9.1 Introduction
The behavioural variant of frontotemporal dementia (bvFTD), unlike Alzheimer type dementia, is not typically characterized by a decline in cognitive ability or memory, but rather by a marked decline in social and emotional functioning (Neary et al., Reference Neary, Snowden and Gustafson1998). Although memory impairment may not be prevalent in bvFTD, especially in the early stages of the illness, difficulties in accessing personal domains of knowledge may become present and noticeable. Many people with bvFTD, for example, are largely ignorant of any changes in their behaviour, displaying a ‘lack of insight’ concerning the effects that bvFTD is having on them and their family members (O’Keeffe et al., Reference O’Keeffe, Murray, Coen, Dockree, Bellgrove, Garavan, Lynch and Robertson2007). Persons with bvFTD are also considered to be unable to construe an appropriate theory of mind (ToM), which generally refers to the ability to take the perspective of another person in terms of their beliefs and intentions (Kipps & Hodges, Reference Kipps and Hodges2006). Some persons also have difficulty in recognizing familiar faces (i.e., friends and relatives), as for example on photographs (prosopagnosia). Although much research has focused on studying these aspects of knowledge from a medical standpoint, much less work has been done to uncover the interactional processes by which a person with bvFTD’s knowledge displays are realized and managed in dialogue.
For this chapter, we use the methods of conversation analysis (CA) to examine the practical epistemic and deontic organization of viewing family photos. In particular, the focus is placed on sequences that involve difficulties in identifying persons in photos and how talk and conduct is managed to facilitate person identification. Our data are taken from a case study that involves one individual, Trudy, who was diagnosed with bvFTD and who lived at home and was regularly attended to by a caregiver and a nurse. To explore the interactional organization of identifying persons in photos in this context, we examine the following questions: (1) how is person identification organized as an activity and which interaction formats are used in its accomplishment?; (2) how does this activity shed light on the person with bvFTD’s epistemic domain vis-à-vis the other conversational participants?; (3) which sequences index a ‘reduced’ epistemic domain (e.g., through uncertainty or not knowing) and which maintain Trudy’s epistemic status of being the primary knower of her own biography? Advantages and pitfalls of this activity for persons with bvFTD are also discussed.
9.2 Epistemics and Deontics
Conversation analytic research has shown that epistemic and/or deontic features tend to permeate social actions in sequence (Drew, Reference Drew2018; Heritage, Reference Heritage, Sidnell and Stivers2013; Stevanovic & Peräkylä, Reference Stevanovic and Peräkylä2014; Stevanovic & Svennevig, Reference Stevanovic and Svennevig2015). Whereas the term ‘epistemics’ generally refers to how knowledge is displayed and organized in talk and conduct, ‘deontics’ refers to how actions around goods and services are negotiated.
Epistemics can be considered along three different vantage points: domain, status and stance (Heritage, Reference Heritage, Sidnell and Stivers2013). For the first, it is recognized that people have knowledge about different kinds of experiential domains. A similar view has been put forward by Labov and Fanshel (Reference Labov and Fanshel1977), who make the distinction between A‑events and B‑events. A‑events may refer to knowledge derived from first-hand experience, whereas B‑events refer to knowledge that is indirectly acquired through reports or inference (see also Pomerantz, Reference Pomerantz1980). Further, experiential domains or territories of knowledge may transcend ‘everyday’ knowledge and be unequally distributed amongst different persons and/or groups (Heritage, Reference Heritage, Sidnell and Stivers2013). For example, through socialization and training, doctors acquire direct access and rights to so-called medical knowledge, whereas patients generally retain access to ‘lifeworld knowledge’ (Mishler, Reference Mishler1984). Differential access and rights to a given epistemic domain (e.g., someone’s personal life-world experiences or specialized medical knowledge) will give rise to differences in epistemic status pertaining to a given domain. In this way, persons are generally considered to have greater authority and entitlement to know about their own biographies – what happened to them, past events in their own lives – as do specialists working in a given field (e.g., medicine, law, engineering, restaurant cuisine, construction, fashion, etc.).
Epistemic stance, on the other hand, is looked upon as a more transient construct, and is gauged by a speaker’s momentary use of a vast array of discursive/interactional resources to convey degree of rights and access to knowledge – including grammatical mood (i.e., interrogative, declarative), modality, prosody, facial expressions and others (Heritage, Reference Heritage, Sidnell and Stivers2013). Each instance of stance-taking occurs in a sequentially unfolding context and thus creates ongoing (and sometimes changing) points of reference to speakers’ statuses as related to various epistemic domains. In CA, stances that index an upgraded epistemic position is represented as [K+], whereas a downgraded position is represented as [K-] (Heritage, Reference Heritage, Sidnell and Stivers2013).
Deontics is a relevant concept for actions that get others to do things, such as requests, commands, proposals or suggestions (Couper-Kuhlen, Reference Couper-Kuhlen2014; Landmark et al., Reference Landmark, Gulbrandsen and Svennevig2015; Stevanovic & Svennevig, Reference Stevanovic and Svennevig2015). These actions, which generally fall under the rubric of directives, involve some future event or task to be accomplished, orient to speakers’ rights and responsibilities, and make relevant some form of acceptance or compliance by the recipient or commitment to carry out the task (Couper-Kuhlen, Reference Couper-Kuhlen2014). It has been shown that the discursive make-up of directives (e.g., the expressions and words used to design the directive) orient to various general principles that involve the degree of entitlement to direct another’s actions, contingencies associated with the potential for refusal (e.g., ability or willingness to comply), sensitivities to the speakers’ role relationships with respect to agency and who will benefit from the action, the amount of work or ‘cost’ needed to recruit another into action and the degree of immediacy or urgency for directing another (Clayman & Heritage, Reference Clayman, Heritage, Drew and Couper-Kuhlen2014; Drew & Couper-Kuhlen, Reference Drew, Couper-Kuhlen, Drew and Couper-Kuhlen2014; Kendrick & Drew, Reference Kendrick and Drew2016; Mikesell, Chapter 5 this volume; Rossi, Reference Rossi2012; Sorjonen et al., Reference Sorjonen, Raevaara, Couper-Kuhlen, Sorjonen, Raevaara and Couper-Kuhlen2017).
Recent research on persons with Alzheimer’s dementia (AD) has been examining epistemics and especially A‑events (or Type 1 knowables involving the person’s biographical knowledge: Pomerantz (Reference Pomerantz1980)). The focus has been on forgetfulness and the kinds of fishing devices used to either get persons with AD to ‘remember’ (Nilsson, Reference Nilsson2017) or the kinds of practices that persons with dementia use to account for their lack of knowledge or ability to remember (Jones Reference Jones2015, Chapter 12 this volume; Svennevig & Landmark, Reference Svennevig and Landmark2019). Epistemic research on bvFTD has examined how persons with bvFTD display degrees of insight or understanding (or a lack thereof) when asked about personal life events (Avineri, Reference Avineri, Mates, Mikesell and Smith2010; Mikesell, Reference Mikesell, Schrauf and Müller2014; Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014). By examining the practical epistemic and deontic organization of viewing family photos, this chapter extends understanding of how a person with bvFTD may navigate everyday contexts in which displaying and/or accessing her own biographical knowledge may prove difficult.
9.3 Data/Method
The data are taken from a study that was undertaken in Austria to investigate the talk and conduct of persons with bvFTD (see Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014). One component of this study involved participants taking part in an activity that involved looking at family photographs and discussing aspects of the photos (e.g., who the people in the photo are, where the photograph was taken, what happened on that day, etc.). From a total of seven persons who had been diagnosed with bvFTD, a female participant, Trudy, was selected for this chapter. It was initially observed that she had difficulty in identifying persons in photos and thus we thought that interactions with Trudy would shed important light on how knowledge is organized in contexts involving a larger social epistemic network. Trudy was seventy at the time, living in a house in a rural area. She had three grown-up children, grandchildren and a great-grandchild. A caregiver who was responsible for taking care of Trudy’s everyday needs lived with her and she also received regular visits from a nurse. The following people participated in these conversations: Trudy = Tr/the person with bvFTD; a researcher = R; Trudy’s daughter, Joanna = D; a caregiver = CA; a nurse = N. All conversations did not follow a pre-determined script and unfolded in a spontaneous manner.
The conversation was videotaped and transcribed using the transcription conventions from Hepburn & Bolden (Reference Hepburn, Bolden, Sidnell and Stivers2013). Transcriptions of bodily comportment and multimodality were further informed by Mondada (Reference Mondada2018); for example, simultaneous or concurring vocal and non-vocal conduct was indicated using special symbols (e.g., ‘+’, ‘#’) – see the key at the beginning of the book. All examples used in this chapter contain English translations from the original Austrian German. Identifying information was removed from the transcriptions and all persons involved were given pseudonyms. The method used to analyse the conversations was CA (Sidnell, Reference Sidnell, Sidnell and Stivers2013) and the analytic concepts epistemics and deontics were taken from Heritage (Reference Heritage, Sidnell and Stivers2013) and Stevanovic & Svennevig (Reference Stevanovic and Svennevig2015). The analytic focus was placed on sequences in which Trudy was asked to identify a family member in a photograph. Attention was given to the initiating action (e.g., what type of action was it? what were the design features?), Trudy’s response (or lack of response) and the ensuing talk that attended to getting Trudy to identify the person in the photo.
9.4 Analysis
Examination of the videotaped conversation revealed that the activity of identifying family members was accomplished via several sequence types. In general, these involved sequences that contained initiating actions with wh‑interrogative or imperative formats. Differences were found in the epistemic stances taken up by participants and in the sequence organization when ‘correct’ vs. ‘incorrect’ answers were produced. Further, although Trudy did tend to regularly display uncertainty when asked to identify a family member in a photo, she was able to display certainty and knowledge about aspects of her own (Type 1) biography in ‘face-to-face’ contexts with a family member. These various epistemic/deontic aspects pertaining to identifying family members will be reviewed in subsequent sections.
9.4.1 Practices to Request Information
Three different kinds of request formats were used to get Trudy to identify persons in the photographs. The first two were most often produced in wh‑interrogative format: Who are they? and Who is that? The third practice, Find X, used a directive format to initiate a ‘seek and find’ activity. From the perspective of deontics, the other family members use these request formats to exercise control of the conversation, deciding on the topic (identifying a person) and speaker selection (Trudy is directed to answer).
9.4.1.1 Wh-interrogative: ‘Who Are They?’
One type of action used to request identification of persons from Trudy is the wh‑interrogative ‘Who are they?’ This format creates some ‘openness’ with respect to Trudy’s options for answering: that is, she has some choice in deciding whom to identify and thus in displaying what she knows. For example, if she cannot recall any specific names, she has the option of choosing a descriptor – such as ‘my grandchildren’, ‘my daughter’s children’ and so on. Thus, by asking ‘who’, the researcher is generating options in terms of descriptor response – Trudy could answer with a name or a more general descriptor. Extract 1 provides an example of this interrogative format by the researcher, whose epistemic domain regarding Trudy’s family relations is negligible (the wh‑interrogative is in bold).
Extract 1: R=researcher; Tr=Trudy; D=daughter; CA=caregiver
01 R: +Wer sind die+ +Who are they+ R +points to 3 different persons in photo, her grandchildren+ Tr looks at photo 02 (5.7) Tr looks away from photo and towards her daughter 03 D: Na schau das genau an wer dort auf’m bühdl is. Well look at that carefully who there is on the picture. 04 (0.8) 05 Tr: Ja we::r. Yeah who::. Tr looks at photo 06 CA: Du kennst zicher zehr gut. You know certainly very well. 07 (0.5) 08 Tr: Bist es du. Is it you. Tr looks over at others 09 D: Na schau’s ↓an und dann sagst unsers. Well look ↓at it and then tell us. 10 CA: Noch einmal. Once again. Tr looks again at photo 11 D: Ganz genau anschauen Look at it very carefully 12 (1.0) 13 Tr: Is des Susi. Is that Susi. Tr points at photo, repeatedly tapping it with her finger 14 D: [↓Na:: [↓No:: 15 CA: [Hm hm. des is- [Hm hm. it is- 16 (3.4)
At the beginning of this extract, the researcher seeks information by posing a wh‑interrogative question (‘who are they’), while simultaneously pointing to and drawing mutual gaze/attention towards the various people on the photo (i.e., Trudy’s grandchildren, who are not present in the room). The pronoun ‘they’ offers the addressee some flexibility in responding because she has some authority in deciding whom she will identify; for example, she could name the people she knows or she could simply name one person, thus satisfying the requirements of the question, at least in part. This wh‑format also creates a certain epistemic scene by presupposing that Trudy can identify the people in the picture – compare an alternative design such as ‘do you know who they are?’, which would leave open the possibility that Trudy does not possess this knowledge. In line 2, rather than orient to the researcher, Trudy looks at – and thus possibly seeks help from – the others in the room with whom she is more familiar (possibly also trying to form a connection between the person in the photo and the people in the room). Thus, although the long silence does imply some difficulty in knowing the answer, her gaze may suggest some incipient knowledge of who can help her and who might know the answer. The daughter, in line 3, then directs Trudy to focus on the picture using an imperative format (‘well look at that carefully who there is on the picture’), thus reinforcing Trudy’s epistemic position as K+. Trudy then responds in line 5 by requesting help, implying that she does not know and is thus unable to take up this knowledge position (‘yeah who::’). In the next turn, the caregiver then provides encouragement by explicitly ratifying Trudy’s epistemic status of knowing the identity of the persons in the photo (‘you know certainly very well’). Trudy responds with a guess and by looking over at her daughter (‘is it you’), signalling out one of the persons. However, in line 9 the daughter resists providing confirmation and again places the burden of answering back onto Trudy by using an imperative format to direct her to focus on the picture and to identify the person (‘well look ↓at it and then tell us’). Thus, by not confirming (or disconfirming), the daughter treats Trudy’s utterance as merely a guess and, further, implies that her guess was incorrect. In sum, what began as a wh‑interrogative produced by someone who has low epistemic status (i.e., who does not know the identities of the people in the photo and is ‘genuinely’ seeking this information) is transformed into imperative-initiated sequences produced by persons with high epistemic status (i.e., they know the identities of the people in the photo), who now direct Trudy into providing an answer by focusing on the photo – the subsequent unfolding of this interaction is shown in Extract 8.
9.4.1.2 Wh-interrogative: ‘Who Is That?’
Another type of initiating wh‑interrogative format, ‘Who is that?’, provides a more constrained set of identifying response options because the relevant next action is to name the individual being referred to (either with a proper name or even a person category reference such as ‘my daughter’), rather than choosing freely to name some or all of the persons. This kind of format appears in Extract 2 and occurs about a minute after Extract 1.
Extract 2: R=researcher; Tr=Trudy; D=daughter; CA=caregiver
25 R: Probier ma anders- anders foto. Let’s try a different- different photo. Tr looks directly at photo --------------> 26 ( 4.1 ) Tr -------> looks away towards others in room 27 CA: ↓Ja:: ↓Yes:: 28 Tr: [H(h)ah hah hah hah hah hah. 29 R: [+Wer is des. wer is des.+ [+Who is that. who is that.+ R +points at a specific person with a tapping motion+ 30 CA: Wer is #das. du kennst zicher. Trudy. Who is #that. you know for certain. Trudy. Tr #looks again at photo 31 (1.2) 32 Tr: Joanna. bist des du. Joanna. is that you. Tr taps finger on photo Tr looks towards D, towards the photo, then towards D 33 D: Genau. =des bin i:. Exactly. =that’s me:. 34 CA: Super. perfekt. ja:? Super. perfect. yes:? 35 Tr: i hab ma’s hoit a so d(h)e(h)nkt. I just kinda th(h)ou(h)t so. Tr looks at the photo
The researcher begins this extract by suggesting that they move on to a different photograph. The wh‑interrogative in line 29 this time targets a specific person (‘who is that. who is that’), making it relevant to name the individual and thus constraining the options for producing a next action. Here, as in Extract 1, the wh‑format presupposes that Trudy possesses the requisite knowledge needed to answer correctly. The researcher simultaneously points at the individual and so may be attempting to draw mutual gaze/attention back towards this person. Trudy’s looking away from the photo and towards the others may not only be conveying a lack of engagement with the activity but also a request for others to help by providing an answer. The caregiver immediately responds in line 30 by first redoing the request (‘who is that’) and then by offering ‘encouragement’, ratifying Trudy’s higher epistemic status (‘you know for certain. Trudy’). Again, as in Extract 1 the change of speaker doing the initiating actions – from researcher to caregiver – marks a shift in the epistemic alignment, or footing (Goffman Reference Goffman1981), between requester and requestee. Whereas the researcher does not know who is in the picture, the caregiver does, and thus has certain entitlements to make claims about Trudy’s epistemic status. Trudy then answers by providing the name of her daughter (‘Joanna’), but then downgrades her epistemic stance by requesting confirmation from her daughter (‘is that you’). The daughter provides confirmation in line 33 and the caregiver provides strong positive assessment in line 34 (‘super. perfect. yes:?’).
To summarize, this extract marks a change in activity from the researcher seeking information from Trudy from a K- position (i.e., the researcher does not know the identity of the person in the picture) to an exam question in which a ‘social network member’ (SNM) such as the daughter or caregiver knows the person’s identify and thus tests Trudy’s knowledge from a K+ position. The initial epistemic position in sequence is important because it sets the stage for what is to come. In seeking information, respondents are placed in a K+ position and, because the questioner does not know the answer, a relevant third position action is to claim information receipt as K- (Heritage, Reference Heritage, Atkinson and Heritage1984). It should be emphasized that, for information-seeking questions, respondents are positioned as K+ regardless of whether or not they know the answer. It is most likely for this reason that respondents generally provide accounts to explain why they cannot take up the assumed K+ position. Exam questions, which are claimed to follow a question–answer–comment sequence (Mchoul, Reference Mchoul1978; Mehan, Reference Mehan1979), have a different epistemic organization. Because questioners already possess knowledge, they take up a K+ position. Further, the epistemic status of the respondent is ‘undetermined’ and dependent on the third position feedback of the questioner. Thus the questioner remains as K+ in this sequence and respondents will be positioned as K+ if they are correct, or as K- if they are not – see Table 9.1 for an overview of the epistemic organization of these sequences.
Table 9.1 Epistemic positions compared for seeking information vs. exam questions
| Position | Seeking Information | Exam Question | ||
|---|---|---|---|---|
| Speaker | Epistemic position | Speaker | Epistemic position | |
| 1. Question | Researcher | K− | SNM | K+ |
| 2. Response | Trudy | K+ | Trudy | K+/− |
| 3. Response | Researcher | K− | SNM | K+ |
Relating these observations to conversations involving persons with dementia, Drew (Reference Drew2018) makes the point that, drawing from Jones (Reference Jones2015), this reversal in epistemic status in exam questions may be used as a way of monitoring the person with dementia’s declining mental state and, further, may cause anxiety because the person with dementia is expected to know but may not be able to demonstrate this knowledge. Thus these exam questions may yield face-threatening situations, leading to disaffiliation between SNMs and the person with dementia (see also Jones, Chapter 12 this volume, and Webb, Chapter 15 this volume, for similar arguments).
9.4.1.3 Directives: Find ‘X’ [=Specific Person]
The third format, shown in Extract 3, is a directive that is initiated by members of Trudy’s close social network. Although this directive format may presuppose that Trudy can take up a K+ position by identifying the person, it also appears as a ‘test’ and thus may be more similar to exam questions in which the person giving the directive knows and the person being directed has a ‘yet-to-be-determined’ knowledge state – the researcher does not have this expert knowledge and therefore this directive format is not available for him to use. The directive also indexes a certain deontic alignment, with the daughter/caregiver leading the trajectory of talk and Trudy following their lead.
Extract 3: R=researcher; Tr=Trudy; D=daughter; CA=caregiver
01 D: Na +wo is dein sohn. Well where is your son. Tr +looks towards D 02 (1.8) Tr maintains gaze @ D --> 03 D: Tsoarg uns. Show us. Tr ----------> 04 CA: Wo is dein #drittes kind Trude. [dein drittes kind. Where is your third child Trude. [your third child. 05 D: [Da fesche bua [The handsome boy. Tr ----------> Tr #looks back at photo ---------------> 06 (2.0) 07 CA: Dein brave bub. mm? Your good boy. mm? 08 Tr: Da maxi? Maxi? 09 CA: Na::. No::. 10 D: Dein so:hn. Your so:n. 11 (7.3) Tr towards end of the silence briefly glances up then back at photo 12 Tr: (1.2) Tr points at and rests finger on a person in photo 13 CA: Su:::per. 14 (0.7) 15 D: Genau. des is a. Exactly. that’s him.
The extract begins with the daughter issuing a directive to Trudy, telling her to locate her son in the photo (‘where is your son’). This represents Type 1 autobiographical knowledge and so the assumption is that Trudy should be able to take up a K+ position by identifying her son. Rather than looking at the picture and engaging in the activity of finding the person, she instead continues to look at her daughter. This leads the daughter to issue a directive in imperative format (‘show us’), which orients to Trudy as not looking at the photo and thus not properly engaging with the activity. In line 4 the caregiver latches onto this turn by adding more granularity (i.e., detail) to the directive (Schegloff, Reference Schegloff2000), specifying that Trudy should search for her third child, and the daughter, as an overlapping turn, deepens granularity by adding another attribute (‘the handsome boy’). Trudy shifts her gaze to the photo, but does not respond, which results in a 2‑second silence, leaving the caregiver to provide another attribute (‘your good boy’) and a turn-final expression that seeks elicitation (‘mm?’) in line 7. What then follows is a conversational practice that has been termed try-marking (Sacks & Schegloff, Reference Sacks, Schegloff and Psathas1979; Schegloff, Reference Schegloff2007). This generally involves the use of a ‘first name recognitional’ with an upward intonational contour. Thus, Trudy makes a try or guess as to whom she is supposed to be looking for, but this is immediately rejected by the caregiver in line 9 and also countered by the daughter (line 10), by which it can be inferred that Maxi is not her son. Trudy continues to focus her attention on the photograph for some time and then, in line 12, she identifies an individual by pointing at and resting her finger on a person in the photo. Her response then receives upgraded positive evaluation by both the caregiver and the daughter. As with the prior two extracts, this extract has shown Trudy’s difficulty in demonstrating knowledge in a domain of which one is generally expected to have primary access (i.e., Type 1 knowables). Although the hints do work to help Trudy locate the right person, they also seem to mark the growing frustration among the persons in Trudy’s close social network that she is taking so long to complete the task and that she might not successfully identify her son.
9.4.2 Displaying Difficulty with Answering
Trudy most often displays difficulty with responding to the first pair part action produced by either the researcher or by someone from her closer social network (e.g., daughter or caregiver/nurse). In this section we explore in detail how these sequences are accomplished by showing (1) how Trudy displays downgraded epistemic access in her response (e.g., by guessing, remaining silent, disengaging from the activity); (2) how co-present interactants pursue a response from Trudy via hints (Nilsson, Reference Nilsson2017), encouragers and directives to get Trudy to focus attention on the photo; and (3) how co-present interactants account for or assess Trudy’s performance within post-sequences.
9.4.2.1 Guessing: Indexing Downgraded Epistemic Access
Trudy’s response sometimes appeared in the form of a Yes/No-interrogative, commonly as ‘is it/that X?’ These actions seek confirmation, thus allowing the recipient to take up a K+ position (Heritage Reference Heritage, Sidnell and Stivers2013). Two examples of this practice have already been seen in Extract 1, where Trudy asked ‘is it you’ and ‘is that Susi’, both utterances receiving disconfirmation. Another example is shown in Extract 4.
Extract 4: R=researcher; Tr=Trudy; D=daughter
01 R: Wer is des. Who is that. R points at Tr in the photo 02 (4.4) Tr gazes at the photo then looks over at D 03 Tr: Bist es du. Is it you. 04 D: ↓Na [i ben’s ned. ↓No [its not me. 05 Tr: [Na. [No. Tr lateral head movement Tr looks again at the photo
The researcher’s wh‑interrogative who is that gives Trudy an opportunity to take up increased epistemic rights by supplying the answer to ‘who’. Trudy’s response of ‘is it you’ does different kinds of interactional work. First, the interrogative format displays uncertainty (compare with the declarative: ‘it’s you’), as does the long 4.4‑second pause that precedes it. Second, her question opens up another sequence, which not only delays the provision of the answer but also puts the burden of responding/confirming onto the daughter. And third, the two former interactional features index a diminished epistemic stance because Trudy displays uncertainty about the person’s identity, and also shows that she must rely on others to confirm or provide the sought-for information. In the next turn, the daughter completes the sequence through disconfirmation (‘↓no its not me’), leaving the identity of the person in the photo as yet-to-be determined.
9.4.2.2 Response Pursuit from Recipients
Because Trudy was most often not able to immediately name the person in the photo, the other interlocutors were often found to pursue a response through various interactional practices. These included providing hints, encouraging Trudy to respond and getting Trudy to focus on the photo.
9.4.2.2.1 Hinting
Actions that provide hints generally give an interlocutor a clue or some information that allows the interlocutor to make an appropriate inference. This kind of discursive work is shown in Extract 5, which is a slightly longer version of Extract 4. Trudy is shown a photo of herself, taken many years earlier.
Extract 5: R=researcher; Tr=Trudy; D=daughter
01 R: Wer is des. Who is that. R points at Tr in photo 02 (4.4) Tr looks at picture then looks over at D 03 Tr: Bist es du. Is it you. 04 D: ↓Na [i ben’s ned. ↓No [its not me. 05 Tr: [Na. [No. Tr lateral head movement Tr looks again at the photo 06 (1.0) 07 D: Des is mei mutter. That is my mother. 08 (0.7) 09 Tr: Dei mutter.= Your mother.= Tr gaze at D
From the analysis of Extract 4, it was shown that Trudy displayed uncertainty and, in effect, did not provide an answer to the researcher’s initial wh‑interrogative. After the daughter disconfirmed that she was the person in the photo, followed by an affirming ‘no’ from Trudy in line 5, a 1‑second silence ensued, making a response from Trudy once again relevant. In line 7 the daughter provides a reference to the person’s identity (‘that is my mother’). Thus, by inference, Trudy is Joanna’s mother and it would be assumed that Trudy could make that connection. After a brief pause, Trudy provides a partial repetition of Joanna’s prior turn with clause-final intonation while looking at her, a type of mirroring (Ferrara, Reference Ferrara1994), which could be displaying a form of reflection or ‘being thoughtful’.
Hints from Trudy’s social network also take the form of providing more detail, or granularity (Schegloff, Reference Schegloff2000), or clarifying who the referent may be, as seen in Extract 6, which forms the beginning of Extract 3.
Extract 6 [taken from Extract 3]: Tr=Trudy; D=daughter; CA=caregiver
01 D: Na +wo is dein sohn. Well where is your son. Tr +looks towards D 02 (1.8) Tr maintains gaze @ D --> 03 D: Tsoarg uns. Show us. Tr ----------> 04 CA: Wo is dein #drittes kind Trudy. [dein drittes kind. Where is your third child Trudy. [your third child. 05 D: [Da fesche bua [The handsome boy. Tr ----------> Tr #looks back at photo -----------------> 06 (2.0) 07 CA: Dein brave bub. mm? Your good boy. mm?
As already discussed in relation to Extract 3, the daughter had initially directed Trudy to identify her son, but as no response was forthcoming, the caregiver and the daughter provided Trudy with further information or hints. Thus the others provided more ‘granular descriptions’ of the person being referenced, which might make the identification of the person in the picture easier (‘your third child; the handsome boy; your good boy’).
These practices align with what has previously been identified in CA research as pursuing a response (Davidson, Reference Davidson, Atkinson and Heritage1984; Pomerantz, Reference Pomerantz, Atkinson and Heritage1984); that is, following a no‑response from the recipient or in the presence of interactional features that presage a dispreferred response such as an inability to answer, practices are set in motion that may facilitate the respondent’s capacity to take up epistemic rights and access by providing the preferred response – in this case, the correct answer.
9.4.2.2.2 Encouragers
In contexts where Trudy is showing some difficulty with answering, the members of her social network sometimes provide expressions of encouragement, as shown in Extracts 7 and 8.
Extract 7 [taken from Extract 2]: R=researcher; Tr=Trudy; CA=caregiver
25 R: Probier ma anders- anders foto. Let’s try a different- different photo. Tr looks directly at photo --------------> 26 ( 4.1 ) Tr -------> looks away towards others in room 27 CA: ↓Ja:: ↓Yes:: 28 Tr: [H(h)ah hah hah hah hah hah. 29 R: [+Wer is des. wer is des.+ [+Who is that. who is that.+ R +points at specific person with tapping motion+ 30 CA: Wer is #das. du kennst zicher. Trudy. Who is #that. you know for certain. Trudy. Tr #looks back at photo Extract 8 [taken from Extract 1]: Tr=Trudy; D=daughter; CA=caregiver
17 D: °Wer is des.° °Who is that.° 18 CA: Probier’s. (0.5) noch einmal schnell daran denken Try it. (0.5) once again quickly think about it Tr looks away from photo then towards others 19 (0.8) 20 D: Schau das an s’bühdl. Look at it the picture. 21 (1.5) Tr looks back at photo 22 CA: Du kennst zicher zehr gut. You know certainly very well. 23 (1.0) Tr moves photo away, in front of her 24 CA: Deine enkel Your grandchildren
In Extract 7, following the researcher’s wh‑interrogative of line 29 asking Trudy to identify a person in the photo, in the subsequent turn the caregiver repeats the question and appends an expression that endorses Trudy’s epistemic competence (‘you know for certain. Trudy’), thus offering encouragement and confidence that Trudy will be able to give the correct answer. During this time Trudy looks back at the photo, showing that she is willing to re-engage with the task. Similarly in Extract 8, after Trudy’s repeated delays in responding, the caregiver works to strongly bolster her capacity to identify the person (‘you know certainly very well’). On the upside, these expressions of encouragement are a show of confidence (‘you know this!’) and work to upgrade Trudy’s epistemic status. They also work as a response pursuit strategy, maintaining structural alignment on the joint task of getting Trudy to provide the ‘right’ answer. But on the downside, in cases when Trudy is not able to remember or provides an incorrect answer, they are exposing her lack of epistemic authority, resulting in a situation where Trudy can (repeatedly) lose face.
9.4.2.2.3 Attention-Focus Directives
Response pursuits do not necessarily focus on the person’s epistemic status, whether or not they have the ability to access a certain domain of knowledge. At times, response pursuits orient to the person’s lack of attention or engagement with the task and call upon the person to become more focused.
Extract 9: [taken from Extract 1]: Tr=Trudy; D=daughter; CA=caregiver
08 Tr: Bist es du. Is it you. Tr looks over at others 09 D: Na schau’s ↓an und dann sagst unsers. Well look ↓at it and then tell us. 10 CA: Noch einmal. Once again. Tr looks back at photo 11 D: Ganz genau anschauen Look at it very carefully 12 (1.0) 13 Tr: Is des Susi. Is that Susi. Tr points at photo, repeatedly tapping it with her finger 14 D: [↓Na:: [↓No:: 15 CA: [Hm hm. des is- [Hm hm. it is- 16 (3.4) 17 D: °Wer is des.° °Who is that.° 18 CA: Probier’s. (0.5) noch einmal schnell daran denken Try it. (0.5) once again quickly think about it Tr looks away from photo then towards others 19 (0.8) 20 D: Schau das an s’bühdl. Look at it the picture. 21 (1.5) Tr looks back at photo 22 CA: Du kennst zicher zehr gut. You know certainly very well. 23 (1.0) Tr moves photo away, in front of her 24 CA: Deine enkel Your grandchildren
Following Trudy’s guess in line 8 and then shifting her gaze away from the photo, the daughter does not offer confirmation or disconfirmation, but instead directs Trudy to focus on the photograph (‘well look ↓at it and then tell us’) – the response may imply disconfirmation (i.e., it is not her) and it may also work as a refusal to respond, suggesting that Trudy should answer for herself. Subsequent to this, in line 9, is another directive to engage with the photo, this time from the caregiver (‘once again’), immediately followed by another imperative-formatted directive from the daughter, calling on Trudy to focus her attention (‘look at it very carefully’). After a confirmation-seeking sequence, comprising a guess from Trudy (‘is that Susi’) and then a disconfirmation (‘↓No::’), her social network again uses focusing-attention directives. First, in line 18, the caregiver begins with a bare imperative (‘try it’), followed by a command to focus quickly on the photo. Trudy, however, disengages from the activity by shifting her gaze away from the photo, which leads the daughter, in line 20, to again direct Trudy to look at the photo (‘look at it the picture’).
To summarize, response pursuits from Trudy’s close social network seem to be guided by both epistemic and deontic concerns. Hints work at helping Trudy to ‘find’ the right answer and demonstrate her ability to remember Type 1 autobiographical knowledge. Encouragers also focus on epistemics by displaying confidence in her being able to access personal knowledge domains. Attention-focus directives, on the other hand, orient to deontics by urging Trudy to re-engage with and focus on the task at hand. Thus response pursuits both orient to Trudy’s difficulty in taking up a K+ position concerning Type 1 knowables and in remaining focused on tasks.
9.4.3 Assessments in Sequential Third Position
Following the question- or directive-response sequence, a member of Trudy’s social network has the opportunity to produce what may be termed a third position assessment (Schegloff, Reference Schegloff2007; see also Table 9.1 for exam questions). These are slots in which family members may account for or assess Trudy’s performance. In many of the extracts shown thus far, Trudy’s (second position) response was not correct. This resulted in a negative assessment of Trudy’s response in third position, such as the daughter’s ‘↓no its not me’ seen in Extract 4. This negative evaluation also has important sequential implications. Because Trudy has not yet got it right, the activity of identifying the person on the photo has not come to a close, but rather there is an implication that subsequent talk will orient to getting an eventual identification. Thus, as has been shown, the speakers mobilize various practices in the pursuit of a (correct) response, such as by offering hints, adding more granularity or even getting Trudy to (re-)engage and focus on the photo.
When Trudy provides a correct answer, however, different response types will occur in third position. This is shown in Extract 10.
Extract 10: [from Extract 2]: Tr=Trudy; D=daughter; CA=caregiver
30 CA: Wer is das. du kennst zicher. Trudy. Who is that. you know for certain. Trudy. 31 (1.2) 32 Tr: Joanna. bist des du. Joanna. is that you. ((taps finger on photo)) Tr taps finger on photo Tr looks towards D, back to photo, then towards D 33 D: Genau. =des bin i:. Exactly. =that’s me:. 34 CA: Super. perfekt. ja:? Super. perfect. yes:?
Trudy’s correct identification of her daughter in line 32 is followed by Joanna’s positive assessment (‘exactly’) and confirmation (‘=that’s me:’), which gets further upgraded by the caregiver in line 34 with ‘super’ and ‘perfect’ (see also Webb, Chapter 15 this volume, and Jones, Chapter 12 this volume, for discussions of similar evaluative third position responses). According to Schegloff (Reference Schegloff2007), these expressions work as sequence closing thirds. As the name suggests, they close off the sequence, thereby licensing the start of a new sequence.
9.4.4 Certainty Displays
Trudy’s responses to first position wh‑interrogatives to identify a person in a photo or first position directives to ‘find X’ are often hesitant and designed as guesses. She also often disengages with the activity by looking away from the photo. There were instances, however, in which her responses displayed certainty, as in Extract 11.
Extract 11: [a continuation of Extract 5]: Tr=Trudy; D=daughter; CA=caregiver
07 D: Des is mei mutter. That is my mother. 08 (0.7) 09 Tr: Dei mutter.= Your mother.= Tr looks at D 10 D: =Wer is den des. =Who is that. 11 (6.8) Tr looks at photo then looks over to D 12 Tr: i bin des ned. It’s not me. 13 D: Na schau das a:n. Well look a:t it. 14 (11.0) Tr looks at photo
At the beginning of this extract Joanna had provided Trudy with a hint to help her identify the person in the photo (‘that is my mother’). It can be recalled that Joanna is actually referring to Trudy (from an earlier period in her life). Although Trudy, in line 9, partially repeats the prior turn through mirroring, thus displaying some form of ‘reflection’, she does not go on to say that she herself is in the picture. Trudy may thus be conveying slight hesitancy or even incipient disagreement with her daughter. In line 10 Joanna repeats the request to identify using a wh‑interrogative, leading Trudy to again engage with the photo before looking back up towards Joanna. Trudy then responds with a declarative devoid of modal expressions displaying uncertainty (‘it’s not me’). In this way, she indicates who the person on the photo is not, thus contradicting her daughter. What this disagreement shows is that Trudy has indeed understood the daughter’s hint (‘my mother’ = ‘Trudy’), but also that Trudy is not always displaying uncertainty and can take up an upgraded epistemic stance even if her professed knowledge turns out to be incorrect. Nonetheless, her contradiction does expose other cognitive deficits, since it shows that she was not able to ‘recognize’ a younger version of herself.
Another example in which Trudy denies with certainty that a given person in the picture is not the one that she is looking for is shown in Extract 12.
Extract 12: Tr=Trudy; D=daughter; CA=caregiver; N=Nurse
01 N: Findst du der Joanna ihr’n mo:h. Can you find Joanna’s hu:sband. 02 ( 13.0 ) Tr looks at photo, then away D places a different photo in front of Tr 03 N: Is a des. Is that him. 04 D: Wer is den des. Who is that 05 ( 3.2 ) Tr pounds on photo with right fist 06 Tr: [Hhh h(h)ah hah. 07 ? [Ahhhhh 08 Tr: Wer is den Who is it Tr looks at the others 09 N: Wer is. sag ↓unsers. schau ihn genau an dann sagst unsers. Who is it. tell ↓us. look at him closely then tell us. 10 (5.3) 11 Tr: D- der Joanna ihr mo:h is des ned. i ke(h)nn d(h)e(h)n T- the its not Joanna’s hu:sband. I don’t kn(h)o(h)w Tr looks at photo, makes a fist and clenches teeth 12 Ü(h)be(h)rhau(h)pt ned. H(h)im a(h)t a(h)ll. Tr looks at photo, makes a fist and clenches teeth 13 (3.0) 14 CA: Und gestern gut. mama hat [g’zagt. gestern gut und jetzt. And yesterday good. mama had [said. yesterday good and now. 15 D: [Mm hm. 16 (2.0) 17 D: Gestern hat’s es kannt. Yesterday she could recognize him.
In line 1 the nurse directs Trudy to identify Joanna’s husband using the ‘find X’ turn format. The photo shown to Trudy has many people in it and so might prove overly challenging for her. After Trudy has looked at the picture for over 10 seconds, the daughter then places a different picture in front of Trudy containing only one person, Joanna’s husband. The nurse then requests confirmation from Trudy (‘is that him), followed immediately by a wh‑interrogative from Joanna (‘who is that’). Thus, to respond affirmatively, Trudy needs either to confirm the prior question with ‘yes’ or state that it is Joanna’s husband. Instead, in line 5 Trudy makes a visible emotional display consisting of her pounding her fist on the person in the picture, followed by a brief outburst of laughter and, in line 8 produces a wh‑interrogative (‘who is it’). Trudy’s question serves as a repair initiator (Schegloff et al. Reference Schegloff, Jefferson and Sacks1977) because she is soliciting help in answering the question, but it also serves as implicit disagreement because it does not offer the preferred variant (confirmation or ‘the answer’) to the prior questions. In line 9, rather than provide the ‘repair’, the nurse repeats the question and then produces an attention-focus directive (‘look at him closely then tell us’), suggesting that Trudy’s inability in answering is due to her lack of attention and not a ‘faulty’ memory. As a response, however, Trudy makes a certain display of denying that it is Joanna’s husband and that she has no knowledge of or any relationship to this person (lines 11–12). While constructing her turn, Trudy also makes various emotional displays of anger or irritation by clenching her teeth and making a fist while looking at the (unknown) person in the photo. In lines 14–17, occurring off-camera, the caregiver and the daughter explain to the researcher that Trudy was able to easily recognize Joanna’s husband in the photo on the previous day.
9.4.5 Displaying Knowledge of Co-present Interlocutors
The activity of identifying and displaying knowledge of persons appeared to be different when comparing contexts of ‘looking at family photos’ to ‘everyday talk between co-present interlocutors’. Extract 13, which occurred towards the end of the research, shows an example of how Trudy is able to display unsolicited knowledge about personal life events that include her daughter.
Extract 13: R=researcher; Tr=Trudy; D=daughter; CA=caregiver
01 D: [Schau den an. [Look at him. 02 Tr: [Du::. [You::. Tr moves hand towards and touches D’s leg 03 Tr: Bist meine erste tochter. Are my first daughter. Tr holds lightly onto D’s shirt 04 D: Des stimmt. [ja That’s right. [yes 05 Tr: [Ja:. [Ye:s. 06 Tr: Die hab i g’macht wie i achtzehn jahr oid war. You I made when I was eighteen years old. 07 D: Genau. Exactly. 08 Tr: Ja:. Yes:. 09 (1.8) 10 Tr: [Du bist mei: [You are my: 11 D: [Und wie hoas i? [And what’s my name? 12 D: Wie hoas i? What’s my name? 13 (1.5) 14 Tr: Joanna. 15 D: Mm hm. 16 (3.3) 17 D: Und wie hoast mei bua? And what’s my boy’s name? 18 (2.4) 19 Tr: Lois. 20 D: Na des is mei ↑mo:h. wie hoast- (0.7) mei ↑bua. No that’s my ↑hu:sband. what is (0.7) my ↑boy’s name. 21 (4.2) 22 Tr: Hans. Tr looks at D 23 D: Genau. und hat da Hans a scho a kind. Exactly. and does Hans already have a child. D points at Tr 24 (4.5) 25 Tr: Ja. Yes. 26 (2.3) Tr looks at D 27 D: Genau. Exactly. 28 Tr: Hat er oans oder zwar. Does he have one or two. 29 D: Uh oans hat a. Uh he has one. D holds up 1 finger 30 Tr: Oans hat a. One he’s got. 31 D: Und wie hoast ↑der. And what’s ↑his name. 32 (5.0) D points to person in photo towards end of silence 33 D: Is des da Hans. Is that Hans. 34 (1.6) 35 Tr: Ja koh eh sein das a der Hans is. Yes that’s possible that that’s Hans Tr looks at photo 36 (4.7) 37 D: Jaja des is a. Yeah yeah that’s him. Tr looks at D 38 Tr: ((nods)) 39 D: Wann’s das sagst, geh If you say so, right
In line 1 of this extract, the daughter Joanna is about to initiate another round of person identification by getting Trudy to focus on another photo (‘look at him’). At the same time, however, Trudy initiates a different move by verbalizing the second person pronoun ‘You::’ and non-vocally by touching her daughter’s leg. She then continues her turn in line 3 by stating or announcing some biographical information (‘are my first daughter’). Thus, in contrast to the other extracts examined so far, Trudy initiates a sequence and shows that she can be a cooperative and engaged participant in the interaction. By doing so, she also takes up primary epistemic rights and access (Heritage, Reference Heritage, Sidnell and Stivers2013). Following a confirming response from the daughter, Trudy continues to provide even more biographical information (‘you I made when I was eighteen years old’). The daughter’s response in line 7 confirms what Trudy has said, but it might also be doing additional work. Because Trudy would, by most accounts, have first-hand, primary knowledge of at what age she gave birth to her daughter, Joanna’s response of ‘exactly’, by emphasizing the ‘correctness’ of what Trudy said, treats this knowledge as contestable; that is, she could have gotten it wrong and this biographical knowledge may not necessarily (or no longer) be in Trudy’s epistemic domain. In line 10, Trudy begins a turn in which it appears that she will be launching another statement, thus taking up primary epistemic rights (‘you are my:’), but what follows instead are a series of exam questions or known answer questions (Levinson, Reference Levinson, Drew and Heritage1992; Schegloff, Reference Schegloff2007) in which Trudy’s knowledge about her personal social network is being tested. For example, the questions directed to Trudy – ‘what’s my name?’, ‘and what’s my boy’s name?’, ‘and does Hans already have a child’ and ‘and what’s ↑his name’ (lines 11, 17, 23, 31) – are obviously all known to Joanna, and her third position responses of ‘mm hm’ and ‘exactly’ reveal this. In line 28, after being asked if her grandchild Hans has a child, Trudy displays some uncertainty as to whether he has one or two. After it is confirmed that Hans has only one child, Joanna proceeds to ask Trudy to identify someone in a photograph (lines 31–32) and, following no response, provides a hint (‘is that Hans’). Trudy’s response is designed with some uncertainty (‘yes that’s possible that that’s Hans’), which is then confirmed by Joanna in line 37. Then, following Trudy’s nod of agreement in line 38, Joanna orients to Trudy’s uncertainty in being able to recognize or identify Hans (‘if you say so, right’).
It has often been noted that persons with frontotemporal dementia sometimes have difficulty in initiating sequences resulting in interlocutors doing most of the work to keep the interaction going (Mikesell, Reference Mikesell2009). What Trudy displayed at the beginning of Extract 13, however, is the ability to take conversational initiatives and to speak about pertinent aspects of her personal biography – perhaps triggered by the proceeding focused activity of getting her to identify family members in photographs. In doing so, she was also able to take up a position of epistemic authority, to reveal some parts of her epistemic domain. But even though the daughter did at first cooperate with Trudy’s initiatives, the conversation eventually reverted to a perhaps more typical conversational agenda in which Trudy is tested on what she knows, with the unfortunate result of often making clear where she is lacking in knowledge.
9.5 Discussion
The use of photographs and what is termed life story books have been suggested to be useful devices in stimulating recall and positive emotions, and are thus commonly used as interactive tools for persons with dementia (Elfrink et al., Reference Elfrink, Zuidema, Kunz and Westerhof2018). Family photographs align with the person’s Type 1 autobiographical knowledge and thus present themselves as opportunities for persons with dementia to take up epistemic authority and disclose information or events pertaining to their lives.
For this chapter, we chose to examine someone who had difficulty recognizing persons from their close network in photographs for the following reasons. We wanted to study how these ‘person recall’ activities using photographs were interactively organized, how downgraded epistemic rights and access were displayed, and how interactional difficulties of ‘non-recall’ were managed. We found systematic practices that oriented to Trudy’s difficulty, which other persons with bvFTD also share. Generally, Trudy would respond to questions with wh‑interrogatives by guessing at the answer, using expressions that conveyed no knowledge of the person’s identity or disengaging from the activity by diverting her gaze and attention elsewhere. These kinds of responses to questions or directives helped to construct an epistemic stance that indexed a reduced epistemic domain with respect to her ability in recognizing family members in photos. This led to a variety of response pursuits in which her co-present close social network members would provide hints, encouraging her to keep trying and make positive assessments (when she guessed correctly). Oftentimes, however, Trudy was unable to take up a K+ position, which had negative implications for face and also her relationships with members of her close social network (see also Webb, Chapter 15 this volume): that is, remembering your family members is a necessary precondition for maintaining these relations, and constantly being ‘reminded’ that you are no longer competent in this domain (i.e., remembering your children, grandchildren, etc.) may have a negative impact on ways of relating with these people in the future (see also Jones, Chapter 12 this volume). Trudy was, however, able to take up a position of epistemic authority in two important respects. First, she was often able to strongly assert who was not in the photo – even though she was not necessarily correct in her assertion – and second, she seemed to find it easier to display knowledge about personal events with co-present persons with whom she had a close relationship.
The activity of looking at family photos did not seem to stimulate much recall for Trudy; that is, she was generally not successful in, for example, naming the people in the photo, stating the relationships between them (and to herself) or even saying something about the context in which the photo was taken. A previous CA study on persons with bvFTD’s use of reference terms while looking at photos has shown that these persons may sometimes over-suppose and under-tell or, conversely, under-suppose and over-tell (Mates, Reference Mates, Mates, Mikesell and Smith2010). In the former a person could state the person’s name, for example, without clarifying the kinship relations (e.g., my sister, daughter, grandchild, etc.), whereas in the latter a person could provide an excess of referential information in cases where the addressee already knows the information. In this case study, Trudy did not seem to properly align with either of these practices, as she consistently displayed difficulties in accessing this knowledge, although, according to some members of her social network present during the conversation, she has days where she is able to recall the names of her family members much more easily. Thus her epistemic status in relation to this territory of knowledge is not constant, but fluctuates. Further, Trudy’s ability to display knowledge of and recognize co-present familiar persons suggests that her capacity to access biographical knowledge may be facilitated by various features pertaining to her everyday present setting or to other people’s typical conduct or ways of relating to her (perhaps the manner in which they speak with her or their voice patterns). Difficulties seem to emerge when she is required to display knowledge without the proper contextual scaffolding, as seen when she is asked to look at family photographs. To conclude, on days where persons with bvFTD are finding it especially difficult to take up a K+ position, there may be a larger ‘social payoff’ when others in the close social network ease up rather than persist in using (exam-like) strategies to solicit answers.
10.1 Introduction
In this chapter we analyse an interview with a couple where one of the spouses has a dementia diagnosis. Our detailed sequential analyses are focused on how the couple talks about events when the person with dementia might not always remember the events being talked about. Telling about life with dementia can be a sensitive topic, especially when the topic concerns difficult and problematic experiences due to the disease, or when problems related to the disease become an issue in the telling. In the excerpts analysed for this chapter, the spouse without dementia is the teller of a story in which the spouse with dementia is a main character. As persons with dementia may have trouble remembering the specific details of past events in their own lives, their epistemic authority (Heritage & Raymond, Reference Heritage and Raymond2005) might be questioned (see Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021; Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022; also Jones, Chapter 12 this volume; Muntigl & Hödl Chapter 9 this volume). In interactions between couples, therefore, partners of people diagnosed with dementia recurrently have to take into consideration that their spouse may not remember accounts and details of stories they tell, even though the person with dementia may be the main character of the story. In such instances, the person with dementia may not just be a (ratified) official hearer (Dynel, Reference Dynel2011; Goffman, Reference Goffman1981) of a story told by someone else, but can, in Goffman’s terms, become an addressed recipient of a story about his or her own life. In those situations, people with dementia may not be positioned as co-tellers of their life stories. Instead, life stories are sometimes designed with the person with dementia either as an addressed recipient or even as a third-party to whom the plot and the details of the story are news.
How a story is designed is closely related to what the recipients of the story can be expected to know already (Sacks, Reference Sacks and Shuy1973). Speakers regularly adjust their ways of speaking (including style, vocabulary and content) to who is listening, something often described using the term recipient design (Goodwin, Reference Goodwin and Psathas1979; Sacks, Reference Sacks and Jefferson1992). Participants’ orientations toward a story and the way stories are designed are intimately linked to the parties’ epistemic status regarding their degree of knowledge of the topic (Goodwin, Reference Goodwin and Psathas1979; see Muntigl & Hödl Chapter 9 this volume). In conversation, there is a strong preference for not telling participants stories or information they already know (Goodwin, Reference Goodwin and Psathas1979; Sacks, Reference Sacks and Shuy1973; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011). Most of the time, participants’ assumptions about their interlocutors’ prior information are correct – participants generally have a good understanding of who knows what, and are therefore able to adjust their telling accordingly (Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011). As for interaction involving people with dementia, such assumptions are much more difficult to make. What kind of information a person with dementia has access to at a specific moment is often not possible to predict, as this can vary from time to time (Marcusson et al., Reference Marcusson, Blennow, Skoog and Wallin2011). A person with dementia might not be able to remember either recent events that happened just moments ago or events that have happened in the more distant past, but could just as well remember details of both the present and the past. Thus the epistemic status (Heritage, Reference Heritage2012) of a person with dementia can be both uncertain and fluctuating (see Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022). What kind of information participants assume that the other has and the distribution of rights and responsibilities among the present parties will be displayed in how their talk is organized and locally managed on a turn-by-turn basis.
In this chapter we use data from research interviews and investigate how a couple, in which one of the spouses is diagnosed with dementia, orient toward and handle interactional challenges in narrations of past shared events that arise when the spouse with dementia has severely limited (or no) access to these events. We show how the spouse who still has access to the events orients to these issues by organizing and reorganizing the participation frameworks in resourceful ways and delicately deals with her spouse’s limited or lack of knowledge using a variety of face-saving practices. Drawing on conversation analytic methods (Sacks, Reference Sacks and Jefferson1992) and a detailed and multimodal analysis of interaction (Goodwin, Reference Goodwin2018; Mondada, Reference Mondada2016), the chapter aims to provide empirical examples and analytical insights related to the sequentially unfolding of a joint storytelling in circumstances when the epistemic status of one of the co-tellers is unclear. By doing this, the chapter adds to a growing body of literature focusing on issues related to epistemic matters and the management of asymmetric access to knowledge in interaction involving people with dementia (e.g., Hamilton, Reference Hamilton2019; Hydén & Samuelsson, Reference Hydén and Samuelsson2019; Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021; Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022; Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014, Nilsson, Reference Nilsson2017; Nilsson et al., Reference Nilsson, Ekström and Majlesi2018; Svennevig & Landmark, Reference Svennevig and Landmark2019).
10.2 Participation Frameworks, Participation Status and Interactional Positionings
The concepts of participation framework and interactional positioning are greatly influenced by Goffman, whose work highlights the significance of different interactional arrangements and the different possibilities of participation in such arrangements (Goffman, Reference Goffman1981; see also Rae, Reference Rae2001). In interactional encounters, participants’ engagements cannot adequately be described merely using the roles of “speaker” and “listener”. Goffman (Reference Goffman1981, p. 137) proposes that “an utterance does not carve up the world beyond the speaker into precisely two parts, recipients and non-recipients, but rather opens up an array of structurally differentiated possibilities, establishing the participation framework in which the speaker will be guiding his delivery”. So the participants’ engagements in interactions are connected to a range of different statuses. Goffman (Reference Goffman1981) describes the term participation status as referring to a specific participant’s relation to a current utterance: “When a word is spoken, all those who happen to be in a perceptual range of the event will have some sort of participation status relative to it” (p. 3). For speakers, Goffman describes at least three main positionings including animator (utterance producer), author (utterance designer) and principal (responsible for the message). Listeners (or hearers) are divided into ratified (e.g., audience) and unratified (e.g., bystanders or eavesdroppers) positions, as well as addressed and unaddressed (ratified) hearers (Goffman, Reference Goffman1981; see also Goodwin, Reference Goodwin, Ochs, Schegloff and Thompson1996). The term participation framework, then, portrays the collected relations to a specific utterance of all the participants in an activity.
While Goffman’s work mainly centres around categories to illustrate participation in interactional encounters, later studies have highlighted the inherently situated and ever-changing nature of participation on a turn-by-turn basis (Goodwin, Reference Goodwin, Ochs, Schegloff and Thompson1996; Goodwin & Goodwin, Reference Goodwin, Goodwin, Auer and di Luzio1992, Reference Goodwin, Goodwin and Duranti2004; Rae, Reference Rae2001). In these studies, and also in this chapter, participation is viewed as interactively accomplished through temporally unfolding courses of action, with constantly changing roles and statuses, rather than a stable structure for the actions undertaken (Rae, Reference Rae2001). Participation framework and participation status – or rather, interactional positioning – are thus considered as significant for analysing the forms of participation and the participants’ current engagement in the course of the activity (Goodwin, Reference Goodwin, Ochs, Schegloff and Thompson1996; Goodwin & Goodwin, Reference Goodwin, Goodwin, Auer and di Luzio1992). Following this line of work, participation framework and interactional positioning are used in this chapter to describe and analyse the participants’ sequentially unfolding engagement of a jointly told story.
10.3 Epistemics and Accountability
In his central work on knowledge in interaction, Heritage (Reference Heritage2012) describes three concepts that are especially important for participants and analysts alike: territories (or domains) of knowledge, epistemic status and epistemic stance. Domains of knowledge refer to certain areas of information. According to Pomerantz (Reference Pomerantz1980), there are two types of knowables, constituting different domains: Type 1 knowables and Type 2 knowables. Type 1 knowables concern knowledge from first-hand experience and Type 2 knowables concern indirectly acquired knowledge. A Type 1 knowable includes, for example, a person’s feelings and their previous involvements or motives for doing something, and it is commonly associated with specific privileges (Heritage, Reference Heritage2012; Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014; Muntigl & Hödl Chapter 9 this volume; Pomerantz, Reference Pomerantz1980). Participants are considered to have primary rights and access to the information they experienced first-hand and have themselves been exposed to, something that is reflected in how participants design their conversation (Heritage & Raymond, Reference Heritage and Raymond2005). In general, participants orient to each other as having privileged access to their own opinions and experiences, and also as having specific rights to tell about them (Heritage & Raymond, Reference Heritage and Raymond2005; Pomerantz, Reference Pomerantz1980; Sacks, Reference Sacks and Shuy1973). Type 1 knowables are also associated with certain responsibilities, as a person might be held accountable for not having (or not claiming) access to this kind of information (Pomerantz, Reference Pomerantz1980; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011).
Having or not having access to knowledge about an event helps to shape some specific interactional positionings and builds a particular ‘epistemic constellation’ (Koole, Reference Koole2012) where participants show their epistemic statuses regarding that event. Participants’ epistemic status refers to a person’s position as being more or less knowledgeable in relation to a certain epistemic domain (Heritage, Reference Heritage2012). A similar framework described by Labov and Fanshel (Reference Labov and Fanshel1972) introduces the terms A‑events, B‑events and A‑B events in which A‑event knowledge is primarily known to participant A (the speaker), B‑event knowledge is primarily known to participant B (the recipient), and A‑B events are known to both. Participants recognize each other as more or less knowledgeable in relation to a current domain of knowledge. This status is, however, not a static position but can ‘vary from domain to domain, as well as over time, and can be altered from moment to moment as a result of specific interactional contributions’ (Heritage, Reference Heritage2012: 4). Closely related to participants’ knowledge of specific domains is their epistemic stance, which refers to how the participants position themselves in relation to some specific piece of information. In and through the design of turns, participants can use various linguistic and interactional resources to display their knowledge position: as knowledgeable or not, and also the degree of certainty of their knowledge (Heritage, Reference Heritage2012; Heritage & Raymond, Reference Heritage and Raymond2005). It should be noted that participants might take a certain epistemic stance vis-à-vis a specific topic to appear more or less knowledgeable than they really are (Goodwin, Reference Goodwin and Psathas1979; Heritage & Raymond, Reference Heritage and Raymond2005). Claiming forgetfulness can, for example, be used as a way to stimulate talk and support participation (Goodwin, Reference Goodwin1987) or to resist responsibility (Muntigl & Choi, Reference Muntigl and Choi2010).
10.3.1 Epistemics in Analyses of Interaction Involving People with Dementia
In general, people are expected to have access to their own biography and to be able to account for their own past (Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014; Pomerantz, Reference Pomerantz1980). Due to a declining ability to remember, this is not always the case for people with dementia. Issues related to epistemic rights and responsibilities have recently been investigated with a focus on interaction involving people with dementia in several studies (e.g. Black, Reference Black2011; Hamilton, Reference Hamilton2019; Hydén & Samuelsson, Reference Hydén and Samuelsson2019; Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021; Lindholm & Stevanovic, Reference Lindholm and Stevanovic2022; Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014, Nilsson, Reference Nilsson2017; Nilsson & Olaison, Reference Nilsson and Olaison2019; Nilsson et al., Reference Nilsson, Ekström and Majlesi2018; Svennevig & Landmark, Reference Svennevig and Landmark2019; Williams et al., Reference Williams, Webb, Dowling and Gall2019).
Hamilton (Reference Hamilton2019) outlines a number of identified strategies a person with dementia uses to handle memory problems related to Type 1 knowables. When asked questions related to personal facts that proved difficult to recollect, the person with dementia used both fellow interlocutors and assistance from the material surrounding to be able to provide an answer. In these situations, it was noted that partners of the person with dementia sometimes contradict the answers given by the person with dementia and answer on their behalf (Hamilton, Reference Hamilton2019; see also Nilsson et al., Reference Nilsson, Ekström and Majlesi2018). How spouses initiate corrections and repairs related to the epistemic domain of the person with dementia is a specific focus in a study by Landmark et al. (Reference Landmark, Nilsson, Ekström and Svennevig2021). In this study, couples’ management of conflicting knowledge-claims and negotiation of epistemic rights was investigated. Three main practices for correcting the person with dementia were identified: for example, the partner without dementia claiming epistemic authority and denying the person with dementia’s authority; or inviting the person with dementia to self-correct, thereby attributing some epistemic authority to them. Instances of disagreement where the spouses provided reasons for their alternative claims and displayed a more symmetric epistemic gradient were also found. Nilsson et al. (Reference Nilsson, Ekström and Majlesi2018) also showed how spouses with dementia sometimes actively hand over epistemic primacy to their partners by assigning them to be their spokespersons regarding information that they would normally have been expected to know themselves.
Related to the aspects of social sensitivity of handling asymmetries of knowledge (Linell & Luckmann, Reference Linell, Luckmann, Marková and Foppa1991), Nilsson (Reference Nilsson2017) argues that the act of prompting, or ‘fishing’ for Type 1 knowables regarding a specific memory may have a face-threatening and counter-productive effect on the participation of a person with dementia in an ongoing interaction. Managing such a potential face threat due to the difficulty of recollecting, as Svennevig & Landmark (Reference Svennevig and Landmark2019) show, may be done through accounts or justifications. Likewise, focusing on a conversation between a person with dementia and her two relatives, Hydén & Samuelsson (Reference Hydén and Samuelsson2019) have also argued that the participants jointly work to avoid face threats and confrontation when disagreement occurs, not only on factual matters but also on more foundational questions, such as who could possibly be alive at a certain point in time; this is what the authors call ‘reality disjunctions’.
In line with the abovementioned studies, Black (Reference Black2011) examined a conversation between a woman with dementia and her daughter, focusing on how the daughter challenges her mother’s statements and takes an epistemic stance as being more knowledgeable in relation to domains of knowledge ‘without explicit indication of sensitivity to the fact that the domains of knowledge in question would normally be considered more Sophia’s [the mother] than Lucy’s [the daughter]’ (pp. 84–85). Epistemic authority seems to be underlined through the use of a number of conversational techniques, including specific turn designs (see Muntigl & Hödl Chapter 9 this volume) and the emphasis of subjective experiences, which are sometimes acknowledged by the mother with dementia. Black argues that although the daughter in this way threatens the mother’s position as an equal participant in the conversation with the capability of knowing about her own life, the mother manages to participate in the conversation ‘without overt loss of face in the form of allowing herself to be corrected or contradicted about her own ability, experience, or knowledge’ (Black, Reference Black2011: 86).
In another study, Muntigl et al. (Reference Muntigl, Hödl and Ransmayr2014) analysed clinical interviews with patients with frontotemporal dementia, focusing on how patients position themselves regarding knowledge about their health. When asked about their condition, the patients would either deny being ill without necessarily accounting for their condition, or affirm being ill but display and elaborate on their epistemic stance with varied certainties with regard to direct knowledge and experience of their condition. That is, it is shown that disclaiming knowledge of any problem or claiming it with various degrees of awareness has effects on how people with dementia succeed in displaying themselves as competent social actors (Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014).
10.4 Methods and Materials
For this study, we analyse an extended excerpt taken from a collection of interviews with couples, one of whom has been diagnosed with dementia.Footnote 1 The interviews were conducted at two geriatric clinics by two researchers, and the couples were interviewed together with their spouses. In the interviews, the couples were asked about their current life together, their shared history and their experiences of living with dementia. The specific excerpt analysed comes from an interview with Mike, who was 79 and had been diagnosed with dementia of the Alzheimer’s type, and his wife Karen, who was also 79 but did not have a dementia diagnosis. The couple had been married for more than 50 years and they had lived together in the same house during this time. Before data collection, the application for ethical approval to conduct this research was granted by a regional committee for ethical vetting. The data collection was also undertaken in accordance with the ethical guidelines and principles of the Swedish Research Council, which include the couple’s written consent to participate in the study.
In the chosen excerpt, Karen is the teller of a story about some past events when Mike did not recognize her as his wife. Apart from memory loss as the basic symptom of Alzheimer’s disease, a symptom associated with dementia is agnosia – the difficulty to process sensory information – which might result in an inability to recognize persons or objects. Neurodegenerative illnesses like Alzheimer’s disease are also related to Capgras syndrome, in which a person may believe a family member has been replaced by an imposter (Josephs, Reference Josephs2007). Even if, as analysts, we cannot be sure about the reason why Mike did not recognize Karen as his wife, the aforementioned associated symptoms with Alzheimer’s disease (and other dementias), such as memory loss, agnosia and Capgras syndrome, correspond to what Karen presents as occasionally happening to Mike. In the story, Mike is one of the main characters. However, as it becomes apparent from the beginning of the story, Mike does not recall these events. By using an extended excerpt from a single interview, it is possible to follow in detail how the couple handle the telling of this story to the interviewers while at the same time attending to the fact that this story is also (at least in parts) new to Mike. The excerpt is analysed by means of multimodal conversation analysis (Goodwin, Reference Goodwin2018; Mondada, Reference Mondada2016), and the analyses are informed by concepts related to epistemics and accountability (Heritage & Raymond, Reference Heritage and Raymond2005, Reference Heritage2012; Pomerantz, Reference Pomerantz1980; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011) and participation frameworks (Goffman, Reference Goffman1981; Goodwin, Reference Goodwin, Ochs, Schegloff and Thompson1996; Goodwin & Goodwin, Reference Goodwin, Goodwin, Auer and di Luzio1992, Reference Goodwin, Goodwin and Duranti2004; Rae, Reference Rae2001).
10.5 Analyses
The analyses start from the beginning of the story described above. The wife has mentioned that Mike’s illness has deteriorated somewhat, and one of the interviewers picks up on this and asks her to elaborate on how Mike’s condition got worse. The interview is conducted in Swedish. We show the translation in bold and italics, and the embodied actions are marked with grey background in the transcripts. Symbols like asterisks (*), or circumflexes, also known as carets (^), show the exact moment of bodily actions within the turns of talk (see also the transcription conventions listed at the beginning of this book). The participants in the interview are Karen = K; Mike = M; Interviewers are researchers LC and E (who is also the second author of this chapter).
10.5.1 Introducing the Story
Extract 1
01 LC: *va var de som hände när du (.) säger att de blev lite sämre what was it that happened when you (.) say that it got a little worse *…LC & K -mutual gaze--> 02 K: ((smacks her lips)) 03 LC: va var de som hände what was it that happened 04 K: de hände: (.) väldit (0.2) många gånger (0.7) särskilt på it happened (.) very (0.2) many times (0.7) especially in 05 kvällarna att Mike ∧inte trodde att ja va ja. (1.4) the evenings that Mike didn’t think that I was me. ∧K…points to herself--> 06 utan han trodde att ja (.) han vänta på mej å han instead he thought that I (.) he waited for me and he 07 åkte ∧till å me väg å leta efter mej fast att jag va hemma .hh even went looking for me even though I was at home .hh K->∧,,, 08 (0.7) å han (.) trodde mej inte (0.3) alls utan han sa (0.8) (0.7) and he (.) didn’t believe me (0.3) at all instead he said (0.8) 09 ja fi:ck visa (0.4) vem ja va (å) han titta på körkortet* I had to show (0.4) who I was ’n he looked at the driver’s license K->*gaze towards M 10 M: °nä: ° va de så? °no: ° was that so? 11 K: ja (.) så va de (.) å Laurent *våran son fick komma in å han sa yeah (.) it was (.) and Laurent our son had to come over and he said K->*gaze towards LC-->> 12 att de ä ju mamma näe (0.4) de ä en annan kvinna som ä här sa that it is mommy [ju] no (0.4) it’s another woman that is here 13 han. he said. 14 (0.5) 15 M: hm 16 (1.2)
In this first sequence, Karen is telling a story about some past events that involved both Mike and herself; they were both present and would both presumably have knowledge of these events from first-hand experience (see Pomerantz, Reference Pomerantz1980). In this way, this is an A–B event for Karen and Mike, and the knowledge domain should be a Type 1 knowable to both of them. As Karen tells the story, she creates a participation framework with the two interviewers as main recipients of the story. Karen’s telling about the past event comes as a response to a question posed directly to her about the deterioration of Mike’s condition as the interviewer poses the question using the second person singular pronoun ‘you’ (line 01) and a direct invitation to her to recount what had happened (line 03). She starts off a story rather straightforwardly, describing the events in which Mike is one of the main characters (from line 04 onwards). In her reference to Mike, she uses both his proper name (line 05) as well as a third person singular pronoun (lines 06, 08 and 09). This is a common way of telling a story for a third, unknowing, party when all involved participants have access to the information being told, and it is also a recurrent pattern in the interview material (Hydén & Nilsson, Reference Hydén and Nilsson2015; Nilsson et al., Reference Nilsson, Ekström and Majlesi2018). In line 10, however, it becomes apparent that Mike does not have access to this story. By posing a confirmation-seeking question, ‘°no:° was that so?’ (line 10), Mike takes an unknowing epistemic stance toward the events being talked about, although the event could be expected to be a Type 1 knowable for him, as he is the one who presumably has performed the described actions. In other words, the event seems like a B‑event to Mike, as evidently displayed in his question (line 10) (see Labov 1972: 124).
Mike’s positioning of himself as not knowing about, or perhaps even taking a disbelieving stance towards, these events (line 10) does not come with any account of why he does not recognize the story. Instead, he is posing his question without any extra interactional work, marking the event as something out of the ordinary by simply asking ‘°no:° was that so?’ (line 10), and thereby indicating a lack of recollection. Similarly, Karen’s response in line 11 is not in any way questioning why Mike does not remember what happened, and she does not hold him accountable for not knowing this. She simply responds to Mike by upholding the claim and elaborates with further details by referring to their son, as he was called over to his parents that evening (and could potentially corroborate the story) (lines 11–13; note the particle ‘ju’ in line 12, which is used in Swedish to show mutual knowledge or shared information; see Heinemann et al. (Reference Heinemann, Lindström, Steensig, Stivers, Mondada and Steensig2011)). By responding in this way and not treating Mike’s lack of recollection as surprising or noteworthy, Karen can be viewed as ratifying Mike’s diminished epistemic position. Karen’s focus on what happened and not on different experiences of the event seems to tally with other studies (e.g., Hydén & Samuelsson, Reference Hydén and Samuelsson2019; Svennevig & Landmark, Reference Svennevig and Landmark2019) that also describe instances of similar discrepancies in terms of shared memory or experience in interaction involving a person with dementia. As Karen continues with the story, the interviewer seems to become her main recipient, as shown by her gaze and orientation toward him (line 11), while she again positions Mike as a present third party by referring to him in the third person (line 13).
10.5.2 Changing Participation Framework
Soon after Mike has positioned himself as unknowing in relation to the events in Karen’s story, framing this as a B‑event to him, the participation framework for the telling also changes. As Karen continues the story, she now turns toward Mike, looks at him and directly tells him how she felt when he could not recognize her as his wife: ‘I was pretty sad then’ (Extract 2, line 19). A change of Mike’s participation between a ratified hearer, an addressed recipient and a character of the story (a third party present) in the telling (see e.g., Nilsson et al., Reference Nilsson, Ekström and Majlesi2018) can be observed throughout the whole sequence. Such a repeated shift between a second-party and a third-party positioning seems to highlight Mike’s interactional position within the epistemic constellation as unknowing. As will be shown, these changes in the participation framework and thus also the epistemic constellations are often accompanied and managed by embodied actions (see also Nilsson et al., Reference Nilsson, Ekström and Majlesi2018).
Extract 2
17 K: å de här va rätt så jobbit faktiskt för ja (.) förstog inte hur and this was pretty hard actually cause I (.) didn’t understand 18 de how it 19 kunde †bli så å de va (0.4) *ja va väldi lessen då. could †be like that so it was (0.4) I was pretty sad then K->*gaze at M, M looks in K’s direction--> (0.7) 20 K: .hh .hh ple 21 M: va säger Laurent om de där nu då?% what does Laurent say about that now then? M->%looks at K--> 22 K: ja*%Laurent: kom ju in: e e sent en kväll de var ju lite upprört well Laurent: came [ju] in: e e late one night when [ju] the mood was a K,M->*%gaze down, K still oriented towards M--> 23 (.) stämning hemma. little upset at home. 24 (0.5) 25 M: m: 26 (1.2) 27 K: å: eh (0.8) en gång kom () (.) *RINGde Sara våran dotter (0.8) an_ eh (0.8) one time came () (.) Sara our daughter CALLed (0.8) K->*,,,gaze and orientation towards LC--> 28 K: .hh å en annan kväll när ja* (0.5) då va Mike (0.3) .hh and another night when I (0.5) then (.) then Mike was (0.3) 29 väldit (.) very K->*gaze down--> 30 då när han-*(.) när han får% (.) när de har varit såna här gå då (.) then when he- (.) when he gets (.)when ther’ve been these 31 ä han then he gets K-> *…gaze at LC--> M-> %…gaze up to the ceiling--> 32 K: (.) så sträng (1) mot mej. (1.3) *å säger att du ä inte Karen (.) so harsh (1) with me (1.3) and says you are not Karen (0.6) K->*gaze at M--> 33 (0.6)* K->*gaze down 34 ∧*du kan %inte vara född trettifyra. (0.8) ∧å du: är inte du you cannot have been born thirty-four (0.8) n’ you’re not you 35 ä (.) you’re(.) K-> *…gaze away--> M->∧fading smile-------------------------∧,,, M-> %gaze down--> 36 K: nån* annan (0.5) å du vet ja. someone else (0.5) and you know [yeah/i] K->*gaze at LC & E--> 37 (1) * (1) K ->*,,,gaze down--> 38 å då: m: (0.7) *∧de var en kväll (0.6) då var klockan halv tie and then: m: (0.7)it was one might(0.6) it was around half past nine K->*∧turns head to M, strokes M’s hand--> 39 elle nåt sånt då ∧kom *ja på att *ja måste ringa till en (0.3) å or so then I remembered I had to call someone (0.3) and say K->∧stops stroking, keeps her hand on M’s--> K->*gaze at LC, K->*,,,gaze away--> 40 säga att ja inte kan komma imorrn .hh (1.0) HHH så ja ringde å that I cannot make it tomorrow .hh (1.0)HHH so I called and said 41 sa de här ä karen då tog Mike∧ telefonen *från mig (0.∧3) å this’s Karen and then Mike took the phone from me (0.3) and (.) it K->∧…opens hand pointing at M,,,∧ K->*…gaze at M--> 42 s:å (.) då va de:* was then K->*gaze at LC----*gaze down-->> 43 (.) *mannen där som svara (0.7) å då prata han me Mike å då (.) the man who answered(0.7) then he spoke to Mike n’ then he K->*gaze away--> 44 förstog understood 45 han att de inte va bra *ska vi komma bort sa han (0.2) så* då that it wasn’t good shall we come over he asked (0.2) so then K->*,,,gaze back to Inl--------------*…gaze at M--> 46 kom dom hem* (0.3) *till oss också°% (0.5) å då va de likadant they came over(0.3) to our house too (0.5) n’ then it was the same K->*…gaze down, head turned in M’s direction--> M->%gaze at K--> 47 att du Into∧ trodde att ja va ja. (0.9) utan du: (0.8) hade that you didn’t believe that I was I (0.9) instead you (0.8) had M->∧gaze up--> 48 (1.8) ah du fick för dej att ja Å ∧*ja skulle inte få gå å lägga (1.8) ah the idea that I AND I was not allowed to sleep in my own M->∧gaze at K--> K->*gaze down, head turned forward--> 49 i min sång å: (0.6)% (0.2) <for då: sa du att> de kommer inte bed and (0.6) (0.2) <’cause then you said that> Karen won’t like this M->%gaze away--> 50 Karen tycka om när hon kommer hem (1)∧ (1) ∧men på morron ä de when she comes home(1) (1) but in the morning it’s over [thing’s 51 över changed] K->∧,,,takes away her hand from M’s, clasps hands-->>∧ 52 så på morron vet *inte Mike% om att de här har hänt. so in the morning Mike doesn’t know that this has happened. K->*gaze at M-->> M->%gaze at K--> 53 (0.3)% (0.5) M->%gaze down-->> 54 M: (jaså) (0.4) hm (oh really) (0.4) hm
When Karen continues, there is a rather long sequence where she describes a specific evening when Mike did not recognize her. In the first part of the telling in Extract 1 (lines 1–16), Mike was positioned in Karen’s story as a third party present (Linell, Reference Linell2009; see also Nilsson et al. (Reference Nilsson, Ekström and Majlesi2018) for a discussion of such positioning in interaction involving people with dementia). In the continuation of the telling in Extract 2, at lines 17–19 when Karen talks about her feelings, she actually turns her gaze toward Mike and thereby includes him as an addressed recipient of her talk. This gives an interactional space to allow Mike to enter into the talk again by asking a question (line 21). Karen’s change of embodied orientation toward Mike, followed by the question, begins a sequence in which Mike seems to be included as a main addressee (lines 22–23). It is noteworthy that the question that Mike poses in response (‘what does Laurent say about that now then?’, line 21) heightens his position as someone who is not aware of his own life story and the consequence of his own actions. After Karen’s response (lines 22–23), the only reaction from Mike is an acknowledgement token ‘m:’ (line 25). He does not take any stance on his own involvement in the story. Following the lack of affiliation with the story by Mike, Karen then once more redirects her gaze away from Mike and towards the interviewer (line 27) and continues her story with the interviewer as her main addressee. This change in participation framework is seen not only in Karen’s bodily orientation, but also in the way she designs her story by providing an explanation of who Sara, the couple’s daughter, is (line 27), information that would be expected to be known by Mike but not the interviewers.
In the continuation of Karen’s telling, Mike is again positioned as a present third party by the use of his proper name (lines 28, 41 and 43) as well as the third person singular masculine pronoun (lines 30, 31). In line 47, however, Karen again changes the way she designs her story and addresses Mike by using a second person singular pronoun you (du in Swedish) when describing what happened and tells him what he said, something of which he shows no recollection. In this passage the interviewers are not included as addressed recipients of the story, but participate rather as ratified overhearers, or perhaps unaddressed recipients (Goffman, Reference Goffman1981), as Karen, in lines 46–51, tells a story about Mike that is designed with Mike as the addressed recipient. This way of designing the telling puts Mike in the spotlight as an unknowing party in the story of which he is the main character and of which he should presumably have first-hand knowledge.
In line 52 there is a new change in the participation framework, starting when Karen removes her hand from Mike’s hand (see Nilsson et al., Reference Nilsson, Ekström and Majlesi2018: 782–784) followed by a 2.2‑second silence. When Karen continues, she is once again referring to Mike, using his proper name (line 52). This can be seen as a change in the primary recipiency of her story. Nevertheless, Mike provides an acknowledgement of Karen’s story by saying ‘(jaså) (0.4) hm’ (‘oh really’; line 54) and thereby continues to claim a position as recipient of her story. As previously shown in research (e.g., Lindholm, Reference Lindholm2016: 835), the Swedish token ‘jaså’ signals ‘accepting the previous turn as news’, indicating receiving new and somewhat surprising information (see Heritage, Reference Heritage, Maxwell Atkinson and Heritage1984; Wilkinson & Kitzinger, Reference Wilkinson and Kitzinger2006). Mike’s ‘jaså’-prefaced turn can also be understood in the same way, that is conveying elements of surprise at the previous turn, which highlights that Karen’s telling is news to him (see, for example, third-turn receipts in Heritage, Reference Heritage and van Dijk1985). This tallies with the analysis that Mike has taken a position of an unknowing party throughout all episodes of talk despite his co-presence in the course of events and first-hand experience of them. With ‘jaså’, it seems that Mike has taken an unknowing stance toward Type 1 knowables, something that we analyse in more detail in Section 10.5.3.
In sum, the extracts of the interaction have so far shown how the interactional positionings (or participatory status in Goffman’s terms) of the person with dementia fluctuate between an addressed recipient of the story and the third person character in the story. The constant change of the participation framework goes hand in hand with the interactional positioning of the person with dementia vis-à-vis the knowable and also the management of him being cast as a character in a story in which he does not remember his involvement. The analysis has also shown how Karen uses embodied resources to manage the social sensitivity of telling this story by directing her gaze and body toward different recipients and also by using ‘touch’ in handling the third-party positioning of Mike in the interaction (see also Nilsson et al. (Reference Nilsson, Ekström and Majlesi2018) for details of the use of embodiment in the management of the speaking on behalf of a person with dementia).
10.5.3 Unknowing Stance towards Type 1 Knowables
As mentioned previously, a person is usually considered knowledgeable and accountable regarding their own experiences as well as their own private health (Heritage, Reference Heritage2012; Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011). In the previous part of the extract, despite some signs revealing his unknowing position in the telling (e.g., lines 10, 20, 46), Mike has not explicitly stated that he does not know the story or does not have access to the information or the experiences Karen publicly shares with the interviewers. In the following part, Mike is clearly taking a downgraded epistemic position to Type 1 knowables and at the same time positions Karen as having primary access to information regarding his life and health condition.
Extract 3
55 K: *s:å: [men de] ha varit (1.0) °ah° (1.5) väldit of:ta ett tag s:o: [but it] has been (1.0) °well° (1.5) very often a while 56 då- then K->*gaze away--> 57 M: [(ja)] [yeah] 58 K: &$$$;men †nu har de *inte varit faktiskt på (*%1.2) °ah° säkert but now it actually hasn’t been for (1.2) well surely (a) two K->*gaze towards M-----------*,,,towards LC--> M->%gaze towards K--> 59 (ett) två tre vecker. (2.4) så de har vari bättre nu. three weeks. (2.4) so it’s been better now 60 (1.2) 61 K: .hh 62 M: har *%de vari normalt den veckan* (be be) [( )] has it been normal that week (be be) [( )] K & M->*%mutual gaze--------------*K…gaze down-->> 63 K: [a: nu har%] de varit [yeah now ] it has M->%gaze down--->> 64 normalt du har inte haft dom här problemen på [kvällen.] been normal you haven’t had those problems in [the evening] 65 M: [m:] ((11 lines omitted))
While these episodes of Mike not recognizing his wife used to be rather common (line 55), Karen states that for the last two-three weeks ‘it has been better’ (lines 58–59), possibly an attempt to tone down the regularity of the problem. This seems to be taken as an opportunity for Mike to take part in the story once more, seeking information and also confirmation about his own behaviour, which has so far been under question throughout the telling. From line 58 onwards, Mike turns to Karen and keeps his gaze towards her while Karen states that Mike’s condition in the past two or three weeks has not been as previously described as it has been ‘better’ (even if perhaps still not good). This description is followed by Mike’s upgrading Karen’s gloss of being ‘better’ to being ‘normal’ when he directly asks whether his own condition has ‘been normal’ (line 62). By asking this question, Mike takes an epistemic, unknowing stance regarding aspects related to his own biography: he is turning to his wife for information about how he has been and has behaved during the past week (line 62). In response, Karen confirms that ‘it has been normal’, thereby confirming Mike’s upgrading of the description of his own condition from ‘better’ to ‘normal’ (lines 63–64). She verifies this description by adding that, lately, Mike has not had the previously described problems. Notably in her response, Karen is not marking Mike’s question as extraordinary or noteworthy. Instead, she responds straightforwardly and without any extra interactional work. Moreover, by turning to Mike, she also changes the participation framework once more by directly addressing Mike with a second person pronoun, making him a primary addressed recipient of this turn. Directly addressing Mike and highlighting his lack of awareness of his own health and condition (even though it belongs to his knowledge domain) heightens Mike’s positioning as an unknowing party, although Karen does not topicalize Mike’s lack of knowledge as a problem and does not make him directly accountable for showing a lack of knowledge of his own past and health (see Hydén & Samuelsson, Reference Hydén and Samuelsson2019; Svennevig & Landmark, Reference Svennevig and Landmark2019).
When the story continues in line 77, Karen moves back to using Mike’s proper name, once again including the interviewers as the addressed recipients. Karen elaborates on her previous story and describes how Mike sometimes takes the car to go to look for her, even though she is in fact at home trying to convince Mike that she is his wife. Mike again explicitly acknowledges his lack of knowledge (and also evidently some confusion) about the events, and thus once more takes a downgraded epistemic position while positioning Karen as the knowing party in, what would expectedly be, their shared epistemic domain.
Extract 4
77 K: åh (0.3) å Mike blir v- (0.3) väldit tuff mot mej då an (0.3) and then Mike gets v- (0.3) very firm with me >>K & M gaze down--> 78 (0.7) ∧de värsta har varit nåra gånger när han (0.3) INTE (0.7) and the worst has been a couple of times when he (0.3) does NOT ∧K…moves her torso forward-->> 79 %pås- tror att ja ä *hemma (1.%1) å *utan fast ja a där sta- believe that I am at home (1.1) ’n but even though I am there %M…gaze towards K--> *K and M mutual gaze%,,, *K…gaze towards LC--> 80 å säger ja (0.2) Ä*;R ju här ser du inte de (1.0) så (0.3) har de and I say (0.2) but I AM here do you not see that (1.0) so (0.3) it has K->*gaze down--> 81 *hänt att han har tagit bilen å stuckit väg å letar efter mej* (0.5) happened that he has taken the car and gone looking for me (0.5) K->*gaze towards E-----------------------------------------------------,,, 82 å de ä jobbit tycker ja. and that is hard I think. 83 (1%.2) M->%gaze down, deep breath in, facing forward--> 84 E: °m:° 85 (2.4) 86 K: de har v hänt vid ett- nåra tillfällen tre fyra tillfällen. and that has happened so- some times three four times 87 (0.9) 88 M: %ha ja ((harklar))*har ja hittat dej då? hav’ I ((clears throat)) have I found you then? M->%gaze towards K->*…gaze towards M ((mutual gaze))--> 89 K: *@näe [((skrattar))] de har %du inte .hh@ @no [((laughs ))] you haven’t .hh@ K->*gaza down--> M->%gaze down-->> 90 M: [((laughs ))] 91 M: @°(m)°@ 92 K: @du har inte hittat mej *eftersom ja va hemma@ ju you haven’t found me cause I was home [ju] K->*gaze at M-->> 93 (0.4) 94 M: mhm: 95 (0.5) 96 LC: å å då brukar du komma hem igen Mike? utan å, an an then you usually come home again Mike? without, 97 (2∧.5)∧ ∧M…moves his head and torso from side to side∧ 98 LC: ((clears throat)) 99 M: %de vet du bättre än ja va you know that better than me right M->%…gaze towards K ((mutual gaze))-->> 100 (0.7) 101 K: ja du har ju kommit hem yeah you have come home
Karen’s description of these events is mainly designed with the interviewers as addressed recipients as she is repeatedly using a third person pronoun and a proper name to refer to Mike (lines 77, 78, 81) (however, observe that Karen’s gaze is also directed toward Mike in the climax of the story where Karen says that Mike did not ‘believe’” that she was at home, line 79). It is also one of the interviewers who provides some minimal feedback to this part of the story (line 84), showing that the interviewer positions herself as a main addressee responsible for responding to Karen’s telling. However, in line 88, after being described as a person who was ‘firm’ with his wife (‘and that has happened so- some times three four times’, line 86), Mike once again claims a position as recipient to the story by asking Karen for information about how the episodes ended, episodes where Mike himself is the main character. His contribution can be interpreted both as an attempt to bring the story to the end by asking what eventually happened: ‘have I found you then?’ (line 88), and also as an indication that he has not been following the message of the story and is having trouble understanding the logic of it. Mike would not have asked the question had he kept track of the telling in which Karen describes that she was, in fact, at home when he went looking for her. Whereas the issue so far has been how Mike is positioned or positions himself as an unknowing party in the story about his own past, this sequence does not seem to be just about accessing information. There is also a trouble in understanding what is being talked about.
Mike’s question, ‘have I found you then?’ (line 88), displaying his difficulty in keeping up with the logic of the story, is responded to by Karen with laughter (line 89). Even if Karen provides the information that Mike has requested, she simultaneously does interactional work that may diminish the potential discomfort associated with Mike’s problem of recalling the event, as well as his problem following the story. Responding to Mike, she makes him the addressed recipient by using the second person pronoun and accompanies her response (lines 89 and 92) with a smile (shown by the symbol @ in the transcript) and also laughter. Even if the laughter displays that Mike got the story wrong and that it is a laughable matter, the laughter also frames the trouble as something not too serious and may very well be a face-saving strategy adopted in a delicate situation (Saunders, Reference Saunders1998). Mike also joins in the laughter, which perhaps momentarily covers up the trouble at talk (using laughter to manage embarrassing situations has been studied in dementia, e.g., Lindholm (Reference Lindholm2008); see also laughter in talk with people with aphasia in Wilkinson, Reference Wilkinson2007).
As in previous excerpts, Mike does not frame his questions as extraordinary or unexpected. He poses his questions straightforwardly without any account for why he asks Karen for information about whether he found her or not. While not knowing about one’s own past is recurrently something that needs to be accounted for (Muntigl et al., Reference Muntigl, Hödl and Ransmayr2014; Pomerantz, Reference Pomerantz1980), this seems not to be the case here. Neither Mike nor Karen marks Mike’s downgraded epistemic stance to this Type 1 knowable as extraordinary or something for which Mike should be held accountable.
In what follows, one of the interviewers poses a direct question to Mike about the events Karen has talked about (line 96). This is followed by a 2.5‑second silence where Mike gazes towards the interviewer, moving his head from side to side, and Karen gazes towards Mike (line 88). As seen in lines 97–99, Mike does not answer the question as to whether he usually comes home. Instead, he turns to Karen, stating that this is something she knows better: ‘you know that better than me right’ (line 99). When taking the turn in line 101, Karen first addresses Mike, confirming to him that he does indeed usually come home. She uses the particle ‘ju’, which shows that she expects Mike to know this, even if he seems to be incognizant of it. By handing over the question to Karen, stating that this is in fact something she knows better, Mike relinquishes epistemic authority to his own biography and positions Karen as the more knowledgeable about what he did at the time in question.
10.6 Discussion
In the analysed extended extract, Karen is the teller of a story featuring Mike as the main character. Karen is the one doing almost all the talking and she also takes primary responsibility for orchestrating the activity. The frame for this activity is a research interview where Karen and Mike are asked about their life together and how Mike’s disease became noticeable in their daily activities. As it turns out, Mike does not remember the events being talked about and Karen therefore has to adapt her telling to this fact. The design of this type of talk is complex as the interactants must keep track of both the content of the story and, at the same time, get it across to others, as well as manage the potential sensitivity of telling a story that should already be known to their spouse. Throughout the telling of the analysed story, Karen alternates between designing her story with the interviewers as her main recipients and also structuring her telling so that Mike, to whom the information is (presumably) also news, becomes an addressed recipient. The way Karen tells her story makes relevant at least two altering participation frameworks (Goffman, Reference Goffman1981) for the activity. In the first framework, Karen is telling her story with the interviewers as her addressed recipients, and Mike as mainly a (ratified) official hearer. In this framework, she is referring to Mike using a third person singular pronoun or his proper name, and she also includes explanatory information directed to the interviewers, for example explanations of who the couple’s children are. In the other framework, Mike is positioned as an addressed recipient of Karen’s story and the interviewers are instead positioned as ratified official hearers. In this framework, Karen addresses Mike directly with the use of the second person singular pronoun, making him a primary addressed recipient. However, in both these frameworks all participants are in a sense recipients of Karen’s story even when they are not discursively positioned as a main addressed recipient (see Goodwin & Goodwin, Reference Goodwin, Goodwin, Auer and di Luzio1992, Reference Goodwin, Goodwin and Duranti2004). When Karen is addressing Mike using the second person singular pronoun, the story told is also made available to the interviewers as part of Karen’s response to their questions. Similarly, when Karen is telling her story with the interviewers as main recipients, the information is also available to Mike, who occasionally claims a position as recipient also in these instances by, for example, producing tokens of acknowledgement, posing follow-up questions or asking for clarifications. Therefore, the participation frameworks are, in this sense, both a dynamic and multilayered moment-to-moment accomplishment of the participants (see Goodwin, Reference Goodwin, Ochs, Schegloff and Thompson1996; Goodwin & Goodwin, Reference Goodwin, Goodwin, Auer and di Luzio1992, Reference Goodwin, Goodwin and Duranti2004; Rae, Reference Rae2001), shaped and reshaped according to the management of the topic and its potential sensitivity for the participants, particularly for the person with dementia as a co-present character of the story.
Changing the participation framework and directly addressing the person with dementia when talking about his challenges are interactionally (and socially) consequential. Although Mike seems unaware of his actions and the event portrayed in the telling throughout the analysed sequence, it seems that his unknowing position is upgraded when he is positioned as an addressed recipient in second party positioning. As shown and argued in the analysis (see lines 11, 39–43, 55–56, 80–83), when Karen addresses Mike directly while talking about his actions about which he does not display knowledge, his position as unknowing is foregrounded and the epistemic asymmetry between the spouses becomes more prominent (see, Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021; Nilsson et al., Reference Nilsson, Ekström and Majlesi2018). This highlighting of Mike’s unknowing position makes the social situation even more sensitive and elicits extra interactional work. As shown in the analysis, Karen uses several resources such as touch (lines 33–43), smile and laughter (e.g. lines 80–83), together with the direction of her gaze and head movements to include Mike in the talk, and to mitigate and manage a possibly embarrassing situation, something that can be considered a face-saving act (see Nilsson et al. (Reference Nilsson, Ekström and Majlesi2018) for an analysis of similar patterns).
From the interview with Karen and Mike, it may be suggested that both Karen and Mike orient toward a joint access to (some of) Mike’s Type 1 knowables. In the extract, Karen is providing information on behalf of Mike, both in relation to the biographic information and in relation to his health condition, but her actions are not unwarranted. There are instances where Mike asks Karen for information that belongs to his epistemic domain (Type 1 knowables to him) (lines 10, 20, 54, 79), and he even explicitly states that Karen is the one who is more knowledgeable in relation to some of this information (line 90). For Karen and Mike, Mike’s biographic knowing is distributed between the two of them, and when Mike does not remember a specific event, he can turn to Karen for assistance (see Hamilton, Reference Hamilton2019). In previous studies of spouses taking a superior epistemic stance in relation to the epistemic domain belonging to a person with dementia, potential problems and risks of such conduct have been foregrounded (e.g., Black, Reference Black2011; Hamilton, Reference Hamilton2019; Landmark et al., Reference Landmark, Nilsson, Ekström and Svennevig2021). This study, following Nilsson et al. (Reference Nilsson, Ekström and Majlesi2018), highlights the nuances of practices involved in managing epistemic access to Type 1 knowables for people with dementia and the potential benefits of collaborative activities through which a spouse takes over some of the epistemic responsibilities of the person with dementia.
In sum, Mike’s appreciation of Karen’s access to the event without challenging her version of the story, together with Karen’s non-confrontational approach that does not question Mike’s unknowing stance nor explicitly asks him about his recollections (see. Williams et al., Reference Williams, Webb, Dowling and Gall2019), makes the interactional activity proceed smoothly. The interview questions are co-operatively answered, although dominantly by Karen. Despite the delicacy of revealing Mike’s behaviour and his diminished epistemic status, with Karen’s skilful recipient design (Sacks, Reference Sacks and Jefferson1992) of her telling and her seamless shifting between participation frameworks throughout the interview, the sensitiveness of the topic is mitigated. Even when Mike is sometimes directly addressed as a recipient of his own life story and his position as an unknowing party is hence drastically heightened, Karen manages to attenuate the impact of telling as a face-threating act through the use of embodied resources and engaging with Mike in the conversation while telling the story to the interviewers. Her body posture, gaze direction, putting her hand on Mike’s hand and orienting towards him, time and again, are used as mitigating devices. Moreover, Mike is never interactionally positioned as accountable for his unawareness of his actions and Karen takes the responsibility for talking on behalf of both of them without challenging Mike’s unknowingness or difficulty remembering his role in the story. Finally, even if positioned as an unknowing party about his own biographical story, Mike is also provided with interactional space to remain active as a participant in the interaction and his needs and requests for information about his own life are simultaneously responded to.
10.7 Conclusions and Potential Implications for Practice
The analyses in this chapter highlight how issues related to knowledge and dementia can benefit from using an interactional and distributed perspective. While access and rights to knowledge are usually divided between participants depending on the knowledge domain and the participants’ relation to the topic, where a participant has a dementia disease, a more flexible approach toward such divisions could be advantageous. As it might be difficult to project what kind of information a person with dementia has access to at a specific moment, the result of this study suggests the benefit of applying an adaptable approach regarding the framework for a specific interactional activity and the participants’ interactional positionings in that event. Living with dementia recurrently means that the details of one’s own life sometimes become uncertain or totally disappear (for longer or shorter periods of time). Our study demonstrates that conversational practices where an interactional partner refrains from holding a person with dementia accountable for their loss of memory, and instead enables the person with dementia to pose questions regarding their own life, may be understood as an increased appreciation of their contingencies in interaction. Moreover, engaging with people with dementia through various communicative practices would reduce the impact of the sensitivity of talking about their condition in their co-presence, which in turn could also potentially lead to the alleviation of some distress associated with such experiences. Making room for questions and dialogue. and providing the requested information in a way that minimizes the possible face-threatening aspects of such exchanges, are important aspects to prioritize in conversations with persons with dementia.
11.1 Introduction
Owing to increased awareness and opportunities for diagnosis of dementia (Gauthier et al., Reference Gauthier, Rosa-Neto, Morais and Webster2021), there has been a move toward recognising the importance of maintaining abilities, independence and quality of life for people with dementia (Department of Health, 2009; Mok & Müller, Reference Mok and Müller2014; Sabat & Lee, Reference Sabat and Lee2011). This chapter, part of a wider study of family interaction (Lindley, Reference Lindley2016), focuses on the interactional competence of a person with dementia and some ways in which her independence is facilitated, and her personhoodFootnote 1 validated, by her interlocutors. Drawing on a corpus of 15 hours of conversation, the study investigates the interactional practices of a woman diagnosed with dementia (seven years prior to participation in this project) in conversation with a variety of interlocutors including family caregivers, teenage grandchildren and community service providers. Recording took place over a period of three months, in a range of naturally occurring settings. The interaction is explored primarily through applied conversation analysis (Antaki, Reference Antaki and Antaki2011) and supported by caregiver interviews and extensive ethnographic observations.
The overwhelming character of the conversations in these data is that of a person with dementia who is capable and assertive. Adopting a competence-based model (Coupland et al., Reference Coupland, Coupland and Giles1991) of life with dementia, the study reveals how the social environment empowers the person with dementia to demonstrate her competence and expertise and that the practices of the conversational partners enable and support this. Where previous studies have focused on how conversational partners collaborate in co-constructing competence (Hamilton, Reference Hamilton1994; Jones, Reference Jones2015; Müller & Mok, Reference Müller, Mok, Schrauf and Müller2014; Orange, Reference Orange, Lee Hummert and Nussbaum2001), this study additionally demonstrates evidence that a person with dementia has the ability to negotiate epistemic authority and often reorient herself following episodes of memory lapse, confusion and disorder. The negotiation of epistemics is central to how people conduct their social interaction (Heritage, Reference Heritage, Sidnell and Stivers2013). However, the scope of epistemics does not (necessarily) involve the cognitive state of knowing or not knowing, but rather refers to an individual’s authority to access ‘bodies or types of knowledge’ (Drew, Reference Drew, Markova and Foppa1991: 45). That is, epistemic status relates to what each individual in conversation is entitled to know, share or assess in relation to other participants in the interaction (Heritage, Reference Heritage, Sidnell and Stivers2013).
From my personal experience of interacting with people with dementia, I have developed a belief in the importance of valuing the person and their wisdom, and supporting their independence and competence. Nevertheless, when preparing to collect conversational data for this study, I had certain preconceptions as to the linguistic features and deficits I would encounter; for example, word-finding difficulties, circumlocution and repetition (Orange, Reference Orange, Lee Hummert and Nussbaum2001), as well as the potential for diminished self-worth and social withdrawal (McCarthy, Reference McCarthy2011; Sabat, Reference Sabat2001). While some of these features are present, the nature of the conversations recorded was that of a capable woman who is treated with great respect by all those who interact with her.
The person at the centre of this study is Dana, an 88-year-old woman living with dementia. The aim of the research was to explore the data to discover features of Dana’s conversations which characterise her as an authoritative interlocutor. Sequences of everyday conversations were explored, revealing certain environments in which authority and assertiveness are made relevant, including reminiscence and advice-giving. I consider how the person with dementia employs certain interactional practices to present herself as authoritative, and even when confusion and delusion do arise, how she skilfully extricates herself from this and returns to reality in the here and now. The family setting provides opportunities for shared reminiscence (Fivush, Reference Fivush2008). Where forgetting becomes relevant in interaction (Goodwin, Reference Goodwin1987; Muntigl & Choi, Reference Muntigl and Choi2010), conversational partners cooperate to prompt and evoke collaborative remembering (Hydén, Reference Hydén2011; Hydén & Örulv, Reference Hydén and Örulv2009; Norrick, Reference Norrick2019, Reference Norrick2020).
11.2 Methods
11.2.1 Participants in Interaction
The central two participants were a woman (referred to as ‘Dana’), who was 88 years of age and living alone in her own home, and her primary caregiver (her son, referred to as ‘John’). The names of all participants have been anonymised. Following the initial meeting with the dyad, in which I received written consent to conduct my study, further conversational participants from the family and community agreed to take part (see Table 11.1). This provided the opportunity to gather a unique data set with the person with dementia in conversation with a wide range of conversational partners in a variety of settings. This data set was the basis for a larger project (Lindley, Reference Lindley2016, Reference Lindley and Stickle2020) on which this chapter builds. Ethical approval for this study was received from the University of York, St John: Reference: UC/3/9/12/LL.
Table 11.1 Participants’ demographic information
| Participant pseudonym | Age | Relationship to Dana | Role | Settings |
|---|---|---|---|---|
| Dana | 88 | Person with dementia | All | |
| John | 61 | Son | Primary Caregiver | At home, mealtimes, car journeys, watching TV |
| Maureen | 59 | Daughter-in-law | Caregiver | At home, mealtimes |
| Emma | 33 | Granddaughter | Emma’s house | |
| Mick | 51 | Visiting chiropodist | Dana’s house | |
| Hal | – | Hairdresser | Hairdressing salon | |
| George | 50 | Son | Caregiver | Family meals at George’s house |
| Trudy | – | Daughter-in-law | Caregiver | Family meals at George’s house |
| Chloe | 15 | Granddaughter | Family meals at George’s house | |
| Barney | 13 | Grandson | Family meals at George’s house |
11.2.2 Data
The data collected in this study are everyday conversations between a woman living with dementia, her family and members of the community. Conversations were recorded on an audio recording device. It was relatively simple to operate and was demonstrated to the participants, then left with them to record at their convenience. The device was small and portable, giving ample flexibility to the participants to carry it with them on trips or moving from room to room. I visited Dana at home periodically to exchange the memory card in the device, and each time I ensured that I had listened to the previous week’s recordings in order to familiarise myself with the content and to be aware of any problems with recording or issues with consent or confidentiality.
Since the aim of the data collection was to obtain, as near possible, natural conversations, it was explained to the participants that they could record any part of their daily life and interactions. I stressed that constant dialogue was not necessary and there was no need to do any special activities or discuss specific topics. The family recorded as they wished over a period of three months, resulting in a total of 15 hours of audio data. The recordings were transcribed following the conventions of conversation analysis (Jefferson, Reference Jefferson and Lerner2004). The full corpus of recordings included mealtimes, watching television, car journeys, a visit from the chiropodist and a recording of one of Dana’s weekly appointments at her hairdresser’s salon. Noticing sequences involving reminiscence and advice-giving, especially in multigenerational conversations, I analysed these with respect to epistemics. Sequences were carefully inspected, exploring how the person with dementia was able to display primary epistemic rights and access.
11.3 Findings
Examination of the data revealed that Dana was able to assert epistemic authority (Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011) in different activities such as advice-giving and narrating autobiographical events. I explore how, by using contextual cues of sequential implicativeness (Schegloff & Sacks, Reference Schegloff and Sacks1973), Dana successfully collaborates in reminiscence sequences initiated by her co-participants. On occasions when Dana displays confusion or lapses in memory, I show how she manages the interaction to reclaim authority.
Many of the recorded conversations involved Dana reminiscing about her working life and, in particular, as a young person growing up in Belfast. Dana vividly describes the streets and places of interest in the city as well as the characters she remembers from her youth. Dana is, of course, the expert in facts relating to her own life history; being allowed the opportunity to demonstrate this can contribute hugely to her feeling of self-worth (Fivush et al., Reference Fivush, Haden, Reese and Rubin1999). Also, Dana is the only person in these recorded conversations with access to memories of her youth, so she can confidently hold the floor on these topics and is rarely contradicted. As well as reminiscence and life story sequences, Dana engages in advice-giving as an interactional vehicle to demonstrate her expertise.
11.3.1 Advice-Giving as a Means to Demonstrate Competence
Giving advice to a co-participant in conversation is a way to position the advice-giver as holding greater authority on a subject than the advice recipient (Vehviläinen, Reference Vehviläinen2001). Extract 1 is taken from a dinnertime conversation between Dana and her son’s (George’s) family. Trudy is Dana’s daughter-in-law and Chloe and Barney are teenage grandchildren. Following a similar mealtime conversation a few days earlier, seemingly a point of confusion for Dana is the work/school habit of Chloe, who is 15. Dana frequently asks about Chloe’s occupation and is reminded that she is still at school but has a part-time job as a waitress.
Extract 1
1 ((George talks on the phone in the background)) 2 Dana .Hh I didn’t- I thought she worked there period. 3 Trudy Hh NO: n no she just on a Sunda:y cz she still at schoo:l 4 (0.4) 5 Dana Oh, 6 (0.3) 7 Dana U- bwell (0.3) u yu learning anything 8 (1.1) 9 Chloe ↑Yes:↑ 10 Dana Ye:s: 11 (0.3) 12 Trudy How to wash up (0.3) hu [hahe ] 13 Chloe [Ss hss] 14 Dana Oh wll [she knows that already] 15 Trudy [I think it’s all good c]ustomer 16 Trudy ser[vice isn’t it] 17 Dana [It- it- ] yea it are you learning how to say 18 hello: and bye [bye] 19 Trudy [ Eh] [heheh ] 20 Barney [Tchuuc][ghuu ] 21 Dana [Or is it] 22 Chloe >I learnt that when< I 23 Chloe [Was a little girl £ actually: huhu £] 24 Trudy [Ah hahah ] ha ha ha 25 Dana Ah yeah but then and then you have 26 Dana [To be able] to say to a customer 27 Chloe [Ah ha ha ] 28 Barney [(̊ ̊)] 29 Dana [Is it- can I get you something el:se] 30 Chloe £Yea:h£ 31 ((1.0) Trudy and Barney talking quietly)) 32 Dana You know if theh if they’re playing about with their menu: 33 Chloe Y-[yea:h ] 34 Dana [N they don’t kn]ow what they’re talking about .hhh they say 35 (0.4) 36 Dana But you say w- (.) would you like [me to] get something= 37 Chloe [Yea:] 38 Dana =Else for you 39 Trudy Yea: s: [s’all] good lear[ning int it] 40 Dana [Yeah ] [Uh- u- o- ] 41 Dana Or if you r if you: read the menu an you YOU: understand the 42 menu .hh you can say that’s very: .h (.) that- if youw if 43 you were thinking about something that’s very nice 44 Dana [We do that]nice .hh you don’t have to go into a rig’morole 45 Trudy [Mmm ] 46 Chloe [Yea ] 47 Dana [You j]ust say: 48 (((0.8) George on phone)) 49 Dana Er- oh- ahw- we’d we do tha:t n its very nic:e= 50 Trudy =↑Ye[a↑::h] 51 Chloe [Yeah ] 52 Dana >[Its veh-]< its very populah 53 Chloe Mmm 54 Trudy Gramndma gu’s >good at this< she’s that was your job wasn’t 55 it from: how ol w’from your age Chloe 56 Dana ↓From being a wee gir:l↓ 57 (0.2) 58 Dana Defi[nitely] 59 Trudy [Ye[a::h]] 60 Chloe [(Yea)] 61 (0.2) 62 Dana .Hhh 63 Trudy V’always been a [waitress haven’t yer] 64 Dana [Yea:h al ]ways but or- 65 Dana you’ve a:lways got to be r:eady(.)[for] people 66 Chloe . Mm[mmm] 67 (0.5) 68 George RI:GHT COME ON THEN MOTHER AV GOT TO GO:
The overall sequence in Extract 1 is delivered as advice to Chloe but is simultaneously a reminiscence for Dana about her own time working as a waitress. Dana’s reminiscence sequence bears similarities to storytelling since the reminiscence is ‘locally occasioned’ (Jefferson, Reference Jefferson and Schenkein1978: 220) and topically coherent as it follows news of Chloe’s waitressing job. Hydén et al., (Reference Hydén, Plejert, Samuelsson and Örulv2013) observed that storytelling in family conversations can be fulfilling for a person with dementia, supporting the identity of the teller. After a shaky start, Dana displays her epistemic authority as she draws on her many decades working as a waitress to offer advice to Chloe. There are four co-participants in this conversation: Chloe is the chief recipient and Trudy and Barney intermittently participate in this interaction or continue their own two-party conversation simultaneously. Such intermittent schism in multi-party talk is systematically achieved without impeding the ongoing conversation (Sacks et al., Reference Sacks, Schegloff and Jefferson1974), and although Dana seems to be directing the advice to Chloe, Trudy also maintains a supporting role in this conversation.
A common language characteristic of people with dementia (Hamilton, Reference Hamilton1994, Reference Hamilton2019; Orange, Reference Orange, Lee Hummert and Nussbaum2001) is circumlocution, a means of delivering meaning indirectly in order to overcome problems with lexical access. Dana’s use of circumlocution can be seen to cause difficulties in conversation on occasion. Further analysis of Extract 1, in which Dana is having a mealtime conversation with her daughter-in-law and two teenage grandchildren, demonstrates potential problems associated with circumlocution. In the opening to this extract when Dana was reminded that Chloe is still at school and has a weekend job as a waitress, Trudy seems to attempt to deflect the topic when she utters a ‘laughable’ followed by laugh particles in line 12 and Chloe joins her mother by producing laugh particles in overlap. Glenn (Reference Glenn1989: 136) describes ‘laughables’ as ‘those items in reference to which people laugh’. Dana, however, does not laugh but utters further serious talk. At lines 17–18, Dana goes on to expand on her earlier question saying ‘are you learning how to say hello and bye bye’, which I have classified as circumlocution. This problematic turn is treated as a laughable by each of Dana’s co-participants: see their laughter in lines 19 and 20.
Laughter itself does not directly relate to coded linguistic meaning, but the sequential environment in which it occurs reveals the affiliative or non-affiliative characteristics of the sequence (Glenn, Reference Glenn2003; Jefferson, Reference Jefferson and Psathas1979). Glenn (Reference Glenn, ten Have and Psathas1995, Reference Glenn2003) distinguished between the practices of laughing at and laughing with co-participants. An interlocutor producing a first laugh at their co-participant’s troubles or producing an antagonistic laughable towards an interlocutor would be said to be laughing at. The ‘butt’ of the laughter (Glenn, Reference Glenn2003: 64) can then join the laughter and attempt affiliation or decline and continue with serious talk.
Dana’s interlocutors laugh together (lines 19–27) but Dana continues with serious on-topic talk. The laughter produced by Dana’s co-participants has the characteristics of ‘laughing at’ since the first laugh, in response to Dana’s circumlocution, was produced by Trudy and overlapped by laugh particles from Barney (line 20). An extension of the laughable was then produced by Chloe in lines 22–23, delivered with smile-voice and turn-final laughter. This sequence seems to be face-threatening (Goffman, Reference Goffman and Goffman1967 [1955]) to Dana and undermines her epistemic authority. Dana’s continuing with on-topic serious talk without any hint of laughter or smiling voice suggests that she has not aligned with the laughable nature of the topic and has treated the laughter as at her expense.
At line 25 Dana addresses Chloe directly ‘ah yeah but then and then you have to be able to say to a customer’; the use of you in this utterance appears to be both directed at Chloe, as recipient, and be a general use of you (Sacks Reference Sacks1992) as in waitresses in general. Indeed, Dana is not advising that Chloe says ‘can I get you something else’, but that she should be able to make such an offer. By being able to do this, she could fulfil the complex dual role of a waitress in serving her customers and increasing sales on behalf of her employer. Dana now has Chloe’s attention, as can be seen from the minimal response in line 30. The delivery of Chloe’s utterance has the quality of a smile-voice, denoted by the £ symbol, which appears to be following laughter from Chloe and Barney earlier in the sequence, which may well have been as a result of Dana’s circumlocution.
Following a one-second pause (line 31), Dana initiates a more detailed advice sequence. This is prefaced, in lines 32–34, by setting up a scenario in which the customers are ‘playing about’ and ‘don’t know what they’re talking about’. Dana aligns with Chloe by saying ‘you know’, which sets apart the waitresses (Dana and Chloe) from the customers, who are in need of guidance. Chloe acknowledges this scenario with a minimal token in line 33, which projects that Dana can continue with the advice sequence (Goodwin, Reference Goodwin1986; Schegloff, Reference Schegloff and Tannen1981). This time Dana delivers the advice by directing Chloe with ‘you say’ and then performing a courteous offer to the customer (lines 36–38): ‘would you like me to get something else for you’. The performance quality of this utterance can be heard in a switch in register, towards Standard English rather than the Northern Irish accent that Dana regularly uses in family conversation. In addition, Dana has now performed the same offer as in line 29 but with the more formal lexical structure ‘would you like me to get’ rather than ‘can I get’. This performative delivery sets the scene in Dana’s demonstration (Clark & Gerrig, Reference Clark and Gerrig1990; Hydén & Örulv, Reference Hydén and Örulv2009) as she enacts (Kindell et al., Reference Kindell, Sage, Keady and Wilkinson2013) her part as a professional waitress.
Trudy now re-enters the conversation (line 39). Trudy uses the same formulation as before (lines 15–16) ‘it’s all good […] isn’t it’, but this time she refers to ‘good learning’, which was adumbrated at the start of the sequence with talk about school and Dana’s question ‘are you learning anything’. Although this chapter is not primarily concerned with repetition (a common characteristic of conversations with persons with dementia), it is interesting to note that repeated formulations and ideas are being produced by Trudy, a participant with no known cognitive impairment. Repetition is common in interaction among participants with shared histories (Norrick, Reference Norrick1997) and can be found regularly across the entire data set, in particular in talk about food, service and working life. Non-impaired interlocutors contribute to, and are coerced into producing, repetition in conversation as familiar topics arise.
In lines 41–52, Dana continues with her advice. She demonstrates (Clark & Gerrig, Reference Clark and Gerrig1990) to Chloe how to deal with customers: ‘that’s very nice, we do that nice, we do that and it’s very nice’ and finally ‘it’s very popular’. These turns are again delivered with a Standard English accent. After having repeated the adjective ‘nice’ three times, it seems as though nothing new is forthcoming in this sequence, but then the final demonstration given by Dana, in line 52, is delivered with an almost triumphant Received Pronunciation ‘populah’, which is then acknowledged by both Chloe and Trudy. Chloe receipts these recommendations with a minimal token ‘mmm’, but Trudy validates the advice and Dana’s authority to deliver it (lines 54–55). Dana has achieved this sequence in conversation by displaying access to her autobiographical memories. It is delivered in an appropriate manner as advice to a novice waitress, and Dana has received recognition for her authority and expertise in this role.
Furthermore, Dana is ultimately validated as an expert when Trudy says ‘you’ve always been a waitress haven’t you’ (line 63). Although this turn is addressed to Dana, it is also designed for the other co-present participants to hear, which further upholds Dana’s authority and self-worth in this matter. What is particularly noticeable about the construction of Trudy’s turn is the present perfect continuous tense – have [always] been – which imbues Dana’s occupation with a sense of continuing professionalism. It is all too easy when speaking to an older person to design one’s turn with a sense of what had been. As De Beauvoir (Reference De Beauvoir1972: 294) observed in her study of old age, there is a feeling of being ‘flung from the active into the inactive category’. Trudy has validated, not only the sense of what Dana once was, but also her authority to advise Chloe in the here and now.
As Dana delivered her advice, Chloe showed her participation in the conversation with a minimal token ‘mmmmm’ (line 66), expressing her alignment with Dana’s continuation. The sequence ends abruptly as George completes his telephone call and has to leave urgently, taking Dana with him. Although Chloe’s lexical contribution to this sequence is minimal, her participation in the interaction has offered Dana an opportunity to advise, remember and be validated as a ‘usable participant’ (Goffman, Reference Goffman and Goffman1967) – and, indeed, an expert on her working life.
11.3.2 Shared Reminiscence: Claiming Knowledge
This section explores a sequence in which Dana responds to memories, reminiscences and assertions produced by interlocutors. Whereas Dana’s self-initiated reminiscence sequences are often fluent and assertive, reminiscence initiated by others is not treated by Dana with the same authority. She can, however, design her turns as sequentially relevant to come off as doing remembering.
Extract 2
1 Trudy Seems like five minutes ago when you came to 2 visit her in Castleford d’you rememb[er tha]t 3 Dana [Go:d ] 4 (0.7) 5 Dana ̊Gohd bless us:̊ 6 Trudy You came to see me in the hospit[al ] 7 Dana ↑[Yea]:h↑ 8 (0.5) 9 Trudy >>↑↑Hmemem↑↑<< 10 George Hggh[gghh ] ((possible cough)) 11 Dana [>Hu hi] hu< 12 Dana <̊Ghod [love her]̊> 13 Trudy She had a [shock of] black hair d’you ‘member= 14 Dana =£Yeah [oh ho ho huh £ ] 15 George [(>Y’right<)she had black hair] 16 George [When she w born di’nt she [Chloe]] 17 Dana [Hi hi hi [Hi hi]hi ] 18 Trudy [[Ye::]a::h] 19 Dana .Hhh £yeah£ 20 (0.6) 21 Dana God love her e’she was £gorgeous£ ah heh 22 Trudy I kno:w: >at least Teddy< got to see her 23 Di[dn’t he]=he was still alive then wasn’t he 24 Dana [Yeah ] 25 Dana Yeah= 26 Trudy =You and Teddy came throu:gh in y 27 li[ttle white] Hond[ a ] 28 Dana [̊Yeah̊ ] [He] he he he
During the reminiscence sequence in Extract 2, Dana’s is twice asked ‘do you remember?’ Caregivers and families are often advised not to use this phrase (Alzheimer’s Society, 2024) as it is thought to challenge a person with dementia, cause distress and have a negative effect on their self-esteem by exposing memory impairment. In Extract 2, as in other instances of this question found in the data, this is asked without any such difficulties arising. Dana can successfully use the interactional context to sustain her conversation; she is able to align with the projected preference of the question (Pomerantz, Reference Pomerantz, Maxwell Atkinson and Heritage1984) by affirming, or at the very least not disconfirming, that she remembers. Dana is thus ratified as a participant in the shared reminiscence.
In Extract 1 reminiscence sequences were explored that involved Dana’s autobiographical memories about her long career as a waitress. Sequences from Extract 1 were packaged as advice to Chloe, the young waitress, but all involved Dana’s primary access (Drew, Reference Drew, Markova and Foppa1991; Heritage, Reference Heritage2012a; Labov & Fanshel, Reference Labov and Fanshel1977; Pomerantz, Reference Pomerantz1980, Reference Pomerantz, Maxwell Atkinson and Heritage1984) to knowledge about her own experiences, told by her to others who have only secondary access to the stories. Extract 2 differs from the earlier example in that this is a reminiscence of shared experiences between George, Trudy and Dana; they each have equal epistemic authority (Heritage, Reference Heritage2012a, Reference Heritage2012b; Heritage & Raymond, Reference Heritage and Raymond2005; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011) relating to a shared experience. Furthermore, this reminiscence sequence is initiated by a person other than Dana; she has not ‘found’ this memory for herself.
Just prior to the start of Extract 2, Dana asked the age of her granddaughter, Chloe. Trudy answered the question, telling Dana she is fifteen and followed up with an assessment of the intervening years having passed so quickly: ‘seems like five minutes ago’. This is the start of a reminiscence sequence initiated by Trudy, and she goes on to provide some details of the event: Dana ‘came to visit her in Castleford’ in line 2, ‘came to see me in hospital’ line 6 and ‘she [Chloe] had a shock of black hair’ in line 13. Dana aligns with Trudy’s telling with fitted contributions including ‘god bless us’ in line 5, ‘yeah’ in lines 7 and 14, and laughter throughout. At line 12, Dana utters the phrase ‘God love her’. By using the female pronoun, it seems that Dana is on track in terms of the referent of the conversation, that is Chloe. However, it may not be clear to Dana at this stage that they are speaking about the Chloe of fifteen years ago. There is no explicit mention of the baby or birth until lines 15 and 16 when George brings together the implicit facts given in the sequence so far and states ‘she had black hair when she was born didn’t she, Chloe’. Dana laughs (line 17) in overlap with George’s utterance. Following Trudy’s response ‘yeah’ in line 18, Dana also responds to George’s assertion by uttering the word ‘yeah’, which is delivered with a smile voice. This quality in Dana’s voice may be attributed to having just completed a stream of laughter, but it also appears to lend an element of grandmotherly nostalgia to the utterance.
George and Trudy have, collaboratively, provided Dana with an assessable referent. They have described the baby ‘she had a shock of black hair’ and some of the events occurring at the time of her birth – ‘you came to visit her in Castleford’ and ‘you came to see me in hospital’ – but they have not, themselves, made an assessment of the baby’s characteristics. For example, they did not say she had lovely black hair. Chloe’s parents have ‘seeded the ground’ (Goodwin, Reference Goodwin, Glenn, LeBaron and Mandelbaum2003: 157) for Dana to make the first assessment, which she does in line 21: ‘God love her she was gorgeous’. As Pomerantz (Reference Pomerantz, Maxwell Atkinson and Heritage1984) noted, making assessments is related to rights of experiential access to an event or referent. In addition, Heritage and Raymond (Reference Heritage and Raymond2005) state that by uttering the first assessment, an interlocutor is claiming epistemic rights over the assessable. In this case, it has been put to Dana that she was present at the hospital and that she saw the baby. Dana has the right to assess, and by doing so, demonstrates that she has personal access to details of the event.
We cannot know whether Dana actually remembers this event for herself. Given that she is a fluent speaker and her talk is rich with description of events in her self-initiated reminiscence sequences, there seems to be a marked lack of detail in her contribution in this example. Positive assessments of babies, and grandchildren in particular, are culturally relevant and expectable owing to Dana’s status as a grandmother (Raymond & Heritage, Reference Raymond and Heritage2006). Comparable with Jones’ (Reference Jones2015: 564) concept of ‘answering without knowing’, it is possible that Dana cannot access this memory herself but is relying on the interactional context to design her assessment. Dana’s interlocutors have, incrementally, created an interactional environment in which Dana can share in a joint reminiscence sequence. Despite the taboo surrounding the phrase do you remember, when it is produced, in lines 2 and 13, it provides the sequentially relevant slot for Dana to affirm that she does remember. This question has not exposed Dana’s memory impairment or caused upset or interactional difficulties. On the contrary, by exploiting the subtle processes of ‘sequential implicativeness’ (Schegloff & Sacks, Reference Schegloff and Sacks1973: 296), Dana has demonstrated that she is a competent and authoritative participant in this reminiscence.
11.3.3 Resolving Interactional Problems Involving Confusion
In this section I inspect how Dana’s failing understanding leads to interactional breakdowns and the ways she and her co-participants manage to recover her authority. Firs, some background to Extract 3 is required. The Fortes referred to in the conversations are the family who became famous for a large, multinational chain of hotels and restaurants. The name ‘Forte’ is, therefore, retained so as to preserve the sense of what is being discussed and because the name is publicly known. For the same reason, some names of establishments in Belfast are retained, but all other names of people and private addresses are pseudonyms.
Extract 3
1 Dana That was Belfast .hhh [(nea:r the) ] 2 John [So that wasn’t the] f- Fortes then 3 (0.6) 4 Dana Fortes:sh yes it was the Fortes yeah 5 John >Cz yu< said mister and missus Finley 6 Dana Oh- yeah, mister and missus Fin:ley (0.2) yeah= 7 John =Yeah 8 (0.2) 9 Dana Ayeah 10 (1.3) 11 Dana An:d urm 12 John W’l’oo were mister and missis Finley then 13 Dana .Hhhh their parents 14 (1.5) 15 John Parents of: 16 (0.2) 17 Dana Ba:rney 18 (1.8) 19 Dana Uug ↑>mhmhmm<↑ 20 (0.7) 21 Dana .Pt you’re m(h)ixing me up £now£ 22 (1.3) 23 Dana .Hhh[hhh ] 24 John >[You’re on a]bout< mister Sykes now ar’yuh 25 Dana <~Mister sykes:~> 26 (1.3) 27 John At the society club o:r no- >we’re talking about 28 Belfast [aren’t we]< 29 Dana <̊[Bel ]fast̊> 30 (1.4) 31 Dana .Hh ˚˚who ws- u- who was there˚˚ 32 (0.3) 33 John Cz I always thought you said it w- the Café Grande was 34 owned by: u- (0.5) Fortes 35 Dana Fortes 36 John Yeah y’knowu- (.) ended up m:massive in this 37 cun-b-m-b- Fortes restaurants 38 (0.2) 39 John On the mo:torways n stuff 40 (1.8) 41 John No: 42 (0.5) 43 Dana I don’t know: no: 44 (1.5) 45 Dana But I worked in the Café Gra:nde
The uncertainty in this sequence arises from John questioning some details relating to Dana’s reminiscence (not shown) about working in the Café Grande in Belfast. Dana mentions her employers, the Finleys and the Fortes, and John is trying to understand the relationship between the two.
Lines 2–15 involve a sequence in which John is probing for information about the relationship of the two families, the Finleys and the Fortes. Dana does not seem to understand what he is asking or, perhaps, considers that the question has been satisfactorily answered. After a pause in line 10, Dana produces a turn ‘and uhm’ which suggests she is projecting a resumption of her earlier topic. Local (Reference Local and Couper-Kuhlen2004) showed that turn-initial ‘and uhm’ is a device to signal that the upcoming turn would not be sequentially relevant to the immediate prior, but a move to resume an earlier topic. Dana, however, does not complete the turn and John continues with his questioning about the Fortes and the Finleys, which leads to Dana becoming confused, as evidenced in line 21. Dana is consistent in the fact that the Finleys are parents of the Fortes, but what John wishes to clarify is how they came to have different names. Elsewhere in the data John and Dana discuss this problem: for example, John says: ‘Mr and Mrs Finley must have been Frank Forte’s inlaws’. While Dana repeatedly offers the same information, answering John’s questions with sequentially relevant and consistent facts, she does not seem to understand the complexities of the overall project that John is proposing, which is that the Finley’s son would, according to British custom, take the same surname as his parents.
John’s probing for information seems to result in Dana’s uncertainty. In line 15 John invites a collaborative completion (Lerner, Reference Lerner and Lerner2004) from Dana to try to elicit the information. Dana answers ‘Barney’ with intonation that has an abrupt quality, the start of the single word being of increased amplitude. This is followed by perturbations from Dana and in line 21 she actually states ‘you’re mixing me up now’, delivered with laugh particles and smile voice. The indication of laughter signals a light-hearted recognition of her incompetence (Haakana, Reference Haakana2010; Jefferson, Reference Jefferson, Atkinson and Heritage1984; Wilkinson, Reference Wilkinson2007) and John continues with a serious account of whom she may be referring to in line 24.
Further questioning from John on the matter does not elicit an answer. In lines 25, 29 and 35, Dana simply repeats parts of John’s prior turns. In line 36 John initiates a side-sequence (Jefferson, Reference Jefferson and Sudnow1972) to elaborate on the Forte question. He uses the phrase ‘you know’, which is a marker of knowledge management in conversation (Schiffrin, Reference Schiffrin1987). You know refers to knowledge which is either generally known or which is expectedly shared between the co-participants. John incrementally delivers the information about the Forte family, who are known in the hotels and motorways services businesses. After a pause of 1.8 seconds in line 40, he modifies his assumption that Dana should know about this and utters ‘no’, which seems to signify an abandonment of the side sequence. At line 43 Dana utters ‘I don’t know no’, confirming that she does not know about the Fortes’ chain of restaurants.
This is the point at which Dana achieves the transition from uncertainty back to authority. By clearly stating that she does not know, the sequence is closed and nothing further is added by John as a 1.5 second pause ensues. The subsequent turn is constructed with a turn-initial but, indicating a referential contrast (Schiffrin, Reference Schiffrin1987) between the referent that Dana does not know about (the Fortes dilemma) and that which she does know (the Café Grande). Dana’s turn in line 45 ‘I worked at the Café Grande’ is delivered with declarative syntax, claiming ownership of knowledge. Her lexical choice but simultaneously manages various features of the ongoing talk: (1) it connects her statement to the prior talk, showing that it is sequentially relevant, (2) it projects the contrast of the actions not knowing to knowing, (3) it signals the speaker’s pursuit of an earlier topic (Schiffrin, Reference Schiffrin1987) – a return to the topic last referenced in line 1. The latter feature is crucial for Dana, it seems, since she returns to talk about autobiographical events over which she has primary authority and can confidently hold the floor.
11.4 Discussion
This chapter has explored situations in which a person with dementia can present herself as authoritative. The social setting empowers Dana to demonstrate her competence and expertise, facilitated through interaction with her extended family and members of the community. Dana’s reminiscences are not merely formulaic, perseverant monologues, but are sequentially relevant topic transitions and sustained through her epistemic primacy relating to the memories.
Dana uses advice-giving as a way to demonstrate her epistemic authority in certain situations. By advising her granddaughter, Chloe who is working as a part-time waitress, Dana presents herself as an expert waitress. She even uses this authority to recover from a lapse in interactional competence when her verbal fluency momentarily fails and seems to prompt laughter from her interlocutors. Dana does not affiliate with the laughable nature of the sequence but generates an interactional environment in which further advice was sequentially relevant. During the advice-giving, Chloe utters little more than minimal tokens. However, Chloe’s sustained attention and her very presence at the family dinner table have provided the relevant opportunity for Dana to advise and be validated as expert.
Dana’s diminished understanding was exposed when she could not answer John’s complex questions about the names and relationships of the families she had worked for in Belfast. Eventually, after a great deal of uncertainty, Dana expressed her authority and restored her epistemic status (Heritage, Reference Heritage2012a, Reference Heritage2012b; Stivers et al., Reference Stivers, Mondada, Steensig, Stivers, Mondada and Steensig2011) by stating that she did not know about that subject but, by contrast, returned to a topic over which she could claim primacy.
I examined a sequence from a family mealtime conversation in which participants talked about a shared reminiscence of the birth of Dana’s granddaughter fifteen years earlier. During this sequence, Trudy repeatedly used the phrase do you remember as a tag question to incrementally declared details of the event. Contrary to general advice that this question should be avoided, this practice actually supported the sequential flow and overall project of the interaction, allowing Dana to align with the action of the current talk: family reminiscing. The words ‘do you remember’, it seems, do not necessarily cause interactional breakdown. It is the action underlying the utterance which could have this effect. As evidenced in Extract 3, in which John probes Dana for information about the Finleys and the Fortes, we can see that actions such as probing, testing and asking a person with dementia to prove that they remember may result in a breakdown of interaction and lead to feelings of diminished self-worth. On the other hand, the question ‘do you remember’, used in a supportive interaction, helped Dana to contribute to the family talk about shared experiences. Though it seems likely that Dana did not, at first (if at all), remember the details of the shared memory of Chloe’s birth, she was able to sustain the conversation. Her co-participants incrementally and collaboratively supplied details about the event and Dana demonstrated, by assessing the ‘gorgeous baby’, that she could competently do remembering.