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The loneliness of me: The assumption of social disinterest and its worrying consequences in autism

Published online by Cambridge University Press:  23 July 2019

Rachel Louise Moseley Open the ORCID record for Rachel Louise Moseley [Opens in a new window]  and
Jie Sui
Rachel Louise Moseley
Affiliation:
Department of Psychology, University of Bournemouth, Poole, Dorset BH12 5BB, United Kingdom. rmoseley@bournemouth.ac.uk
Jie Sui
Affiliation:
Department of Psychology, University of Bath, Bath BA2 7AY, United Kingdom. j.sui@bath.ac.uk
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Abstract

We share Jaswal & Akhtar's concerns about the unintended repercussions of assumed social disinterest in autism. We expand consideration of these consequences with discussion of the literature and our own work on loneliness, mental ill-health, and self-representation, which is a cornerstone to social and emotional health. Further study is needed with expansive, mixed methodologies and involvement of the autistic community.

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Type
Open Peer Commentary
Information
Behavioral and Brain Sciences , Volume 42 , 2019 , e101
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Copyright
Copyright © Cambridge University Press 2019 

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References

Barg, F. K., Huss-Ashmore, R., Wittink, M. N., Murray, G. F., Bogner, H. R. & Gallo, J. J. (2006) A mixed-methods approach to understanding loneliness and depression in older adults. The Journals of Gerontology. Series B: Psychological Sciences and Social Sciences 61(6):S329–39. Available at: http://uq.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMw3V3Nb9MwFLemIU27IFYgDIbk0y6TqyROk_jAIaCxSlBNYquYuERJ7GzVujQk6UT_eni2kzhFPSDEiUMaxVEdfzy9D7_few8h6o5t8htPAEGTpFyAcAP1XzqfZNb1zHV8l4P80KUCzfHH3s__cuOjs9nih-BkpmpD11LP7KOm5luhLJ9XhYxGl7xOA5JbUKwCP17KGoogle Scholar
Bauminger, N. & Kasari, C. (2000) Loneliness and friendship in high-functioning children with autism. Child Development 71(2):447–56. Available at: http://doi.org/10.1111/1467-8624.00156Google Scholar
Bauminger, N., Solomon, M. & Rogers, S. J. (2010) Predicting friendship quality in autism spectrum disorders and typical development. Journal of Autism and Developmental Disorders 40(6):751–61. Available at: http://doi.org/10.1007/s10803-009-0928-8.Google Scholar
Cassidy, S. A., Bradley, L., Bowen, E. & Rodgers, J. (2018) Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review. Autism Research 11(5):738–54.Google Scholar
Causton-Theoharis, J., Ashby, C. & Cosier, M. (2009) Islands of loneliness: Exploring social interaction through the autobiographies of individuals with autism. Intellectual and Developmental Disabilities 47(2):84–96. Available at: http://doi.org/10.1352/1934-9556-47.2.84Google Scholar
Cusack, J., Shaw, S., Spiers, J. & Sterry, R. (2016) Personal tragedies, public crisis: The urgent need for a national response to early death in autism. Autistica website. Available at: https://www.autistica.org.uk/downloads/files/Personal-tragedies-public-crisis-ONLINE.pdf.Google Scholar
Deckers, A., Muris, P. & Roelofs, J. (2017) Being on your own or feeling lonely? Loneliness and other social variables in youths with autism spectrum disorders. Child Psychiatry and Human Development 48(5):828–39. Available at: http://doi.org/10.1007/s10578-016-0707-7Google Scholar
Gillespie-Smith, K., Ballantyne, C., Branigan, H., Turk, D. & Cunningham, S. (2018) The I in autism: Severity and social functioning in autism are related to self-processing. British Journal of Developmental Psychology 36:127–41.Google Scholar
Hedley, D., Uljarevic, M., Wilmot, M., Richdale, A. & Dissanayake, C. (2018) Understanding depression and thoughts of self-harm in autism: a potential mechanism involving loneliness. Research in Autism Spectrum Disorders 46:1–7.Google Scholar
Heidgerken, A. D., Geffken, G., Modi, A. & Frakey, L. (2005) A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders 35(3):323–30. Available at: http://doi.org/10.1007/s10803-005-3298-xGoogle Scholar
Hickey, A., Crabtree, J. & Stott, J. (2018) “Suddenly the first fifty years of my life made sense”: Experiences of older people with autism. Autism 22(3):357–67.Google Scholar
Lasgaard, M., Nielsen, A., Eriksen, M. E. & Goossens, L. (2010) Loneliness and social support in adolescent boys with autism spectrum disorders. Journal of Autism and Developmental Disorders 40(2):218–26. Available at: http://doi.org/10.1007/s10803-009-0851-z.Google Scholar
Lombardo, M. V. & Baron-Cohen, S. (2011) The role of the self in mindblindness in autism. Consciousness and Cognition 20:130–40. Available at: http://doi.org/10.1016/j.concog.2010.09.006Google Scholar
Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E. V., Kapp, S. K., Weiner, M. & Boisclair, W. C. (2015) “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism 19(7):824–31. Available at: http://doi.org/10.1177/1362361315576221.Google Scholar
Sui, J. & Gu, X. (2017) Self as object: Emerging trends in self research. Trends in Neurosciences 40(11):643–53. Available at: http://doi.org/10.1016/j.tins.2017.09.002.Google Scholar
Sui, J. & Humphreys, G. W. (2015) The integrative self: How self-reference integrates perception and memory. Trends in Cognitive Sciences 19(12):719–28. Available at: http://doi.org/10.1016/j.tics.2015.08.015Google Scholar
Zerbo, O., Massolo, M. L., Qian, Y. & Croen, L. A. (2015) A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders 45(12):4002–14. Available at: http://dx.doi.org/10.1007/s10803-015-2579-2.Google Scholar