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Understanding correlates and potential causes of mental illness stigma in community-based settings in low- and middle-income countries (LMICs) is important for developing effective interventions to reduce stigma and demand-side barriers for treatment. This study analyzed data from structured questionnaires administered to 178 respondents in the Buyende district in Eastern Uganda to investigate sociodemographic and clinical factors correlated with mental illness stigma. Factor analysis of 33 items revealed a single dominant factor reflecting mental health stigma. Bivariate and multivariate analyses of sociodemographic and clinical correlates were used to identify factors associated with stigma in the entire sample and separately within the subgroups with evidence of mental illness. In the entire sample, female gender was the only independent correlate of stigma. Analysis of the mental illness subgroup also showed that women had high levels of mental illness stigma. These findings suggest that female gender appears to be a more important correlate of mental health stigma than clinical factors. Nevertheless, effective destigmatizing interventions are needed for the entire population, with additional approaches specifically tailored to women.
Mental health conditions represent a major global burden. However, minimally adequate treatment coverage for common mental disorders remains critically low. Task-sharing solutions using non-specialist providers are promising, but successful implementation requires understanding local culture and context. This study explored facilitators and barriers to implementing non-specialist mental health interventions in Senegal. We conducted in-depth qualitative interviews with 53 stakeholders, including social protection program facilitators, beneficiaries and community members. Data were analyzed using thematic analysis. Four primary themes were constructed: (1) implementation barriers, (2) facilitating factors, (3) health-seeking beliefs and practices and (4) community recommendations. Key barriers include strong preferences for family-based problem-solving, stigma and financial constraints. Facilitators included recognition of the therapeutic benefit of interpersonal dialogue, empathetic values towards helping those with mental health conditions and community enthusiasm for mental health interventions. Culturally adapted interventions need to navigate cultural norms and leverage existing community strengths in interpersonal support. The coexistence of stigma and empathy, alongside both resistance and openness to non-specialist services, highlights a dynamic tension that not only challenges implementation but also presents an opportunity for change. These findings contribute essential formative evidence for designing effective, sustainable non-specialist mental health interventions in Senegal and the sub-Saharan African region.
The Introduction first provides an overview of concubinage in Chinese history. It then traces the rise of modern social women in Republican China, a significant historical development that contributed to shaping the stories told in this book. Next, it focuses on the institution of concubinage in Republican China, analyzing three broad and intertwined developments that serve as the larger context for the case studies in this book: (1) The increasing social stigmatization of the concubine and the rise of her domestic status; (2) the emergence of modern-educated concubines and their active but controversial public presence; and (3) the democratization of concubinage and the emergence of the Anti-Concubinage Movement. Although some scholars have noted these changes, none have connected these issues and given them concentrated treatment, investigating the broader impact of concubines’ public presence on the society, culture, and gender politics of Republican China. This book weaves these trends together to present a new picture of an important phenomenon and its implications for modern Chinese history. Finally, it introduces the sources, methodology, and structure of the book.
Cervical cancer, primarily caused by human papillomavirus (HPV), is the most common cancer in women in sub-Saharan Africa and the most common cause of cancer fatalities among women on the continent. While both prevention and early detection are possible through HPV vaccination and cervical cancer screening, health system capacity is inadequate for screening and there are pervasive negative attitudes and beliefs. A major, modifiable but understudied barrier is cancer stigma, which underlies suboptimal vaccination efforts as well as cancer screening. Adhering to the PRISMA, ScR guidelines, we conducted a scoping review exploring HPV and cervical cancer stigma in Africa. We included studies that described stigma in relation to HPV or cervical cancer in Africa or among people of African descent. Forty-three studies described HPV and cervical cancer stigma in a dozen countries in sub-Saharan Africa and none in North Africa. Internalized, enacted and anticipated forms of stigma occurred at the individual, family and community levels. The four main themes that emerged include (1) how lack of knowledge and false perception hinders screening and vaccine uptake; (2) stigma in the context of practical barriers to care; (3) acceptability of education and interventions to reduce stigma and (4) stigma as a contributor to psychological distress and treatment outcomes. Only two studies described interventions focused on eliminating stigma through promoting cervical cancer and HPV-related knowledge, targeting misinformation and incorporating patient navigation. Addressing stigma is essential, as it is a key barrier to HPV vaccination, cervical cancer screening and timely treatment. We call for future studies to develop culturally informed interventions to reduce stigma and improve cervical cancer outcomes across all regions in Africa.
Suicide disproportionately burdens low- and middle-income countries. In Uganda, attempt survivors encounter intense stigma, minimal mental-health services and social exclusion, elevating their risk of future attempts. Rural African data on post-attempt experiences are scarce. From June to August 2023, we conducted semi-structured, in-depth interviews in Buyende District with 18 attempt survivors, 17 relatives, 10 healthcare workers and 9 community health workers. Transcripts were translated into English and thematically analyzed using the framework method within a phenomenologically informed qualitative design. Three interlinked themes emerged. (1) Stigma-shaped immediate responses: cultural, religious and legal norms fostered moral judgment, social distancing, bureaucratic delays and occasionally police involvement. (2) Informal, uneven support: survivors relied on family aid, religious counseling and ad-hoc community advocacy; effectiveness varied widely. (3) Conditional reintegration: sustained practical help, employment and communal acceptance promoted recovery, whereas their absence perpetuated economic hardship and marginalization. Post-attempt trajectories in rural Uganda are governed by multilevel stigma and fragile support systems. Priority actions include provider training, family-community psychoeducation, stigma-reduction initiatives, structured follow-up care and decriminalization of suicide to foster compassionate responses and reduce repeat attempts.
People with tuberculosis (TB) and TB survivors are at increased risk for mental health (MH) conditions. Better management of conditions like depression can improve adherence to TB treatment, and integrating MH care into TB treatment may reduce the MH treatment gap and improve outcomes. This qualitative study explored design characteristics for integrated MH-TB care in Pune, India. Data collection involved in-depth interviews (n = 25) with TB survivors with lived experience of MH conditions, their family members, and TB and MH providers. Data collection and analysis were guided by the Consolidated Framework for Implementation Research, and journey maps illustrated patient experiences. Participants shared suggestions for integrated care models, advantages and barriers to integration, intervention delivery agents, and local perceptions of MH conditions. Barriers included limited awareness about MH and perspectives about MH treatment, which were limited to consuming medication. Suggestions for integrated interventions included raising awareness about MH conditions and existing MH services among TB providers, regular MH screening and counseling for people with TB, and engaging TB survivors to share their experiences with patients in group settings. These insights highlight the importance of working with people with lived experience and understanding patient journeys to inform intervention implementation and sustainability.
Millions worldwide face poverty daily. While its effects vary by society, poverty consistently marginalizes individuals, limiting their opportunities and access to societal benefits. Myths about poverty undergird and perpetuate socioeconomic exclusion, being the vehicles for cultural processes, such as stigmatization, racialization, and rationalization. These myths abound in law. They include the conception of poverty as solely concerned with the deprivation of basic material goods; equal opportunities and collective amnesia about the past; stigmatization of people in poverty as irresponsible and lazy; the categorization of aspects and elements of their poverty condition as criminal. This Article argues that judges, as (meta)narrators, have the power to challenge myths and develop new narratives about poverty, through the language of non-discrimination and equality. This could open the way to judicially redress certain troubling situations of misrecognition, social exclusion and inequality. Ultimately, as long as myths about poverty prevail in law any attempt to tackle the issue of socioeconomic exclusion is destined to fail. This article contributes to the law and sociology literature on poverty in judgecraft by addressing the research gap on narratives of poverty within judicial reasoning and practice.
The uplift ideology of French Muslim leaders directly impacts the ways in which they respond to stigmatization. In the wake of rising Islamophobia, leaders of the UOIF encourage their coreligionists to react politely to stigma, stressing the value of nonconfrontational responses. For them, the destigmatization of Islam is best achieved through strict policing of Muslims’ conduct and constant attention to self-discipline. This anti-racist repertoire is aligned with color-blind republicanism, in a society where the social reality of Islamophobia is regularly denied and which regards group-based claims-making with suspicion. Correspondingly, UOIF leaders tend to distance themselves from contentious means of action, such as legal action or direct protest, and chastise what they consider a victim mentality. Once again, their approach is primarily guided by pious considerations. Practicing the Prophetic model of patience and perseverance (ṣabr) is part of their effort to fashion pious subjectivities. However, this approach remains costly. Constant self-regulation exacts a psychological toll on individuals while the promotion of behavioral exemplariness tends to obscure power structures, teaching worshippers to police their behavior rather than question postcolonial hierarchies.
Social contact refers to the facilitation of connection and interactions between people with and without mental health conditions. It can be achieved, for example, through people sharing their lived experience of mental health conditions, which is an effective strategy for stigma reduction. Meaningful involvement of people with lived experience (PWLE) in leading and co-leading anti-stigma interventions can/may promote autonomy and resilience. Our paper aimed to explore how PWLE have been involved in research and anti-stigma interventions to improve effective means of involving PWLE in stigma reduction activities in LMICs. A qualitative collective case study design was adopted. Case studies from four LMICs (China, Ethiopia, India and Nepal) are summarized, briefly reflecting on the background of the work, alongside anticipated and experienced challenges, strategies to overcome these, and recommendations for future work. We found that the involvement of PWLEs in stigma reduction is commonly a new concept in LMIC. Experienced and anticipated challenges were similar, such as identifying suitable persons to engage in the work and sustaining their involvement. Such an approach can be difficult because PWLE might be apprehensive about the negative consequences of disclosure. In many case studies, we found that long-standing professional connectedness, continued encouragement, information sharing, debriefing and support helped the participants’ involvement. We recommend that confidentiality of the individual, cultural norms and family concerns be prioritized and respected during the implementation. Taking into account socio-cultural contextual factors, it is possible to directly involve PWLEs in social contact-based anti-stigma interventions.
Stigma is significantly impacted by cultural and contextual value systems. People with mental health conditions frequently have to deal with the condition itself and the associated stigma and discrimination. Contextual understanding is essential to design measures and interventions.
Objective
This study aimed to explore the experiences and perceptions of people with mental health conditions, their families and key stakeholders.
Method
A qualitative method used to understand mental health-related stigma and its local contexts. Sixteen participants, including service users, caregivers, service providers and health service administrators, were interviewed.
Result
People with mental health conditions and their caregivers experienced various forms of stigmatization which is linked to attributions about the causality of the illness, overt manifestations of mental health condition leading to easy identification and functional impairments that adversely affect participation. Social contact, lived experiences sharing and training of service providers are relevant intervention strategy to address stigma.
Implication
Stigma and exclusion are prominent in the experiences of people with mental health conditions and their caregivers in this rural Ethiopian setting. Measurement of stigma and the development of interventions should consider how stigma is socially constructed. Anti-stigma interventions need to be implemented alongside expanded local access to mental healthcare.
Reading Lowell’s depictions of madness in poems from The Mills of the Kavanaughs to Day by Day, this chapter follows Lowell’s negotiation of literary conventions to arrive at a notion of diverse mental states that, in life, cannot entirely be controlled. It is argued that he effectively contributes to the reduction of stigmatization by slowly working through conventions of representing madness, such as the gothic, or othering mad persons through race and gender. He arrives at finally owning his mental state as a derangement of his senses, especially his vision, and foregrounds art and humor as coping mechanisms when facing the fragility and suffering of human life.
Stress is a challenge among non-specialist health workers worldwide, particularly in low-resource settings. Understanding and targeting stress is critical for supporting non-specialists and their patients, as stress negatively affects patient care. Further, stigma toward mental health and substance use conditions also impacts patient care. However, there is little information on the intersection of these factors. This sub-analysis aims to explore how substance use and mental health stigma intersect with provider stress and resource constraints to influence the care of people with HIV/TB. We conducted semi-structured interviews (N=30) with patients (n=15) and providers (n=15, non-specialist health workers) within a low-resource community in Cape Town, South Africa. Data were analyzed using thematic analysis. Three key themes were identified: (1) resource constraints negatively affect patient care and contribute to non-specialist stress; (2) in the context of stress, non-specialists are hesitant to work with patients with mental health or substance use concerns, who they view as more demanding and (3) stress contributes to provider stigma, which negatively impacts patient care. Findings highlight the need for multilevel interventions targeting both provider stress and stigma toward people with mental health and substance use concerns, especially within the context of non-specialist-delivered mental health services in low-resource settings.
This chapter examines how precarity affects the experiences of low skilled dirty workers – a group characterised by stigma and devaluation. Utilising Axel Honneth’s ideas of mutual recognition and the normative significance of work for identity, we explore how precarious working conditions affect self-understanding at the intersection of class and gender. Drawing on ethnographic data from street cleaners and refuse workers across four London boroughs, our findings demonstrate lack of secure employment has resulted in experiences of self-doubt and diminished sense of self-worth. Additionally, our findings highlight how secure employment and the ability to provide for one’s family is imperative to these workers, due to the heavy reliance on working class masculinity norms for affirming identity. Thus, we argue the centrality of work for a positive sense of self remains classed and gendered. We also show how the increasingly precarious nature of work is perpetuating feelings of vulnerability and therefore undermining opportunities for class solidarity through collective action in the face of moral injury for working class men.
Parkinson’s disease (PD) is a neurodegenerative movement disorder that impairs emotional expression in older adults. Parkinson's disease decreases a person’s ability to express their emotions in the face, body, and voice. Due to this decrease in emotional expression, people with PD are often perceived with a bias by both medical professionals and lay observers. These misperceptions can lead to people with PD experiencing stigmatization, decreased quality of life, and decreased satisfaction in their social relationships. Following a review of how PD affects the perceptions of people with PD at both the encoder and decoder level, this chapter will present possible compensatory strategies for increasing accuracy in perceptions with health-related expressivity deficits such as increased engagement in valued activities and using deliberate expressions to show emotions in high stakes social situations.
This chapter begins the book’s comparative ethnographic enquiry. While the scholarship has advanced several explanations for the post-authoritarian deactivation of the underprivileged across Latin American cities, little is known about the trajectories by which mobilization survives in some neighborhoods and not in others. This chapter focuses on the case of Nuevo Amanecer to better grasp the mechanisms that led to the demise of collective action in post-dictatorial urban Chile. It describes how party activists belonging to the Alianza Democrática developed a managerial leadership style in many underprivileged neighborhoods when coordinating anti-dictatorial protests in the 1980s. The relationships these moderate political activists fostered with neighborhood dwellers throughout the decade often evolved into networks of political loyalty after the democratic transition. These networks are current and ongoing. To feed their political loyalty networks, community leaders learn to insistently monopolize political capital at the grassroots level. This dynamic has further prevented mobilizational citizenship from developing. It also fragments población spaces, deactivates local initiatives of governance, and depoliticizes the youth.
In Chapter 9, we unfold subthemes within the superordinate theme of relationships. When our participants constructed their narrative identities, they emphasized how mental illness had strained and ruptured relationships, that others did not understand or stigmatized them, and how they withdrew and felt lonely. These subthemes carry toxic identity conclusions, including “I am a burden” and “I am alone” and capture narrative identity processes involved in social alienation and self-stigmatization. Although rarer, storylines of positive impact included empathy with others in difficult circumstances and growth of relationships with adaptive identity conclusions including “I can help others in pain,” which may propel individuals to engage in peer support, one aspect of personal recovery. When our participants narrated well-being into their identities, they expanded on subthemes where other people were depicted as supportive, understanding, and helping. They shared stories about acceptance, feeling valued, togetherness, safety and stability, the possibility of giving to others, and love. These subthemes can give rise to positive identity conclusions, encompassing “I can love, and others can love me” and “I can help and support others,” narrative underpinnings of connectedness and positive identity, which are central to personal recovery.
BPD are often characterized by dependence, affectability, unpredictability, impulsivity and self-destructiveness. Paradoxically, the symptoms associated with BPD are the same behaviors that makes them difficult to accommodate by health professionals. They constitute the most excluded and stigmatized patient group.
Objectives
To gain knowledge on how BPD patients felt acknowledged when they experienced the need for professional help.
Methods
We conducted semi-structured interviews with six BPD-women, aged between 18 to 46, all inpatient at different psychiatric units in the Capital Region of Denmark. The data were analyzed and interpreted through meaning condensation. We entered the philosophical hermeneutic framework of Hans-Georg Gadamer.
Results
We found that the women experienced that; the diagnosis was a filter, in which they were always viewed and judged through as “just another BPD-patient” and not a unique individual. their cry for help was expected to be verbalized in a certain manner and therefore was often not understood nor heard, but instead they experienced to be scolded by health professionels. the emergency plan became a legitimate way for the health care professionals to avoid spending to many resources, rather than a helpful tool. the psychiatry as a unit was largely characterized by stigmatization and a distrustful attitude towards them. Therefore they felt deeply dependent on meeting that one special health professional who were experienced to have a genuine interest and desire to help them.
Conclusions
Findings correspond with the findings of existing research. Hence, there also seems to be significant barriers nationally for patients with BPD to experience being acknowledged and helped, when in need of professional help.
Mental health professionals are one of the major sources of stigma for persons with schizophrenia and their families. The stereotype of incompetence is central in this stigmatization, whereas valuing skills is a fundamental aspect of mental health care and recovery.
Objectives
The aim of this study is to identify the domains of competence stigmatized in schizophrenia by mental health professionals and the factors associated with this stigmatization.
Methods
An online survey was conducted with a specific measure of the stereotype of incompetence and these associated factors. Participants were to be mental health professionals who work or have worked with persons with schizophrenia. These participants were recruited through professional social networks.
Results
Responses of 164 participants were analyzed. The results reported four highly stigmatized skill domains: ability to relate well socially, ability to be effective in their work, ability to make decisions about their health, and ability to control their emotions. Intelligence was found to be less stigmatized than the other dimensions. Recovery beliefs, categorical beliefs, and perceived similarities were factors associated with the stereotype of incompetence.
Conclusions
Responses of 164 participants were analyzed. The results reported four highly stigmatized skill domains: ability to relate well socially, ability to be effective in their work, ability to make decisions about their health, and ability to control their emotions. Intelligence was found to be less stigmatized than the other dimensions. Recovery beliefs, categorical beliefs, and perceived similarities were factors associated with the stereotype of incompetence.
Mental health care is considered to be one of the main sources of mental illness stigmatization. Detailed information about these stigmatization experiences is needed to reduce stigma in mental health practices.
Objectives
The study aimed i) to identify the most relevant stigmatizing situations in mental health care encountered by users and families, ii) to characterize the relative importance of these situations in terms of frequency, experienced stigmatization and suffering, and iii) to identify individual and contextual factors associated with these experiences.
Methods
In a focus group, users were asked to select the 15 most relevant stigmatization situations among those they elicited and those that were taken from the literature. An online survey was then conducted among users and family members to characterize these situations and identify predictors.
Results
A total of 235 participants were included: 59 participants with schizophrenia diagnosis, 96 with other psychiatric diagnoses and 80 family members. The results revealed 15 situations with different levels of frequency, stigmatization and suffering. Participants with a diagnosis of schizophrenia experienced more situations of stigmatization and with a higher frequency. Moreover, factors such as recovery-oriented practices and measures without consent were the best predictors of experienced stigmatization.
Conclusions
These original stigmatization situations could be targeted to reduce stigmatization and associated suffering in mental health practices. Results strongly suggest that recovery-oriented practice should be fostered to fight stigma in mental health care.