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Advocacy for Post-Intensive Care Syndrome (PICS) is a critical component of supporting the recovery of survivors of critical illness. Despite its importance, a shared understanding of PICS advocacy remains underrepresented in medical literature. This chapter defines PICS advocacy as an ethical commitment to patient- and caregiver-centered care, encompassing three key dimensions: supporting individuals living with PICS, promoting awareness and prevention within medical and lay communities, and advancing the science surrounding this condition. Current advocacy efforts occur across various levels, including local communities, national organizations, and global collaborations. Central to these efforts is awareness, facilitated by a growing array of educational resources such as books, podcasts, and websites. However, PICS advocacy can further benefit from large-scale public awareness campaigns modeled after successful initiatives by organizations like the American Heart Association and the American Cancer Society. These efforts could amplify public understanding and drive systemic change. Individuals are encouraged to take an active role in PICS advocacy, and this chapter offers practical strategies for engagement. By empowering individuals to champion PICS awareness and support, the healthcare community can foster a more inclusive approach to addressing this condition. Advocacy for PICS is not just a responsibility–it is an opportunity to transform care and improve outcomes for survivors and their families.
This systematic review and meta-analysis was a study that enquired into the prevalence and epidemiology of depression in university students in Pakistan, between 2000 and 2025. Depression is a significant global mental illness with high prevalence in young adulthood. University students are the most susceptible to this risk because of the factors related to it, i.e., academic stress, financial hardships, social pressure, and cultural stigma of mental illness. Although the concerns have been on the increase, the prevalence rates of depression have been widely varied among Pakistani students, with some studies reporting as low as 2.5% to as high as 85%, primarily because of the sampling techniques, assessment instruments, and geographical settings. The present review is based on the findings of 35 studies involving over 11,000 students and suggests that the prevalence rate is approximately 51% in a pooled form, meaning that about 50% of university students in Pakistan are subjected to depressive symptoms. The high level of heterogeneity of the selected studies highlights the acute necessity of the formulation of a standard-based diagnostic criteria and culturally competent mental health assessment instruments. Moreover, systemic challenges, such as the shortage of trained mental health professionals and the general unawareness of the disorder, are continuing to affect the diagnosis and treatment of the disorder at an early stage. According to the results, the necessity of a multi-faceted approach toward mental health, including the establishment of counseling facilities in universities, the development of stress management training, and the federal stigma-reduction campaign, is pressing. The most significant elements of enhancing the well-being of students and the mental health landscape of Pakistan as a whole are early intervention and empowering mental health infrastructure.
Emotionally or motivationally significant stimuli tend to attract, divert, or hold attention more readily than neutral stimuli. These effects arise during numerous tasks, varying as a function of stimulus type or emotional cue. Their neural substrates involve enhanced activity of sensory cortices under direct influence of emotional or reward processing systems, including the amygdala, in combination with other top-down or bottom-up biases that together serve to prioritize behaviorally relevant information for access to conscious awareness. Other indirect influences act through interactions of emotional and motivational systems, with cortical or subcortical networks controlling attention, including executive functions and neuromodulatory pathways. These data reveal that attentional processes encompass multiple biasing signals that can modulate stimulus processing, based not only on space or object representations, as traditionally considered, but also value-based representations. Such mechanisms of emotional attention or affect-driven biases may operate preattentively, involuntarily, or non-consciously, yet nonetheless be regulated by current goals or context.
For many philosophers, the mind-body problem has to be solved in order to explain consciousness. Consciousness can be described by levels of awareness and wakefulness. The evolution of consciousness in animals shows in which taxa of animals awareness and wakefulness have been reached at levels from absence of consciousness to levels similar to humans. The ontogeny of consciousness in human babies reproduces the evolution of consciousness in animals. Brain injury and disorders in humans can throw back consciousness to animal levels.
This paper, positioned within two universities’ contexts on design education, explores the critical role of awareness in co-design with individuals who have lived experiences. The study introduces a SkillsLab designed to prepare students for managing awkward moments during co-design sessions. A SkillsLab is an intensive learning activity combining hands-on practice, theoretical insights, and practical exercises to bridge the gap between theoretical knowledge on a topic and the real-life application of this knowledge in a project-based setting. The learning activity aims to enhance students’ confidence and skills in navigating awkward moments in co-design. The findings suggest that such educational interventions can significantly improve students’ preparedness for real-world co-design challenges, fostering a more inclusive and empathetic approach to design.
Chapter 11 summarises the arguments in the book. It concludes that, although the evidence is incomplete, there is little reason to believe that the severe disfigurement provision is inducing positive attitudinal or behavioural change, nor providing an effective remedy for people discriminated against because of the way they look. It concludes by noting that other social changes may bring this issue into sharper focus, and suggests some ways in which holes in the evidence could be filled.
Awareness is the quality of knowing and understanding that something is happening or exists. It means bringing conscious attention to whatever is arising, with as little judgement as possible. On a subconscious level, we respond to what is happening in the moment by applying existing information in our brains to the external event. This response is often habitual or unaware, as we tread well-worn grooves in our brains and follow heuristics which help us to manage the vast amount of information that comes our way every moment. These cognitive shortcuts can be helpful, but they can limit our understanding, undermine our confidence in new situations, and diminish the attention we pay to what our bodies and minds tell us. Deepening awareness involves developing mindfulness, which means paying careful attention to the present moment, simply and directly, rather than being distracted by thoughts, judgements, or interpretations. Traditionally, there are four components or foundations of mindfulness. This framework allows us to develop awareness of all aspects of our experience. These are: (a) mindfulness of the body; (b) mindfulness of feelings or feeling-tone; (c) mindfulness of states of mind or emotions, and (d) mindfulness of thoughts. This chapter offers exercises and guidance for developing deeper awareness and mindfulness in day-to-day life.
The purpose of this ‘Handbook of Compassion in Healthcare: A Practical Approach’ is to help make compassionate care a day-to-day clinical reality for everyone: patients, families, and healthcare professionals. We do not suggest that current health systems are entirely lacking in compassion. All around the world, clinical care is provided by staff who seek to be professional, compassionate, and patient-centered at all times. The very existence of health centres, doctors’ surgeries, outpatient clinics, acute hospitals, daycare centres, dental practices, physiotherapy centres, and many other healthcare facilities is a testament to basic human compassion, to society’s commitment to help the afflicted, and to our fundamental desire to support each other in times of difficulty. We care. At the same time, it is clear that healthcare settings vary widely in relation to compassion, with some already excelling in compassionate care, but others in need of a more conscious or sustained focus on compassion. Many services do well, but most could do better. Improvement is always possible. Health systems are operated by people, for people. Compassion matters deeply. Compassion can be the key value that improves services further and makes our fundamental caring impulses more apparent, more effective, and more human. Always and everywhere, compassion matters.
What is compassion? Although a fundamental value in healthcare, this concept is often misunderstood and difficult to navigate. The authors of this book aim to answer this fundamental question, as well as offer a practical approach to how to use it in medicine. Comprised of two parts, the first part of this book explores the background to compassionate healthcare, examines how it differs from other concepts and outlines its relationship to medical professionalism. The second part offers a practical guide full of strategies and exercises to assist healthcare workers in practicing compassion by cultivating mindfulness and awareness, deepening compassion in care. This book is essential reading for medical professionals and trainees across healthcare, providing a guide to incorporating compassion into daily practice to deliver better, more compassionate care for the benefit of all. This title is also available as open access on Cambridge Core.
Female genital schistosomiasis (FGS) is a chronic disease manifestation of the waterborne parasitic infection Schistosoma haematobium that affects up to 56 million women and girls, predominantly in sub-Saharan Africa. Starting from early childhood, this stigmatizing gynaecological condition is caused by the presence of Schistosoma eggs and associated toxins within the genital tract. Schistosoma haematobium typically causes debilitating urogenital symptoms, mostly as a consequence of inflammation, which includes bleeding, discharge and lower abdominal pelvic pain. Chronic complications of FGS include adverse sexual and reproductive health and rights outcomes such as infertility, ectopic pregnancy and miscarriage. FGS is associated with prevalent human immunodeficiency virus and may increase the susceptibility of women to high-risk human papillomavirus infection. Across SSA, and even in clinics outside endemic areas, the lack of awareness and available resources among both healthcare professionals and the public means FGS is underreported, misdiagnosed and inadequately treated. Several studies have highlighted research needs and priorities in FGS, including better training, accessible and accurate diagnostic tools, and treatment guidelines. On 6 September, 2024, LifeArc, the Global Schistosomiasis Alliance and partners from the BILGENSA Research Network (Genital Bilharzia in Southern Africa) convened a consultative, collaborative and translational workshop: ‘Female Genital Schistosomiasis: Translational Challenges and Opportunities’. Its ambition was to identify practical solutions that could address these research needs and drive appropriate actions towards progress in tackling FGS. Here, we present the outcomes of that workshop – a series of discrete translational actions to better galvanize the community and research funders.
After attempts to target national and international politics stalled, the network of groups concerned with fair trade regrouped around local activism. This chapter shows how paper was a crucial product to understand the strand of activism which emerged in the 1970s: it served as a medium for groups across Europe to keep in contact but was also the main carrier of information about the injustices the movement tried to address through distributing leaflets, posters, and books. Activism in many places was anchored by so-called world shops, which had first emerged in the Netherlands at the end of the 1960s as meeting places for activists with similar concerns. The model quickly spread throughout Europe, offering activists a way to come together around a diverse set of issues, which they first and foremost addressed in their own neighbourhoods. The chapter offers an alternative reading of 1970s activism, claiming that social activism did not subside but rather shifted towards local activities, which has been less visible to contemporary observers as well as historians.
To describe the frequency of prognostic awareness (PA) in a population of advanced cancer patients in a Latino community and to explore the relationship between accurate PA with emotional distress and other covariates.
Methods
In this cross-sectional study performed in Puente Alto, Chile, advanced cancer patients in palliative care completed a survey that included a single question to assess PA (Do you believe your cancer is curable? yes/no). Patients reporting that their cancer was not curable were considered as having accurate PA. Demographics, emotional distress, quality of life, and patient perception of treatment goals were also assessed. Analyses to explore associations between PA and patient variables were adjusted.
Results
A total of 201 patients were included in the analysis. Mean age was 65, 50% female. One hundred and three patients (51%) reported an accurate PA. In the univariate analysis, accurate PA was associated with not having a partner (p = 0.012), increased emotional distress (p = 0.013), depression (p = 0.003), and were less likely to report that the goal of the treatment was to get rid of the cancer (p < 0.001). In the multivariate analysis, patients with accurate PA had higher emotional distress or depression, were less likely to have a partner, and to report that the goal of the treatment was to get rid of the cancer.
Significance of results
Half of a population of Latino advanced cancer patients reported an accurate PA. Accurate PA was associated with increased emotional distress, which is similar to what has been reported in other countries. Weaknesses in prognostic disclosure by clinicians, local cultural factors, or higher motivation to seek prognostic information among distressed cancer patients could explain this association. Strategies to emotionally support patients when discussing prognostic information should be implemented.
This chapter explores the foundations of emotions from empirical research in neuroscience, biology, psychology, multiculturalism, and primatology. The phenomenon of emotional experience is depthless and ever complex. The reader learns to appreciate how social and emotional intelligences are necessary if one is to learn the nature of emotions. Cultural meanings, languages, and world paradigms may seek to define emotions. However, this chapter argues that by developing a multicultural humanistic psychology approach to understanding emotions, readers can appreciate their flowing nature that is not known by definition, but through relationship.
Since the 1950s, the United Nations (UN) has designated days (e.g., World Wetland Day), years (e.g., Year of the Gorilla) and decades (e.g., Decade on Biodiversity) with a commonly stated goal to raise awareness and funding for conservation-oriented initiatives, and these Days, Years and Decades of ‘…’ (hereafter ‘DYDOs’) continue. However, the effectiveness of these initiatives to achieve their stated objectives and to contribute to positive conservation outcomes is unclear. Here we used a binary analysis change model to evaluate the effectiveness of UN conservation-oriented DYDOs observed between 1974 and 2020. We also examined four case studies to understand the different strategies employed to meet specified conservation goals. We found that DYDOs apparently contributed to positive conservation outcomes when they were tied to social media campaigns and/or when they were strategically situated in current events or global discourse. Although the outcomes of DYDOs were varied, those with longer timescales and those that engaged local communities were more likely to be successful. We suggest that DYDO organizers should identify all possible paths of action through the lens of the change model outlined in this paper to strengthen the value and effectiveness of these initiatives in the future. Using this approach could help ensure that resources are used efficiently and effectively, and that initiatives yield positive conservation outcomes that benefit people and nature.
To investigate dispositional mindfulness (DM), interoceptive awareness (AI), and the occurrence of panic-agoraphobic spectrum signs and symptoms in a non-clinical population.
Methods
The study involved a general population sample (n = 141), aged between 18 and 40, evaluated with the Panic-Agoraphobic Spectrum Self-Report Lifetime Version (PAS-SR-LT), the Mindful Attention Awareness Scale (MAAS), and the Multidimensional Assessment of Interoceptive Awareness (MAIA). Instruments were administered with an online procedure (Microsoft Forms). The Bioethics Committee of the University of Pisa approved the study (protocol #0105635/2023).
Results
Panic-agoraphobic spectrum was detected in more than 50% of our sample (PAS-SR Total Score ≥ 35). According to the MAIA assessment, subjects who scored above the PAS-SR threshold were more afraid and less able to distract attention from their bodily sensations. A binary logistic regression analysis was performed to evaluate if MAIA and MAAS dimensions were able to predict the presence of a more severe panic-spectrum symptomatology. The PAS-SR cut-off score <35 versus ≥35 was adopted as the dependent variable. “Age” and “gender” (categorical), MAAS, and MAIA scores were inserted as covariates. MAAS “Total Score” (OR = .955; CI = .924–.988; p = .007), and MAIA “Not worrying” (OR = .826; CI = .707–.964; p = .016) predicted for a less relevant panic-agoraphobic spectrum phenomenology, resulting as “protective” factors.
Conclusions
Progression from interoceptive processing to mindful abilities to resilience against panic catastrophizing of bodily sensation is far from being clarified. However, our study provides information on a panic-agoraphobic spectrum phenotype characterized by low levels of mindful attitudes and less interoceptive abilities.
Awareness of courts has long been theorized to engender enhanced support for judicial independence, but this is a logic that works only under the best of circumstances. We argue that interbranch politics influences what aware citizens know and learn about their court, and we theorize how awareness interacts with individual-level and context-dependent factors to bolster public endorsement of judicial independence in previously unappreciated ways. We fielded surveys in the United States (US), Germany, Poland, and Hungary, countries which diverge in the extent to which the environments are hospitable or hostile to high courts, and whose publics vary greatly in both their awareness of courts and perceptions of executive influence with the judiciary. We suggest that in hospitable contexts, awareness correlates with support for judicial independence, but said association depends on perceptions of executive influence. In hostile contexts where executive interference is common, more aware citizens are more apt to perceive this meddling, and although it might undermine trust in the judicial authority, it does not diminish their demand for judicial independence. Together, these findings underscore that public awareness and support for judicial independence are greatly informed by the political environment in which high courts reside.
Is it possible to acquire a sensitivity to a regularity in language without intending to and without awareness of what it is? In this conceptual replication and extension of an earlier study (Williams, 2005) participants were trained on a semiartificial language in which determiner choice was dependent on noun animacy. Participants who did not report awareness or recognition of this rule were nevertheless above chance at selecting the correct determiner in novel contexts. However, further analyses based on trial-by-trial subjective judgments and item similarity statistics were consistent with the possibility that responses were based on conscious feelings of familiarity or analogy to trained items rather than unconscious knowledge of a semantic generalization. The results are discussed in terms of instance-based approaches to memory and language, and the implications for the concept of “learning without awareness” are considered.
To explore patients’ awareness levels of palliative care (PC) and how this awareness shapes their preferences regarding the timing and approach for discussing it.
Methods
The study, conducted at a prominent institution specializing in oncology care, enrolled women aged 18–75 years who had been diagnosed with breast cancer. Patients completed guiding questions: Do you know what PC is?, When is the most appropriate time and the most appropriate way to discuss PC?. The interviews were conducted exclusively via video call and were recorded, transcribed, and then deleted.
Results
The study involved 61 participants, averaging 49 years old. Almost half (47.5%) had completed high school. Qualitative data analysis revealed 9 thematic categories. Regarding the first question, 2 divergent categories emerged: care for life and threatening treatment. For the second question, opinions diverged into 4 categories: At an early stage, mid-course of the disease, as late as possible, and no time at all. For the third question, 3 categories emerged: communication and support, care setting and environment, and improving the PC experience.
Significance of Results
This study reveals diverse perspectives on patients’ awareness and preferences for discussing PC, challenging the misconception that it’s only for end-of-life (EOL) situations. Comprehending PC influences when and how patients discuss it. If tied solely to EOL scenarios, discussions may be delayed. Conversely, understanding its role in enhancing advance support encourages earlier conversations. Limited awareness might delay talks, while informed patients actively contribute to shared decision-making. Some patients prefered early involvement, others find mid-treatment discussions stress-relieving. Community support, quiet environments, and accessible resources, underscoring the importance of a calm, empathetic approach, emphasizing the importance of understanding its role in advance support and providing valuable implications for enhancing patient care practices, theories, and policies.
High-risk Human Papillomavirus (HPV) infections are a leading cause of cervical diseases among Han Chinese women of reproductive age. Despite studies like Mai et al. (2021) addressing HPV prevalence in Southern China, awareness remains low, especially in Southwest China. Our study addresses this gap.
Objective:
This hospital-based, retrospective study analyzes the prevalence of high-risk HPV and its association with cervical intraepithelial neoplasia (CIN) among Han Chinese women of reproductive age in Southwest China.
Methods:
Data were collected from 724 women undergoing routine health exams from December 2022 to April 2023. A total of 102 women with high-risk HPV infections were identified. A survey assessed HPV awareness, CIN incidence, and socio-demographic factors influencing awareness.
Results:
Of the 724 women, 102 (14.1%) were diagnosed with high-risk HPV, with HPV-16 being the most common subtype (22.5%). Awareness was significantly lower among unmarried women (OR: 6.632, p = 0.047), those with high school education or less (OR: 20.571, p = 0.003), and rural residents (OR: 19.483, p = 0.020). HPV-16 was detected in 54.55% of women with high-grade CIN.
Conclusion:
There is an urgent need for targeted education and HPV vaccination in Southwest China, particularly for women with lower education, rural residents, and older individuals. Subtype-specific strategies are essential for preventing and managing CIN.
In this chapter, we argue that differences in problem-solving experiences can be traced to differences in the activation of brain structures involved in the unconscious processing of information (what we refer to as “the backstage”). Scientists commonly distinguish between two major types of problem-solving experiences: via insight and via analysis. Three properties are often mentioned when describing how insight solutions differ from analytic solutions: (1) Solvers are unable to report much of the processing that leads to the solution which comes to mind in an off–on manner; (2) Solvers experience their solutions together with a feeling of pleasure and reward; (3) Solutions via insight feel correct and they actually are. This is captured by a distinctive response: the Aha! This chapter focuses on these three properties and argues that unconscious processes are important for problem-solving in general, but especially important for insight experiences because most of the processing that leads to the solution happens below awareness. It also argues that the positive affect associated with insight serves an adaptive function.