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This book explores how diverse citizens experience welfare provision. It seeks to promote broader debate and address the silences in research and debate, particularly in relation under-researched groups, with the aim of developing a renewed call for analysis.
Neglect remains understudied compared to other forms of maltreatment. While studies have shown that neglect has negative effects on mental health in adolescence, yet unresolved is whether these impacts result from critical period or cumulative effects. In the present article, we use a novel approach to compare these two hypotheses from the impact of two types of neglect, failure to provide (FTP) and lack of supervision (LOS), on adolescent depression and internalizing symptoms. Data derive from the LONGSCAN consortium, a diverse, multi-site, prospective study of children from approximately age 2–16. Despite our hypothesis that the critical period of early childhood would have the greatest impact on adolescent internalizing mental health, exposure to neglect during the critical period of adolescence (ages 12–16) was the best-fitting model for the effects of FTP neglect on depression, and the effects of LOS neglect on both depression and internalizing symptoms. The cumulative model (exposure across all time periods) best explained the effects of FTP neglect on internalizing symptoms. Results were robust to the addition of control variables, including other forms of maltreatment. These findings demonstrate that responding to neglect into adolescence must be considered as urgent for child welfare systems.
The role of housing in providing a welfare asset has been widely explored. With the growth in home ownership between 1979 and 2008 and erosion of the welfare state, housing wealth has become part of the welfare mix in the UK. Here, we present analysis of housing outcomes, as measured in the UK Household Longitudinal Survey (UKHLS), among people who identify as lesbian, gay, or bisexual in Great Britain. This shows that lesbian, gay, and bisexual (LGB) people have poorer housing outcomes than heterosexual counterparts: they are less likely to be homeowners; more likely to be private renters; and more likely to be social renters. With growing intergenerational inequalities in access to home ownership, we argue that, as openly LGB (and broader trans and queer) people being on average younger than the rest of the population, this could lead to LGB people, as a group, being excluded from asset-based welfare in the future as they age.
Understanding characteristics of healthcare personnel (HCP) with SARS-CoV-2 infection supports the development and prioritization of interventions to protect this important workforce. We report detailed characteristics of HCP who tested positive for SARS-CoV-2 from April 20, 2020 through December 31, 2021.
Methods:
CDC collaborated with Emerging Infections Program sites in 10 states to interview HCP with SARS-CoV-2 infection (case-HCP) about their demographics, underlying medical conditions, healthcare roles, exposures, personal protective equipment (PPE) use, and COVID-19 vaccination status. We grouped case-HCP by healthcare role. To describe residential social vulnerability, we merged geocoded HCP residential addresses with CDC/ATSDR Social Vulnerability Index (SVI) values at the census tract level. We defined highest and lowest SVI quartiles as high and low social vulnerability, respectively.
Results:
Our analysis included 7,531 case-HCP. Most case-HCP with roles as certified nursing assistant (CNA) (444, 61.3%), medical assistant (252, 65.3%), or home healthcare worker (HHW) (225, 59.5%) reported their race and ethnicity as either non-Hispanic Black or Hispanic. More than one third of HHWs (166, 45.2%), CNAs (283, 41.7%), and medical assistants (138, 37.9%) reported a residential address in the high social vulnerability category. The proportion of case-HCP who reported using recommended PPE at all times when caring for patients with COVID-19 was lowest among HHWs compared with other roles.
Conclusions:
To mitigate SARS-CoV-2 infection risk in healthcare settings, infection prevention, and control interventions should be specific to HCP roles and educational backgrounds. Additional interventions are needed to address high social vulnerability among HHWs, CNAs, and medical assistants.
We sought to validate available tools for predicting recurrent C. difficile infection (CDI) including recurrence risk scores (by Larrainzar-Coghen, Reveles, D’Agostino, Cobo, and Eyre et al) alongside consensus guidelines risk criteria, the leading severity score (ATLAS), and PCR cycle threshold (as marker of fecal organism burden) using electronic medical records.
Design:
Retrospective cohort study validating previously described tools.
Setting:
Tertiary care academic hospital.
Patients:
Hospitalized adult patients with CDI at University of Virginia Medical Center.
Methods:
Risk scores were calculated within ±48 hours of index CDI diagnosis using a large retrospective cohort of 1,519 inpatient infections spanning 7 years and compared using area under the receiver operating characteristic curve (AUROC) and the DeLong test. Recurrent CDI events (defined as a repeat positive test or symptom relapse within 60 days requiring retreatment) were confirmed by clinician chart review.
Results:
Reveles et al tool achieved the highest AUROC of 0.523 (and 0.537 among a subcohort of 1,230 patients with their first occurrence of CDI), which was not substantially better than other tools including the current IDSA/SHEA C. difficile guidelines or PCR cycle threshold (AUROC: 0.564), regardless of prior infection history.
Conclusions:
All tools performed poorly for predicting recurrent C. difficile infection (AUROC range: 0.488–0.564), especially among patients with a prior history of infection (AUROC range: 0.436–0.591). Future studies may benefit from considering novel biomarkers and/or higher-dimensional models that could augment or replace existing tools that underperform.
If you were trying to characterise developments in social policy in recent years, the chances are that you might select a series of key events and trends to define the attitudes of policy makers and political narratives. The list might include the febrile Brexit debate regarding controlling our borders (HM Government, 2018), the Grenfell Tower tragedy (Davies et al, 2017), the Black Lives Matter movement (Dray, 2021), COVID-19 (Nazroo and Becares, 2021), continued welfare retrenchment (Edmiston and Thakkar, 2021) and the Windrush scandal (Williams, 2020) partly inspired by Theresa May's ‘hostile environment’ (EHRC, 2020) as an intent to delineate between citizens and aliens. While the inventory might not be definitive, these events would feature on many people's lists. At the heart of this list lies the portrayal of a modern Britain as increasingly divided and polarised, not just across class and income lines but also in terms of race and ethnicity.
At the heart of the Brexit debate, one of the most divisive periods of British politics, was the vision of a Britain that had become lost in a ‘global hegemon of the capitalist world economy’ and a ‘deep-rooted nostalgia for the British imperial project’ (Virdee and McGeever, 2018: 1805, 1809) where racisms continue to be a part of British values (Patel and Connelly, 2019). While the creation of a ‘hostile environment’ may have begun as a statement of intent to tackle illegal immigration, it says a great deal about British political narrative that it so easily spread to include a problematisation of immigration in general. The fact that the term ‘hostile environment’ is not formally included in white papers nor in policy documents (Griffiths and Yeo, 2021) illustrates the potentially nebulous nature of the concept. Furthermore, an intersectionality of race and class is demonstrated in the fact that most of the Grenfell Tower fatalities were of minority ethnic people, and the way in which COVID-19 has disproportionately affected the Black and minoritised population (Otu et al, 2020; Nazroo and Becares, 2021).
With this in mind, it might be presumed that race and ethnicity are key elements within a discipline such as Social Policy, which has a rich history of studying and analysing inequality.
The previous chapter suggested that citizenship refers to a status which brings with it certain rights and duties. At its core, the conceptualisation of citizenship recognises Lewis's (1998: 104) suggestion of three relevant elements of citizenship intimately connected to social welfare provision:
1. citizenship provides a way of recognising the link between the state and the individual;
2. citizenship implies membership in a community, which in turn highlights inclusion and exclusion criteria; and
3. citizenship is a social status that allows people to make a claim against state services.
Furthermore, as noted in the previous chapter, it also incorporates the suggestion by Dean and Melrose (1999) that citizenship has been presented as a ‘totalising’ concept, often gender neutral, essentially universal and ahistorical. Citizenship, especially within the UK context, has developed a particular masculine, White, able-bodied and heterosexual assumption about citizens which obscures the broader diversity of citizens. While this chapter does not seek to be comprehensive in scope, it focuses on the tension between welfare provision and diverse citizens within the UK. As such, attention is given to the implicit, and often explicit, framing of citizenship within social policies, in order to problematise citizen interaction with state support and administration which follows in the later chapters. Complementing sources that contextualise broader philosophical debates (see Faulks, 2000; Lister, 2010, 2020; Dwyer, 2010; Edmiston, 2018), this chapter provides detail on the historical development of citizenship as a concept to underpin subsequent discussion in this book.
As such, this chapter sets out the emergence of imagined communities which have played a central role in the formation of citizenship and the limitations and rearticulations of citizenship which can be drawn out of theorisation and debate regarding citizenship. We give credence to Hoffman's (2004) suggestion that citizenship is a momentum concept: an ever-unfolding and ever-changing term that is reworked towards increasingly progressive ends. Illustrating the benefits of this momentum concept, subsequent chapters in this book draw out research insights across a diverse range of citizens’ engagement with various aspects of the welfare state.
Famously, at the start of the Communist Manifesto in 1848, Marx observed ‘all that is solid melts into air’. While many may criticise some elements of the Manifesto, or even disagree with the underpinning sentiments, few can argue with Marx's observation that our social, political and economic worlds are in constant change. It is tempting to think of welfare as having a monolithic permanence within our world that is ever-present and unchanging. However, this book further reinforces the fact that welfare is an ever-changing entity that is shaped by the political vagaries of governments and has at many times been used as a method of gaining political capital. In this respect, welfare has been shown to focus on meeting the needs we cannot meet ourselves, such as health, housing, social care and education. However, this also goes beyond the boundaries of personal benefits to also recognise the social benefits of welfare and the social outcomes of citizenship and inclusion.
Similarly, the book has demonstrated the changing nature of society and our social relations. We live in a time when there is increasing awareness of diversity within society, whether that be in terms of gender, sexuality, ‘race’, disability, lifestyle or heritage. This is not to say that such factors and choices are new, in fact quite the opposite. However, what is interesting about this book is that the themes covered reflect a post-industrial representation of diversity and, in doing so, a new canvas upon which economic and social exclusion are portrayed. We find ourselves in an age when such diversity is more recognised and, on the surface, more accepted. It is unlikely that this book would have been written in this way 20 or 30 years ago.
In recognising a post-industrial social diversity, the book has afforded an opportunity to pause and consider the extent to which such diversity is genuinely accepted, let alone celebrated. Contemporary Western society is often presented as one of equality and tolerance, implicitly inferring acceptance and even the legal protection of diversity. And yet, the preceding chapters have begun to challenge the reality of this assumption, a view that is supported in increasing levels of reported hate crime. With the annual data published each March, the number of hate crimes has increased from 42,225 in 2013 to 155,841 in 2022.
Citizenship is closely tied to welfare reforms, providing access to various protections and promoting a sense of unity, social justice and equality in order to enhance state welfare provisions. This establishes citizenship as a crucial element enabling individuals to claim protection from the state against collective harms, which are often rooted in industrialisation and societal changes. Citizenship has become an increasingly contested concept. The term can invoke a sense of belonging to a particular community, a particular society as an equal member, and entitlement to the rights and protections that come with being a ‘citizen’. It is associated with a system of legal, political and social practices that offer a series of rights, protections and forms of support and redress that can be, and often are, denied to noncitizens. It can also be considered as participatory, including the acts through which we claim citizenship status. Fundamentally, much welfare provision is predicated upon the status of being a citizen, the social rights this confers and the access to welfare support that ensues.
For the starting point of this book and its study of welfare, citizenship can be understood as a way of defining belonging and, by default, a way of defining the characteristics which shape inclusion and exclusion. Although Chapter 2 will examine the concept in more detail, for now the term can be considered crudely not only in terms of nationality, but also in more nuanced social terms of ‘playing by the rules’ and maintaining ‘British values’. As the discussion will demonstrate through the account of citizenship theory and substantive chapters, such a view of citizenship is limited and problematic. It incorporates implicit assumptions and biases through its universal framing. As such, the universal notion of citizenship which helped to justify state intervention through welfare support has been seen to erase the broader diversity that significantly shapes individuals’ lives and their access to welfare support (Bhambra, 2015: 102). Welfare policies have historically made assumptions about who should receive support, such as the role of women in the family and the exclusion of people of colour from emerging welfare provisions. Prevailing societal institutions have internalised and normalised conventions that disadvantage women and racial minorities, even if they are not explicitly codified in statutes (Meer, 2020: 11).
Relative to their typically developing peers, autistic individuals experience greater difficulties in domains of functioning that are relevant to learning and adult outcomes, such as sensory sensitivities, anxiety, and social. However, little is known about how difficulties in these domains relate to the receipt of special education services as well as adult outcomes, such as vocational achievement. The current study sought to fill this gap by examining if difficulties in various learning-related domains as ascertained via the Learning Needs Screening Tool (LNST) were associated with historical special education receipt and vocational status.
Participants and Methods:
400 autistic adults, recruited via the Simons Powering Autism Research (SPARK) participant registry Research Match service, participated in this study (40.5% male, mean age=28.9 years). All participants completed the LNST, which collects responses to 13 core questions about learning (such as challenges with memorization, note taking, spelling and identifying arithmetic signs), as well as 7 additional questions with checkbox and free response options, and yields a total score from 0-30. LNST item 14 and its response options (1-9) capture suspected causes of learning difficulties (e.g., 'too much noise or activity bothers me,' 'I get nervous taking tests'). These individual questions as well as the total of endorsed learning related challenges were then evaluated in relation to historical special education receipt (“yes” vs. “no”) and vocational outcomes (“yes” vs. “no” engaging in 10+ hours of postsecondary education or employment without supports), as assessed via the Taylor Vocational Index.
Results:
Logistic regression was utilized to predict the dependent variables of interest. Models included sex assigned at birth and age in the first step as covariates. Then either the total of learning related challenges endorsed or the 9 individual learning-related challenges from the LNST were included as independent variables of interest. For historical special education receipt, two items - “It’s hard for me to work by myself” (B = .78, p<.05) and “I get nervous taking tests” (B = .49, p<.05) were positively associated with a history of special education services. For vocational outcomes, the total learning related challenges (B = -.25, p<.001) as well as endorsement of one item -“It’s hard for me to work by myself” (B = -.88, p=<.05) were associated with poorer vocational outcomes.
Conclusions:
These findings shed light on the possible learning-related challenges that are experienced by autistic adults. Further examination of the role these learning related challenges play in the receipt of special education and on vocational outcomes is warranted. In particular, difficulties with independence in work was related to both special education receipt and poorer vocational outcomes, indicating that it may be a fruitful area of focus for vocational training programs.
Aortic dissection represents the most frequent aortic catastrophe with approximately 10,000 cases annually in the United States. Dissection occurs with a primary tear of the intimal layer of the aorta and then subsequent infiltration into the media layer, creating a false lumen that may extend the entire length of the aorta.
Propagation of the false lumen may result in obstruction of vascular branches of the aorta, leading to end organ hypoperfusion of the brain, heart, kidneys, spine or extremities.
The location of injury (i.e., ascending versus descending aorta) predicts mortality and guides management decisions.
With advances in care, an increasing number of individuals with single-ventricle CHD are surviving into adulthood. Partners of individuals with chronic illness have unique experiences and challenges. The goal of this pilot qualitative research study was to explore the lived experiences of partners of individuals with single-ventricle CHD.
Methods:
Partners of patients ≥18 years with single-ventricle CHD were recruited and participated in Experience Group sessions and 1:1 interviews. Experience Group sessions are lightly moderated groups that bring together individuals with similar circumstances to discuss their lived experiences, centreing them as the experts. Formal inductive qualitative coding was performed to identify salient themes.
Results:
Six partners of patients participated. Of these, four were males and four were married; all were partners of someone of the opposite sex. Themes identified included uncertainty about their partners’ future health and mortality, becoming a lay CHD specialist, balancing multiple roles, and providing positivity and optimism. Over time, they took on a role as advocates for their partners and as repositories of medical history to help navigate the health system. Despite the uncertainties, participants described championing positivity and optimism for the future.
Conclusions:
In this first-of-its-kind pilot study, partners of individuals with single-ventricle CHD expressed unique challenges and experiences in their lives. There is a tacit need to design strategies to help partners cope with those challenges. Further larger-scale research is required to better understand the experiences of this unique population.
The proposed national PrEP program would serve people who are uninsured as well as those enrolled in Medicaid. In this article, the authors propose a set of recommendations for the proposed program’s implementers as well as state Medicaid agencies and Medicaid managed care organizations to ensure PrEP access for people enrolled in Medicaid, addressing gaps without undermining the important role of the Medicaid program in covering and promoting PrEP.
The purpose of this document is to highlight practical recommendations to assist acute care hospitals to prioritize and implement strategies to prevent ventilator-associated pneumonia (VAP), ventilator-associated events (VAE), and non-ventilator hospital-acquired pneumonia (NV-HAP) in adults, children, and neonates. This document updates the Strategies to Prevent Ventilator-Associated Pneumonia in Acute Care Hospitals published in 2014. This expert guidance document is sponsored by the Society for Healthcare Epidemiology (SHEA), and is the product of a collaborative effort led by SHEA, the Infectious Diseases Society of America, the American Hospital Association, the Association for Professionals in Infection Control and Epidemiology, and The Joint Commission, with major contributions from representatives of a number of organizations and societies with content expertise.
Social Policy as an academic discipline has been at the forefront of many progressive movements in society, exploring problems of poverty, hardship, exclusion and suffering, government intervention, and the critical appraisal of those interventions. Yet it has been strangely silent on issues of sexual identity and gender identity and the inequities faced by the LGBTQ+ community. In this article we draw upon lesbian and gay studies, and queer studies, to, first, unpack how heteronormativity is reinforced in social policy in practice and in its analysis within Social Policy as a discipline. This illustrates how the family, as a core basis for welfare in societies, has meant that, reflexively, the base unit of analysis within Social Policy has been the heterosexual family, without a full interrogation of what this means for different groups. Second, we review the limited evidence available around the inequalities LGBTQ+ people face, primarily in the UK (and wider global North), highlighting how the years of oppression have made “counting” this group of people difficult within our usual survey instruments. Thus, while Social Policy has aimed to achieve a universal social citizenship for all, it has inadvertently remained silent on how to include LGBTQ+ in its analysis.