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This brief chapter, closing Part I, concludes that the individual is procedurally involved in such contexts to a minor extent and offers reflections on the reasons for this. It discusses the culture of state-centrism at the Court, its passive approach to procedural mechanisms, and certain fears it likely has. The reasons are challenged in this chapter, which ends with a brief word on how transparency practices can also contribute to the further integration of individuals in the procedural law of the World Court.
Countries globally are working towards the Sustainable Development Goals 2030. Goal 4 affirms all students’ right to a quality inclusive education. Yet achieving quality inclusive education continues to challenge education providers without reference to economic riches or location on the globe. This exploratory study examines the professional views of 20 teachers about the state of inclusive education in Pakistan with specific reference to learners with cerebral palsy. Using focus groups interviews, we systematically examined the data and identified two key themes: learning together for all and learning environment. In exploring these themes, tensions appeared between what was posed theoretically as inclusive education and the reality of implementation. Some of these tensions result from contextual factors, while others emerge through viewing inclusive education involving a transformation of culture and practice.
The diversity gap in precision medicine research (PMR) participation has led to efforts to boost the inclusion of underrepresented populations. Yet our prior research shows that study teams need greater support to identify key decision-making issues that influence diversity and equity, weigh competing interests and tradeoffs, and make informed research choices. We therefore developed a Diversity Decision Map (DDM) to support the identification of and dialogue about study practices that impact diversity, inclusion, and equity.
Methods:
The DDM is empirically derived from a qualitative project that included a content analysis of documents, observations of research activities, and interviews with PMR stakeholders. We identified activities that influenced diversity goals and created a visual display of decision-making nodes, their upstream precedents, and downstream consequences. To assess the potential utility of the DDM, we conducted engagements with stakeholder groups (regulatory advisors, researchers, and community advisors).
Results:
These engagements indicated that the DDM helped diverse stakeholder groups trace tradeoffs of different study choices for diversity, inclusion, and equity, and suggest paths forward. Stakeholders agreed that the DDM could facilitate discussion of tradeoffs and decision-making about research resources and practices that impact diversity. Stakeholders felt that different groups could use the DDM to raise questions and dilemmas with each other, and shared suggestions to increase the utility of the DDM.
Conclusion:
Based on a research life course perspective, and real-world research experiences, we developed a tool to make transparent the tradeoffs of research decisions for diversity, inclusion, and equity in PMR.
In this chapter participants reflect on the steps that senior academics and academic institutions could do to better support early career autistic academics. They also reflect candidly on the things that non-autistic colleagues and friends could do to make them feel more comfortable in both work and social settings.
The field of autism research is moving from its troubled history of research on autistic people to research with autistic people. This recognition of the need for research both with and by autistic people means there is also a need to understand the extent to which autism conferences include or exclude the voices of autistic people. In this chapter, participants reflect on their experiences in attending conferences as recipients of knowledge, active participants in the conversation, and conveyors of information. Topics discussed include sensory issues, conference organisation, social interaction and networking, in-session interaction, in-session information, inclusion, and online conferences.
While the concept of reasonable adjustments is well-established in academia, and it is enshrined in university policy that we must support the provision of these adjustments for our students, autistic employees may not always feel empowered to ask for necessary adjustments to thrive in an academic workplace. In this chapter participants reflect on the process of requesting and receiving adjustments, including those that have been denied and those that they wish they could ask for.
In recent decades inclusion of children with autism spectrum disorder (ASD) in mainstream settings has gained momentum all over the world. However, teachers’ attitudes to this have an impact on the success of implementing inclusive practices, while their efficacy beliefs are a crucial factor for promoting educational reform.
Aims
To explore the psychometric properties of the Opinions Relative to Inclusion of Students with Autism Spectrum Disorder (ORI-ASD) and the Teachers’ Sense of Efficacy Scale – Autism Spectrum Disorder (TSES-ASD).
Method
A total of 853 educators (155 preschool teachers, 388 primary school teachers and 310 university students) reported sociodemographic characteristics and completed the ORI-ASD and TSES-ASD, which were Greek-language adapted versions of the Opinions Relative to Integration of Students with Disabilities scale and the Teachers’ Sense of Efficacy Scale. Confirmatory and exploratory factor analyses were conducted.
Results
Exploratory and confirmatory factor analyses were performed for the two scales. Confirmatory factor analyses confirmed the three-factor structure of the ORI-ASD and one-factor structure of the TSES-ASD for both pre-service and in service teachers, which show satisfactory psychometric properties. Moreover, the results showed that educators hold moderate self-efficacy beliefs.
Conclusions
The translated and adapted ORI-ASD and TSES-ASD showed good psychometric properties in a Greek sample of teachers and university students. The current study indicates that the ASD-adapted versions of the ORI and TSES are reliable and valid scales for rating pre-service and in-service teachers’ opinions related to perceived self-efficacy and the inclusion of students with ASD. Our findings could have important implications for policy and practice relating to inclusive education.
Embracing neurodiversity, Autistics in the Academy amplifies the voices of thirty-seven Autistic academics from around the world, unveiling their unique perspectives in academia. Thom-Jones, an academic and advocate, spotlights overlooked contributions, addressing challenges veiled by stigma. The book aims to dismantle barriers and foster a more inclusive academic landscape. Drawing on firsthand narratives, this work not only raises awareness but also provides insights into how non-Autistic individuals can actively contribute to the success and enrichment of autistic academics. This book is an essential resource for those seeking to understand, support, and champion the contributions of autistic individuals within the academic world, and for anyone interested in building a more inclusive academy.
Chapter 2 identifies and describes several methodological considerations in participatory research with adolescents, for example the issue of power sharing. Language is explored as a tool but also a potential barrier for engagement over time. Adolescents can have different roles and levels of involvement. The research setting and the characteristics of the research team are also explored.
In recent years, there has been a growth in awareness of the importance of equity and community engagement in clinical and translational research. One key limitation of most training programs is that they focus on change at the individual level. While this is important, such an approach is not sufficient to address systemic inequities built into the norms of clinical and translational research. Therefore, it is necessary to provide training that addresses changing scientific norms and culture to ensure inclusivity and health equity in translational research.
Method:
We developed, implemented, and assessed a training course that addressed how research norms are based on histories and legacies of white supremacy, colonialism, and patriarchy, ultimately leading to unintentional exclusionary and biased practices in research. Additionally, the course provides resources for trainees to build skills in how to redress this issue and improve the quality and impact of clinical and translational research. In 2022 and 2023, the course was offered to cohorts of pre and postdoctoral scholars in clinical and translational research at a premier health research Institution.
Results:
The efficacy and immediate impact of three training modules, based on community engagement, racial diversity in clinical trials, and cancer clusters, were evaluated with data from both participant feedback and assessment from the authors. TL1 scholars indicated increased new knowledge in the field and described potential future actions to integrate community voices in their own research program.
Conclusions:
Results indicate that trainings offered new perspectives and knowledge to the scholars.
National innovation systems (NISs) have been important in the literature since the 1990s for highlighting the institutional performance of economies and promoting economic development. Inclusion in systemic innovation activities is an emerging area of research. However, the definition of inclusion within innovative activities remains unclear and is associated with numerous forms and characteristics depending on the context visited. Our work highlights the conceptual gap that exists around the notion of inclusive innovation by characterising three forms of inclusion in relation to innovation activities. We thus set out, in the form of a typology, three distinct framings which enable us to identify three different levels associated with specific institutional mechanisms and forms of inclusion. This typology makes it possible to identify appropriate innovation policies, depending on how inclusive innovation is characterised (low, medium, and high). It also helps to clarify the inclusive nature of innovation in NIS approaches.
Sense of belonging is a complex construct that we all strive for in our daily lives. Sense of school belonging influences educational outcomes and is vital for cognitive, behavioural, and socio-emotional success at school. Sense of belonging for students with disability in special schools has rarely been examined and is not well understood. In this study, we investigated the role special school leaders, teachers, and teacher aides play in building a sense of belonging for themselves and their students. Two hundred and sixty-two participants from 10 state special schools within a regional area of Queensland, Australia, completed a survey to determine their perceptions of how special school staff promoted school belonging as well as their knowledge of policy documents. Responses consistently indicated a positive sense of school belonging across all schools. Findings highlight what school leaders, teachers, and teacher aides do in their everyday practices to promote a strong sense of belonging at their special schools, including building positive trusting relationships with all stakeholders, learning environments that valued diversity and difference, inclusive practices that met the social and academic needs of students, and schools’ organisational practices.
In a time of unprecedented displacement, hostility toward refugees is widespread. Two common strategies refugee advocates pursue to counter hostility and promote inclusion are perspective-getting exercises and providing information that corrects misperceptions. In this study, we evaluate whether these strategies are effective across four outcomes commonly used to measure outgroup inclusion: warmth toward refugees, policy preferences, behavior, and beliefs about a common misperception concerning refugees. Using three studies with nearly 15,000 Americans, we find that information and perspective-getting affect different outcomes. We show that combining both interventions produces an additive effect on all outcomes, that neither strategy enhances the other, but that bundling the strategies may prevent backfire effects. Our results underscore the promise and limits of both strategies for promoting inclusion.
Participant representation, including the Good Participatory Practice guidelines, in the design and execution of clinical research can profoundly affect research structure and process. Early in the COVID-19 pandemic, an online registry called the Healthcare Worker Exposure Response and Outcomes (HERO) Registry, was launched to capture the experiences of healthcare workers (HCWs) on the pandemic frontlines. It evolved into a program that distributed COVID-19-related information and connected participants with COVID-19-related research opportunities. Furthermore, a subcommittee of HCWs was created to inform the COVID-19-related clinical research, engagement, and communication efforts. This paper, coauthored by the HERO HCW subcommittee, describes how it was formed, the impact of community participation on the HERO Registry and Research Program, reflections on lessons learned, and implications for future research. Engagement of the HCW Subcommittee resulted in representing their lived experience and ensured that their perspectives as HCWs were incorporated into the HERO Research. The strategies not only supported recruitment and retention efforts but also influenced the HERO research team in framing research questions and data collection pertinent to the participant community. This experience demonstrated the importance of having participants’ input as expert advisors to an investigative team in their research efforts during a global health emergency.
This chapter focuses on the barriers that LGBTIQ people continue to experience across a range of sectors, including the workplace, schools, healthcare and social care provision, and counselling and psychological services. Whilst some positive changes have occurred, this chapter highlights the ongoing (and renewed) resistance to the inclusion of LGBTIQ people. An overview of research on resistance to the inclusion of LGBTIQ people within foster care services and sports and resistance to the inclusion of certain LGBTIQ people (e.g., LGBTIQ refugees, disabled LGBTIQ people) within services is also provided. The chapter highlights the importance of both equity and liberatory practices in the removal of barriers to inclusion.
Chapter 8 is a new chapter for our textbook dedicated to the topics of diversity and inclusion. We discuss the power that can be derived from diverse group members and their experiences, but their diversity alone does not provide it. The importance of inclusion as a catalyst for leveraging the benefits of member diversity for higher productivity outcomes is discussed. We describe some of the challenges that diversity in groups can pose and factors that can exacerbate these challenges. We offer suggestions on methods groups can employ to help them overcome these challenges.
Past experiences of mental healthcare which have been perceived as harmful can present significant barriers to accessing treatment again. This article draws upon research and lived experience to consider the ways in which conceptualisations of ‘trauma-informed care’ may better incorporate the role of iatrogenic harm, thus providing more acceptable and equitable treatment for those who have previously found treatment to be harmful. A more restorative approach is offered, founded in shared responsibility and compassionate relationships, to help minimise harms and create a more healing system for patients and clinicians alike.
In this chapter, we discuss the relationship of individual personal thriving to fairness and worthiness by exploring the concept of epistemic injustice. Epistemic injustice refers to the rejection of people’s capacity as knowers, such that these individuals are treated as being less knowledgeable and less believable than other people, frequently on the basis of their social identities. In the first half of the chapter, we will explain how epistemic injustices take place and how they interrupt human thriving. In the second half of the chapter, we will profile the ways that psychologists and others can work to prevent epistemic injustice.
This chapter seeks keywords and concepts that will enable us to grasp the contradictory and conflictive globality of the current moment and sharpen our analysis of equally contradictory and conflictive global pasts. In a plea to move beyond equating the global with openness, connection, and integration, I address the role of closure, boundaries, and limits in global history in a wider sense. For this purpose, I explore in an experimental and deliberately open-ended fashion how thinking about global spherescan be utilised fruitfully for the current practice of history writing. The first part explores the radically inclusive yet claustrophobic vision of the globe as a closed sphere from which there is no escape. Building on earlier closed-world and one-world discourses, this thinking gained prominence after the Second World War in the face of the threat of nuclear destruction and environmental degradation. I then move to think about the globe as composed of many bounded spheres – geopolitical but also social. Here, I take central examples from the realm of communication and language and discusses the public sphere as an exclusionary rather than inclusionary figure of thought.