off camera)) 29 ET: Yea: sure.
While watching television, Juliet gets up to get Robert dessert (lines 1–6). Following a brief exchange between Robert and ET (lines 7–8), they resume watching television. He appears visibly restless (a commonly reported bvFTD symptom), shaking his foot (line 10), and fidgeting with his fingers without any observable purpose before he produces two “now whats” (line 11), which ET does not immediately respond to. He quickly stands up and starts to head towards the kitchen (line 14), which prompts ET to ask what he wants (line 15). When he says he wants chips (line 16), ET reminds him that Juliet is bringing him dessert and directs him to sit down (lines 17). They resume watching television and he continues to fidget. Shortly after, he produces “now what” again (line 20) while redirecting his gaze from the television toward the kitchen (Juliet is off camera so it is possible that she has come into Robert’s line of sight). Shortly after, Robert produces “now what” again (line 24), as he shifts his gaze from the kitchen back to the television. ET does not respond but maintains her attention toward the television and they both continue watching until Juliet returns with dessert.
Although Robert’s employment of “now what” retains its function of eliciting assistance, it now is also employed during very different sorts of challenges such as when Robert displays difficulty sitting still and when there is no apparent well-defined task to attend to. Notably, ET here does not as readily respond to his “now what” FPPs. Such extended uses may provide less clear constraints on what constitutes a conditionally relevant SPP for collaborators. For instance, when watching television there is not a clearly identifiable and precise next step to direct Robert to attend to. It should also be noted that as early as February 2007, ET observed Robert’s use of “now what” when he appeared restless and perseverates on a particular repetitive behavior. Following the incident when Juliet bans Robert from touching the television, ET writes:
[A]fter being banned from TV at the end of the day, he and I got in this cycle of him asking me to turn on the TV, I turning it on, and him asking me to turn it off, and I turning it off and then him asking me to turn on the TV and so on. This was REALLY annoying … He was agitated and cursing, unable to explain why we were in a loop. At one point, I finally said, “If I turn it off, I’m not turning it on again.” And he said OK, turn it off. I asked if he was stressed out because he seemed like he was. And he kept asking me, “Now what?” As if I knew!
According to ET, following Robert’s television ban, he entered into a repetitive “loop” of turning the television on and off but recruited ET’s assistance to achieve these ends. Perhaps when feeling agitated or restless, “now what” similarly worked to shift focus in the absence of an immediate task to attend to.
Although Robert’s use of “now what” in Extract 5 and during Juliet’s reprimand are notably different (e.g., here it is not directed toward an interlocutor), for both kinds of trouble these extensions in use of “now what” may work to establish a (new) focus, demonstrating the versatility and resourcefulness of employing such a practice to recruit others when facing a variety of difficulties. Notably, in these non-task focused contexts, where precise directives may not be immediately relevant, interlocutors verbally respond less frequently to “now what” and even experience it with frustration (as evidenced in fieldnotes), perhaps because there is no obvious relevant response when the interactional outcome is unclear. Thus, these uses of “now what” seem less well-suited to achieving the topical shifts that might redirect either Robert’s interlocutor’s (as in the case of Juliet’s reprimand) or his own attention.
By the end of the year Juliet has made plans to relocate to be near family. As she explains it to ET, she needs help because Robert is causing her extra work, which makes her feel both upset and guilty. She tells ET that Robert is no longer helping with routine activities such as meal preparation and can no longer follow simple instructions. For example, when she asks him to hand her an item, he may hand her something “not anywhere near it.” During the last visit, Robert engages very little outside of responding to questions and is not asked to complete any tasks. He also never produces “now what” or seeks assistance.
5.6 Discussion
Recruiting assistance from others is not only ubiquitous in ordinary interactions (see Kendrick & Drew, Reference Kendrick and Drew2016) but also in interactions involving individuals with dementia (see Hydén, Reference Hydén2014; Majlesi & Ekström, Reference Majlesi and Ekström2016). This chapter tracked Robert’s uses of “now what” over the course of a year and thus provided a lens with which to view how Robert works to navigate various activity-based challenges, drawing on a single linguistic resource that works to recruit others’ assistance by making conditionally relevant explicit instructions that articulate the next step of multi-step activities. Additionally, I have highlighted how, over time, Robert draws on this same resource to navigate difficulties that are observably not activity based, but nevertheless provide him a seemingly accessible strategy to recruit others’ assistance to address other kinds of delicate moments that co-opt the semantic meaning of “now what” as a general strategy for sequentially organizing a potential shift in attentional focus away from the current engagement.
5.6.1 Thinking Longitudinally
Given that bvFTD is neurodegenerative, this longitudinal perspective contributes to our understanding of manifestations of the disease. As “now what” was predominantly used over the year to solicit assistance in task-based activities, the narrow focus on this one phrase provides insights into how Robert’s engagement in activities evolved over time, changes which are likely due to both Robert’s individually experienced difficulties participating in multi-step activities as well as his collaborators’ perceptions of his difficulties. Notably, Robert’s involvement in activities and responsibilities at home diminished over the year. Early on, Robert recruits assistance, but he independently initiates steps to accomplish tasks, identifies specific sources of trouble, and troubleshoots without being prompted to do so. For instance, during Visit 2 (November 21, 2006), Robert contributes to making breakfast, completing each step independently, and when he occasionally runs into trouble, he troubleshoots first on his own and eventually seeks help by describing the problem to ET.
In comparison, during Visit 17 (September 6, 2007), Juliet asks ET to help him make lunch and ET articulates each step for Robert to follow; he is not required to initiate the steps or identify points of trouble since the guidance is quite extensive and often pre-emptive. Pre-empting his needs and producing successive directives may have been an evolved strategy for Robert’s familiar interlocutors. For instance, it was observed that when his interlocutors refrained from providing explicit instructions, Robert often asked “now what” to solicit instructions, sometimes even in more routinized activities.
Later in the year, many of his uses of “now what” are produced in moments of interactional difficulty (e.g., Juliet’s reprimand in Extract 4) or demonstrable distress or restlessness (e.g., while watching television in Extract 5). Thus, while Robert’s uses of “now what” retain some of their original functionality, they also reveal new kinds of challenges Robert seems to be facing. The analyses presented show how this resource is somewhat ill-fitted to these tasks because it is not precisely designed to address these sorts of challenges, and when Robert employs “now what” in non-task-based contexts, his interlocutors do not verbally respond to them. By the end of the year, Robert engages very little in organized activities (and did not seek others’ assistance) and is given few instructions, which Juliet indicates is because he now has difficulty following even simple directives.
5.6.2 Deficit and/or Skill?
Cross-sectional studies examining coordinated work involving people with dementia typically either highlight the importance of interlocutors as resources, particularly their value in offering directives as guidance, or emphasize the skillfulness of those with dementia as they strategically draw on environmental, including human, resources. The current analysis blurs these two perspectives. The situated analysis that CA provides allows one to view Robert’s use of “now what” both through the lens of deficit and skill, because it illuminates both the troubles Robert faces while simultaneously demonstrating his resourcefulness to navigate such troubles. Robert’s use of “now what” is undoubtedly resourceful and demonstrates his ability to draw on an available resource to participate in and accomplish real-world tasks. At the same time, his reliance on this resource highlights difficulties he is facing, notably challenges with independently and incrementally progressing an activity from start to finish and handling (or exiting) delicate interactional sequences. That such compensatory practices point to both resourcefulness and difficulty suggests that a dichotomous framework – identifying a practice or behavior as either a deficit or skill – may not be the most sensitive for accurately capturing the practices of social engagement of those diagnosed with neurological disorders (see Mikesell, Reference Mikesell, Wilkinson, Rae and Rasmussen2020; Mikesell & Bromley, Reference Mikesell, Bromley, O’Reilly and Lester2016). Deficit implies a shortcoming or deficiency; skill is a developed talent or ability that brings an advantage. The previous analysis reveals how such a practice is skillful – helping an individual participate when they might have difficulties doing so – and at the same time can point to decline or incapacity, since by definition a practice that is compensatory functions to overcome some challenge.
The problem with identifying an atypical practice as strictly a deficit is that it overlooks what the practice provides or makes possible for the individual, and also what the practice may reveal about the resources an individual is capable of drawing on. In many cases, Robert is able to draw on rather simple language and apply it in moments of activity-centered interactions to be able to solicit assistance in a range of everyday tasks. Consequently, it allows him to participate and take part in organized activities. It also allows him to display to others his willingness to engage in these tasks. On the other hand, the problem with understanding a practice like “now what” as strictly a skill – as only what it allows an individual to accomplish – is that it de-emphasizes the significant and sometimes devastating consequences of disease or disorder and may conceal or misrepresent participants’ experiences or the ensuing difficulty of a compensatory practice. In this way, third-party observations/experiences and direct, real-time observations provide unique but complementary perspectives on the sociobehavioral changes resulting from bvFTD.
Examining compensatory practices importantly helps illuminate the types of challenges individuals face. Examining “now what” highlighted Robert’s challenges in navigating the sequential nature of activities that require a number of successive steps to complete. Early on, Robert demonstrated difficulties identifying a nonroutine activity (e.g., waiting in line), but once this was identified, he could identify the next step of the activity (e.g., using a credit card to pay). Later on, he demonstrated difficulty in identifying the individual steps of even routine activities, though his collaborators may have minimized his abilities to do so when pre-empting his need for step-by-step assistance. Overall, however, there seemed to be difficulties navigating the relationship between the “whole” activity and its required parts, which may reflect the executive nature of frontal lobe functioning (Mikesell, Reference Mikesell, Schrauf and Müller2014, 2016). While manifesting cognitive work in observable everyday tasks is not often an explicit undertaking of conversation analytic studies, using CA to consider this delicate balance between deficit and skill contributes to the ways in which we understand the role of cognition in context (see Hutchins Reference Hutchins1995, Reference Hutchins, Enfield and Levinson2006) and provides insights into the relationship between structured clinical tasks that are designed to elicit ‘cognition’ and its real-world manifestations (see Mikesell, Reference Mikesell, Schrauf and Müller2014).
5.6.3 Implications
Longitudinal case studies, such as the one presented here, are limited in scope and generalizability; however, they provide a window into the course of bvFTD from a naturalistic perspective. Such work may provide insights about how social engagement and interactional practices progress over time and how families navigate them. Employing CA, with its utilization of video recordings of real-world interactions, also provides insights into how such “atypical” practices might be categorized and coded, to avoid only capturing abstractions or gross impressions of observable behaviors that are often analyzed through the lens of deficit (see Barsuglia et al., Reference Barsuglia, Nedjat-Haiem, Shapira, Valasco, Jimenez, Mather and Mendez2014). Using CA to examine the sequentially situated, moment-by-moment production of social behaviors and interactional practices provides a nuanced lens into the functionality of a practice, and thus allows us to more easily observe how a practice can both constitute a dementia-related challenge or impairment and simultaneously demonstrate an individual’s skill and resourcefulness. While Perkins et al. (Reference Perkins, Whitworth and Lesser1998: 37) rightly declare that “deviation from what is normal does not necessarily equate with failure or communicative ineffectiveness”, such deviation may point to impairment by highlighting real-world challenges that call for workarounds.
Practices that are idiosyncratic to an individual with dementia may on the surface seem difficult to make sense of, particularly since many dementia behaviors – even those that appear common across individuals – have been framed as nonsensical and randomly produced. However, what a conversation analytic approach to examining Robert’s use of “now what” reveals is that this practice, although atypical, is not nonsensical but largely systematically employed to recruit others’ assistance. Notably, over time Robert’s use of “now what” extends to new contexts and challenges, and in turn seems to lose some of its interactional or functional meaning for interlocutors. Thus, it may be perceived by others in those moments as randomly produced simply because these new contexts are not task-focused ones where “now what” can maintain its sequentially positioned meaning. This may account for why interlocutors responded less frequently to these uses and reported feeling frustrated by them.
As Cohen-Mansfield (Reference Cohen-Mansfield2008) has argued, “disruptive” behaviors may reflect an internal state of the individual. Robert’s extended uses of “now what,” as his disease progressed and as his challenges extended beyond the management of discrete tasks, appeared to become more centered on his internal state of being. He increasingly displayed frustration in his tone and agitation and restlessness in his movements (often getting up and sitting down repeatedly). As such, this one practice may have the potential of serving not just as a resource for Robert, but as a resource for those who regularly interact with him and for those who are often responsible for organizing or monitoring his daily tasks. As it seems to be a “go-to” practice for navigating various challenges and uncertainties, it may, in simplistic terms, provide a marker to highlight these moments for interlocutors, giving them an opportunity to try to take Robert’s perspective and identify what kind of challenge he may be currently facing when “now what” is produced.
6.1 Introduction
This chapter is a case study of Dan, a man with vascular dementia who sings in everyday conversations with his family. Dan lives at home with his wife, Morgan, and she is his primary conversational partner. After changes in cognition, Dan began singing during conversation-based activities that did not have music as a focal point (e.g., music therapy or music as a topic of conversation). Some of Dan’s singing maintains cohesion with prior talk when the song shares words with the previous turn. For example, a turn at talk that incidentally includes a song’s title or lyrics might touch off his singing of that song. Dan also does something very interesting, creative, and unexpected by modifying lyrics. His modifications, which are based on prior talk and the physical environment, are the main focus of this chapter.
Dan’s singing uses elements from a prior speaker’s turn or objects in his immediate surroundings to modify lyrics from a small repertoire of songs. For example, Dan often changes the lyrics “Daisy, Daisy, give me your answer true. I’m half crazy over the love of you” from the song “Daisy Bell (Bicycle Built for Two)” (Dacre, 1892/Reference Dacre1925). In Extract 1, Dan sings this song with altered lyrics during a meal with Morgan.
Extract 1 5-2014 – DA=Dan; MO=Morgan
01 DA: I’m slowing down Morgan. (0.5) getting full. 02 MO: Mmm? 03 (9.1) 04 Well you’ve attacked that with gusto. 05 DA: Mm hih heh 06 (4.6) 07 ((singing modified “Bicycle Built for Two”)) 08 ♫ Gusto gusto give me your answer true 09 (1.3) 10 MO: Mmhmm 11 (5.5) 12 DA: ♫ I’m half crazy over eating with you {looks to Morgan} 13 (1.7) 14 MO: Well that’s very kind of you
Dan’s singing in line 8 replaces the original lyrics “Daisy Daisy” with Morgan’s gusto (line 4). He continues with the meal theme by changing “the love of you” to eating with you (line 12), and Morgan treats his singing as a compliment by expressing appreciation (line 14) (see Pomerantz (Reference Pomerantz and Schenkein1978) on compliment responses). This example is representative of how Dan creates new songs in the corpus. His singing is responsive to prior talk, accomplishes a wide range of interactional jobs (such as complimenting, complaining, and requesting) while often being humorous as well, and makes relevant a co-participant response. Furthermore, his singing is a remarkable cognitive and creative achievement. His songs maintain the original tune and some of the lyrical elements (e.g., syllabic structure and rhyme) while he simultaneously fashions novel lyrics that carry the new theme.
Musical recognition and memory may be spared in dementia despite impaired language (Cuddy & Duffin, Reference Cuddy and Duffin2005; Särkämö et al., Reference Särkämö, Laitinen, Tervaniemi, Numminen, Kurki and Rantanen2012). Research into music-based interventions has rapidly grown in the hopes that capitalizing on remaining musical abilities could provide an inexpensive, easy, and enjoyable non-pharmacological treatment approach. The most robust research on dementia and singing outside of testing situations and imaging studies is on singing in the context of music therapy, recreation, and caregiving situations. The literature can roughly be divided into informal singing done by caregivers and formal singing programs led by music professionals and therapists. In a review of the studies, Chatterton et al. (Reference Chatterton, Baker and Morgan2010) compared the qualifications of the singers and their goals. They concluded that music therapists and caregivers use singing to different ends. Music therapists were interested in addressing cognitive, social, and behavioral functioning. In contrast, caregivers were attempting to reduce agitation, improve quality of life, and build connections especially during specific tasks (e.g., morning routines and meals). The findings of these research areas have been thoroughly reviewed elsewhere (see e.g., Leggieri et al. (Reference Leggieri, Thaut, Fornazzari, Schweizer, Barfett, Munoz and Fischer2019) for a systematic review of research on music interventions and Swall et al. (Reference Swall, Hammar and Gransjön Craftman2020) for a summary of singing by caregivers). It is worth noting that while there is general agreement that music‐based interventions reduce depressive and behavioral symptoms for people with dementia, it remains undetermined whether benefits extend to cognition and how they may relate to changes in the brain.
Compared to research on singing facilitated by music professionals or done by caregivers, unprompted singing by people with dementia has received less attention. Singing initiated by people with dementia has a history of being classified as noise-making and verbal disruptive behavior associated with self-stimulation (Cohen-Mansfield & Werner, Reference Cohen-Mansfield and Werner1997; Ryan et al., Reference Ryan, Tainsh, Kolodny, Lendrum and Fisher1988). Although some typologies of disruptive vocalizations note that they may be goal-directed (e.g., requests for attention), this type of top-down analysis risks erasure of contextual nuances that indicate why a person vocalizes at a particular juncture in time and the role of co-participants. More recently, Hydén (Reference Hydén2011) and Samuelsson and Hydén (Reference Samuelsson and Hydén2011) analyzed non-verbal vocalizations produced by people with late-stage Alzheimer’s disease (e.g., screaming, repeated syllables, “singing-like” and monotonous pitch contours) to understand how co-participants orient to noise-making as meaningful communication. Their approach is in contrast to previous typologies that treat non-verbal vocalizations as an asocial expression of agitation or other inner states. Hydén also demonstrates the necessity of analyzing discursive context for understanding non-verbal vocalizations as being part of a repeated caring practice. This interactional approach to non-verbal vocalizations provides a model for how singing by people with dementia in everyday conversation could be analyzed. Indeed, Rasmussen (Reference Rasmussen, Wilkinson, Rae and Rasmussen2020) analyzes the interactional environment in which a person living with frontotemporal dementia sings during the course of a conversation. The songs are positioned when the topic of talk is atrophying, and they are designed to be associated with prosodic features and words from the co-participant’s earlier speaking turns.
Like the two examples described by Rasmussen, Dan’s singing is more obviously directed at mutual engagement than the “loud singing” or “variety of tunes” included in classifications of disruptive vocalizations. However, Dan’s frequent singing of a small set of songs could be described as an atypical, repetitive behavior using a clinical typology. This chapter shows that a bottom-up approach allows for a finer-grained description of the emergent structure and meaning of his singing. An analysis of how singing unfolds in interaction demonstrates that his songs can be quite the opposite of self-stimulation in their recipient design. Developing our understanding of how Dan uses singing as a semiotic resource for action formation and identity construction is especially important for a population in which loss of memory can be ideologically associated with incompetence and loss of self.
6.2 Data and Methodology
The data are home videos recorded by Morgan between September 2011 and December 2014. Morgan and Dan volunteered the recordings for use in my dissertation and subsequent publications. They also granted me access to Dan’s cognitive-linguistic testing report and permission to summarize the results. The testing scores, along with background information provided by Morgan regarding Dan’s changes in behavior, provide an important context for his singing. The University of Colorado Human Research Institutional Review Board approved the study (protocol 14‑0109), and both participants provided verbal and written consent. I changed the participants’ names, all names mentioned in the data, and some locations to protect the participants’ privacy.
I took a micro-level approach using Conversation Analysis to analyze Dan’s singing and co-participant responses in the context of unfolding interaction. I reviewed 23.25 hours of video and transcribed 39 segments with singing. I used transcription conventions from Jefferson (Reference Jefferson and Lerner2004) as a basis and added a musical note symbol (♫) to mark singing, following the notation used by Stevanovic (Reference Stevanovic2012). As I am not analyzing Dan’s performances for elements contained in musical notation, I have not included musical scores for each transcript. Detailed transcripts can be found in Foster (Reference Foster2015) as not all of the extracts from the corpus are discussed in this chapter.
6.3 Participants
Dan and Morgan live independently in their home in the USA. Morgan immigrated as an adult from the UK, and they have lived in the same house since getting married in the 1960s. At the time of the first recording, Dan was 76 years old and Morgan was 70. In 2007 Dan had an abrupt change in cognition and was later diagnosed with vascular dementia. Cognitive-linguistic testing indicates that he has severely impaired short-term memory, in the less than 1st percentile. The severity of his short-term memory loss impairs his ability to complete daily tasks despite other scores falling within normal limits (including attention, processing speed, conceptualization, auditory comprehension, expressive language, and reading comprehension). Dan’s decline in cognition significantly impacts his life. He does not complete higher-level tasks (instrumental activities of daily living or IADLs) in any form. This means that he is wholly dependent for financial and medicine management, shopping, housework, cooking, social planning, driving, and so on. Some of Dan’s basic routine activities (ADLs such as dressing) require assistance as well. Morgan provides Dan with assistance and cues to initiate and complete them, and he would not be able to live at home without her.
Dan also experienced major changes in communication. In groups and interactions outside the home, his participation is often limited to repetitive formulaic sequences, questions, and positive evaluations of objects in his surroundings (e.g., multiple productions of those flowers are really beautiful). Dan communicates more effectively in a dyad in a lower-stimulus and familiar environment such as his home. In these less demanding contexts, Dan still repeats topics and utterances, but he communicates with a wider range of resources (disagreeing, evaluating, inquiring, providing accounts, etc.) While this study does not go into detail about all of Dan’s verbal abilities, it is important to recognize that he has resources for participation besides just singing. That is not to say that Dan’s communication is unaffected by cognitive decline. It is, however, important to start an investigation into his singing by acknowledging that he has many other verbal resources for participation.
In many of the extracts, Dan appears exceptionally competent. This is in part because the extracts are removed from their larger discursive context. A five-minute clip may seem relatively “normal” when it is extracted from a two-hour recording and not viewed in the context of interactions from previous days. It is readily apparent from viewing interactions across a wider time frame that Dan’s communication becomes negatively impacted by memory impairment, even in the home. While he may not have severe word-finding deficits or syntactic impairment, it is not unusual for him to repeat utterances multiple times during a single recording or across days. In many of the videos Dan repeatedly asks questions about temporal orientation or his children’s life circumstances – information that has not changed in many years. He also denies that he has the memory to answer questions about his experiences in the immediate and distant past that one might expect to be in his domain of knowledge. It is clear that Dan has both deficits and remaining abilities, and this pattern of pragmatic ability and disability in the absence of other significant linguistic impairment is common in dementia. What is less typical is Dan’s creative use of singing.
6.4 Background on Dan’s Singing
Dan does not have professional training in music but enjoys listening to it. He started singing in conversation after changes in his cognition. Dan certainly sang before dementia, and he often sang to his children. Yet there is a difference in his earlier singing and how he uses it now as an interactional resource. His earlier singing is what one might expect from someone who sings around the house outside of primarily talking-based activities. It was only after changes in his cognition that family members noticed he would frequently repeat verses of songs in conversation, and over time he increasingly began to modify lyrics based on prior utterances. Dan’s conversational use of singing was well established by the start of this study, and there is no discernible change or development in his singing patterns over the course of the recordings.
Dan has a limited repertoire and audience for his singing. He sings a fairly small set of songs that he learned in childhood and college. The nine songs that Dan sings in the data are as follows:
1. “Bicycle Built for Two” a.k.a. “Daisy Bell” (Dacre, 1892/Reference Dacre1925)
2. “The Farmer in the Dell”
3. “The Fireman’s Band” a.k.a. “The Life of a Fireman”
4. “I’ve Got Sixpence”
5. “Kansas City” (Rodgers & Hammerstein II, Reference Rodgers and Hammerstein1943)
6. “Old MacDonald”
7. “R.P.I. was R.P.I. When Union Was a Pup”
8. “She’ll Be Coming Round the Mountain”
9. “There’s a Meeting Here Tonight”
These songs belong to several genres: musicals, college or drinking songs, children’s songs, and old popular or folk songs. The lyrics, along with musical scores and publicly available recordings, can be accessed online (www.roy-foster.com). Importantly, Dan only sings with immediate family members. This means that his singing is not a form of disinhibition, perseveration, or a simple stimulus response. He is sensitive to context in terms of both conversation partner and prior discourse. The fact that Dan does not sing with some people and that he changes lyrics based on previous turns indicates sophisticated pragmatic judgment and indexes a close relationship with his conversation partners.
6.5 Analysis
Dan’s singing is not random but fits systematically within the sequential organization of talk and thus emerges moment-by-moment. Recorded performances of lyrics, or texts, are typically produced in relatively long chunks (e.g., verses). Yet there is no guarantee that Dan will produce the whole song as it is written in a book or performed on the radio. The song’s ending is arrived at jointly with his conversation partner. It can end after a single “line,” or Dan can accomplish a longer, multi-unit song. The singing sequence makes relevant a response and furthers progressivity of interaction. In other words, just like talk, his singing is locally occasioned and contingent on surrounding talk and involvement of other participants.
The concepts of preference, alignment, and affiliation are important for understanding what Dan accomplishes with singing. Broadly, the notion of preference refers to mostly implicit principles that participants orient to when they act and respond in interaction (Pomerantz & Heritage, Reference Pomerantz, Heritage, Sidnell and Stivers2013). These principles govern multiple domains of interaction, from the design of turns to norms for responding to different types of actions (Pomerantz & Heritage, Reference Pomerantz, Heritage, Sidnell and Stivers2013; Sidnell, Reference Sidnell2010). Most relevant to singing is the preference for a response that promotes progression of an action sequence. For example, the action-type preference of an invitation is an acceptance (Sidnell, Reference Sidnell2010). Participants manage this constraint when responding in disagreement or rejection of a preceding action by designing a turn with features that project dispreference, such as delays, palliatives, accounts, and pro-forma agreement. Dan sometimes sings to close sequences marked by this type of dispreference. Related concepts are alignment and affiliation. Alignment refers to the current state of talk, such as participants adjusting to a change in turn-taking to accommodate storytelling – or in this case singing (Mandelbaum, Reference Mandelbaum, Sidnell and Stivers2013). Affiliation is about affective stances to events and previous talk, and participants may adopt or reject each other’s interpretation of them. A recipient may exhibit conflict regarding these two orientations to talk by, for example, going along with a switch from talk to singing (alignment) but not displaying support of the singer’s stance that the singing was funny (disaffiliation).
Dan performs a range of actions through singing. Humor is one of his main accomplishments, and it is an important way in which he uses singing to participate in conversation. The humor of Dan’s singing is an interactional achievement, and it contributes to his situational construction of self as a funny and clever person. Humor can also contribute to the achievement of other actions, and the humorous key of his singing helps dissipate disaffiliation in sequences that are characterized by dispreference. There are further examples of Dan using singing to express appreciation and gratitude. Dan’s singing in these contexts also works towards building affiliation and closeness. Yet there are contrasting examples of Dan raising a complaint by singing and also of Morgan treating his singing as making a request, which demonstrate that singing is a flexible interactional resource. In the following sections I analyze the turn-taking structure of Dan’s singing. I then turn to what he accomplishes with it, first in terms of humor and then by examining specific actions including complimenting, complaining, and requesting.
6.5.1 Singing in the Turn-Taking Structure of Talk
Dan sings in a wide range of discursive locations. In terms of sections of conversation in the most general sense, Dan sings in middle and closing (or adjourning) sections. It remains inconclusive whether he sings during openings, such as greeting sequences, as those were not recorded. Sections of conversation are a relatively coarse division of interaction. In terms of fine-grained sequential structure, Dan sometimes sings modified songs to open sequences but more often as second pair parts or post-expansions. His singing is thus relatively unconstrained by position.
The length of Dan’s songs spans from single, short turns to multiple turns with intervening talk. On the sparser side, 10 of Dan’s 39 singing occurrences are “one liners.” In Extract 2, for example, Dan produces a short singing turn, and Morgan speaks afterwards.
Extract 2 9-2011
01 DA: ((modified “The Fireman’s Band”)) 02 ♫ Oh jakey jabs oh jakey jabs 03 MO: ºHih ºhih (1.2) yeah (0.6) hhh (0.3) let’s take 04 our cameras (0.6) in case there are any (1.3) 05 wildlife
In an earlier sequence, Morgan informed Dan that they were going to a store she calls Jake Jabs. Dan uses the store name in a single line of singing, and Morgan laughs in appreciation. One could argue that she is curtailing his song by starting a new sequence about taking cameras. However, Morgan does not latch her turn onto Dan’s singing turn, nor does she speak in overlap, and Dan does not continue singing during the pauses in line 3.
Dan also treats a similar single line of lyrics as complete in many other excerpts such as in Extract 3.
Extract 3 4-2014
01 MO: U:m I’ll get your lunch pills. 02 (0.7) 03 DA: ((modified “The Fireman’s band”)) 04 ♫ Oh lunchy pills oh lunchy pills 05 (0.7) 06 Boy this looks like a good lunch Morgan.
Here, Dan himself pauses then switches to talking after the first line of the same song seen in Extract 2. This means that a potential end to a singing turn, and thus a possible transition relevance place to next speaker, is located at the end of a relatively short turn of singing. What constitutes a “line” or turn constructional unit (TCU) is song-specific, and the data suggest that both participants treat the formulaic sequence [oh xxx oh xxx] performed with prosody from “The Fireman’s Band” as a TCU (Foster, Reference Foster2015).
Singing beyond the first TCU is an accomplishment that is contingent upon the actions of co-participants. Co-participants have a role in song extension through use of silences that invite more, continuers, minimal assessments, and laughter (Foster, Reference Foster2015). Additionally, Dan extends songs following explicit invitation for continuation and to account for the song’s relevance, as exemplified in Extract 4. Dan and Morgan have been talking about slip trailing, a technique for applying raised patterns to ceramics. Dan enjoyed making pottery as a hobby after retirement. Earlier he was complaining about his difficulty learning how to do slip trailing, and they had some disagreement over what makes it challenging. The interaction continues below with talk about his trouble. He eventually sings to the tune and general structure of “Old McDonald,” a children’s song in which the singer names an animal and the sound it makes on Old McDonald’s farm, before ending the verse with “e–i–e–i–o.”
Extract 4 3-2014
01 DA: Boy I tell you I couldn’t do it (.) I literally 02 couldn’t do it 03 MO: Mmm-hmm 04 (1.5) 05 With practice 06 (3.5) 07 Like everything else it’s practice practice practice 08 DA: Yeah but if: f:or a person who it’s not their 09 business y’know [already] retired heh hih 10 MO: [Mmmhmm ] 11 DA: [Huh huh huh huh] 12 MO: [Huh huh hih hih] hih hih ((sniff)) 13 DA: There aren’t many years left to practice= 14 MO: =Mmm-hmm 15 (3.8) 16 MO: Yeah and if you’re just dabbling (0.5) (to g-) 17 (0.8) 18 DA: Yeah 19 (0.4) 20 MO: Y- y- you can’t spend that time 21 (0.6) 22 DA: ((modified “Old MacDonald”)) 23 ♫ A dabble here and a dabble there= 24 ♫ here a dabble there a dabble= 25 ♫ everywhere a dabble dabble 26 (2.5) 27 MO: Hih hih hih ((sniff)) hih (.) 28 DA: I won’t say the rest of it 29 (0.6) 30 MO: Oh go on huh hih hih 31 DA: ♫ Old MacDonald had a farm 32 (0.3) 33 ♫ e-i-e-i-o 34 (3.4) 35 MO: What did that got to- to do with pottery (.) 36 heh hih [hih 37 DA: ♫ [With a dabble dabble here= 38 ♫ and a dabble dabble there= 39 ♫ here a dabble there a dabble= 40 ♫ everywhere a dabble dabble .hh 41 ♫ Old MacDonald had a farm 42 (2.8) 43 ♫ And on this farm he had a pottery lab 44 (.) 45 ♫ [e-i-e-i-o ] 46 MO: [Huh huh hih hih] hih hih hih (0.6) ((sniff)) hih 47 DA: ((smile))
In line 23, Dan recontextualizes Morgan’s earlier dabble (line 16) in his version of “Old MacDonald.” Morgan volunteers laughter (line 27), and Dan comes to a possible ending of the song with I won’t say the rest of it (line 28), which hints at the potential for more but a decision to stop. Morgan does not accept the ending and invites continuation with oh go on plus more laughter (line 30). Dan extends the song with the usual final verse Old MacDonald had a farm e–i–e–i–o (lines 31 and 33). This is another possible ending point, but Morgan again does not treat it as an acceptable one. She instead pursues an account for the song’s relevance (line 35). By asking what the song had to do with pottery, Morgan’s go-ahead for more singing emerges as more than a general request for additional lyrics. Singing the rest of it does not just mean any lyrics in this case but ones that relate to prior talk. Dan responds by singing with reference to pottery (line 43). The song again comes to a possible completion point with e–i–e–i–o, with Morgan laughing in overlap (lines 45–46) and Dan producing an affiliative smile. This time, the song ends. The fact that Morgan pursues more singing and Dan expands the song to account for its relevance shows that the song’s ending is contingent and arrived at jointly. Dan makes decisions about appropriate stopping points, but the ending of the song is negotiable. Dan can be held accountable for how the singing relates to the ongoing action, and a lot of interactional work is done to establish progressivity by singing turns and the talk that follows.
Beyond the analytical account of how Dan’s singing fits into the structure of talk, Dan’s innovative songs reveal his exceptional cognitive and creative competencies. His skill at manipulating lyrics into new songs reveals strengths in at least attention, working memory, semantic memory, pattern recognition, and musical memory. These are aspects of cognition that are required to retain words and themes from previous turns and fit them into the syllabic patterns, rhyme, grammatical structures, and concepts of the original lyrics. In an exploration of the poetics of ordinary conversation, Jefferson (Reference Jefferson1996) presents a collection of talk that is produced in part by reference to previous sounds and word categories (e.g., puns, sounds repeated across turns). Dan’s singing puts this type of poetics at the forefront in the way that he playfully integrates words from Morgan’s turns into the formulaic structure of the song. Dan’s singing positions him as someone who can astutely monitor conversation for sources of musical wordplay and as an active participant who creatively furthers interaction. In the next section I analyze how Morgan and Dan orient to his poetics as humorous and well-constructed.
6.5.2 Accomplishing Humor through Singing
Dan at times uses singing to close sequences that are characterized by dispreference and redirects the interaction toward affiliation with humor. Literature on singing in conversation by neurotypical participants is lacking with a few exceptions. In a study by Frick (Reference Frick2013), Finnish speakers in Estonia use singing to end extended interactional sequences that include signs of nonalignment and dispreference, such as being silent after a story and not granting requests. Frick describes how participants in one example follow singing with smiles, laughter, and other sound-making. She argues that this affiliative joint activity builds rapport and distances them from the dispreferred actions without calling for continuation of the sequence. Extract 4 illustrates a similar use of singing by Dan in English. The extended interaction has elements of dispreference and disagreement: dispreference in the blocking of progression of talk about troubles, overt disagreement about slip trailing, and conflicting characterizations of his degree of involvement in pottery. Dan’s singing ends the interaction on a humorous key. Morgan laughs repeatedly during the song, and Dan’s final smile solidifies affiliation as they close the sequence about his involvement with slip trailing and pottery.
Dan’s singing is often treated as funny by co-participants. In many of the extracts, Morgan laughs during and after Dan’s singing, sometimes even when Dan has not laughed. Jefferson (Reference Jefferson and Psathas1979) compares structurally and sequentially distinct types of recipient laughter. Volunteered laughter is produced after a recognition point, which is a moment when a recipient recognizes that laughter is warranted. A recipient produces speaker-invited laughter after a speaker’s end-of-turn or within-turn laughter. There are many examples of Dan and Morgan treating Dan’s singing as humorous by using both types of laughter. The laughter may be volunteered laughter as in Extract 5.
Extract 5 9-2011
01 DA: ((modified “The Fireman’s Band”)) 02 ♫ Oh don’t you really really think 03 (2.7) 04 ♫ Vultures should stay asleep 05 (0.9) 06 MO: Ha ha ha ha .hh heh ha ha ha hih .hh oh hh
After Dan sings about the vulture, which is a persistent theme throughout the interaction, Morgan produces a stretch of laughter (line 6). In Extract 5, Morgan laughs after a short gap, but she does not always wait until the end of the song to laugh. Lerner (Reference Lerner, Ochs, Schegloff and Thompson1996: 259) writes that “a recipient need not delay affiliation until next turn” with laughter. Indeed, in other examples Morgan laughs throughout and even in overlap with Dan’s singing. Her laughter in overlap demonstrates her understanding of his singing as funny, even near the onset of singing.
In addition to volunteered laughter, Morgan sometimes replies to Dan’s singing with a joke of her own. Extract 6 provides an example.
Extract 6 9-2011
01 DA: ((modified “The Fireman’s Band”)) 02 ♫ Oh don’t you really really think 03 (1.1) 04 DA: ♫ That we should see the turkey vulture 05 (0.4) 06 MO: Huh hih ((sniff)) (.) 07 DA: (xxx) 08 MO: Hh (0.8) Don’t go out if you’re not feeling well hh 09 (2.5) ((Dan looks at Morgan and opens mouth)) 10 DA: Wh(h)at? (.) 11 MO: Heh huh hah [ha .hh hih huh hih hih hih huh hahahahaha 12 DA: [.Hhh HA HA .hhhhhh (H)o(h)k(h)ay .hhhh 13 (h)I (h)w[(h)on’t .hhhhhh] uh huh uh huh .hhh 14 MO: [.Hh hih hih hih]
In this example and on other occasions Morgan makes a humorous remark related to Dan’s song immediately after he finishes singing. Morgan briefly laughs before her turn don’t go out if you’re not feeling well that teases about the possible danger of a weakened person falling prey to vultures. Dan meets her joke with astonishment – as he often does to jokes that are rude, morbid, or at his expense – by looking at Morgan with a wide-open-mouth posture and asking a question with laughter (Wilkinson & Kitzinger, Reference Wilkinson and Kitzinger2006). In this case, Dan produces wh(h)at (line 10) followed by agreement (lines 12–13) and a great deal of laughter. Morgan does not treat his question as a problem with hearing or understanding but instead laughs as well. Jokes can come in tit-for-tat succession, and Morgan’s laughter plus in-kind humorous responses are further evidence that some of Dan’s songs are designed to be funny and are taken as such.
There is evidence that Dan and Morgan orient to wordplay within the song’s original lyrical structure as constituting humor. The participants’ retrospective characterization of singing in Extract 7 provides evidence of this. Morgan and Dan are finishing a meal, and Morgan invites Dan to think about a trip they have planned for the following day.
Extract 7 9-2014
After Dan finishes singing, Morgan volunteers laughter and evaluates his song with oh goody goody (line 16). Dan joins in her laughter and says fool you didn’t I (line 23). Morgan agrees, and Dan expands with you weren’t sure what I was gonna say (line 25). Morgan again agrees and adds that was a new variant on the theme (lines 29–30). Both Morgan and Dan have treated the song as laughable. A laughable song can fool you because you won’t be sure what he is gonna say, and part of the fun of Dan’s singing is anticipating how he is going to make a new variant on the theme by modifying recognizable lyrics. His performances have value, in part, from the novelty and creativity in which he recontextualizes the text by changing elements based on surrounding talk. In other words, humor hinges on unpredictability within a formulaic sequence and on Dan’s competent performance of clever modifications.
Morgan does not always agree with Dan’s stance towards humor. This type of disaffiliation can be accomplished by withholding laughter. Morgan’s absence of laughter is especially salient after Dan invites her to laugh. Jefferson (Reference Jefferson and Psathas1979: 93) writes, “One technique for inviting laughter is the placement, by speaker, of a laugh just at completion of utterance, and one technique for accepting that invitation is the placement, by recipient, of a laugh just after onset of speaker’s laughter.” A co-participant, however, does not have to accept speaker-invited laughter. For example, in Extract 8 Morgan volunteers laughter at the start of the song but does not join Dan in laughing afterwards.
Extract 8 9-2011
01 MO: O(.)kay here’s some un(.)der(.)wea:r (1.5) 02 and some sockie wokies? 03 (0.5) 04 DA: ((modified “The Fireman’s Band”)) 05 ♫ Oh sockie wokies oh sockie wokies 06 (0.9) 07 DA: ♫ How I like some sockie wokies 08 (0.5) 09 MO: Mm[hm] 10 DA: ♫ [Oh] don’t [you really really] think 11 MO: [Hh heh heh heh heh] 12 (1.3) 13 DA: ♫ To have sockie wokies (1.0) to wear upon my feet 14 MO: Hh 15 (0.3) 16 DA: ↑HA HA (0.6) that song didn’t wanna come out (.) 17 but it ca[me out.] 18 MO: [Uh yeah] eh [it sort] of came out. 19 DA: [Heh heh]
Morgan is helping Dan get dressed, and after she offers him socks, Dan uses the sockie wokies from her turn for another version of “The Fireman’s Band.” Morgan volunteers laughter in the midst of Dan’s singing (line 11) and takes the position that his singing is humorous in that moment. However, after Dan finishes his song, Morgan declines to laugh and even does a hard exhale (line 14) – perhaps indicating disapproval. Dan’s loud laughter (line 16) makes her laughter relevant again. Morgan does not immediately laugh, and Dan continues with an assessment that song didn’t wanna come out but it came out (lines 16–17) that puts a somewhat positive spin on his difficulty with the song. Jefferson (Reference Jefferson and Psathas1979: 93) explains that one technique to decline an invitation to laugh is with recipient talk that does “serious pursuit of topic as a counter to the pursuit of laughter.” Dan’s it came out provides an alternative route for Morgan, and she declines to laugh by instead responding to Dan’s assessment of the song’s construction. Morgan disagrees with his stance that his rendition came out. She accomplishes this disaffiliation by countering with a second assessment that repeats part of his turn with the added negative qualification that it sort of came out (line 18).
While not made explicit, it could be that their assessments speak to how well his song’s final line to have sockie wokies to wear upon my feet maintained the rhythmic and grammatical structure of the song’s original lyrics “that we should have another drink.” In any case, Morgan’s stance in Extract 8 illustrates that the humor of Dan’s performance is not predetermined. Whether Dan accomplishes humor or not is contingent on the unfolding structure of his lyrics, and participants may shift their stance as the song emerges. The humor of his performance is an accomplishment at every turn.
In summary, doing humor is one of the primary things that Dan accomplishes with singing. A song’s ability to provoke laughter may depend on how well Dan maintains a balance between providing unique modifications while preserving the form of the original text (e.g., syllabic structure, syntactic structure, and final rhyme). Humor may also depend on how well the song reflects semantic themes of the prior discourse. Evidence that Dan and Morgan orient to these elements as constituting humor or a “good” song are found in their responses to his singing. Evaluation of the song may include reference to the song’s relevance to ongoing talk (e.g., what did that got to do with pottery in Extract 4), the construction of the song (e.g., that song didn’t wanna come out in Extract 8), and unpredictability of the wordplay (e.g., fool you didn’t I in Extract 7). Although Dan and Morgan both often treat Dan’s singing as laughable, Morgan does not always affiliate with Dan’s stance toward his singing. The humor of Dan’s singing is an interactional accomplishment that is not guaranteed by the original text, and its achievement contributes to Dan’s situational construction of self as clever and funny.
6.5.3 Doing Complimenting, Complaining, and Requesting through Singing
In addition to using singing to do humor, Dan sings to accomplish a range of other actions including complimenting, complaining, and requesting. I address each of these in turn. There are multiple examples of Dan singing compliments and appreciation in the data. In the most transparent examples, Dan explicitly identifies the person or the action that he appreciates. For instance, in Extract 1 Dan is eating when he announces that he is slowing down with his meal and getting full. Morgan’s well you’ve attacked that with gusto could account for why he is slowing down and getting full. Dan could simply agree with her, or he could provide an alternate account for why he ate that way (e.g., with an assessment about the meal). Dan goes down the latter path with the second part of his song I’m half crazy over eating with you. Morgan treats his singing as a compliment with well that’s very kind of you. In other examples, Dan similarly does gratitude for offers of assistance (Foster, Reference Foster2015).
There are also two examples in which Dan’s singing turns express appreciation for his food, Extracts 9 and 10.
Extract 9 7-2014
01 DA: ((modified “Bicycle Built for Two”)) 02 ♫ Blueberries blueberries 03 (1.8) 04 DA: ♫ Give me your answer true 05 (0.3) 06 MO: M:::hm 07 DA: ♫ I’m half crazy (0.3) for the cereal on you 08 (11.6) ((He continues eating)) 09 DA: ♫ It won’t be a stylish (.) meal 10 (.) 11 DA: ♫ I can’t afford a Coors 12 (3.9) 13 DA: ♫ But you’ll taste sweet 14 (5.4) 15 DA: ♫ On some ice cream and (0.3) cookies 16 hih hih heh heh ((He flashes gaze to Morgan)) 17 MO: Mmm [mmhmm mm hih ] 18 DA: [I don’t know .hh] ºheh ºhih .hh Extract 10 7-2014
01 DA: ((modified “Bicycle Built for Two”)) 02 ♫ Black beans black beans give me your answer true 03 (.) 04 MO: ((in adjoining room)) Uh hhh 05 DA: ♫ I’m half crazy over the protein in you 06 ((He eats a bite of beans.))
In Extract 9, Dan starts by singing about his meal of blueberries and cereal (lines 2, 4, and 7). This portion of the song ends with I’m half crazy for the cereal on you. There is silence for over 11 seconds while Dan eats. He then continues singing it won’t be a stylish meal I can’t afford a Coors (beer) (lines 9 and 11) before describing an imagined meal in which the blueberries will taste sweet on some ice cream and cookies (lines 13 and 15). After he finishes singing, Dan laughs and looks briefly at Morgan who is preoccupied with writing an email. In the second example, Extract 10, Morgan is out of visual range but can hear Dan from the next room. In line 5, Dan does appreciation of the black beans and their protein content. In both of these extracts Morgan is within hearing distance but occupied with other activities. It could be that the main project of these singing turns is to do gratitude for the meal and/or to re-establish joint interaction with Morgan. Unfortunately, Morgan’s lack of uptake means that we cannot be certain how she might treat his singing his appreciation of food. In many other examples of talk, however, Dan notices ingredients and their attributes in the food that he is eating and then thanks Morgan for taking care of him. This collocation suggests that his doing appreciation of food is part of a practice of expressing gratitude for caregiving.
Dan’s singing often expresses affection by doing appreciation for companionship, gratitude for assistance, and positive evaluations of food. The songs he modifies to accomplish this is the love song “Bicycle built for two,” and Dan can easily change the text to express affection that is specific to each encounter. Dan is acutely aware of the daily help that he needs, and he is quick to express thanks for assistance. He often says things such as thank you for this meal or thank you for taking care of me multiple times during a meal. Modifying songs, especially the sweet love song “Bicycle built for two,” is a resource Dan uses to creatively build closeness and intimacy with Morgan.
Of course, as with talk, there is not a one-to-one correlation between singing and action. Dan at times does a complaint through singing, much in contrast to the humor and appreciation discussed earlier. In Extract 11, for example, Morgan starts a new sequence about a visual word puzzle, or “wuzzle,” that was posted at her gym. Dan sometimes sings in response to Morgan’s announcements of upcoming activities (see Foster (Reference Foster2015) for an analysis of Dan’s singing in response to “mere informings” of new activities in terms of deontic congruence). In this case, Dan’s singing resists the activity.
Extract 11 4-2014
01 MO: Oh there was another wuzzle 02 today hh (.) one of these word puzzles 03 (2.7) ((She starts writing down the wuzzle)) 04 DA: ((modified “Old MacDonald”)) 05 ♫ Wuzzle here and a wuzzle there 06 ♫ here a wuzzle there a wuzzle 07 ♫ old Mac (0.5) Donald liked his wuzzles= 08 MO: =Mhmm? 09 (1.0) 10 DA: ♫ e-i-e-i-o 11 (0.9) 12 DA: ♫ And I don’t like wuzzles very much 13 (0.9) 14 MO: You’re good you’re pretty good at them, 15 ((She finishes writing the wuzzle)) 16 (0.5) 17 DA: We:ll, 18 MO: ((She holds wuzzle facing Dan and walks toward him))
Extract 11 starts with Morgan’s announcement oh there was another wuzzle today one of these word puzzles (lines 1–2). Her announcement projects the possibility of more than simply news of a new wuzzle. Indeed, Morgan starts writing down the wuzzle, which strengthens the possibility that her announcement is part of a larger “doing the wuzzle” project. Dan then sings a modified version of “Old MacDonald” that contrasts Old MacDonald’s liking of wuzzles to his own dislike of them. The singing concludes with I don’t like wuzzles very much (line 12) that anticipates this larger project. Morgan responds with an assessment you’re good you’re pretty good at them (line 14), and her complimenting turn could also be heard as an account for why he could do the wuzzle despite disliking them. Dan does not align with her assessment, possibly because of the problem of how to respond to compliments (see Pomerantz (Reference Pomerantz and Schenkein1978) on the multiple constrains on compliment sequences), but an agreement might also weaken his resistance to the activity. Morgan presents him with the wuzzle in any case.
Morgan’s another wuzzle (line 1) is relevant here as it points to a repeated activity in which Morgan brings home word puzzles for Dan. Dan struggles with comprehending and completing them. In this instance, Dan takes almost a minute to do the basic word puzzle, and Morgan provides so many clues to assist him that he complains several times you told me the answer. In light of this, Dan’s singing can be heard as a complaint that resists the upcoming wuzzle, an activity that exposes his impaired cognition.
In addition to modifying lyrics to do an appreciation or a complaint, there are two examples in the data of either Dan or Morgan treating his singing as doing a request. Although Dan does not modify the lyrics of “The Fireman’s Band” in these instances, his singing is interpreted within the framework of everyday talk and not treated as a performance of the song to be evaluated. In the first example, Extract 12, Dan sings as Morgan places a cup of coffee in front of him.
Extract 12 12-2014
01 DA: ((“The Fireman’s band”)) 02 ♫ Oh the fireman’s band the fireman’s band 03 ♫ here’s my heart and here’s my hand 04 MO: ((Morgan puts coffee cup in front of Dan)) 05 DA: ♫ Oh don’t you really really think 06 ♫ that we should have another drink 07 MO: .Hh ha ha 08 DA: Ha heh 09 MO: .Hh [oka:y] there’s [some coff]ee 10 DA: [I got] [coffee ] 11 MO: For y[ou .hh huh heh hih 12 DA: [I got some coffee it worked heh 13 MO: [It worked ok(h)]ay hih ha ha (.) ha ↘o:h dear 14 DA: [ºHih ºhih ºhih ]
At the start of Extract 12 Morgan is walking into the room holding Dan’s cup of coffee as Dan sings a drinking song. This example could be viewed as Dan matching his singing to the events occurring in the world. Retrospectively, however, Dan’s turn it worked (line 12) positions his singing – even if jokingly – as a successful request that Morgan has fulfilled.
In the second example, Extract 13, Morgan herself responds to Dan’s singing as a request that requires an account.
Extract 13 4-2014
01 MO: And w:hy do you think that we should have 02 another drink. Hh 03 DA: ºI ºwas ºjust (1.9) trying to be soci[able.] 04 MO: [Hh ] hah 05 MO: s(h)ociable. 06 DA: Hih heh hih hah (0.3) .hh 07 MO: Mmm 08 (0.7) 09 DA: Hh 10 MO: Well, you can: ↑have another drink if you li:ke but 11 [it’s uh root] 12 DA: [Better be wa]ter 13 MO: It’s root beer hh [ha ha] ha .hh ºhih 14 DA: [I see] 15 MO: heh huh 16 MO: Heh hhh .hhh ↓o:h ↓well. (2.1) ↓o:[ka::y ] 17 DA: [Here we are] 18 right next to Coo:rs at least close to it= 19 MO: =Mmhmm= 20 DA: =And I don’t even get any beer.
Dan has sung “The Fireman’s Band” just before this extract, and Morgan treats Dan’s singing as an actual request for a drink. She first seeks an account for it with and why do you think that we should have another drink (lines 1–2) and later offers him a root beer (lines 10 and 13). Dan is aware of the fact that he has medical and pharmaceutical restrictions on how much alcohol he can drink (see better be water (line 12) and his lament here we are right next to Coors at least close to it and I don’t even get any beer (lines 17–18, 20)), so it is unlikely that he meant for his singing to be taken as a sincere request for an alcoholic beverage. Indeed, Dan counters by providing an alternative version of what he was attempting to accomplish with I was just trying to be sociable (line 3).
In this section I have primarily focused on how Dan and Morgan give meaning to Dan’s singing by how their responses – such as laughter, assessment, and pursuit of an account – treat it. Extract 13 is a rare case in which Dan uses metalanguage to describe the meaning of it. Even more, it is an example in which Morgan’s treatment of Dan’s singing is not in alignment with how he describes it. Enfield (Reference Enfield2013: 101) uses the term treating‑as to describe the response process participants usually use to characterize a speaker’s actions, in contrast to a describing‑as categorization process. For example, responding to “You look nice” with “Thank you” treats the previous turn as a compliment whereas “He gave me a compliment” explicitly describes it as one. Dan provides us with a described‑as account for his singing that suggests a broad emic action category of being sociable. In this general sense, we may treat all of Dan’s singing events that I have discussed as doing being sociable. He could simply speak instead of sing, but singing allows him to be sociable by performing entertaining songs. The texts that he sings are not neutral vehicles. They are clever and humorous variations of drinking songs, love songs, and children’s songs. Dan’s performances are a resource for him to position himself as funny, affectionate, and as a guy who used to enjoy a drink and who would still like to have one now.
6.6 Conclusion
Dan’s account I was just trying to be sociable displays an orientation to singing as a form of engagement and participation. Singing is a relatively open-ended resource for Dan use to do things in interaction. There are instances in the data of him doing humor and wordplay, closing sequences to re-establish affiliation, doing appreciation and gratitude, responding to a noticing or informing turn, responding to turns that announce a new activity, and changing the trajectory of talk (Foster, Reference Foster2015). Dan also uses singing to accomplish actions such as complimenting and complaining. The variety of functions does not mean that Dan’s singing is random or asocial. Dan’s singing is a flexible interactional resource because he astutely monitors conversation and modifies songs to the discursive context at hand.
Singing provides Dan with a route to competency despite his severe short-term memory impairment and dependence on Morgan. His technical ability to recall tunes and spontaneously alter lyrics that stay true to a conceptual theme from the prior talk while still maintaining elements of the original formulaic structure is no small feat. It manifests his cognitive strengths of attention, pattern recognition and formation, conceptualization, semantic memory, and working memory. Singing is also a medium in which he can do things that he is good at interactionally, such as being funny, affectionate, and appreciative. His singing at times provides an avenue for resisting cognitively challenging activities that expose his impairment, like the wuzzle. Morgan holds Dan accountable for the relevancy of his singing to ongoing talk, and he is also susceptible to her evaluation of his song’s composition. Modified singing thus provides Dan with several avenues for displaying competence: (1) accessing musical memory to produce the tune and multiple cognitive skills to manipulate the original lyrical structure, (2) demonstrating the appropriateness of his singing by grounding texts in the immediate discursive context, and (3) showing skill in creative and clever wordplay within the structure of the lyrical text. Morgan also treats Dan as competent by responding to his singing turns as producing meaningful actions and replying with her own jokes in tit-for-tat succession. Dan and Morgan’s interactions involving singing thus provide a compelling case of adaption to changes in cognition over time not only within a person but also between people.
There is a persistent notion that people with dementia lose identity along with the loss of coherence and memory, analogous even with death. Dan’s singing illustrates important alternative roles that can be constructed in contrast to person with dementia. First, Dan’s singing is a way for him to articulate creative wordplay, and each performance in which Dan accomplishes humor positions him as a funny and clever person. The stances that Dan and other participants take towards his performances position him as a particular type of singer in the moment. Those stances accumulate in a bottom-up fashion to construct Dan a more “durable” identity (such as jokester) than is found in his temporary participant roles (see Bucholtz and Hall (Reference Bucholtz and Hall2005) on stance accretion, usually discussed in relation to macro identities like gender).
Second, Dan’s singing is one avenue for Dan and Morgan to discursively construct their relationship as a couple. Dan’s affectionate singing makes salient the intimate relationship he shares with Morgan. It points to his identity as her spouse and takes a positive affective stance towards it. Yet the relationship work they accomplish goes beyond the compliments he sings to her. His repetition of lyrical texts with situational modifications is a shared experience. Work by Goodwin (Reference Goodwin1987) and Muntigl and Choi (Reference Muntigl and Choi2010) on displays of not remembering has shown how speakers can take an epistemic orientation to talk by treating other participants as knowing or unknowing of a forgotten word or event. Depending on the type of information in question, positioning someone as having access to it can make relevant larger social identities. Talk that makes visible shared knowledge of activities may additionally provide for inferences of interpersonal relations, such as being a couple, by implying a close relationship. Both Dan and Morgan position her as a knowing recipient who is aware of the songs in his repertoire and his practice of modifying them. Dan’s version of “The Fireman’s Band” in Extract 7 could only fool Morgan and be recognized as a surprising variant on the theme if she were very familiar with his singing. Recognition of short segments of tunes and new variants of the lyrics, which could only be accomplish through repeated shared experience, thus indirectly indexes their long-term relationship.
This case study also establishes the vital importance of analyzing conversations that take place in the home in order to provide insight into interactional resources that people with dementia use in everyday life. Dan only sings in conversation with close family members, so standardized language assessment and conversation sampling in a clinical or professional care setting would not elicit his singing. In fact, his family noted that he did not sing during a short stay at a physical rehabilitation center. Since then, Dan has been able to remain at home with Morgan with assistance from professional caregivers. Morgan observed that Dan does not sing to the caregivers, even though they have been with him for over a year and a half. Without access to interactions between Dan and Morgan outside of an institutional or professional caregiving context, we would miss the interactional achievements that Dan accomplishes with his singing and also the role that his singing plays in his relationship with Morgan.
7.1 Introduction
In this study we use a conversation analytic approach to investigate the use of a particular type of utterance regularly deployed by the co-participants of people with dementia within conversation in our dataset, that is an utterance in the form of a tag question (Hepburn & Potter, Reference Hepburn, Potter, Freed and Ehrlich2010).
Grammatically, a tag question can be described as an utterance consisting of two clauses, where an interrogative clause (the ‘tag’, or ‘interrogative tag’) is added as a supplement to another clause (the ‘anchor’) (Huddleston & Pullum, Reference Huddleston and Pullum2002). In English, tag questions most commonly have reversed polarity, such that a positive anchor is followed by a negative tag (‘he likes olives, doesn’t he?’), or a negative anchor is followed by a positive tag (‘he doesn’t like olives, does he?’).Footnote 1 Interactionally, tag questions share a number of features with other yes/no-type questions. First, via the tag at the end of a turn, a tag question can function as a means by which a current speaker selects another speaker to speak next (Sacks et al., Reference Sacks, Schegloff and Jefferson1974).Footnote 2 Second, that response is expected to either align or disalign with the action in the prior (tag question) turn. Third, tag questions make ‘yes’ or ‘no’ (or equivalents) relevant as the first component of the response (Heritage & Raymond, Reference Heritage and Raymond2005). Fourth, as with other yes/no-type questions (Robinson, Reference Robinson2020), tag questions typically prefer responses that align with (for example, confirm or agree with) the objectives or goals of the action in the tag-formatted turn (Heritage, Reference Heritage, Freed and Ehrlich2010). While utterances with a positive statement in the anchor clause followed by a negative tag (e.g., ‘you’re married, aren’t you?’) are designed to favour a ‘yes’ response, utterances with a negative declarative in the anchor clause followed by a positive tag (e.g., ‘there’s no blood in the diarrhea, is there?’) are designed to favour a ‘no’ response (Heritage, Reference Heritage, Freed and Ehrlich2010: 58. This feature of tag questions, whereby they display which type of response would be favoured, and thus exert some pressure on the recipient to respond in that way, has been discussed by linguists in terms of the ‘conduciveness’ of tag questions (Huddleston & Pullum, Reference Huddleston and Pullum2002). For example, Quirk et al. (Reference Quirk, Greenbaum, Leech and Svartvik1985: 810) talk of the ‘maximum conduciveness’ of tag questions compared to other types of yes/no-type questions, and Cameron et al. (Reference Cameron, McAlinden, O’Leary, Coates and Cameron1988: 87) discuss them as ‘highly assertive strategies for coercing agreement’.
Our interest in the use of tag questions by co-participants of people with dementia is twofold. First, our analysis examines this type of utterance as a contribution to talk-in-interaction which is recipient-designed (Sacks et al., Reference Sacks, Schegloff and Jefferson1974) by the co-participant for a person with dementia and adapted to the particular cognitive and linguistic limitations (and remaining abilities) evident in the person with dementia’s interactional repertoire. Second, we examine what the implications of these tag-formatted utterances are for the participation of the person with dementia within the interaction (Goodwin & Goodwin, Reference Goodwin, Goodwin and Duranti2004). In particular, we highlight the fact that a tag question puts interactional pressure on the person with dementia to produce an aligning response, such as an agreement (Heritage, Reference Heritage, Freed and Ehrlich2010), and we examine how this property of tag questions is one that co-participants can make use of.
7.1.1 Tag Questions and the Epistemic Order, Deontic Order and Emotional Order
In outlining relevant conversation analytic research on the use of tag questions in interaction, it will be useful to discuss different types of social action (Levinson, Reference Levinson, Sidnell and Stivers2013) that have been analysed in relation to their tag question turn format. It is also important to note that tag question turn formats have been shown to be one practice through which a speaker can display a particular stance concerning issues of epistemics (knowledge), deontics (power, control and agency) or emotion (or affect) in interaction (for a discussion of these three orders within interaction, see Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014).
In relation to epistemic issues, for example, a tag question displays an orientation to the knowledge status of the recipient (Ekberg et al., Reference Ekberg, Ekberg, Weinglass, Rendl-Short, Bluebond-Langner, Yates, Bradford and Danby2022). Designing a turn in the form of a tag question can be a means by which the speaker displays their epistemic stance (Heritage, Reference Heritage, Sidnell and Stivers2013) in relation to the recipient as regards the speaker’s proposition. For example, while a yes/no question such as ‘are you married?’ expresses that the speaker has no definite knowledge of whether the recipient is married or not, a tag question format (‘you’re married, aren’t you?’) ‘conveys a strong hunch as to the likelihood of a particular response’ (Heritage, Reference Heritage, Freed and Ehrlich2010: 48) and indexes a smaller information gap between the speaker and the recipient compared to a yes/no interrogative (Heritage, Reference Heritage2012). When a speaker produces a tag question, the epistemic status (Heritage, Reference Heritage2012) of the speaker relative to the recipient of the utterance will influence how that tag question will be heard and treated. When the speaker evidently has a lower epistemic status than the recipient, the tag question is hearable as requesting information from the recipient in the form of a confirmation of the tag-formatted statement proffered by the speaker (Heritage, Reference Heritage2012). In other cases, however, such as when a speaker and recipient have relatively equal access to the information being discussed, the tag question is hearable as a statement by the speaker that seeks agreement from the recipient (Heritage, Reference Heritage2012).
Tag questions have also been analysed in terms of how they are used as a turn format for a different type of action/activity, that is advice-giving (Hepburn & Potter, Reference Hepburn and Potter2011). In their data involving child protection officers (CPOs) talking to callers on a national child protection helpline, Hepburn & Potter (Reference Hepburn and Potter2011) explore how the CPOs regularly use tags when providing advice to callers (for example, ‘you need to sort it out don’t you really’: Hepburn & Potter, Reference Hepburn and Potter2011: 228). Advice-giving, like directives, proposals or requests, is an activity concerned with getting others to do things, such as commit to future actions. As such, it can invoke the relative deontic rights of the participants (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014). Hepburn and Potter (Reference Hepburn and Potter2011) explore instances where advice that has previously been resisted by the caller is presented again by the CPO, including on this latter occasion with a tag. They note that in this context when the advice-giving is produced in a tag question format, it can be seen to be ‘coercive’ (Hepburn & Potter, Reference Hepburn and Potter2011: 236) in that this form of turn design prefers an affirmative response, here in the form of an agreement from the caller, even though the caller has previously resisted the advice.
A third type of action where tag questions have been discussed in relation to their tag question turn design is challenges (Keisanen, Reference Keisanen and Englebretson2007). Like other actions, such as accusations, challenges can be disaffiliative (Sorjonen & Peräkylä, Reference Sorjonen, Peräkylä, Peräkylä and Sorjonen2012) and, as such, can display one way in which the participants negotiate the emotional facets of their relationship (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014). In Keisanen’s data, the challenges can be produced in response to an initiating action, where the tag question turn challenges the appropriateness or relevance of that prior action. Keisanen (Reference Keisanen and Englebretson2007) notes that the tag question turn indexes a discrepancy in information between the participants, and this discrepancy is used as a basis for the challenge.
7.1.2 Tag Questions in Talk-in-Interaction Involving Participants with Dementia
Research into conversations involving people with dementia has not focused systematically on co-participants’ use of tag questions, although their deployment has been noted in passing (Rasmussen et al., Reference Rasmussen, Dalby and Muth2019; Svennevig & Landmark, Reference Svennevig and Landmark2019). However, one area of the literature where they regularly have been discussed is work on what has been labelled ‘elderspeak’. This term is used to refer to a speech register which may be displayed by those (in the literature, particularly health and care staff) talking with older adults and people with dementia. Elderspeak is described as consisting of features including tag questions, a slower rate of speech, elevated and exaggerated pitch and volume, relatively simple grammar and vocabulary, and the use of diminutives (Williams et al., Reference Williams, Kemper and Hummert2004). It is suggested (Williams et al., Reference Williams, Kemper and Hummert2004) that elderspeak may be perceived by hearers as patronizing and as implying a lack of competence on the part of the recipient. The use of a tag question such as ‘you want to get up now, don’t you?’ by a staff member to a resident with dementia has been described as ‘prompt[ing] resident responses, thus suggesting the resident’s inability to independently choose’ (Williams et al., Reference Williams, Herman, Gajewski and Wilson2009: 12), and it has been suggested that the use of tag questions as part of elderspeak is likely to be harmful in that they ‘politely push older adults’ answers and behaviours in a desired direction’ and ‘undermine meaningful conversations and self-determined behaviours of older adults’ (Schnabel et al., Reference Schnabel, Wahl, Streib and Schmidt2021:417).
7.2 The Current Study: Use of Tag Questions by Co-participants of People with Semantic Dementia
The data examined in the Analysis section of the chapter come from three couples where one partner has semantic dementia. We will now provide some background to semantic dementia and describe the participants and the data in this study. In the Discussion section we will revisit the use of tag questions as reported in the ‘elderspeak’ literature and discuss this usage in comparison to that of the spouses examined in our analysis. The chapter finishes with a discussion of what this analysis of co-participants’ use of tag questions highlights about asymmetries of knowledge, power and interactional competence between persons with dementia and their co-participants, and how these asymmetries are made evident and oriented to within social interaction.
7.2.1 Semantic Dementia
Semantic dementia is a type of frontotemporal dementia (Snowden et al., Reference Snowden, Goulding and Neary1989). It is also described as the semantic variant of primary progressive aphasia (Gorno-Tempini et al., Reference Gorno-Tempini, Hillis, Weintraub, Kertesz, Mendez, Cappa, Ogar, Rohrer, Black, Boeve, Manes, Dronkers, Vandenberghe, Rascovsky, Patterson, Miller, Knopman, Hodges, Mesulam and Grossman2011). While the presence of a progressive language disorder is required for diagnosis (Gorno-Tempini et al., Reference Gorno-Tempini, Hillis, Weintraub, Kertesz, Mendez, Cappa, Ogar, Rohrer, Black, Boeve, Manes, Dronkers, Vandenberghe, Rascovsky, Patterson, Miller, Knopman, Hodges, Mesulam and Grossman2011), it is known that with disease progression also come changes in other cognitive abilities, behaviour and personality, with symptoms often overlapping with those of behavioural variant frontotemporal dementia (Kertesz et al., Reference Kertesz, Jesso, Harciarek, Blair and McMonagle2010). Semantic dementia leads to significant challenges in communication for the person affected and their family members (Snowden et al., Reference Snowden, Kindell, Neary, Bryan and Maxim2006), including difficulties for the person with dementia in understanding and in finding words when talking.
Research in semantic dementia has largely concentrated on assessing and treating underlying language (and other) impairments (e.g., Jokel et al., Reference Jokel, Rochon and Leonard2006). Less well understood is the impact of such language impairments, as well as changes in memory, behaviour and personality, on everyday conversation. To our knowledge, only two studies have specifically explored conversation in this condition. Kindell et al. (Reference Kindell, Sage, Keady and Wilkinson2013) used conversation analysis to analyse how Doug, a man with semantic dementia, adapted the use of his remaining linguistic and other communicative resources within conversation through regularly deploying enactment (Goodwin, Reference Goodwin1990), that is depicting (rather than describing) an action or event using resources such as direct reported speech (Holt, Reference Holt1996) and bodily behaviour such as eye gaze and gesture. Taylor-Rubin et al. (Reference Taylor-Rubin, Croot, Power, Savage, Hodges and Togher2017) used a discourse-oriented approach to explore what they termed ‘trouble-indicating behaviours’ (TIBs) in seven individuals with semantic dementia recorded while talking to their spouse in a clinical situation. The authors compared the number of TIBs to control subjects and found a higher presence in the turns of the people with semantic dementia. It can be seen, therefore, that both studies, while using different approaches, primarily examined the person with dementia and their communicative strengths or limitations. In this chapter, we aim to add to our knowledge of recurrent features of conversations involving people with semantic dementia by examining primarily the talk of the person with dementia’s co-participants – specifically, their use of tag-formatted utterances – and in addition what the interactional implications of these tag-formatted utterances have for the participation of the person with dementia.
7.2.2 Participants and Data
In each of the three couples in this study, the person with dementia lives at home with their spouse. The couples are:
Peter (67 years old) and Joanna (64)Footnote 3
Peter had been diagnosed with dementia five years earlier and was now experiencing significant word-finding difficulties. Peter also had difficulty with understanding and retaining information in conversation.
Sarah (64) and Reg (66)
Sarah had been diagnosed with dementia four years earlier. She rarely initiated interaction at home, apart from repetitive questions about the routine of the day, and had difficulty retaining the answers Reg gave her.
Doug (71) and Karina (71)
Doug had been diagnosed with dementia five years earlier and was now experiencing significant difficulty with expressive speech, with his talking often unintelligible. Doug talked less than he used to, and when he did talk, this concerned a reduced range of topics.
In each case, therefore, the person with semantic dementia was experiencing significant difficulties with expression, comprehension and cognitive abilities, such as retaining information. This is evident in their neuropsychological test scores using the Addenbrooke’s Cognitive Examination (ACE: revised version and version III) (Hodges, Reference Hodges2005), where Peter scored 27/100, Sarah 36/100 and Doug 18/100. Since a score below 82 on the ACE indicates likely dementia, it can be seen that each of these three people with dementia was at the more severe end of the spectrum.
Conversation was explored through analysis of video recordings of everyday conversations recorded by the couples at home. A total of 7:14 hours of conversation was recorded (couple one, 3:30 hours; couple two, 3:00 hours; couple three, 44 minutes).
An ethics committee registered with the National Health System (NHS) in the United Kingdom approved the study. The data were transcribed using the Jeffersonian transcription system (Jefferson, Reference Jefferson and Lerner2004). In the extracts in this arrows in the margins are used to direct the reader’s attention to the tag questions which are the primary focus of the analysis.
7.3 Analysis
We will analyse two types of tag-formatted utterances here; there are a number of instances of each in our data set. For each type of tag question we will aim to show how its use by the co-participant is linked to the recipient’s impairments associated with dementia, and how the tag question makes relevant a response, with an aligning response (the preferred option) commonly produced.
The first type of tag-formatted utterance, used particularly by the spouses Karina and Reg, involve actions, such as assertions and assessments which are largely concerned with epistemic issues (Heritage, Reference Heritage2012). The second type, seen exclusively in the talk of the other spouse, Joanna, takes the form of challenges (Keisanen, Reference Keisanen and Englebretson2007) towards Peter, the person with dementia, concerning some action or behaviour that Peter has produced. These latter actions are less concerned with epistemic issues and more with the momentary interpersonal relations between the couple, such as Joanna displaying a critical stance towards Peter’s talk or conduct (i.e., they particularly concern issues within what Stevanovic & Peräkylä (Reference Stevanovic and Peräkylä2014) term the ‘emotional order’).
7.3.1 Tag-Formatted Assertions and Assessments
There are three features of tag-formatted assertions and assessments that we wish to highlight as regards their use by co-participants of people with dementia. The first is that they encode a certain level of access (at least to the extent of a strong hunch) on the part of the speaker to the information being discussed (Heritage, Reference Heritage, Freed and Ehrlich2010). The second is that at the same time they acknowledge the recipient as having some epistemic access and authority as regards the information being talked about (Ekberg et al., Reference Ekberg, Ekberg, Weinglass, Rendl-Short, Bluebond-Langner, Yates, Bradford and Danby2022). The third is that they put some interactional pressure on the recipient to respond, and to do so in a way which displays alignment with the statement in the tag question.
In particular we will be showing here how co-participants can use a tag question format when they produce actions which involve providing the recipient with information that the recipient has already been told or might normally be expected to know (Stivers et al., Reference Stivers, Mondada and Steensig2011). Extract 1, involving Sarah and Reg, provides instances of this type of assertion produced by Reg both with a tag (lines 20–21) and without (e.g., lines 13, and 26–27).
Extract 1: Sar=Sarah
01 Reg: Is there anything that you want now? 02 Sar: What do you mean? 03 (0.2) 04 Reg: To eat or drink or: 05 Sar: °No° 06 Reg: ((nods)) 07 (1.5) 08 Reg: So I bet you’re looking forward to going to Jeans on 09 Wednesday aren’t ya 10 (3.6) 11 Sar: Wednesday? 12 (0.5) 13 Reg: Not today, today is Monday, 14 Sar: Yeah 15 Reg: tomorrow Tue:sday we’re [at the hospital, Wednesday you 16 [°Mm° 17 Reg: go to Jea[:ns 18 Sar: [°Mm° 19 (1.3) 20 → Reg: You didn’t go last week cos you had a bad head didnt 21 → ya? 22 Sar: Righ:t, oh yeah 23 Reg: Y’know all the migraines that ya get? 24 Sar: Yeah 25 (0.5) 26 Reg: You had one (.) last weekend (0.7) starting on Sunday 27 [Monday 28 Sar: [( ) 29 Reg: And Tuesday (and uh) started on the Monday 30 Tuesday (.) and the Wednesday 31 (1.3) 32 Sar: Right 33 (0.3) 34 Reg: So you didn’t go, 35 Sar: Right 36 Reg: To Jeans
In line 08 Reg proffers a new topic (in the form of a tag question; we will return to this instance in due course). Sarah, however, does not buy into, and take forward, the proffered topic (Schegloff, Reference Schegloff2007); it appears (from the long 3.6 second silence, and then her querying ‘Wednesday?’ in lines 10 and 11) that she has a problem in making sense of what Reg has just said, particularly in relation to the day that Reg has mentioned. Reg treats this as a problem relating to Sarah’s dementia, that is a problem in orienting to time, including remembering which day it is that day, and proceeds to produce a series of assertions that violate the norm of not telling a recipient information they (should) already know (Stivers et al., Reference Stivers, Mondada and Steensig2011). These include what day of the week it is today (line 13), what Sarah will be doing tomorrow and the day after (lines 15 and 17), the fact that Sarah did not go to Jean’s last week because she (Sarah) had a migraine (lines 20–21), and that Sarah had had migraines on a few days last week (lines 26–27 and 29–30).
One of these assertions (lines 20–21) is in the form of a tag question. As such, and unlike the other assertions here, Reg simultaneously provides information for Sarah (which, it is clear from the context, Sarah is likely to have had trouble producing herself), while treating the information being conveyed as being within Sarah’s epistemic domain, and, implicitly, as something that she can remember (or at least will be able to remember after being prompted by Reg’s utterance). By making expectable a response from Sarah, with a preference for an agreement, the tag question expects an affirmation by Sarah of this assertion, which in this context will be hearable as evidence that she remembers the fact being conveyed. As such, Reg’s assertion is produced in a manner (i.e., tag-formatted) that treats Sarah as being able to remember the information conveyed in the assertion and affirm it. In this way, Reg bestows competence on Sarah, treating her as having these cognitive competences at this point in the interaction, whether or not she actually does remember her aborted visit to Jean the previous week.Footnote 4 With the use of this tag-formatted assertion, therefore, Reg acts to discursively construct Sarah’s psychology (see Hepburn and Potter, (Reference Hepburn and Potter2011: 220) on the psychologically ‘invasive’ use of tag questions) as someone who will be able to remember the happening (or non-happening) that Reg is discussing.
In their talk with their spouses with dementia both Reg and Karina recurrently produce tag-formatted assertions and assessments similar to those seen in Extract 1. One use of this type of utterance for these co-participants appears to be that it allows them to produce assertions and assessments concerning issues which would be expected to be in their spouse’s epistemic domain if that spouse did not have dementia, and to elicit agreement or confirmation from the person with dementia regarding what is being discussed. Of course, in these cases it may be unclear to the co-participants whether their spouse with dementia does indeed remember and have knowledge about the matters encoded in the assertion or assessment. Importantly, however, the tag-formatted utterance treats the person with dementia as if they do, bestowing competence on them and working to elicit their agreement with the matters being discussed. In addition, they engage the person with dementia in co-constructing topical talk about these issues (for example their experiences and feelings, or talk about friends, family members and acquaintances) that are within that person’s lifeworld.
The three participants with dementia in our dataset initiate relatively little within these conversations and often display difficulty in contributing to the conversation due to their cognitive and linguistic impairments. As such, an ongoing issue for the co-participants is how to engage the person with dementia in topic talk and to bring into the conversation issues relating to the person’s lifeworld that the person with dementia is not able to regularly bring in through their own talk.
These issues can be seen in Extract 2 involving Doug and Karina. The couple are talking about Jill (referred to in the extract as ‘she’ and ‘her’), who is a volunteer at a social group for people with dementia which Doug attends and who gives Doug a lift home after the meetings. It is clear from the context that while Jill’s main role is in relation to Doug, she also has a relationship with Karina, and the facts about Jill being discussed in this episode are treated as knowledge shared by Karina and Doug (what Labov & Fanshel (Reference Labov and Fanshel1977) refer to as ‘AB event’ information). A notable feature of the extract is Karina’s recurrent use of tag-formatted assertions (lines 01, 09–10 and 21–25) and assessments (lines 04, 12–15, and 18–21), with six produced within this 40-second episode.
Extract 2: Kar=Karina
01 → Kar: And she usually brings you home anyway doesn’t she. 02 Doug: [( )- 03 Kar: [Gives you a lift home=cos (.) not seen her for a 04 → while be [nice to see her wouldn’t it 05 Doug: [Mm 06 Doug: Yeah 07 (0.3) 08 Kar: Cos she’s very g- I want to ask her about her:(0.7) 09 → breadmaking (.) cos she makes (a-) (.) all her own 10 → bread doesn’t she. 11 Doug: Yes 12 → Kar: I think that would be quite nice: to do (1.0) to make 13 → bread 14 (0.4) 15 → Kar: Don’t you? 16 Doug: Yes I °(th)-° (3.3) °ye:ah (f::::)° 17 (3.8) 18 → Kar: (Cos) she’s good at things like that in’t she=bread 19 → ‘n soups and= 20 Doug: =Oh oh yeah 21 → Kar: Things like that and she [grows ( ) 22 Doug: [Definitely 23 → Kar: lots of vegetables? 24 (2.2) 25 → Kar: °Dun’t she° 26 (0.5) 27 Doug: Hhhh 28 (4.5) 29 Kar: Which reminds me did you get your bananas yesterday?
Karina’s tag-formatted utterances here can be seen to repeatedly make expectable responses from Doug, with a preference for Doug to produce aligning responses, agreeing with or confirming what Karina has said. In this way, Karina is able to elicit participation from Doug and to co-construct the topic talk in a particular way; while she provides the vast majority of the content, Doug’s contribution can be limited to responding to – usually in the form of aligning with – that content. Here, therefore, Karina can bring into the conversation, and develop topical talk about, someone who is within Doug’s lifeworld, but whom Doug himself may not have been able to topicalize within the conversation due to his impairments. At the same time, her tag-formatted utterances are hearable as an acknowledgement that this content is (or should be) within Doug’s epistemic domain, and they function to elicit Doug’s alignment with, and co-construction of, this content.
In Extracts 3 and 4 it is possible to see how a co-participant uses tag-formatted utterances to talk about what for the speaker is a ‘B event’ information (Labov & Fanshel, Reference Labov and Fanshel1977), that is information that primarily is, or should be, within the recipient’s epistemic domain. In each of these examples (from conversations on different days) Reg states that Sarah did not sleep well during the previous night (lines 11–12 in Extract 3; lines 11–12 in Extract 4).
Extract 3
01 Reg: And Suzanne’ll (.) fetch us out n’ take 02 us somewhere maybe for a meal 03 (1.3) 04 Reg An ride round for you 05 (1.2) 06 Reg You can say you’ve been out then. 07 (2.6) 08 Reg Alright? 09 Sar: °Mmm (0.3) yeah° 10 (0.5) 11 → Reg: Now you didn’t sleep very well last night 12 → did ya? 13 Sar: I don’t know. ((gaze to Reg)) °( )° 14 Reg: You was up and down <all. night long> 15 (1.2) 16 Reg: Saying that you couldn’t sleep. 17 Sar: °(Right)° Extract 4
01 Reg: The other day there was a lot of snow in the hills, 02 Sar: Yeah 03 Reg: Up there. 04 Sar: Yeah yeah w- w- its high up in’t it up there 05 Reg: °Yeah° 06 Sar: Mm 07 (2.2) 08 Reg: It is. 09 Sar: °Yeah° 10 (0.4) 11 → Reg: So::, you didn’t have a good night’s sleep last night 12 → did ya 13 Sar: I don’t know darling, didn’t I no? 14 Reg: No no you was [awake 15 Sar: [(And yet) I get tired. I feel tired ↑now. 16 Reg: Yeah.
Whether one has slept well or not is clearly something about which the person concerned would be expected to have primary epistemic rights. Such information concerning something experienced first-hand by the person themselves is an example of a Type 1 knowable and, as such, something that a participant has rights and obligations to know (Pomerantz, Reference Pomerantz1980). Asserting information about such issues relating to the recipient risks being heard as epistemic trespassing (Bristol & Rossano, Reference Bristol and Rossano2020). Here this risk is mitigated to some extent by being asserted in the form of a tag question, acknowledging these issues as something which should be within the recipient’s epistemic domain and eliciting a response from Sarah in regard to what is being asserted.
There is, therefore, a sense across these conversations involving a person with dementia that the co-participants are controlling the topical content of the talk through most commonly bringing into the conversation matters that they (the co-participants) already know something about, and less frequently asking the person with dementia questions to which they as questioners do not know the answer. A reason for this can be seen to be that the participants with dementia in our dataset are at a level of severity in their illness where they might not be able to provide an answer which provides the information the question is asking for. For these co-participants, tag questions are thus one alternative to producing information-seeking questions such as yes/no questions; while, like yes/no questions, they elicit a response from the person with dementia (here, typically aligning responses) and, as such, scaffold their participation in the conversation, tag questions also permit the co-participant to talk about matters about which they already have knowledge, or at least a good hunch, as to what the response might be.Footnote 5
One area of conversation to which these issues can be seen as pertinent is topic proffers (Schegloff, Reference Schegloff2007) by the co-participant of the person with dementia. Reg, for instance, appears to quite regularly proffer topics to Sarah in the form of tag questions. This was seen in Extract 3 (lines 11–12) and Extract 4 (lines 11–12 as well as in Extract 1 (lines 08–09). Schegloff (Reference Schegloff2007) notes that topic proffers (in conversations involving typical adult participants) are most commonly implemented by yes/no questions, and that one type of topic which is often initiated in this way is what he terms ‘recipient-oriented topics’ (170) where it is the recipient who is treated as the more authoritative speaker regarding the matters raised, and who is being set up to be the primary speaker in the topic. In the case of Extracts 1, 3 and 4 it is notable that Reg produces the topic proffer in the form of a tag question rather than a yes/no question. This format for doing the topic proffer means that while Reg launches a topic where he is treating Sarah as the authoritative person (regarding whether she is looking forward to visiting Jean on Wednesday, or how she slept the previous night), he does so in a way where he also has some knowledge of the matters he is proposing Sarah talks about, and thus has some control regarding how the topic might develop (compare, for example, ‘did you sleep well last night?’).
The benefits for the co-participant of having some epistemic access to the issues being discussed can be seen in Extracts 1, 3 and 4, where in each case Sarah does not take the proffered topic forward due to reasons of inability (displayed either as a statement of inability such as ‘I don’t know’ in Extracts 3 and 4, or through her apparent disorientation in Extract 1 regarding the place in time of the issues being discussed). In such cases, Reg is then able to use his knowledge of the matters under discussion (for example, in Extracts 3 and 4 his knowledge of how well Sarah slept based on his observations of her behaviour during the night) to pick up and develop the topic.
7.3.2 Tag-Formatted Challenges
In the previous section we described the use of tag-formatted assertions and assessments by Reg and Karina, two spouses of people with semantic dementia in our dataset. In this section we describe a different type of tag-formatted utterance. This type of utterance – challenges, here in a tag-formatted form (Keisanen, Reference Keisanen and Englebretson2007) – are produced by only one of the spouses, Joanna.
We discuss two episodes here. In both cases, Peter has asked Joanna a question, and following that question (either in the next turn at talk, or in a later turn) Joanna challenges it. In both Extract 5 and 6a this is done in a similar way; with ‘we’ve just been talking about it, haven’t we?’ in Extract 5, and with ‘we’ve been talking about it … haven’t we?’ in Extract 6a. As such, Joanna treats the production of Peter’s question at this point as inappropriate or inapposite in some manner (Heritage, Reference Heritage1998). That is, in requesting information, each of Peter’s questions implicitly claims that he does not have access to this information, while simultaneously presupposing that Joanna does, or is likely to (Heritage, Reference Heritage1984). As such, Peter claims a right to ask the question, and puts some form of obligation on Joanna to answer it (Heritage & Raymond, Reference Heritage, Raymond and De Ruiter2012). In each case, however, Joanna produces a response which is disaligning and disaffiliative (Stivers et al., Reference Stivers, Mondada and Steensig2011); that is, rather than answering the question, she produces a challenge to Peter (see Keisanen, Reference Keisanen and Englebretson2007) which disputes his implicit claim not to have had access to the information that he is requesting.
Extract 5 provides the first example.
Extract 5: Pet=Peter; Jo=Joanna
01 Pet: .Hh (.) so: (.) if its clo:sed, what >what what< 02 shall I do today:? 03 (1.6) 04 → Jo: Ghhhh we’ve just been talking about it haven’t we? 05 Pet: Mm, driving range. 06 (0.3) 07 Jo: Yup. 08 Pet: Mm
The couple are chatting at breakfast. Following a lapse in the conversation Peter asks Joanna a question about what he should do that day if (due to the current cold weather) the golf course is closed (lines 01–02). In his conversations, Peter regularly asks what he or they are doing next or doing later that day, and indeed earlier in this conversation (not shown here) he has already asked a similar question (‘what are we doing today?’), to which Joanna has answered that he was supposed to be playing golf with a friend but that she now has to check whether the golf course will be open or not that day. She reminds Peter they had discussed this issue earlier in the conversation and then prompts him with ‘and what did I suggest?’, to which Peter answers ‘driving range’. So, prior to Extract 5 the couple have already discussed this issue twice in the conversation, with Joanna each time highlighting that Peter may have to go to the driving range (to practise his golf shots) rather than playing a round of golf. Peter has been able to remember this, but only after prompting.
In lines 01–02, therefore, the design of Peter’s question displays that while he has remembered from earlier in the conversation that the golf course may be closed, it appears that due to his memory problems associated with dementia he has again not remembered the alternative suggested twice previously by Joanna, that is that he might go to the driving range instead. As such, Peter in lines 01–02 violates the social norm of a speaker not asking a recipient for information if the speaker has already been given that information (Stivers et al., Reference Stivers, Mondada and Steensig2011).
While an answer to the question, such as ‘you could go to the driving range’, would be the aligning response, Joanna does not produce this type of action. Note that such a response would ignore the inappropriateness of the question and avoid an allusion to the possible cause of that inappropriateness, that is the dementia. Instead, the delay (line 03) and laughter (‘ghhhh’ at the start of line 04) foreshadow a disaligning response, and when Joanna does respond (line 04), it is in the form of tag-formatted challenge to Peter’s prior initiating action, with that response used to ‘challenge the appropriateness or relevance of doing the action completed in the prior turn’ (Keisanen, Reference Keisanen and Englebretson2007: 269). Joanna’s challenge in line 06 indexes Peter’s question as, in effect, not justified at this juncture and, as such, can be heard as a complaint (Heinemann & Traverso, Reference Heinemann and Traverso2009). Her turn also acts as a ‘counter’ to Peter’s question, replacing her possible answer with a question of her own (Schegloff, Reference Schegloff2007).
The tag-formatted version of this counter-question makes two actions relevant from Peter in his response, both of which he subsequently produces (line 06): an agreement (‘mm’) and an answer to his own question (‘driving range’). The tag format is notable since, in making relevant a response from Peter, it pushes him towards producing an aligning response, which in this case will involve him acknowledging the couple’s earlier discussion of this issue. As such, Joanna’s tag-formatted challenge both highlights the inappropriateness of Peter’s question (and, by inference, the dementia which purportedly was the cause of the inappropriate question) and pushes Peter towards acknowledging that his question was inappropriate.
Extract 6a shows a similar phenomenon. Just prior to where this extract starts, the couple have been discussing an appointment that Peter has at the hospital the following day with his cardiologist, Colin Mee. Professor Jones, a consultant who Peter sees at the same hospital concerning his dementia, has also been discussed in this conversation. As the extract starts (line 01), Joanna once again mentions Professor Jones, producing a tag-formatted assertion (which we will not further discuss here) about the hospital being the place where Peter goes to see him, with the tag eliciting an aligning response from Peter (line 02). At line 05, Peter then picks up on this mention of Professor Jones, asking ‘and am I seeing … him there?’, where the ‘him’ refers to Professor Jones and the question clearly concerns the hospital appointment the following day. Peter has evidently forgotten, or got confused about, the earlier part of the conversation where the couple had talked about the fact that the appointment the following day was with the cardiologist, Colin Mee. As in Extract 5, Joanna treats Peter’s question as an inappropriate action to have been produced at this juncture.
Extract 6a
01 Jo: Its where you go to see Professor Jones (.) isn’t it 02 Pet: ⌈Mm 03 Jo: ⌊At the hospital. 04 (3.8) 05 Pet: And am I seeing (1.3) him there? 06 Jo: ((head shake)) No::, 07 (2.1) 08 Jo: No we’ve just discussed wh- why you’re going 09 (3.8) 10 Jo: Why are you going tomorrow? 11 (3.1) 12 Jo: Who are you going to see? 13 (3.7) 14 Pet: I don’t know. 15 Jo: ((‘disappointed’ look)) Owwhh (.) you do know. 16 Pet: ((turns head away; sighs)) 17 → Jo: ↑We’ve been talking about it 18 (0.7) 19 → Jo: Haven’t we? 20 Pet: Mm. 21 (4.0) 22 Jo: Going to see the <cardiologist.> 23 Pet: ↑Oh:::: god!
In response to Peter’s question, Joanna produces a disaffirmation (line 06). Since Joanna clearly knows who Peter is seeing at the hospital the next day, her turn consisting of a head shake and ‘no’ is hearable as purposefully withholding the other information that would fully answer Peter’s question, that is the identity of the relevant doctor. With this turn and the several turns that follow (i.e., lines 06, 08, 10, 12, 15 and 17–19) Joanna is clearly acting in a pedagogic manner, attempting (unsuccessfully) to elicit from Peter the identity of the doctor. The last of these turns (lines 17–19) is a tag-formatted challenge which, like that in Extract 5, pushes Peter towards acknowledging (line 20) that the couple had indeed been talking earlier in the conversation about which doctor they will be seeing the following day (who is not Professor Jones), and that his question was therefore inappropriate.
In Extracts 5 and 6a the tag-formatted nature of Joanna’s turns can be seen to add an element of coercion (see Hepburn & Potter, Reference Hepburn and Potter2011) to the challenges by putting interactional pressure on Peter to acknowledge that the matters he has asked about had been discussed earlier in that conversation.Footnote 6 This element of coercion is evident when these two tag-formatted challenges (Extract 5, line 06; Extract 6a, lines 17–19) are compared with another challenge in Extract 6a by Joanna in response to Peter’s question: ‘no we’ve just discussed wh‑ why you’re going’ in line 08. While this utterance is still hearable as challenging Peter’s question and implying criticism of it, the lack of an interrogative tag means that Peter is not under interactional pressure to confirm this previous discussion and thus to acknowledge any ‘fault’ or ‘blame’ on his part. Indeed, he does not produce an agreement (nor any other talk) in the next available slot (line 09), and it is Joanna who speaks next (line 10).
This coercive feature of tag-formatted challenges is seen particularly clearly in a final instance, Extract 6b, which is a continuation of Extract 6a. After his confirmation in line 20, Peter still displays an inability to identify the doctor (line 21), and at this point Joanna produces part of the answer to her own test (or ‘known-answer’ (Schegloff, Reference Schegloff2007)) question in line 12, in effect reminding Peter that he is going to see the cardiologist (line 22). Joanna’s production of this action is produced with a tag (line 25).
Extract 6b
19 → Jo: Haven’t we? 20 Pet: Mm. 21 (4.0) 22 → Jo: Going to see the <cardiologist.> 23 Pet: ↑Oh:::: god! 24 (0.3) 25 → Jo: Aren’t you? 26 Pet: Yeah. 27 Jo: The hear:t man. 28 (1.4) 29 Jo: Colin Mee. 30 (0.4) 31 Pet: ↑Oh: go::d! ↑yeah! 32 (3.1) 33 Pet: Yeah yeah 34 Jo: ((‘disappointed’ look, breaking into small smile)) 35 Pet: I’m sorry lovey. 36 Jo: ((reaches over and touches his hand)) no you don’t 37 Have to say sorry=I know you can’t help it. (0.4) Pete 38 (0.3) but-but we have y’know we’ve just talked about it 39 Pet: Mm, (.) mm, 40 Jo: Literally two minutes ago.
Like the tag-formatted challenges in Extracts 5 and 6a, this tag functions to elicit agreement from Peter that he had previously had access to the information requested, and indeed he then produces an agreement in line 26. A notable feature of the tag in this case, however, is that it is delayed. Not only is it separated in time from the action (line 22) that is attached to, it is also produced after a response cry (Goffman, Reference Goffman1978) of ‘oh god’ from Peter, which is hearable as claiming some form of realization that the cardiologist had indeed been discussed earlier in the conversation. In this context, therefore, Joanna’s subsequent addition of the tag in line 25 acts to elicit a further agreement from Peter, acknowledging that he had been provided with this information earlier.
Cameron et al. (Reference Cameron, McAlinden, O’Leary, Coates and Cameron1988) discuss a somewhat similar coercive function of tag-formatted actions where the action is also indexing some action or activity of the recipient as blame-worthy. In their study, the tag-formatted utterance discussed is produced by a magistrate to a defendant and takes the form of ‘you’re not making much effort to pay off these arrears, are you?’ Cameron et al. observe that designing this accusation with an interrogative tag is hearable ‘as a way of increasing the addressee’s humiliation. Not only is the defendant … being accused of bad faith and idleness, he is also being invited (in an extremely conducive manner) to agree with the magistrate’s assessment of his behaviour’ (p. 88). As with Cameron et al.’s example, Joanna’s tag-formatted utterances in Extracts 5, 6a and 6b work not only to critically challenge Peter and put him on the spot regarding not remembering something that (as Joanna treats it) he should have remembered, they also put interactional pressure on him to respond in a manner which will publicly acknowledge this ‘blameworthy’ forgetting.
As noted above, Joanna is the only spouse of the three who engages in such challenges which act to highlight some aspect of the person with dementia’s conduct as inappropriate. Evidence from persons with other types of communicative impairments suggests that one motivation for the conversation partner to highlight the incompetence of the person with the impairment within conversation may be to improve that person’s talk/conduct in the future (Wilkinson, Reference Wilkinson2014). Whatever Joanna’s motivation, it is clear that at these points in the conversation she is choosing to display a critical stance towards the consequences of Peter’s memory impairments that have resulted from his dementia and to highlight his incompetence in this regard. One consequence of this critical stance that is evident in Extracts 6a and 6b is that Peter subsequently apologizes for forgetting who the couple have been talking about (line 35). In effect, Peter has been brought to a position of apologizing for the consequences of his dementia, and Joanna’s tag-formatted utterances have been a feature of her talk that have pushed him towards acknowledging, and then later apologizing for, this forgetting.
7.4 Discussion
In the Analysis section, we examined two different forms of tag-formatted utterances used by the co-participants of people with dementia in domestic conversations, that is tag-formatted assertions and assessments (Extracts 1–4) and tag-formatted challenges (Extracts 5 and 6). In the introductory section we also noted that tag questions have been discussed in the literature as a recurrent feature of ‘elderspeak’ talk. We will now briefly examine some tag-formatted utterances from that literature before drawing together some general features concerning tag question use by co-participants of people with dementia.
Three examples from the elderspeak literature are set out below:
Extract 7: ‘you want to get up now, don’t you?’ (Williams et al., Reference Williams, Herman, Gajewski and Wilson2009: 12)
Extract 8: ‘you want to take your medicine now, don’t you?’ (Williams et al., Reference Williams, Kemper and Hummert2004: 6)
Extract 9: ‘you would rather wear the blue socks, wouldn’t you?’ (Williams et al., Reference Williams, Kemper and Hummert2004: 7)
We should note straightaway that these three examples have limitations in terms of standard conversation analytic investigation. While the papers the examples come from are based on observational studies of nursing care for people with dementia, the examples seen in Extracts 7–9 are presented there as isolated utterances, with no talk prior to, or following, the tag-formatted utterance provided. As such, we have little information about the sequential context within which each of these utterances was produced, or how each was responded to. Nevertheless, it is possible to see from the extracts and from the discussion in the papers from which they come that in each case the care staff member is attempting to get the recipient to do something (to get up, to take their medicine, to choose a certain item of clothing). They do this using a particular turn design whereby they provide an assertion concerning what the person with dementia wants or would like (compare, for example, ‘I think you should get up now’ or ‘it’s time to take your medicine now’) with a tag question appended. The tag in each case increases the deontic force of the staff member’s utterance by putting interactional pressure on the person with dementia to align with what is being asserted that the person with dementia wants.Footnote 7 An aligning response by the person with dementia will be heard here as acquiescence to the suggested course of action put forward by the staff member. By analysing how the turns are designed in these ways, it is possible to see the linguistic and interactional practices through which the utterances seen in Extracts 7–9 might ‘politely push older adults’ answers and behaviours in a desired direction’ (Schnabel et al., Reference Schnabel, Wahl, Streib and Schmidt2021:417).
At the start of this chapter we highlighted two reasons for analysing these tag-formatted utterances produced by co-participants of persons with dementia. One concerned how this type of utterance could be seen to be recipient-designed for a person with dementia. We have aimed to show here how the tag-formatted assertions and assessments seen in Extracts 1–4, the tag-formatted challenges seen in Extracts 5, 6a and 6b and the tag-formatted utterances by care staff suggesting what the person with dementia wants (Extracts 7–9) can each be seen to be designed in ways which take into account the fact that the recipient has dementia. As such, we suggest, such uses of tag-question-formatted turns are one way in which these co-participants have systematically adapted aspects of the way they talk, in particular in relation to turn design (Drew, Reference Drew, Sidnell and Stivers2013), when interacting with the person with dementia (see Wilkinson et al. (Reference Wilkinson, Lock, Bryan and Sage2011) for a discussion of adaptation, including by the co-participants of people with communicative impairments).
The second reason concerned one consequence of this adapted form of talk, that is how the tag-formatted utterances by the co-participants might influence (and, in particular, constrain) the contributions of the persons with dementia. We have noted that the tag questions produced by the co-participant put interactional pressure on the person with dementia to produce an aligning response. In the case of some types of tag-formatted utterances this aspect of tag questions appeared particularly coercive (Hepburn & Potter, Reference Hepburn and Potter2011). For example, in Extracts 5, 6a and 6b the tags pushed Peter, the person with dementia, to confirm that questions he had asked were inappropriate due to the fact that earlier in the conversation he had been provided with information that he was now asking about. In Extracts 7–9 the person with dementia appeared to be being pushed to acquiesce with a particular line of action (e.g., taking medicine now) that was suggested as being what the person with dementia themselves wanted.
It is therefore possible to see how tag questions use by co-participants of persons with dementia might be viewed negatively, as is the case in much of the elderspeak literature. However, examples such as those seen in Extracts 1 to 4 highlight a more facilitative use of this form of adapted talk, that is encouraging the participation of the person with dementia in topic talk concerning matters within that person’s lifeworld. As such, an implication of the findings presented here is that tag questions per se should not be viewed as necessarily a negative or problematic feature of the talk of those interacting with people with dementia; rather, the tag-formatted utterance needs to be analysed as a whole (including in relation to the action produced in the anchor clause) within its interactive context.
Finally, and more broadly, the analysis of co-participants’ use of tag questions in these extracts has highlighted how dementia can impact particular ‘orders’ (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014) or ‘territories’ (Heritage, Reference Heritage2012) involved in human social relations, that is what Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014 term the epistemic order, the deontic order and the emotional order. As has been noted here, the effects of dementia can impact the affected person’s control of these territories and the maintenance of their own agency in this regard.
Concerning the epistemic domain, or what Heritage (Reference Heritage2012:4) terms ‘territories of information’, the impairments associated with dementia can regularly result in the person with dementia not being able to remember, and therefore not currently knowing about, features of their life which would normally be assumed as being central to an adult’s epistemic domain. As seen in the extracts above, this includes personal information such as what they did recently, whether they slept well last night and other forms of Type 1 knowables (Pomerantz, Reference Pomerantz1980). As was evident in Extracts 1–4, co-participants’ tag-formatted assertions and assessments can function to allow the co-participant to produce utterances which would normally be seen as epistemically trespassing (Bristol & Rossano, Reference Bristol and Rossano2020) into the recipient’s territory of information while at the same time mitigating this to some extent through the use of those tags.
Concerning the deontic order, the impairments associated with dementia may make it harder for the person with dementia to carry out everyday activities, either independently or with another person’s assistance. In such circumstances, a co-participant, such as a care worker, may talk in ways (Extracts 7–9) which can be heard as encroaching on the recipient’s deontic territory and, through the use of tags, putting interactional pressure on the person with dementia to acquiesce with the co-participant’s suggestion as to what the person with dementia wants to do and should do.
Finally, concerning the emotional order, the impairments associated with dementia can result in the person with dementia displaying interactional incompetence in the form of, for example, producing inappropriate actions (such as asking a question concerning information which they have already been given) while being apparently unaware of this inappropriacy. In this situation, the co-participant might take it upon themselves to display a critical stance towards this presentation of interactional incompetence. Again, tags can play a role in this through eliciting agreement from the person with dementia in acknowledging the inappropriacy.
As such, it can be seen that dementia can impact on the affected person’s ability to preserve their ‘negative face’, that is ‘the basic claim to territories, personal preserves, rights to non-distraction – i.e. to freedom of action and freedom from imposition’ which ‘all competent members of a society have’ (Brown & Levinson, Reference Brown and Levinson1987: 61). In the case of dementia, as seen in the extracts presented here, the co-participant of a person with dementia can orient to knowledge, power or interactional competence as being asymmetrically shared between the dyad and can produce talk which is hearable as encroaching upon the person with dementia’s epistemic, deontic or emotional territory. A warrant for this can be that the person with dementia is judged by the co-participant to be not sufficiently competent (Brown & Levinson, Reference Brown and Levinson1987) to act independently as regards, for example, remembering what they did in the previous week (Extract 1), recognizing their inappropriate question (Extracts 5, 6a and 6b) or deciding which socks they would prefer to wear (Extract 9). In this situation, the co-participant can produce talk which, while hearably trespassing into one or more domains of the person with dementia, can act – so the co-participant could argue – to achieve something (e.g., scaffold the participation of the person with dementia in the conversation in Extracts 1–4, make the person with dementia aware of their inappropriacy in Extracts 5, 6a and 6b, or in Extracts 7–9 get a task done, such as getting the person with dementia to take their medicine). While these ways of talking can be reasonably argued as having negative consequences for the person with dementia, at least in some cases (e.g., Williams et al., Reference Williams, Herman, Gajewski and Wilson2009; Schnabel et al., Reference Schnabel, Wahl, Streib and Schmidt2021), they also highlight some of the difficult interactional dilemmas that co-participants of people with dementia can face in regard to how they design their talk when interacting with the affected person (see also Elsey, Reference Elsey, Wilkinson, Rae and Rasmussen2020).
8.1 Introduction
The capacity to take the initiative in conversation and influence the development and outcome of the talk may be reduced for persons living with dementia. Limited communicative resources and loss of episodic and working memory can be consequential for the opportunities of persons with dementia to voice their opinions and initiate and pursue communicative projects in interaction. In conversation, persons with dementia often take (and are given) a passive role, restricted to providing responses and answers to initiatives taken by others (Backhaus, Reference Backhaus2018). Moreover, the epistemic authority of persons with dementia may be reduced in situations where their knowledge claims are treated by conversational partners as uncertain or unreliable (Lindholm, Reference Lindholm2015). Also, their deontic authority may be at risk, affecting their influence on everyday matters (Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022). As a dementia condition progresses, a person living with dementia will usually need support from formal or informal caregivers in order to meet basic needs and handle everyday tasks. People in need of institutional care may lose autonomy by caregivers imposing on their right to decide for themselves (Heinemann, Reference Heinemann and Backhaus2011).
In this chapter we present a case study of an extended negotiation between a person with a dementia diagnosis and his homecare nurse, illustrating how a speaker with limited communicative resources influences the course of action and interactional outcome by taking topical initiative and persistently pursuing it across a series of sequences. The analysis focuses on how the person with dementia pursues his communicative project in two interrelated domains: first, how he argues for a specific understanding of the world, thus pursuing an epistemic project of deciding ‘how the world is’; second, how he promotes and pursues a decision about how to handle a practical problem, and thus seeks to accomplish a deontic project of deciding how the world ‘ought to be’ (Stevanovic, Reference Stevanovic2013: 298). The case is special in that it shows how a person with dementia manages to overcome interactional challenges, gain acceptance of his knowledge claims and recruit assistance with a practical task.
8.1.1 Epistemics and Dementia
In conversation, social actors regularly present and argue for specific versions of events or states in the world. As described in the field of social epistemics, knowledge is socially organized and implies normative rights and obligations concerning who is expected to know and be able to report what (Stivers et al., Reference Stivers, Mondada and Steensig2011). In typical interaction, social actors are expected to have privileged access to certain domains of knowledge, especially personal experiences (Pomerantz, Reference Pomerantz1980). Furthermore, they have epistemic authority and primary rights to report and evaluate events and states-of-affairs within these domains (Heritage & Raymond, Reference Heritage and Raymond2005).
A central problem in atypical interaction involving persons with dementia (and other cognitive impairments) is that these fundamental expectations and rights may not always be taken for granted. Several studies have investigated how problems with episodic memory may lead to communicative problems, such as being unable to answer questions about personal history (Nilsson, Reference Nilsson2017; Hamilton, Reference Hamilton2019; Svennevig & Landmark, Reference Svennevig and Landmark2019; Schrauf, Reference Schrauf2020) or making factual statements that are (more or less obviously) incorrect (Lindholm, Reference Lindholm2015; Hydén & Samuelsson, Reference Hydén and Samuelsson2019; Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021). Consequently, persons living with dementia have an epistemic status that makes their knowledge claims vulnerable to doubts concerning their epistemic value (Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022).
Such reduced expectations of epistemic access are manifested in several characteristic patterns of interaction involving persons with dementia. For instance, interlocutors may format their questions in a way that displays lowered expectations of epistemic access, such as ‘do you remember…’ (e.g., Williams et al., Reference Williams, Webb, Dowling and Gall2019) or by suggesting candidate answers in the question itself (Svennevig & Landmark, Reference Svennevig and Landmark2019). They may also perform blunt other-corrections of statements rather than inviting the persons with dementia to self-correct, thus displaying lowered expectations that they are able to access the correct information themselves (Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021). When talking to third parties, spouses and other accompanying persons may answer on their behalf instead of letting the person with dementia speak for themselves (Österholm & Samuelsson, Reference Österholm and Samuelsson2015; Nilsson, Ekström & Majlesi, Reference Nilsson, Ekström and Majlesi2018; Hamilton, Reference Hamilton2019).
8.1.2 Deontics, Elderly Care and Agency
In conversation, social actors also negotiate rights to determine future actions (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014; Rossi & Zinken, Reference Rossi, Zinken, Enfield and Kockelman2017). The field of social deontics studies how participants seek to define and get acceptance for what is necessary and desirable, and what should, or should not, be done in the immediate or remote future. It also investigates how they negotiate who has the right to tell others what to do and the obligation to do what others tell them to (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2012). The manifestations of deontic rights in conversation may vary in explicitness and degree of imposition. As shown by Kendrick and Drew (Reference Kendrick and Drew2016), ways of recruiting assistance vary along a continuum involving at least three forms. At one end we find explicit requests, in the middle we find reports or embodied displays of trouble, giving the interlocutor an opportunity to offer assistance, and at the other end of the continuum we find projectable trouble, in which the interlocutor offers assistance pre-emptively in the face of a projectable (or anticipated) trouble.
Studies from elderly care have shown that care recipients’ opportunities to exert agency and influence their everyday life may sometimes be at risk. The notion of agency can be described as ‘the fundamental conditions and constraints under which we pursue our goals, from the simplest everyday actions to the greatest uses and abuses of power in society’ (Enfield & Kockelman, Reference Enfield, Kockelman, Enfield and Kockelman2017: xv). In this study, agency is understood as the interactional realization of interlocutors’ communicative projects, and their opportunity to exert influence over how the world is (epistemic rights) and how the world ought to be (deontic rights) (Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014; Antaki & Crompton, Reference Antaki and Crompton2015). Providing help and assistance with everyday needs and tasks (e.g., health-related, social, and practical) are often given much weight in formal care settings. In later life, and especially for those living with dementia, the need for assistance, and thus reliance on others, may be pressing (Lindström, Reference Lindström, Hakulinen and Selting2005; Persson & Wästerfors, Reference Persson and Wästerfors2009; Ryvicker, Reference Ryvicker2009; Brooker & Kitwood, Reference Brooker and Kitwood2019). In such cases, agency may be distributed, that is ‘divided up and shared out among multiple people in relation to a single course of action’ (Enfield, Reference Enfield, Enfield and Kockelman2017: 9).
Elderly people in need of formal care have been shown to gradually lose autonomy and agency through the communicative practices that evolve in interaction with their caregivers. Heinemann (Reference Heinemann and Backhaus2011) shows how various routine activities in homecare develop over time with the effect that the roles become increasingly institutional and asymmetric, and the care recipients are gradually ascribed less autonomy. For instance, in the case of giving advice, she notes that ‘advice is delivered in a way that clearly positions the caregiver as the expert with the appropriate competence to say what is, or is not, good for the care recipient, while the care recipient is treated almost like a child who is unable to determine for herself what is necessary’ (Heinemann, Reference Heinemann and Backhaus2011: 105).
A few studies have investigated how care recipients manage to accomplish practical tasks or resolve trouble in close collaboration with their care providers. Lindström (Reference Lindström, Hakulinen and Selting2005) describes a variety of syntactic structures care recipients deploy for requesting assistance in the Swedish home help service. Jansson et al. (Reference Jansson, Plejert and Lindholm2019) show the range of multimodal resources elderly multilinguals draw on when seeking assistance in Swedish residential care. The study describes ‘the fine interplay among talk, prosody, gesture and the manipulation of an object’ (p. 23) utilized for recruiting assistance from the care provider, in concert with the extensive efforts made by care providers in figuring out what kind of assistance is being sought. As pointed out by the authors, these sequences of seeking and achieving assistance ‘involve great interactional efforts on the parts of both caregiver and resident’ (p. 3).
Related to the question of deciding on remote actions in the future is the issue of deciding on actions in the present situation, more specifically, the development of the talk and the course of the interaction. People engage in conversation in order to accomplish communicative projects (Linell, Reference Linell2009) and engage in social activities (Levinson, Reference Levinson1979; Mazeland, Reference Mazeland, Reber and Gerhardt2019). Participants may establish a joint project by agreeing on a task (such as making an appointment to go to the movies) to be carried out in collaboration through their conversational contributions. Deontic authority is manifested in the ways the participants launch such projects and influence their development. One way this may be done is by producing ‘first actions’ in adjacency pairs (Schegloff, Reference Schegloff1968). First actions, such as questions and requests, set topical agendas and action agendas that enable and constrain second actions by creating expectations of alignment with the proposed topical content and the projected responsive action type (e.g., an acceptance of a request) (Heritage & Clayman, Reference Heritage and Clayman2011). Another way deontic authority may be manifested is by pursuing an action agenda in the face of resistance or other forms of misalignment from the interlocutor (Pomerantz, Reference Pomerantz, Atkinson and Heritage1984).
In a study of resident–staff interaction in a Japanese eldercare facility, Backhaus (Reference Backhaus2018) found a general pattern that care providers shaped the interactional flow and course of action by producing first pair parts (FPP) of adjacency pairs. Consequently, ‘the residents’ common lack of access to FPP turns severely curtails their agency, assigning them a largely passive role that calls for reaction rather than action’ (p. 215). Of particular interest for the present study, a few deviant cases showed examples of residents going first. Backhaus noted that this ‘reversed turn structure thus allows the resident to more substantially influence the course of the actions’ (p. 214). The present study contributes to this line of inquiry by investigating how a person with a dementia diagnosis and limited verbal resources may successfully influence the course of action by taking topical initiatives and persistently pursuing them in the face of resistance across a series of sequences.
8.2 Data and Method
The data investigated in this chapter were collected within a larger research project on multilingual speakers with dementia in Norway (Svennevig et al., Reference Svennevig and Landmark2019). The data include audio and video recordings of seven elderly multilingual speakers with dementia collected in three different settings: psycholinguistic language testing, research interviews about their language background, and naturally occurring conversations with family, friends, and health care professionals. The data for this case study were drawn from the latter part and consists of a 38-minute-long video recording of a homecare visit. The participants were recruited from a memory clinic and from day care centres for elderly people. Informed consent was secured both in writing and orally from all participants in the study. Identifiable information such as names of persons and places are anonymized. The study has been approved by the Regional Committee for Medical and Health Research Ethics in Southeast Norway (2016/597).
The participants in the study are ‘Koki’ (aged 85) and his homecare nurse ‘Amina’. Koki is diagnosed with amnestic Alzheimer’s disease, which means that memory problems constitute the primary symptom (McKhann et al., Reference McKhann, Knopman and Chertkow2011). At the time of recording, he was at a moderate stage of his dementia and lived alone in his home with support from health care professionals (nurses and home help providers) visiting three times a day for assistance in meal preparation. Amina is his primary responsible nurse, visiting Koki almost daily. Both participants are second language (L2) speakers of Norwegian. Amina has an East African background. Koki has a Northeast Asian background, and he has lived and worked in Norway since early adulthood. As L2 speakers, some of their utterances include unidiomatic constructions and non-standard pronunciation and intonation patterns, which in some cases may influence their mutual understanding. Unidiomatic constructions in the original language are marked with asterisks in the transcription, although these constructions are not always visible in the English translation (for instance when the speakers employ a word order consistent with English rather than Norwegian syntax). The data have been transcribed following the conventions developed by Gail Jefferson (Reference Jefferson2004) and are presented with a two-line transcription, where the first line represents the original talk. The second line represents an idiomatic English translation, as Norwegian and English are closely related languages, and the analysis does not focus on grammar specifically (Hepburn & Bolden, Reference Hepburn, Bolden, Sidnell and Stivers2013).
The case is selected because it provides an illustrative example of a person with dementia managing to accomplish both epistemic and deontic goals despite limited communicative resources and a misalignment with a healthy interlocutor. By describing the communicative resources available to the person with dementia in managing a disagreement about factual states of affairs and recruiting assistance in accomplishing a practical task, it illustrates the communicative opportunities rather than the limitations of persons with cognitive and communicative challenges due to dementia. As such, it may provide important knowledge to those supporting persons with dementia in mobilizing and supporting their remaining communicative resources.
Conversation analysis (CA) is used for analysing the establishment and development of a negotiation concerning both a factual disagreement (within an epistemic domain) and a related negotiation of a practical problem (within a deontic domain). The analysis thus identifies the epistemic and deontic claims made by the participants related to these issues and investigates to what degree they are accepted or challenged by the interlocutor. Five extracts are selected for close analysis, representing the main parts of this extended, coherent negotiation about a tube of dental adhesive that Koki uses for fastening his dental prosthesis. The extracts represent the key events in the establishment of a disagreement about the origin of the tube and the resolution of it. Furthermore, they show how the participants agree on a practical task, namely to acquire a new and different type of adhesive. As such, they are chosen because they illustrate Koki’s active role in furthering his epistemic and deontic goals.
8.3 Analysis
This section presents five extracts of an extended negotiation between Koki (K) and his homecare nurse Amina (A) during a dinner visit in Koki’s home. The analysis focuses on how Koki initiates and pursues two (interrelated) communicative projects within an epistemic and deontic domain respectively, and what resources the interlocutors mobilize for realizing these projects.
8.3.1 The Disagreement Emerges
The first extract shows how Koki initiates a topic and thereby sets both the topic and the action agenda of the ensuing talk. Furthermore, it shows how he contradicts the nurse, thereby initiating a disagreement.
Prior to Extract 1, Amina has asked about whether he is using the dental prosthesis today. She finds out that the (pink) tube of dental adhesive he normally uses for fastening the prosthesis is empty and promises to buy a new one the next day (data not shown). Around five minutes later, while Koki and Amina are sitting by the kitchen table waiting for the soup to be ready, Koki picks up a different tube of dental adhesive standing on the table in front of him and starts inspecting it. Amina notices the embodied action, and provides a topic proffer that develops into (more) talk about the adhesive:
Extract 1 (10:57–11:29): A=Amina; K=Koki
| 01 | (8.0) ((K grabs tube and inspects it)) | |
| 02 | A: | Er det li:m? (.) til tannprotesen? |
| Is it adhe:sive? (.) for the dental prosthesis? | ||
| 03 | (1.5) | |
| 04 | K: | Har jeg fått ny:lig? |
| Have I got re:cently? | ||
| 05 | (.) ((K gazes towards A)) | |
| 06 | A: | .H ne:i. |
| .H no:. | ||
| 07 | (.) | |
| 08 | A: | Den e’kke ny, ((head shake)) |
| It isn’t new, | ||
| 09 | (1.0) ((K looks down again)) | |
| 10 | A: | Den er gammel,= men den er ikke like god som den andre, |
| It is old,= but it is not as good as the other, | ||
| 11 | K: | Nei det e::r ny tror jeg.= |
| No it i::s new I think.= | ||
| ((K takes tube out of the box)) | ||
| 12 | A: | =Ja:. |
| =Ye:s. | ||
| 13 | (1.0) ((K holds tube up in front of him)) | |
| 14 | K: | Den er ny:.= |
| It is ne:w.= | ||
| 15 | A: | =Den er ny. ((small nods)) |
| =It is new. | ||
| 16 | (1.0) | |
| 17 | A: | Du kan br↑uke den hvis du vil altså |
| You can ↑use it if you want (you know) | ||
| 18 | A: | Så lenge- ((A points towards her teeth)) |
| For now- | ||
| 19 | (0.5) | |
| 20 | K: | [Je- (br) ] |
| [I- ] | ||
| 21 | A: | [Jeg skal kjø]pe den andre, |
| [I will bu]y the other, |
Amina topicalizes Koki’s inspection of the tube by asking him whether it is adhesive that he is holding (line 02). Koki, in response does not answer the question, but directs and narrows down the topic by launching a new FPP, asking whether he has got it ‘recently’ (line 04). Koki’s prolonged inspection of the tube and his subsequent inquiry about its origin indicate puzzlement about some state of affairs. As will become clear later in the extract, the source of this puzzlement seems to be that the tube has a different colour than the one he usually uses, as it is a weaker type of adhesive. Amina disconfirms that he got it ‘recently’ with an unmitigated negation, thus taking a strong epistemic stance on the matter (line 06). As Koki does not produce any receipt of information, she increments her answer twice. First, she merely explicates the import of her negation (‘it isn’t new’, line 08, ‘it is old’, line 10), but subsequently she provides some additional information addressing a potential underlying concern of Koki’s question (line 10). By comparing the tube to ‘the other’ (type), she treats his question as being concerned with the unusual appearance of the tube.
At this point, Koki initiates disagreement by producing an explicit rejection (‘no’) and an opposing claim (‘it is new’) in line 11. His epistemic position is thus upgraded from a question expressing an assumption to a declarative taking a knowing stance on the matter. The disagreeing turn is produced without delay but is somewhat mitigated by a turn final epistemic hedge (‘I think’).
Amina’s response in line 12 is somewhat puzzling. She merely confirms his opposing claim, without any account of her change of position (such as for instance a token of ‘realization’; see Emmertsen & Heinemann, Reference Emmertsen and Heinemann2010). The unusual character of such a response seems to be reflected in Koki’s repetition of the claim, this time without any hedging (line 14). Amina again confirms (line 15), this time with an upgraded agreement, an ‘echo answer’ (Ferrara, Reference Ferrara and Johnstone1994; Svennevig, Reference Svennevig2003), but still without providing any account for her shift in position.
There may be several possible explanations for this unusual response. One may be that she interprets Koki’s statement as not being in opposition to her own, for instance in that it invokes a different meaning of the word ‘new’. The tube may not be ‘new’ in the apartment (that is, newly bought) but ‘new’ in the sense of a new type of adhesive. Another may be that she merely ‘goes along’ with Koki, renouncing her position on the question in the service of avoiding further disagreement (Lindholm, Reference Lindholm2015). Both interpretations are in line with her subsequent elaboration (lines 17–18, 21), where she changes the focus from the ‘newness’ of the tube to its practical usefulness for Koki. There, she reorients the discussion from an epistemic problem related to the origin of the tube to a potential deontic problem, instructing him to use the current tube for now, while promising to get a new and different one. Amina thus seems to orient to Koki’s original question about the tube as indicating a potential trouble with it by pre-emptively offering to buy one of the other type (Kendrick & Drew, Reference Kendrick and Drew2016). Given that procuring food and supplies is typically a responsibility of the homecare service, she offers assistance by explicitly committing to buying a new tube.
8.3.2 Pursuing the Disagreement by Upgrading Epistemic Stance
At this point, it may seem that they have solved the epistemic problem (about the origin of the adhesive) and the deontic problem (about the usage and replacement of the adhesive). Nevertheless, in Extract 2 (following immediately after Extract 1), Koki pursues the matter further and maintains his opposing claim about the newness of the tube.
Extract (2) (11:29–12:00)
22 K: Fr- fra hvem *jeg har fått den? Fr- from whom *I have got that? ((K holds tube up in the air)) 23 A: Fra o:ss, for lenge siden= ((hand over her shoulder)) From u:s, a long time ago= 24 A: =Den var her, ((points at the table)) =It was here, 25 (0.7) 26 K: ↑lE:nge siden?= ((leans forward)) ↑Lo:ng ago?= 27 A: =J(h)A::.(HHhh) =Ye(h)::s.(HHhh) 28 (1.0) 29 A: Du har ikke sett den men den blir stående bare: You have not seen it but it just stays there: 30 på kjøkkenet, in the kitchen, ((A points at the table)) 31 (3.5) ((K looks down, still holding the tube)) 32 A: Du kan bruke tannprotesen altså.= You can use the dental prosthesis (you know).= 33 K: =Ne:i, det *komme ny:lig,((lifts tube in the air)) =No:, it *come re:cently, 34 (3.5) ((A wrinkles eyebrows and gazes at tube, K twists the lid off the tube)) 35 A: Den ↑var her i går. It ↑was here yesterday. 36 (1.5) ((K gaze into the tube opening)) 37 K: Ja kanskje, me:n- ((nod)) Yes maybe, bu:t- 38 (0.5) 39 A: ↑Ja, ((nod, glances at K, then back to the tube)) ↑Yes, 40 (1.0) 41 K: ◦M◦- det *komme ny:lig. ((puts the lid back on, gazes at A)) ◦M◦- it *come re:cently. 42 A: ↓Ja:. det kan hende. ((small nods, wrinkles nose)) ↓Ye:s. that might be.
Koki’s information-seeking question in line 22 redirects the topical agenda back to the origin of the adhesive, asking about who procured the tube. He thereby maintains control of the topical agenda. In her answer (line 23), Amina also volunteers information about the ‘newness’ of it, thereby relating it to the previous discussion and reverting to her original claim (in lines 08–10) that the tube came there ‘a long time ago’ (line 23). Koki treats this information as new and surprising by repeating the temporal expression with emphatic stress and rising intonation (line 26) (Selting, Reference Selting, Couper-Kuhlen and Selting1996). As a ‘questioning repeat’ (Jefferson, Reference Jefferson and Sudnow1972) it merely requests confirmation, but the emphatic prosody displays a problem beyond hearing and thus makes an elaboration relevant, addressing a problem of understanding or acceptance. Amina attends to this problem indication by providing an account (lines 29–30), in which she claims that the tube has been standing in the kitchen without him noticing it. Interestingly, although she here makes a strong claim about Koki’s personal experiences (what he has seen) and his personal ‘territory’ (his kitchen, where he spends most of his time when awake), she does not mitigate her claim of epistemic access. A long pause ensues (line 31), during which Koki withholds any expression of acceptance or rejection. Amina then self-selects and seems to move towards closure of the topic (line 32). This is done in a similar way as in Extract 1, repeating the conclusion to the practical problem about the use of the prosthesis (and the adhesive).
Koki does not respond to the closing-implicative move, but instead pursues the negotiation about the adhesive by rejecting Amina’s claim with an explicit negation (‘no’) and an opposing claim (‘it come recently’) in line 33. By using falling intonation, he upgrades his epistemic stance and invites her to agree with him. Amina does not respond verbally for the next 3.5 seconds, but instead looks at the tube with an expression of concentration (wrinkled eyebrows) (line 34). By doing so, she seems to be seeking information and thus to be investigating the possibility that she might have been wrong. In conclusion to this activity, she produces a new statement (‘it was here yesterday’, line 35), which bolsters her position by providing evidence for her claim. Koki, in line 37, concedes to this claim, but projects further opposition by initiating a contrastive clause (‘but’), which is subsequently aborted and left hanging in the air. Amina pursues a stronger expression of agreement by producing a prompt, an acknowledgement token with high pitch and rising intonation, accompanied by a nod (line 39). Koki does not accept her claim and instead repeats his own claim, upgrading his epistemic stance by producing it with falling intonation (line 41). At this point, Amina once again (cf. lines 12, 15 in extract 1) concedes to his claim by stating ‘that might be’ (line 42), thus backing down from her initial position. The disagreement is thereby potentially resolved by Koki gaining at least partial acceptance for his repeated claim that the tube is new. Yet, by not displaying full agreement, Amina takes an agnostic stance that does not concede full epistemic authority to Koki on the matter (Lindholm, Reference Lindholm2015; Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022).
8.3.3 Indicating a Practical Problem
Extract 3 shows how Koki takes a new topical initiative in the conversation, this time seemingly related to his practical concerns with the use of the adhesive.
Extract 3 (12:00–12:09)
43 (0.4) 44 K: Jeg trengte den men e::, ((lifts the tube up)) I needed it but e::, 45 A: Men du trenger ↑nå: eller, ((A points to her teeth)) But you need ↑no:w or, 46 (0.5) 47 A: Sk[al du ta- ] Ar[e you taking-] 48 K: [Ikke nå: ] [Not no:w ] 49 K: Ikke nå: [men e:] Not no:w [but e:] 50 A: [Nei. ] er den fast- godt nok fast? [No. ] is it tight- tight enough?
By pointing to a previous (unmet) need related to the adhesive, Koki redirects the topical agenda over to the deontic domain (line 44). As he runs into trouble formulating his utterance to completion, Amina seeks to help him by producing a collaborative completion (line 45). She treats the (incomplete) report as a problem alert by inquiring about his needs here and now, thereby projecting an offer of assistance (Kendrick & Drew, Reference Kendrick and Drew2016). Koki denies having any problems at present (line 48) but proceeds by reissuing the incomplete disjunctive turn initiation (‘but’ from line 44) in line 49, thus projecting some other potential problem. Once again, Amina curtails his attempt to formulate his concern. Instead of giving him time to continue the turn initiation, she asks a new question about the current state of the prosthesis. In this way, Koki’s two attempts to formulate his problem with the adhesive or prosthesis are both met by pre-emptive questions that orient to his needs but do not seem to contribute to clarifying his underlying concern.
8.3.4 Settling the Disagreement
Extract 4 shows how Amina settles the disagreement by further conceding to Koki’s claim and providing an account for how the tube might have been brought there during the day.
Extract 4 (12:18–12:43)
58 K: Men- But- 59 (1.5) 60 A: Vi pleier å kjøpe til deg fordi ho: (.) som har We usually buy for you because she: (.) who has 61 vært før meg, hon handlet for deg=sikkert kanskje been before me, she shopped for you=probably maybe 62 hun har kjøpt for deg, she has bought for you, 63 (1.0) 64 K: Hm? 65 A: Du hadde handledag også i ↑dag, You had shopping day also ↑today, 66 K: [Å, ] [Oh,] 67 A: [Og ] *sikkert de har kjøpt for deg i ↑dag, [And] *probably they have bought for you ↑today, 68 (1.2) 69 K: Jeg hu:sker ikke. I do:n’t remember. 70 A: N#e:i, det er ikke så viktig men du hadde N#o:, it is not so important but you had 71 handledag i dag. vi kjøpte *deg litt [ma::t? ] shopping day today. we bought *you some [foo::d?] 72 K: [Me:n- ] [Bu:t- ]
After yet another but-initiation by Koki, which is left incomplete (lines 58–59), Amina returns to the topic of the origin of the adhesive. This time she presents a hypothetical scenario as a potential explanation for how the tube may have been brought there during the day, thus supporting Koki’s position that it has ‘come recently’ (lines 60–62). The downgraded epistemic stance (‘probably maybe’ [sic]) marks it as a tentative account. In response to Koki’s open class repair initiator (Drew, Reference Drew1997) (line 64), possibly orienting to the abrupt topic shift, Amina restates the alternative account, this time with an upgraded epistemic stance (‘probably’ line 67). Although these events are potentially accessible to Koki, having spent the day there, she treats the information as new to him and informs him about her conjectures rather than asking him about what he knows. So, despite claiming superior epistemic rights to events within Koki’s epistemic domain, this seems appropriate in this situation, as Koki responds with a news receipt in the form of a change-of-state token (Heritage, Reference Heritage1984) (line 66), and a subsequent statement claiming lack of access to any memories of the events (line 69).
8.3.5 Resolving the Practical Problem
In Extracts 3 and 4 we saw that Koki repeatedly tried to initiate a topical shift by producing the contrastive conjunction men (‘but’), and that he hinted at a practical problem. Extract 5 shows how Koki finally manages to formulate his practical concern, his wish to get a different tube of adhesive, and gets Amina to commit to providing him with one.
Extract 5 (12:42–13:22)
72 K: [Me:n-] [Bu:t-] 73 (0.4) 74 K: Får jeg flere *sånn? Will I get more (of) *these? 75 A: Jeg kan godt gjør det slik atte det *blir ikke I can very well do so that it *isn’t 76 så tomt, so empty, 77 (1.5) 78 A: Vil du ha flere? Would you like more? 79 K: Ja::? fordi: Ye::s? beca:use 80 (1.0) ((K coughs)) 81 A: Liker du bedre den rosa kanskje. Do you like better the pink maybe. 82 K: Hm? 83 A: Du liker bedre den rosa *form? You like better the pink *form? 84 (.) ((K leans forward)) 85 A: <Den som er ro:sa?> du liker den. <The one that is pi:nk?> you like that one. 86 (.) ((K gaze to the left)) 87 A: Den er hvit farge. That one is white color. 88 K: Åja ro:sa ja. Oh yes pi:nk yes. 89 A: Ja, Yes, 90 K: Ja den *jeg liker. Yes that *I like. 91 A: Ikke sant? da kan jeg kjøpe *deg i morgen. Right? then I can buy *you tomorrow. 92 K: Takk takk takk takk. Thanks thanks thanks thanks. 93 A: Hh i li:ge måde, Hh hh hh. Hh the sa:me (to you), Hh hh hh. 94 A: Jeg ve:t du liker det. I kno:w you like it.
Koki’s initiative is formulated as a request for information about the future (line 74), which Amina treats as indicating a wish to have more adhesive, which she offers to get ‘so that it isn’t so empty’ (lines 75–76). In the face of no uptake from Koki (line 77), she pursues a response by inquiring whether he wants more (line 78). Koki immediately confirms this and initiates an account, which is, however, aborted (lines 79–80). Here Koki contributes to changing the topical agenda from the epistemic puzzle about the origin of the tube to the deontic question about what to do about the state of affairs. This also has consequences for the action agenda. By offering to procure another tube of adhesive, Amina treats Koki’s question as indicating a problem with the current situation and invokes a potential solution to it. In terms of Kendrick and Drew’s (Reference Kendrick and Drew2016) recruitment continuum, there is a report of a need which occasions an offer of assistance. This creates a rather equal distribution of agency in establishing the communicative project of deciding to get a new tube of adhesive.
In line 81 Amina starts making practical arrangements for the accomplishment of the service by offering a candidate guess about which colour Koki prefers. This question simultaneously provides a potential account for why he wants additional tubes of adhesive, namely that he wants a different type. After an extended repair sequence clarifying the right type (‘the pink’) (lines 82–90), Amina affirms her commitment to buying the adhesive (line 91), as is normatively required in granting remote action requests (Lindström, Reference Lindström1999). Koki responds to this by thanking her, a post-expansion that serves to ratify Amina’s interpretation of line 74 as a request, his acceptance of the offer and his proposed closure of the sequence (Lindström, Reference Lindström, Hakulinen and Selting2005). In addition, the fourfold reduplication of it adds an expressive and affective dimension to it, displaying (and co-constructing) the importance of the concern to him and his satisfaction with the solution (line 92). Amina reciprocates the thanking and further expands the sequence by reaffirming that she knows his preferences, thus expressing affiliation with him (lines 93–94). These affiliative contributions seem oriented towards redressing and reaffirming the social relationship between them after this prolonged negotiation.
As an epilogue, it may be noted that Koki brings up the topic of the tube twice more, approximately 10 and 22 minutes later in the visit. Both times, Koki requests confirmation of the fact that the tube is new and who brought it. In response, Amina sticks to the story that her colleague has bought the tube earlier that day. Without any epistemic hedges, she responds with ‘it is new. we shop‑ we shopped (*you) today,’. And in response to whether he got it from her, stating ‘no from my colleague who been before me here today’ (data not shown). In that way, even though Koki may have forgotten their previous agreement on the state of affairs, or at least seeks confirmation of it, Amina goes along with and confirms that the tube ‘came there recently’.
8.4 Discussion
This study illustrates how a person with dementia can influence the course of action and interactional outcome of a collaboratively negotiated communicative project in a naturally occurring institutional setting. By taking a topical initiative and persistently pursuing it across a series of sequences in a routine homecare visit, the person with dementia succeeds in achieving two interrelated projects in collaboration with the homecare nurse, one being within an epistemic domain (clarifying the origin of the adhesive) and the other within a deontic domain (getting the right type of adhesive). Multiple interactional resources are used for accomplishing this. First, a persistent use of first actions contributes to maintaining control over the topical agenda and establishing talk about the adhesive as a joint communicative project. The topic of the origin of the adhesive is kept on the agenda until the factual disagreement is resolved, despite the interlocutor’s attempts to change the topic to related practical concerns. Second, the person with dementia’s repeated knowledge claims and the interlocutor’s concessions and exploration of alternative explanations contribute to moving the distribution of epistemic rights in a more symmetrical direction. Finally, the verbal and embodied displays of problems with the tube contribute to influencing the action agenda. By indicating a need for a different type of adhesive, Koki manages to recruit assistance in resolving the problem and obtaining an explicit commitment by Amina to buying a different tube.
As noted, previous studies have largely documented how the epistemic authority of persons with dementia is reduced in interaction with healthy interlocutors (e.g., Nilsson, Reference Nilsson2017; Hamilton, Reference Hamilton2019; Svennevig & Landmark, Reference Svennevig and Landmark2019; Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022; see also Jones, Chapter 12 this volume; Muntigl & Hödl Chapter 9 this volume). The current study partly supports these findings, in that Amina initially treats Koki as having reduced epistemic access by taking a strong epistemic stance on a matter within the domain of Koki’s personal experiences, possibly interpreting his understanding of the matters as somewhat confused. She contradicts his claims that the tube is new without accounting for her claim of epistemic authority, and she informs him about events occurring earlier that day (her colleagues shopping for him) of which she has only indirect and inferential evidence, as compared to his direct personal experience. She even claims explicitly that he has not seen the tube standing on the table, thus taking a strong epistemic stance on his perceptual experiences. In this way, she risks missing information by not exploring what he knows and instead taking for granted that he does not have access to it. However, when Koki insists on his factual claims, she changes her line of action by making concessions to his point of view and exploring alternative explanations. In this way, the case study also shows that persons with dementia may succeed in having their knowledge claims accepted and be able to engage the interlocutor in establishing a likely account of what happened, despite manifest cognitive and communicative limitations and differences in initial understandings. As stated by Antaki and Webb (Reference Antaki and Webb2019: 1564), ‘people with cognitive impairments’ low epistemic status, and dubious deontic authority, always put them at risk of exclusion’. In such cases, healthy interlocutors may profit from taking time to explore the epistemic grounds for differences of opinion.
Within the deontic domain, previous research has shown that persons in elderly care may have reduced influence on decisions concerning practical courses of action in their daily life (Heinemann, Reference Heinemann and Backhaus2011; Backhaus, Reference Backhaus2018). The current study corroborates and elaborates on previous findings (e.g., Jansson et al., Reference Jansson, Plejert and Lindholm2019), illustrating how persons with dementia, and with limited verbal resources, may nevertheless assert deontic authority in interaction through collaboratively recruiting assistance with practical tasks. As such, the study may contribute to our understanding of how persons with dementia may mobilize their remaining communicative resources for taking and pursuing initiatives in interaction, and how family and caregivers may recognize and support such initiatives (Svennevig & Hamilton, Reference Svennevig, Hamilton, Røyneland and Blackwood2022). These findings may also be relevant beyond the case of dementia, in the support of persons with complex communicative needs caused by conditions other than dementia.
The study points to a subtle resource for recruiting assistance, namely to rely on shared knowledge. By merely drawing attention to and topicalizing the origin of the adhesive, Koki relies on the interlocutor’s specific knowledge about his usage and preferences regarding this remedy for figuring out that there is a problem with it and volunteering a solution. The embodied resources used in this case thus move beyond that of ‘searching’ as an indicator of trouble (Drew & Kendrick, Reference Drew and Kendrick2018), in that merely ‘scrutinizing’ an object in his hand is treated as a potential trouble indicator by the interlocutor. This highlights the inherent reliance on shared epistemic access as a prerequisite for identifying potential trouble alerts. Unlike the general knowledge being drawn upon for recognizing a trouble in Kendrick & Drew’s (Reference Kendrick and Drew2016) and Drew and Kendrick’s (Reference Drew and Kendrick2018) examples (e.g., a lighter is needed for lighting a cigarette), here, the knowledge being drawn upon for recognizing a problem is quite specific, and in this case only shared between these two persons.
This remark on shared epistemic access leads us to another implication for practice for those caring for persons with dementia. This case study exemplifies empirically the importance and benefits of continuity of dementia care, increasing the opportunity for shared epistemic access: Koki draws on the homecare nurse’s specific knowledge about his preferences and care routines as a resource for solving a practical trouble. It is reasonable to assume that the road to accomplishing the same thing would have been longer if the health care professional did not know the person with dementia that well.
Our study also supports Jansson et al.’s (Reference Jansson, Plejert and Lindholm2019) related finding, that health care professionals are attentive to, and go to great lengths in solving everyday practical, or ‘deontic needs’ of the person with dementia. In addition, the present study adds that ‘epistemic needs’, understood as the need to sort out how the world ‘is’ may be given less attention by the health care professional. But in the face of Koki’s topical insistence, the health care professional revises her initial position and collaborates in also resolving his ‘epistemic need’. This may indicate that the ‘epistemic needs’ of persons with dementia (e.g., due to memory problems) may be easily overlooked in the face of multiple ‘deontic needs’ that must be worked out in order to provide good care (e.g., Brooker & Kitwood, Reference Brooker and Kitwood2019).
Moreover, this case study also alerts us to the danger that healthy interlocutors, in trying to assist persons with limited communicative resources in formulating their concerns, may risk derailing their project. Koki repeatedly tries to introduce a new (deontic) concern by initiating a new utterance with the contrastive conjunction ‘but’. However, instead of giving him time to formulate this concern by himself, the nurse on two occasions curtails the continuation of his utterance by proposing candidate formulations of his potential concerns (Extract 3, lines 45 and 50). These suggestions turn out not to be in line with Koki’s actual concern and instead end up making it more difficult for him to formulate his concern. This may alert us to the difficult balance between assisting persons with dementia in formulating their utterances and ‘putting words in their mouths’, a dilemma that has also been observed for conversations with L2 speakers (Svennevig, Reference Svennevig2013). Sometimes, giving time may be more effective than making suggestions.
Finally, in the field of dementia, repetitive first actions have mainly been ascribed to the cognitive deficits caused by dementia. Examples of repeated formula (Lindholm, Reference Lindholm2016), repeated tellings (Hydén & Örulv, Reference Hydén and Örulv2009), and repeated assertions, narratives and questions (Hamilton, Reference Hamilton2019) have been documented in previous studies. Hamilton describes how a person with dementia repeats assertions despite the interlocutor’s attempts to close the topic. Furthermore, Hamilton (Reference Hamilton2019: 112) describes how (quite general) questions, that can be asked to anyone, are used by a person with dementia ‘to move the conversation forward’, although repeating the same question several times across the same interaction may also counteract the progressivity of the interaction and put the interlocutor in a challenging situation of how to respond and orient to the norm of not asking about things they (should) already know (Stivers et al., Reference Stivers, Mondada and Steensig2011). This case study tells a different story, in that Koki’s repetitive actions contribute to pursuing and realizing a communicative project despite his limited cognitive and communicative resources. By repeating his first actions, he pursues a topical and action agenda in which he claims both epistemic and deontic rights. And, instead of dismissing these repeated initiatives as repetitive ‘hang-ups’, the care provider gradually starts exploring them and contributes to co-constructing his statement of opinion and request for action. In this way, the success of the communicative project launched by Koki is to a large extent a result of collaboration and distributed agency.