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Pediatric critical illness survival has soared in high-income countries while intensive care infrastructure is improving in lower- and middle-income countries. The framework of Post-Intensive Care Syndrome- pediatrics (PICS-p) encompasses new impairments in cognitive, emotional, physical, social, and family health of the critically ill child across the developmental span. Notably caregivers and siblings may additionally experience PICS-p as a result of their relationship with critically ill children. Single or multi-domain impairments occur in the face of pre-existing, ICU-based, and post-ICU risk factors and may be long-lasting and affect development. Prevention and treatment interventional evidence is growing but key knowledge gaps and validation trials are lacking.
Against a backdrop of rapidly expanding health artificial intelligence (AI) development, this paper examines how the European Union’s (EU) stringent digital regulations may incentivise the outsourcing of personal health data collection to low- and middle-income countries (LMICs), fuelling a new form of AI ethics dumping. Drawing on parallels with the historical offshoring of clinical trials, we argue that current EU instruments, such as the General Data Protection Regulation (GDPR), Artificial Intelligence Act (AI Act) and Medical Devices Regulation, impose robust internal safeguards but do not prevent the use of health data collected unethically beyond EU borders. This regulatory gap enables data colonialism, whereby commercial actors exploit weaker legal environments abroad without equitable benefit-sharing. Building on earlier EU responses to ethics dumping in clinical trials, we propose legal and policy pathways to prevent similar harms in the context of AI.
The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in different ways, and due to a lack of inherent authority, it can be dismissed by health professionals. Thus, drawing on individual interviews with organisation representatives, we explore the definitions and uses of as well as the ‘filters’ placed upon experiential knowledge. The analysis suggests that whilst experiential knowledge is seen as all-encompassing, practical and transformative, the organisations need to engage in actions that can tame experiential knowledge and try to balance between ensuring that the critical and authentic elements of experiential knowledge were not lost whilst retaining a position as collaborators in health care development processes.
After Dobbs v. Jackson Women’s Health Organization, the United States Supreme Court decision that overturned Roe v. Wade in 2022, OB/GYN residents’ access to abortion training, which is required in all accredited programs, has come under pressure. To receive the foundational training doctors in the field need, many residents in ban states travel to out-of-state programs where abortion is legal. But demand is high, travel for multiple weeks is expensive, and the capacity to train at host sites is limited.
Training by travel could have ripple effects for the quality of patient care. As the number of OB/GYNs continues to decrease, newly-trained providers will have different, and arguably diminished, skills in delivering not just elective but also medically necessary abortion care. And as exceptions for life and health become how legal, procedural terminations take place in one-third of the United States, there is no guarantee that the doctors in those states will feel comfortable providing that care.
This article explores the residency training provided today, providers’ and institutions’ navigation of abortion bans, and what changes in residency programs might mean for patient care in the coming years. Part I surveys the landscape of abortion law after Dobbs; even the strictest bans contemplate instances when abortion is medically required and legally permitted. Part II summarizes the pre- and post-Dobbs expectations for abortion training for OB/GYN residents, describing how graduate medical education has changed for residents in ban states. Part III assesses shorter and longer-term effects of a system that relies on travel and simulation (the use of models) or is out of compliance with national accreditation standards. Part IV concludes with potential paths forward that depend on state and national organizations supporting and funding the networks of health care professionals that facilitate training across the country.
This paper addresses the comprehensive regulation of artificial intelligence (“AI”) across its entire lifecycle in the health care sector. It builds on a proposal for a True Lifecycle Approach (“TLA”) to address governance gaps across three phases of AI and expands the framework with detailed practical insights for governing health care AI, drawing on pioneering examples from Qatar, Saudi Arabia, and the United Arab Emirates (“UAE”) as models for global implementation. Beginning with the research and development phase, it highlights the urgent need for robust guidelines and certification processes to ensure that AI technologies are developed in compliance with ethical and safety standards. Moving into the approval stage, the discussion explores how AI systems can be effectively regulated under existing medical device frameworks, emphasizing the need for tailored regulations that consider the unique challenges posed by AI. Finally, the paper delves into the deployment of AI in clinical practice, examining the gaps in current laws and the need for a coherent and consistent regulatory framework that can adapt to AI advancements. The paper argues that the existing legal structures are inadequate, often inconsistent, and fail to address the complexities of AI in health care. It argues for a broader regulatory approach focused on patient safety throughout the AI lifecycle.
The article introduces the special issue by mapping the field of pertinent scholarship and situating the articles with regard to the special angles and contributions they have to offer. As our five articles present case studies from Bulgaria and the GDR, both state socialist countries and their health care systems are portrayed here to provide context. The introduction locates each of the contributions and the overarching aims of the special issue within current scholarly discussions and demonstrates the issue’s innovative potential.
This chapter draws on original data on church activism in defense of democracy to test various theories of why churches engage in democratic activism. It demonstrates that churches with more involvement in providing education are more likely to speak out in defense of liberal democratic institutions in sub-Saharan Africa, independent of country-level or denominational trends. In contrast, the data provide limited support for alternative explanations.
Affordable access to quality health and care is generally recognised as a basic human need and one of the grand challenges society currently faces, especially in the wake of the COVID-19 pandemic. Unfortunately, the focus on public health is driving a predominantly human-centric approach to One Health initiatives. Furthermore, the concerted reliance on innovation and technology-driven solutions may exacerbate the problem. Without the appropriate legal and policy framework to incentivise and capture the social value of research and innovation, there is a risk the resulting solutions will fail to achieve the balance between animal, environment, and human health. This chapter presents a legally supported approach, informed by the intellectual property framework and the policy objectives of Responsible Research and Innovation (RRI) and Value-Based Health and Care (VBHC) principles, to support the implementation of a true One Health framework. This enables the development of legal tools that will give credibility, legitimacy, and accountability to the design, development, and implementation of a sustainable One Health framework through meaningful and inclusive societal engagement.
Voluntary firearm safety actions avoid Second Amendment scrutiny, but rely on individuals recognizing their own risks. This could be aided by a network of healthcare professionals that have received proper training and information about all available tools to help prevent firearm-related suicide attempts, and combining the trust of clinicians and firearm owners could represent an opportunity to inform and educate in a manner that will engage patients.
Since 2001, the world has encountered an increase in terrorist attacks on civilian targets, during which conventional as well as unconventional modalities are being used. Terrorist attacks put immediate strains on health care systems, whilst they may also directly threaten the safety of first responders, health care workers, and health care facilities.
Study Objective:
This scoping review aimed to systematically map the existing research on terrorist attacks targeting health care facilities, health care workers, and first responders, and to identify opportunities to improve future research and health care response to terrorist attacks.
Methods:
A scoping review was performed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) extension for scoping reviews. A systematic search for relevant literature was conducted through electronic databases including PubMed, Cochrane, and Embase. Inclusion and exclusion criteria were applied to check eligibility. Extracted data from the articles included the title, first author, year of publication, journal, study design, number of attacks, number of injured, number of fatalities, target type, and weapon modalities. Furthermore, methodological quality assessment was performed.
Results:
The initial search within three major databases yielded 4,656 articles, including 2,777, 1,843, and 36 articles from PubMed, Embase, and Cochrane Library, respectively. Finally, 11 studies were included, which were all database reviews.
Conclusions:
This scoping review included 11 studies focusing on terrorist attacks against health care facilities, health care workers, and first responders. Nearly all studies were exclusively based on the Global Terrorism Database (GTD). An increase of attacks on health care-related targets was consistently reported by all studies in this review, but there were significant discrepancies in reported outcomes. In order to improve counter-terrorism preparedness and the future protection of health care workers, counter-terrorism medicine (CTM) research may benefit from a more standardized and transparent approach to document and analyze terrorist attacks, as well as the inclusion of additional databases other than the GTD.
What does it mean to be a public Catholic institution in Canada? How does this Catholic identity evolve with the secularisation and diversification of society, and with the rising awareness of the complicated legacy of Catholicism and colonisation in Canada? This article explores those questions drawing on document analysis and interviews with staff working in Catholic health care. Taking a legal pluralist approach, it documents how Catholic health-care institutions navigate between transnational canon laws and ethics, and human rights law. Catholic health care is situated in a web of national and transnational legal regimes. We argue that this navigation takes different forms to adapt to societal changes, such as the authorization of Medical Assistance in Dying (MAiD). This article speaks directly to how Christianity continues to play a subtle, but still constant presence in Canadian Catholic hospitals, and debunks tropes that construct relationships between state and religion as one of clear separation.
This study investigated the factors influencing the mental health of rural doctors in Hebei Province, to provide a basis for improving the mental health of rural doctors and enhancing the level of primary health care.
Background:
The aim of this study was to understand the mental health of rural doctors in Hebei Province, identify the factors that influence it, and propose ways to improve their psychological status and the level of medical service of rural doctors.
Methods:
Rural doctors from 11 cities in Hebei Province were randomly selected, and their basic characteristics and mental health status were surveyed via a structured questionnaire and the Symptom Checklist-90 (SCL-90). The differences between the SCL-90 scores of rural doctors in Hebei Province and the Chinese population norm, as well as the proportion of doctors with mental health problems, were compared. Logistic regression was used to analyse the factors that affect the mental health of rural doctors.
Results:
A total of 2593 valid questionnaires were received. The results of the study revealed several findings: the younger the rural doctors, the greater the incidence of mental health problems (OR = 0.792); female rural doctors were more likely to experience mental health issues than their male counterparts (OR = 0.789); rural doctors with disabilities and chronic diseases faced a significantly greater risk of mental health problems compared to healthy rural doctors (OR = 2.268); rural doctors with longer working hours have a greater incidence of mental health problems; and rural doctors with higher education backgrounds have a higher prevalence of somatization (OR = 1.203).
Conclusion:
Rural doctors who are younger, male, have been in medical service longer, have a chronic illness or disability, and have a high degree of education are at greater risk of developing mental health problems. Attention should be given to the mental health of the rural doctor population to improve primary health care services.
For both developed and developing countries in the world, the twenty-first century will be marked by great challenges for healthcare systems. The overwhelming reason will be aging societies that will face an increase in multimorbid, chronic diseases which will include neurological diseases. The probability of surviving acute illness and the medical opportunities to prolong life in chronic-progressive disease will improve in future. As a result the numbers of neurological patients with respiratory impairment caused by prolonged, chronic or chronic-progressive life-threatening disease will increase. Minimizing dependency on life-supporting technologies and care, stabilizing vital functions, optimizing quality of life and participation and alleviating suffering are paramount goals for these patients. The therapeutic approach therefore must integrate intensive care, neurorespiratory care, rehabilitation and palliative care. Furthermore, patient-centered and family-oriented care, which covers the whole lifespan and bridges the gap between inpatient and outpatient care, is needed.
Individuals improvise around authoritarian control and government restrictions in everyday circumstances. By shifting the focus from gaining institutional access to meeting their needs, migrant workers make do and muddle through despite being relatively powerless vis-à-vis the Chinese state. Newcomers have devised strategies of survival to scrape together needs so that they can keep their jobs, save their disposable income, and attain medical treatment when necessary. At the individual level, they frequently rely on visiting illegal private health clinics or try to straddle the rural–urban divide. In community-based innovations, they negotiate with their employers to opt out of paying into social insurance schemes (and thereby run against the common notion that all outsiders want to be included) or craft small-scale, self-run insurance arrangements. These practices suggest that migrants have found ways to curtail some of the effects of social control, but notably it is mostly at the margins. The effects of political atomization are therefore muddled, and the state’s use of public service provision as a tool of social control largely remains intact.
Municipalities deflect demands for benefits instead of meeting them or denying them outright to resist and undermine elements of the central government’s urbanization strategy. This diffuse promise of phantom services operates at what is experienced by local officials and migrants as the person-by-person micro-level of provision. Urban authorities sometimes do so by establishing nearly impossible eligibility requirements or requiring paperwork that outsiders struggle to obtain. At times they also nudge migrants to seek health care or education elsewhere by enforcing dormant rules or by shutting down a locally available service provider. Local officials use these ploys for both political and practical reasons. Limiting access isolates and disempowers migrants and is cheaper than offering benefits. Phantom services are a consequence of the localization of the household registration system and a sign that new axes of inequality and gradations of second-class citizenship have emerged.
In the Dutch health care system of regulated competition, health insurers are assigned the crucial role of prudent purchasers and expected to critically contract providers based on the quality and prices of their services. Thus far, however, these organisations have struggled to fulfil this role. This study sheds new light on the purchasing behaviour of Dutch health insurers. We examine how insurers perceive the context in which the value-based purchasing of hospital care should take shape, and we draw on insights from institutional theory to frame our analysis. Our findings are based on a series of semi-structured interviews (n = 18) with employees and representatives of several insurer companies whose combined market shares add up to over 90 per cent of all premium payers. Our analysis highlights an environment in which market mechanisms are tangled up with historically rooted budgeting practices, where insurers are pressured to sustain rather than critique hospitals, and where self-regulating medical professionals are firmly supported by society’s deep-seated belief in the quality of their services. Like many other organisations, Dutch health insurers tend to conform to their institutional environment. While this conformity may aid them in organisational stability and survival, it also restricts their ability to purchase prudently.
Health care comprises a major segment of the US economy and is a critical influence upon citizens’ quality of life. The quality of health care and access to it are negatively affected by corruption. So too is citizen compliance with public health policies, a fact that became apparent during the COVID-19 pandemic. Stay-at-home orders, for example, were significantly less effective in states with more extensive corruption. Low levels of trust in government contributed to those disparities. Such effects are more pronounced in poorer areas and Black communities. Racial contrasts in vaccine equity – access to vaccinations and related services – were pronounced and, again, reflected levels of corruption. Particularly intractable problems of collective action posed by structural corruption and structural racism must be addressed if disparities in the quality of health care are to be reduced.
With society’s growing diversity, it is increasingly crucial to comprehend the care needs of older migrants with dementia and their informal carers. This study explores the experiences of informal carers of older migrants with dementia using professional care, focusing on the participants’ perceptions of whether the delivered professional care meets the needs of the informal carer and their family member with dementia. Purposive sampling identified 17 informal carers living in Belgium and caring for older first-generation labour migrants from Italian and Turkish backgrounds. In-depth interviews were conducted and inductive data were analysed using the Qualitative Analysis Guide of Leuven, a method inspired by the constant comparative method. The findings are presented through composite narrative vignettes. The data analysis revealed six predominant themes: (1) Informal carers are hoping for engagement from professional care providers, to create together a care alliance for the older person with dementia; (2) Informal carers experience cold substandard care provision from professional care providers towards their loved ones; (3) Informal carers need to feel a sense of home to be able to trust the professional care providers; (4) Informal carers experience culturally insensitive care practices by professional care providers; (5) Informal carers struggle with the responsibility of informal care-giving in the context of today’s world; (6) Informal carers experience the cumulative mental load of care-giving. Informal carers of older migrants with dementia face a cumulative mental burden through limited adapted-care options, cultural insensitivity in services, care-giving duties and additional tasks to bridge the professional care gaps.
Insurance coverage can indicate medical acceptance of procedures and products, as well as serve as a proxy for ethical views, social views, and employer views on appropriate health care. This is particularly the case in the realm of reproduction, especially in relation to assisted reproduction and abortion. First, the chapter will provide historical overview of the means in which innovative techniques have acquired “established” status, as indicated by health insurance coverage and for some techniques, the option to obtain federal research funds on the path to becoming established. Second, the chapter will explain the ways in which abortion has been treated differently by insurance plans, especially governmental insurance plans such as Medicaid, as well as Congressional appropriations riders, which have specifically prohibited federal employee health benefit plans from providing coverage for abortions. Third, the chapter will discuss existing state mandates for insurance coverage of fertility treatment with an emphasis on in vitro fertilization. The chapter will then move on to insurance coverage of egg freezing with an emphasis on what are seen as “employee perks” by large companies like Google and Facebook, whose early coverage of egg freezing was covered by the media. More recently, Walmart, Amazon, and a growing number of law firms have been adding egg freezing and in vitro fertilization to their health insurance coverage for employees. Insurance coverage can have a substantial role in normalizing a treatment, especially in the realm of reproductive innovation, and can constitute significant action especially when legislators are actively avoiding a topic.
How corrupt is the United States of America? While the US presents itself as an exemplar of democratic government and politics, many citizens see it as highly corrupt. In this book, Oguzhan Dincer and Michael Johnston explore corruption across a range of policy areas in all fifty states using two major forms of corruption – legal and illegal – via three proxy measures of corruption. They not only estimate the pervasiveness of such corruption in each state, but also compare and contrast their causes, consequences, and implications for contemporary issues including racial inequities, public health policy, and the environment, while also highlighting issues of citizen participation and trust in political processes. The book presents no reform toolkits or quick fixes for American corruption problems, but frames key challenges of institutional change and democratic political revival that can be used in the struggle to build a more just, and better-governed, society.