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In Nairobi, water rights emerge not through legal recognition alone but through relationships with infrastructurally powerful actors. Residents must engage with specific individuals across institutional levels who control urban water distribution. This explains neighborhood disparities in water access and why some residents secure better supplies than others. The fragmentation of water control challenges traditional legal and normative frameworks of water rights. Understanding how rights are embedded in everyday socio-material relationships is crucial for comprehending how people establish water access and thereby concretize their right to water in practice.
The Court’s personal jurisdiction is governed by Article 34(1) of its Statute, limiting standing to states. Through an examination of the travaux preparatoires of this provision, it is revealed that while drafters considered granting individuals standing before the World Court, this was ultimately rejected due to reasons anchored in the traditional positivist doctrine. While scholars have long criticised Article 34(1) for being at odds with the role of the individual in the contemporary international legal order and called for its amendment, this chapter argues against this proposal due to the practical infeasibility with respect to Statute amendments, workload, jurisdiction, and legal interest. It argues instead that the Court may adjust its procedural mechanisms in a variety of contexts to circumvent its Article 34(1) and allow for the integration of concerned individuals in its proceedings to the best of its ability, where necessary or desirable.
In this Comment, I reflect on my personal experience in doing research at institutional archives as an early career historian. I discuss how my research has been shaped by encounters with physical and digital sources across Singapore, Malaysia, Hong Kong SAR and the United Kingdom. In doing so, I draw on the concept of ‘interim archives’ to emphasise the partial nature of primary sources in institutional archives, and the necessity for research to be multi-archival due not only to the realities of access, but also the need to incorporate diverse perspectives.
This chapter explores how common challenges facing long-term care systems across the world have given rise to common trends in the development of long-term care service delivery - a focus on improving integration, the shift from residential care to home- and community-based care, the growing role of the private sector in care provision and the emergence of digital technologies with transformative potential. Recent developments in five countries (Germany, Japan, Sweden, Norway, and Romania) are used to exemplify and distil overarching lessons for strengthening long-term care service delivery.
This chapter examines the challenges in measuring long-term care needs to determine eligibility and the impact of eligibility rules on access to care and wellbeing, focusing on European countries with established long-term care systems. Eligibility rules are crucial for identifying individuals with the greatest need and ensuring equitable resource distribution, yet defining these rules is challenging due to the lack of a universal approach to measuring health and social needs. Consequently, some individuals with functional or cognitive limitations may be inadequately supported or face high out-of-pocket costs, leading to reliance on informal care or unmet needs. This can reduce their independence and increase the risk of costly hospitalizations. The chapter advocates for expanding eligibility rules to improve coverage, equity, and efficiency, highlighting their role in increasing access to care, reducing poverty due to care costs, and enhancing wellbeing.
To report on the design and results of an innovative nurse practitioner (NP)-led specialist primary care service for children facing housing instability.
Background:
During 2017–2018, children aged 0–14 years represented 23% of the total population receiving support from specialist homeless services in Australia. The impact of housing instability on Australian children is considerable, resulting in disengagement from social institutions including health and education, and poorer physical and mental health outcomes across the lifespan. Current services fail to adequately address health and educational needs of children facing housing insecurity. Research identifies similar circumstances for children in other high-income countries. This paper outlines the design, and reports on results of, an innovative NP-led primary care service for children facing housing instability introduced into three not-for-profit faith-based services in one Australian state.
Methods:
Between 2019 and 2021, 66 children of parents experiencing housing instability received standardized health assessment and referral where appropriate by a NP. Data from the standardized tool, such as condition and severity, were recorded to determine common conditions. In addition, comprehensive case notes recorded by the NP were used to understand potential causes of conditions, and referral needs, including potential barriers.
Findings:
The 66 children assessed were aged between 7 weeks to 16 years. Developmental delay, low immunization rates, and dental caries were the most common conditions identified. Access to appropriate services was inhibited by cost, disengagement, and COVID-19.
Conclusion:
Given their advanced skills and knowledge, embedding NPs in specialist homeless services is advantageous to help vulnerable children.
Health technology assessment (HTA) agencies assess evidence to support decision making about which technologies to provide and pay for in the health system. HTA impact is understood as the influence that HTA report findings can have in the health system, including impacts on reimbursement decisions, changes to health outcomes, or broader system or societal impacts. The International Network of Agencies for Health Technology Assessment (INAHTA) is a global network of publicly funded HTA agencies. INAHTA’s mission, in part, is to advance the impact of HTA to support reimbursement decisions and the optimal use of health system resources. Each year, INAHTA awards the David Hailey Award for Best Impact Story to the member agency that shares the best story, as voted by fellow members, about HTA impact. The impact story sharing program in INAHTA contributes to a deeper understanding of what works well (or not so well) in achieving HTA impact. This paper provides six impact stories from agencies that were finalists for the 2021 and 2022 David Hailey Impact Award for Best Impact Story: the Institut national d’excellence en santé et en services sociaux, the Malaysian Health Technology Assessment Section, Ontario Health, the Center for Drug Evaluation, the National Institute for Health and Care Excellence, and Health Technology Wales. These stories demonstrate that HTA agencies can, in differing ways, effectively support governments in their efforts to place evidence at the centre of decision making.
This perspective article addresses the critical issue of equitable access to sustainable healthcare services for children with autism spectrum disorder (ASD). Despite the increasing prevalence of ASD globally, significant disparities persist in accessing appropriate healthcare services. The lack of comprehensive data on autism prevalence and incidence in many regions further exacerbates this challenge, hindering the development of targeted interventions and equitable resource allocation. This paper sheds light on barriers to equitable access, including geographical disparities, cultural stigma, communication barriers and inadequate training of healthcare providers. Strategies for achieving sustainable solutions are proposed, including the expansion of telehealth services, financial assistance programmes, competency training, community-based support programmes and investment in high-quality research. By addressing these challenges and implementing evidence-based interventions, we can work towards ensuring that all children with autism have access to the healthcare services they need for optimal development and well-being.
The primary objective of this study was to evaluate the feasibility and clinical impact of utilizing low-field portable MRI in a remote setting in Canada.
Methods:
This was a single-site prospective cohort study. An ultra-low-field (0.064 T) portable MRI was installed in Weeneebayko General Hospital, Moose Factory, Ontario. Adults presenting with any indication for neuroimaging between November 2021 and June 2023 were eligible for study inclusion. Clinical presentation, indication for imaging,and radiology report turnaround time were recorded. Images were evaluated for diagnostic quality, and radiology reports were analyzed to determine the diagnostic utility of ultra-low-field MRI.
Results:
An ultra-low-field portable MRI was successfully installed in a remote Canadian location. Fifty patients received a portable MRI scan. Comments on suboptimal image quality were made for 12 (24%) of the portable MRI examinations; however, only 2 (4%) of these were deemed nondiagnostic requiring conventional imaging for further evaluation. Clinically significant pathology was identified in 5 (10%) of the examinations.
Conclusion:
This first-of-its-kind study demonstrates the application of ultra-low-field portable MRI in a remote setting in Canada is feasible and offers clinical information that may help triage which patients require transfer to a center with conventional high-field MRI availability.
To assess the health technology assessment (HTA) process in Greece from its establishment in 2018 until 2023 in terms of timeliness and productivity.
Methods
Data were collected from the HTA Committee’s database and other publicly available sources. The overall study timeframe was divided into three periods: (i) July 2018–January 2020, (ii) January 2020–July 2021, and (iii) July 2021–February 2023.
Results
During the study period, a total of 1,157 applications for medicinal products (MPs) (including 219 new active substances (NAS) and orphans) were submitted to the HTA Committee. The number of HTA recommendations increased from 60 (first period) to 641 (third period), while the backlog of MPs pending HTA and price negotiations decreased from 89 and 106 (January 2020) to 8 and 44 (February 2023), respectively. The median time intervals for all application types decreased significantly over time. In February 2023, the median time for clinical data assessment of NAS (excluding orphans) almost halved from 207 days in the first period to 114 days; median times for NAS and orphans from regulatory approval to HTA application were 420 and 457 days, and from HTA application to reimbursement 228 and 417 days, respectively.
Conclusions
The performance of the HTA process in Greece improved significantly over time, with increased MP appraisals, backlog reduction, and decreased timelines. Delays in reimbursement of NAS were mainly caused by the long gap between regulatory approval and HTA application. Overall, HTA review times in Greece are now on par with that of well-established European HTA systems.
Maternity outcomes for women from certain ethnic groups are notably poor, partly owing to their not receiving treatment from services.
Aims
To explore barriers to access among Black and south Asian women with perinatal mental health problems who did not access perinatal mental health services and suggestions for improvements, and to map findings on to the perinatal care pathway.
Method
Semi-structured interviews were conducted in 2020 and 2021 in the UK. Data were analysed using the framework method.
Results
Twenty-three women were interviewed, and various barriers were identified, including limited awareness of services, fear of child removal, stigma and unresponsiveness of perinatal mental health services. Whereas most barriers were related to access, fear of child removal, remote appointments and mask-wearing during COVID-19 affected the whole pathway. Recommendations include service promotion, screening and enhanced cultural understanding.
Conclusions
Women in this study, an underrepresented population in published literature, face societal, cultural, organisational and individual barriers that affect different aspects of the perinatal pathway.
Little is known about socioeconomic equity in access to healthcare among people with eating disorders in Australia. This study aims to measure the extent of inequity in eating disorder-related healthcare utilization, analyze trends, and explore the sources of inequalities using New South Wales (NSW) administrative linked health data for 2005 to 2020.
Methods
Socioeconomic inequities were measured using concentration index approach, and decomposition analysis was conducted to explain the factors accounting for inequality. Healthcare utilization included: public inpatient admissions, private inpatient admissions, visits to public mental health outpatient clinics and emergency department visits, with three different measures (probability of visit, total and conditional number of visits) for each outcome.
Results
Private hospital admissions due to eating disorders were concentrated among individuals from higher socioeconomic status (SES) from 2005 to 2020. There was no significant inequity in the probability of public hospital admissions for the same period. Public outpatient visits were utilized more by people from lower SES from 2008 to 2020. Emergency department visits were equitable, but more utilized by those from lower SES in 2020.
Conclusions
Public hospital and emergency department services were equitably used by people with eating disorders in NSW, but individuals from high SES were more likely to be admitted to private hospitals for eating disorder care. Use of public hospital outpatient services was higher for those from lower SES. These findings can assist policymakers in understanding the equity of the healthcare system and developing programs to improve fairness in eating disorder-related healthcare in NSW.
In recent years, the movement of personnel from the public sector to interest groups has garnered considerable attention throughout Europe. Consequently, there has been an increased focus on the phenomenon of revolving door lobbyists within academic literature. This research contributes to this scholarly discussion by examining how the employment of such lobbyists facilitates access. We argue that interest groups gain advantages by recruiting individuals from the public sector in policy domains with limited mobilization, but this benefit decreases as more interest groups mobilize. Our analysis of survey data from seven European political systems supports these expectations, indicating that recruiting professionals with experience in the public sector enhances access, especially in policy areas with minimal lobbying activity. This highlights the potential for interest mobilization to counterbalance the advantages of hiring revolving door lobbyists.
In the United Kingdom (UK), racially-minoritised (non-White) people are more likely to have poorer health outcomes and greater difficulties with accessing healthcare (Dyer, 2019). People face individual and societal adversity that can affect their physical and mental wellbeing (Gibbons et al., 2012). There are clear mental health needs for racially-minoritised people, and we must go further in understanding the barriers to help to adequately meet the needs of diverse communities. The aim of this systematic review was to understand the barriers to accessing formal mental health support for racially-minoritised people within the UK. Qualitative empirical studies published between January 1970 to December 2020 were searched for using two databases: PsycINFO and Web of Science. Studies were searched for written in English, using a clinical or non-clinical population of adults with qualitative data collection and analysis methods. Database searches and reference mining gave a total of 283 studies, with 31 duplicates removed. Considering inclusion and exclusion criteria there were 15 final studies. A second researcher (S.O’H.) was used throughout, when selecting papers, quality assessment using the Critical Appraisal Skills Programme (CASP) checklist, coding and developing themes using thematic synthesis. The final four themes are ‘internal and external stigma’, ‘understanding of distress and coping’, ‘competence of professionals and services’ and ‘perception and accessibility’. There are various barriers making it harder for racially-minoritised people to access mental health support. Further research is needed with individual communities and action must be taken by commissioners, services, CBT practitioners, and others to eliminate barriers and improve mental health care.
Key learning aims
(1) To better understand the barriers to accessing mental health services, including Talking Therapies, for racially-minoritised communities.
(2) Low and high intensity CBT practitioners to better understand the factors that impact the wellbeing of racially-minoritised communities and how to better support different communities.
(3) Consider how to address these barriers to accessing support such as Talking Therapies services, with implications for practice and policy development.
This chapter examines the newly expanded and transformed theatre ecology enabled by the post-war rise of central government subsidy to the arts. It explores subsidy’s ambitions, achievements, and benefits, but also its turbulence and the ideological risks embedded in its deeply ambivalent objectives to foster elite arts but also democratise the arts. The chapter begins by giving a history of British theatre subsidy and considers its contribution to the development of theatre as one of Britain’s great cultural assets through its visionary promotion of such things as artists’ independence, the expansion of theatre infrastructure, and a conception of theatre as a civic right. The chapter then considers some of the hazards arising from how theatre subsidy has been practised by the Arts Council of Great Britain (and successor organisations), especially its tendency to reinforce elite privileges of metropolitanism, class, and whiteness. The chapter critiques the elitism of British arts subsidy’s legacy and proposes transformation of its practices to become more accountable, more democratic, and more dispersed, helping to make British theatre and culture more diverse and better informed by a greater variety of imaginations.
Edited by
Seth Davis, University of California, Berkeley School of Law,Thilo Kuntz, Heinrich-Heine-Universität Düsseldorf,Gregory Shaffer, Georgetown University Law Center, Washington DC
Peer-to-peer platforms such as Airbnb, Turo, TaskRabbit, Eatwith, and Uber are transnational market actors, generating millions of transactions, in multiple jurisdictions across the globe. These companies connect individuals and small businesses via online platforms and mediate transactions in the real, offline world between owners and renters, service providers and service recipients. Despite their clear importance and their market influence, the legal role of peer-to-peer platforms remains elusive. The emerging transnational legal order is a mixture of self-regulation and sporadic, concrete state or local regulation in several jurisdictions. I suggest thinking of platforms as transnational actors and offer a conceptualization of their legal role. Access platforms create and maintain a market with its own rules, conventions, and entry and exit points. To capture the role of platform as constituting a market, I rely on fiduciary law, an area of private law area concerned with power and vulnerability. This role creates duties toward the participants in this market. This duty explains why, for example, the platform should be responsible for the discriminatory actions of its participants. Other obligations include the duty to give prior notice before pulling out from an area of activity, and duty to create and maintain fair entry and exit rules.
Archaeologists seek to improve our understanding of the past by studying, preserving, protecting, and sharing nonreplaceable archaeological resources. Archaeological collections hold information that can assist these aims as long as they are properly cared for, identified, and accessible. One of the most serious barriers is the lack of large-scale coordinated efforts to make archaeological collections findable and accessible. This article suggests that developing and implementing the use of a standardized set of attributes regarding collections provides solutions and strategies to find collections. These attributes can connect and standardize existing archaeological collections from a variety of sources (federal and state agencies, CRM firms, Indigenous and descendant communities, and academic departments), serving the profession in multiple ways. Most critically, the baseline data can be synthesized to inform and direct priorities for future fieldwork, thereby decreasing redundancy in archaeological collections and improving curation efforts nationwide. Such efforts would also provide a resource to students and researchers looking to understand and interpret the past at multiple scales by encouraging more collections-based research and less archaeological site destruction. Access for descendant communities will also be improved with information about their cultural heritage. This, in turn, encourages transparency and collaboration between those communities and archaeologists.
Health technology assessment (HTA) programs inform decision making about the value and reimbursement of new and existing health technologies; however, they are under increasing pressure to demonstrate that they are a cost-effective use of finite healthcare resources themselves. The 2023 HTAi Global Policy Forum (GPF) discussed the value and impact of HTA, including how it is assessed and communicated, and how it could be enhanced in the future. This article summarizes the discussions held at the 2023 HTAi GPF, where the challenges and opportunities related to the value and impact of HTA were debated. Core themes and recommendations identified that defining the purpose of value and impact assessment is an essential first step prior to undertaking it, and that it can be done through the use and expansion of existing tools. Further work around aligning HTA programs with underlying societal values is needed to ensure the long-term value and impact of HTA. HTA could also have a role in assessing the efficiency of the wider health system by applying HTA methods or concepts to broader budgetary allocations and organizational aspects of health care. Stakeholders (particularly patients, industry, and clinicians but also payers, wider society, and the media) should ideally be actively engaged when undertaking the value and impact assessment of HTA. More concerted efforts in communicating the role and remit of HTA bodies would also help stakeholders to better understand the value and impact of HTA, which in turn could improve the implementation of HTA recommendations and application to future actions in the lifecycle of technologies.
Access describes factors that influence the initial contact or use of services, emphasising both the characteristics of patients and the health resources that influence the use of health services.
Aims
To compare Mexican boys and girls with mental disorders, with respect to primary diagnosis, symptom onset, and seeking and accessing specialised mental health services (SMHS).
Method
Longitudinal data were collected from primary caregiver-reported assessments of 397 child–caretaker dyads (child mean age 12.17 years, range 5–18 years, 63% male) that were obtained in two psychiatric hospitals specialising in child mental healthcare. Student t-tests and χ2-tests were applied to compare boys and girls regarding their diagnosis and variables associated with the seeking of and access to SMHS.
Results
Hyperkinetic disorder was the most prevalent diagnosis in boys, whereas depressive disorder and anxiety disorder were most prevalent in girls. The mean age at symptom onset for boys was 7 years, compared with 10 years for girls. Hyperkinetic disorder had the earliest symptom onset (mean 5.9 years), followed by depressive disorder (mean 9.8 years) and anxiety disorder (mean 12 years). Delayed access to SMHS was associated with initially seeking care from a psychologist, whereas quicker access was associated with affiliation with the (now defunct) Popular Insurance, a programme that served low-income and uninsured individuals.
Conclusions
Programmes aimed at children's mental health education and early intervention should consider gender- and diagnosis-related differences in symptom onset and trajectory. Access to SMHS might be improved by rapid identification by parents, educators, primary-care physicians and psychologists.
This chapter focuses on the everyday. It considers how responsibility for the everyday, quotidian care of cultural heritage is assumed or allocated and the form that this takes. It analyses how care is translated into access, preservation and care of collections and places and how risk is managed when access has the potential to harm the long-term future of cultural heritage. This chapter analyses the ways in which access and preservation are supported, through financial support as well as in statutory provisions; it analyses the duties of care placed on custodians of cultural heritage and the role played by standard-setting.