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To explore cancer patients’ understanding of Advance Care Planning (ACP) and identify the main barriers hindering its effective implementation in clinical practice.
Methods
This qualitative descriptive study included Brazilian women with breast cancer aged 18–75 years, all with preserved functional status, recruited by convenience sampling. Exclusion criteria were difficulty using online calls or significant communication impairment. Data collection involved a sociodemographic questionnaire and a follow-up interview. After receiving an informational brochure, participants were contacted by video call 14 days later and asked, “How do you understand what ACP is?” Interviews were conducted confidentially at home, transcribed, and analyzed according to qualitative research reporting guidelines.
Results
Sixty-one women participated. Most had difficulty understanding ACP; nearly 40% could not define it. Main barriers included cultural resistance to discussing death, reliance on family members or physicians for decision-making, and lack of clear information. Many participants confused ACP with preventive care. A conceptual multilevel model was developed, showing how cultural taboos, family dependence, and systemic inertia interact to sustain barriers through a feedback loop in which cultural avoidance reinforces structural gaps and institutional neglect.
Significance of results
This study provides evidence on how ACP is understood and misinterpreted by cancer patients in a middle-income Latin American setting, an area that remains underrepresented in the literature. By demonstrating that misconceptions, cultural taboos, and systemic barriers operate through a reinforcing multilevel process, the findings offer a conceptual framework that explains why ACP remains marginal in routine oncology care. The model highlights critical points for intervention, including patient education, professional communication, and institutional support, and is directly applicable to similar sociocultural contexts characterized by strong family involvement and biomedical dominance. These results have clear implications, supporting the integration of ACP as a proactive, relational, and value-based process rather than a late end-of-life intervention.
Generative artificial intelligence (GenAI) applications hold transformative potential for non-governmental organizations (NGOs) in addressing social issues. However, the integration of GenAI applications in NGOs is challenging due to the presence of several barriers. Contemporary research has not investigated barriers to GenAI adoption within the context of NGOs. Thus, this study aims to explore and prioritize these barriers to GenAI adoption in NGOs. Our study adopts a three-phase mixed methods research approach. First, GenAI adoption barriers were identified through a comprehensive review of extant literature. Second, a deductive approach was used to finalize the most relevant barriers in context of NGOs. Finally, these barriers were prioritized using a level-based weight assessment method. Results reveal fourteen barriers to GenAI adoption in NGOs. The key barriers include lack of awareness about benefits of GenAI, lack of trust in AI, inadequate training opportunities, limited digital infrastructure, and lack of technical expertise. These barriers reflect sociocultural and ethical challenges that prevent NGOs from realizing benefits of GenAI. Our study is one of the first to provide insights into GenAI adoption barriers among NGOs in India. Prioritization of these barriers provides a systematic approach to overcome them and improve NGOs’ efficiency. Findings highlight the need for a forward-thinking mindset duly supported by a bold and strategic approach to change management in order to promote the GenAI adoption in NGOs. Finally, the study contributes to limited literature on intersection of NGOs and GenAI and provides useful implications for practitioners and policymakers.
Despite volunteering being a feature of community life in the UK, differences as to who volunteers are evident. Reporting on a rapid review of the evidence on volunteering and inequalities, the aim of this paper is to provide an overview of the breadth and interconnectedness of barriers to volunteering for potentially disadvantaged groups. Sixty-seven articles were identified, to produce a map of factors affecting volunteer participation. Findings suggest that whilst different demographic groups experience specific barriers to volunteering, there are areas of commonality. Analysis shifts the onus of volunteering away from the level of individual choice (a dominant emphasis in policy and practical discussions around promoting volunteering) and towards the influence of structural factors related to broader exclusionary processes. Those who potentially have the most to gain from volunteering are the least likely to participate. Whilst the benefits of volunteering are increasingly documented by research and championed by policy, there are questions about the success of this approach given that the underlying social inequalities present substantive barriers to volunteering and must be addressed to promote greater access.
The health of migrants with type 2 diabetes has become a public health concern. Minority populations, including migrants, are often considered ‘hard-to-reach groups’ in clinical research, as researchers face challenges in engaging, accessing and retaining participants. Previous reviews have focused on either recruitment or retention, highlighting the need to gather experiences to obtain a more comprehensive picture for improving participation in research.
Aim:
To share lessons learned about the challenges of recruiting and implementing an intervention study including migrants with type 2 diabetes.
Methods:
This was a descriptive study, where researchers recorded experiences in reflective diaries and held discussions with the multi-professional teams involved. Data were analysed using Pawson’s conceptual framework, evaluating four dimensions of context: individual, interpersonal, institutional and infrastructural.
Findings:
The individual context concerns the time-consuming recruitment process since about half of the prospective participants did not want to participate, often due to illness, lack of time, the need to work, or having travelled abroad. In the interpersonal context, the main challenge was involving several professional groups; the greater the involvement, the less flexibility there was to meet expectations. The priorities in the institutional context were to provide care, with efficiency and productivity taking precedence over research. The infrastructural context was crucial due to a lack of staff available to support recruitment, the healthcare system’s burden caused by the pandemic, and the impact of laws and regulations in healthcare.
Conclusions:
Recruiting and implementing clinical research studies among migrant populations is complex. Factors across all contextual levels play a role, but the main challenges are within the institutional and infrastructural contexts. Changes in infrastructure influence institutional priorities, particularly with an already strained staff situation in primary healthcare. While political and social changes are difficult to alter, fostering positive attitudes towards research at the individual and interpersonal levels is important.
The weekly iron and folic acid supplementation (WIFAS) programme is a school-based initiative designed to reduce iron and folate deficiency anaemia among adolescent girls. In Ethiopia, donor-supported pilot programmes are implementing WIFAS in schools, but evaluations of its demand- and supply-side barriers and facilitators remain limited. This study aimed to explore these barriers and facilitators in the Sidama Region of Ethiopia. An exploratory qualitative study collected data from ten WIFAS-targeted schools using key informant interviews (KIIs) and focus group discussions (FGDs). Participants included purposively selected school directors, WIFAS-trained teachers, health centre heads, district health and education office nutrition focal points, and regional health and education bureau delegates. Ten FGDs were conducted with adolescent girls and their mothers. Thematic analysis was performed using Open Code software to identify emerging themes. This study identified low awareness of iron and folic acid (IFA) tablets, negative community perceptions, fear of side effects, supplementation interruptions due to school closures, and inadequate coverage as key barriers. Structural barriers included poor programme coordination, weak supply chain management, and water scarcity. Facilitators included free IFA tablet distribution, health extension workers’ involvement in awareness campaigns, positive testimonials, local leader support, training, and regular supervision. The WIFAS programme implemented in schools of the Sidama Region faces programmatic and structural barriers. However, facilitators like free IFA distribution, health extension worker involvement, and community support offer opportunities for improvement. These findings highlight the need for addressing barriers while leveraging existing facilitators for enhancing programme success.
This introductory chapter provides an overview of the land rights movement, drawing from the experience of the Yolngu peoples in northern Australia. This chapter identifies the different ways that land rights may be recognized. Each of these mechanisms has strengths and weaknesses, with a constitution being the most robust form of protection for land rights. However, the biggest challenge is in the implementation of land rights. Despite the challenges, Indigenous Peoples have successfully protected and reclaimed their lands under the ongoing force of dispossession, employing strategies such as direct action and litigation. Drawing from the contexts presented in this edited book, this chapter identifies the barriers to advancing land rights; the strategies to overcome these barriers and to support the reclamation of land; and identifies some of the opportunities to strengthen land rights moving forward.
This chapter and the next two focus on wh-movement and what it can tell us about locality. We look first at the basic properties of wh-movement, then at the evidence that this movement relation is apparently unbounded, followed by a discussion of the very important class of ‘island phenomena’, which lead to the conclusion that wh-movement is not in fact unbounded despite initial appearances. We next look at the subjacency condition, a condition intended to provide a unified account of island phenomena. Finally, we look at the theory of barriers, an important refinement of subjacency.
This study examines multilevel barriers to women’s participation and contribution to the process manufacturing industry in an emerging economy. We employed an exploratory multiple-case study approach, and 24 semi-structured interviews were conducted with senior corporate managers. Drawing on the behavioral reasoning theory, intellectual capital-based view, and institutional theory-based view, the findings highlighted several individual, organizational, sociocultural, infrastructure, and institutional barriers at micro, meso, and macro levels that inhibited female participation in the manufacturing sector. This study is one of the early empirical investigations to examine the obstacles hindering women’s contributions to the process manufacturing industry in an emerging country, applying three theoretical lenses – behavioral reasoning theory, intellectual capital-based view, and institutional theory-based view. Furthermore, the insights gained from the study contribute to the literature on diversity, equity, and inclusion in the operations management domain by developing a multilevel integrative model of barriers to women’s participation in the manufacturing sector.
A person-centered outcomes-based quality improvement program is lacking within palliative care in Mainland China. The well-established Australian Palliative Care Outcome Collaboration (PCOC) national model improves palliative care quality.
Objectives
This study aimed to explore the barriers and facilitators perceived by healthcare providers to integrating the PCOC model in a Chinese hospital-based palliative care unit.
Methods
A qualitative descriptive study was conducted using semi-structured focus group and individual interviews. A rapid deductive analysis approach was selected for data analysis. The Consolidated Framework for Implementation Research framework was used to guide the study design, data collection, analysis, and interpretation.
Results
Eighteen healthcare professionals participated in this study, four focus group interviews and five individual interviews were completed. Barriers to the PCOC integration included clinical application and workload concerns (patients in terminal stage, patients’ dialects, workload concerns, and staff shortages); attitudinal barriers (negative attitudes toward PCOC); psychological barriers (numbness to their work) and barriers related to knowledge and self-efficacy (lack of knowledge, capacity, and self-efficacy in palliative care). Facilitators included adapting the program to local contexts, ongoing education and feedback, effective PCOC data use, a supportive work and clinical environment and staff’s perceived advantages of the model across clinical, research and process domains.
Significance of Results
The successful integration of the PCOC program hinges on local adaptation, improved data utilization, education, and IT support. In regions with less developed palliative care, enhancing professionals’ knowledge and self-efficacy is crucial. Incorporating assessment and clinical response protocols into technology can accelerate palliative care development and implementation.
Clinical and translational research (CTR) plays a vital role in improving health outcomes, but its success relies heavily on institutional support, infrastructure, and workforce capacity. This study aimed to explore the barriers, needs, and facilitators to conducting CTR in Oklahoma, highlighting both the strengths and gaps within the research ecosystem.
Methods:
A sequential, descriptive mixed-methods design was employed, combining survey data (n = 164) with four qualitative focus groups (n = 23 total participants). The survey assessed research infrastructure, funding, and workforce needs, while the focus groups explored researchers’ lived experiences and institutional challenges. Mixed-methods meta-inference approaches, such as convergence, complementarity, and explanatory integration, were used to identify overlapping and distinct patterns across data strands.
Results:
Key barriers included lack of protected research time (23.9%), limited pilot funding (15.3%), and administrative hurdles such as IRB delays. Researchers expressed a strong need for centralized tools to support networking, scientific writing, and data access. Qualitative findings revealed additional needs, such as bridge funding and mentorship, not fully captured in the survey. Facilitators included Oklahoma Shared Clinical and Translational Resources (OSCTR)-supported professional development and mentoring programs, though participants noted a heavy reliance on OSCTR as the primary support source, with few decentralized alternatives.
Conclusions:
While CTR infrastructure in Oklahoma has expanded, critical gaps remain in mentorship, data access, and institutional support. To build a more resilient and inclusive research environment, stakeholders should consider investing in decentralized systems, bridge funding, structured mentorship, and collaborative tools tailored to the state’s rural, tribal, and academic diversity. These findings may inform policy and strategic planning in Oklahoma and other underserved regions aiming to strengthen CTR capacity.
CJ experienced mental health problems and trauma during childhood and adolescence. This was treated effectively with psychotherapy. He remembers being exuberant and outgoing. Then, at the age of twenty-one, he developed a severe depressive episode, feeling numb and emotionless, unable to taste anything. Due to the previous history, a diagnosis of personality disorder was suggested, resulting in a delay in starting ECT whilst an inpatient. Relapses followed, the first one in Brazil, where he was quickly offered ECT. Back in the UK, CJ found pervasive barriers to getting treated with ECT, especially maintenance ECT, which he asked for several times, having seen the effect of the acute courses. He had to first try various drug treatments. There was also hesitancy in receiving psychotherapy because it was felt that ECT may affect his ability to engage in therapy. CJ feels that the community team had been inadequately resourced, equipped and educated about ECT to properly support him as an outpatient. CJ finishes the story with a description of his ‘life on maintenance’, which did not stop him from starting studies on a degree and working part-time as a research assistant.
People with severe mental illness (SMI) are at greater risk of obesity, cardiovascular disease and diabetes than the general population, due to a higher prevalence of health risk behaviours. Research is needed to inform tailored interventions to improve the health behaviours (diet, physical activity and sleep) of people with SMI in South Asia as these behaviours are closely linked to obesity. The study aimed to explore the barriers and facilitators to healthy diet, physical activity and good sleep among individuals with SMI. A qualitative design was employed using photovoice, semi-structured interviews and focus group discussions. Participants included 16 people with SMI, 16 caregivers and 17 health professionals in Bangladesh and Pakistan. Data were analysed thematically, informed by the socio-ecological framework. A complex interplay of individual, familial and societal factors influenced these health behaviours. Individual factors include knowledge, beliefs and mental health limitations. Caregivers play a crucial role in influencing behaviour. At the societal level, gender expectations, financial constraints and religious influences significantly impact these behaviours. The insights from this research can inform tailored interventions for this vulnerable group and highlight the need for integrated services, financial support and improved urban planning.
What next for autistics in the academy? In this chapter participants reflect on their career aspirations: the roles they aspire to and their expectations as to whether they will achieve their career goals. For those goals that seem out of reach, this chapter tries to answer the question of whether the barriers are intrinsic to being autistic or are systemic and structural.
This chapter explores the bi-directional challenges of autistics in the academy. Many of the challenges experienced by autistic people in academia are similar to those experienced in other aspects of our lives – dealing with sensory challenges, different processing styles, social interaction, and communication. Other challenges that are inherent to academia include the breadth of activity, the performance and competitive aspects of the role, and complicated institutional politics.
This study aimed to explore health professionals’ use, barriers, confidence, and preferences for technology and smartphone apps to assist clients with self-managing low back pain (LBP).
Methods:
Prospective observational cross-sectional survey of registered Australian health professionals that managed clients with LBP.
Results:
In total, 52 survey responses were included (mean age 43 ±13.8 years). Most did not personally use healthy lifestyle apps (60%) and did not recommend apps due to a lack of knowledge of app effectiveness (93%). The largest barrier to recommending apps was the potential for apps to be misused as a substitute to health professional diagnosis. Fifteen recommended smartphone apps (mean age 36 ±10.6 years) and were at least moderately confident in choosing/recommending apps (94%) and assessing app quality (80%). Those more likely to recommend apps personally used apps for healthy lifestyle behaviours (odds ratio (OR) 5.1 (p = 0.009)) were physiotherapists (OR 0.13 (p = 0.035) c/f chiropractors in their profession for <10 years (OR 8.6 (p = 0.015)) c/f >30 years. Increasing age decreased the odds (OR 0.94 (p = 0.013)) of recommending apps.
Conclusions:
Health professionals do not recommend LBP self-management apps due to a lack of knowledge of their effectiveness. Those that do recommend apps are confident with app choice, recommendation, and app quality assessment. Physiotherapists with <10 years’ experience were most likely to recommend apps.
This chapter documents our experiences of pivoting research on sexual and gender minority youth towards an online protocol using digital methods. Digital diaries presented an opportunity to conduct virtual longitudinal qualitative research on how youth describe their experiences of living through the COVID-19 pandemic in Vancouver, Canada. Our digital diary process, supplemented with remote interviews, allowed us to capture shifting health-related patterns and trends, establish capacity to identify and explore unanticipated areas of inquiry, and evaluate participants’ impressions of the method itself. While going digital allowed us to overcome some immediate constraints to participation, it also introduced new uncertainties, including equity concerns and issues around consistent, secure and safe digital access for research participants. We describe how features of young people’s lives remain important factors associated with their ability to participate in digital and remote research. We offer solutions to the challenges and conclude that to counteract the inequities arising from the shift to digital methods, we need flexible, adaptive and population-tailored digital and remote approaches to data collection.
This cross-sectional study examined the barriers and facilitators that influence vegetarian menu choices in a university cafeteria in Geneva, Switzerland. As a first step, an online survey developed by the authors based on the Capability, Opportunity, and Motivation Behaviour (COM-B) model was e-mailed to all university students and staff. In the second step, focus groups (FG) were held to complete the survey responses and identify what needed to be changed to promote the choice of the vegetarian menu in the cafeteria. Data from 304 participants collected through the survey was analysed. The main mentioned barriers were lack of vegetarian options, tastelessness and insufficient satiation. The facilitators that emerged from the survey were the price of the vegetarian menu for students and health and environmental benefits. Thirteen people participated in four FG sessions, which were analysed using thematic analysis. Five themes were identified: spontaneous menu selection, predefined menu selection, influence of opportunity on menu selection, influence of environmental sensitivity on menu selection, and threat to identity in menu selection. The choice of a vegetarian menu in a university cafeteria was mainly influenced by the attractiveness and taste of the plate. Future strategies to reduce food-related greenhouse gas emissions should (a) ensure the quality and attractiveness of the vegetarian menu, especially to appeal to the more resistant, such as men and omnivores, and (b) inform consumers about the guarantee of balanced nutrient intake of the vegetarian menu offered in the cafeteria, and about health and environmental benefits.
Academic psychiatry is essential for advancing mental health understanding and treatments. However, women encounter more obstacles hindering their progress in academia than men. This Editorial aims to highlight these obstacles and propose strategies to address them, advocating for a more supportive environment for women psychiatrists’ ongoing growth and development. The importance of supportive environments, fair access to opportunities and structural changes, including initiatives for mentorship, funding and flexible work arrangements, are crucial. Collaboration among governments, institutions and organisations is needed to enhance research infrastructure and promote gender equality. Encouraging and recognising women's contributions in research fosters inclusivity and innovation. Prioritising these efforts is vital for the existence, well-being and success of women in academic psychiatry.
To understand young women’s views of cervical screening, what obstacles they face, and what encourages them when considering attending their cervical screening.
Background:
Cervical screening figures have been steadily decreasing in the United Kingdom (UK). There is limited research on this trend, especially around views and knowledge of young women, aged 20–24 years, have before they are eligible for cervical screening.
Methods:
This qualitative study conducted 15 semi-structured Zoom in-depth interviews to discuss young women’s knowledge and perceptions of cervical screening in 2022. Participants were based in the UK. Thematic analysis was used to systematically manage, analyse, and identify themes including cervical screening knowledge; perceptions of cervical screening; barriers to cervical screening; and facilitators of cervical screening.
Findings:
The findings demonstrate significant gaps in knowledge and negative perceptions of cervical screening. Barriers to attending cervical screening were perceived pain and embarrassment. Facilitators suggested to promote attendance were ensuring access to appointments, creating pop-up clinics, and utilising incentives. The level of knowledge demonstrated by the participants, their negatively framed perceptions; and the vast number of barriers identified present substantial factors that could affect future attendance to cervical screening. Overall, action needs to be taken to prevent decreasing cervical screening attendance rates and eradicate any barriers women may experience.
Maternity outcomes for women from certain ethnic groups are notably poor, partly owing to their not receiving treatment from services.
Aims
To explore barriers to access among Black and south Asian women with perinatal mental health problems who did not access perinatal mental health services and suggestions for improvements, and to map findings on to the perinatal care pathway.
Method
Semi-structured interviews were conducted in 2020 and 2021 in the UK. Data were analysed using the framework method.
Results
Twenty-three women were interviewed, and various barriers were identified, including limited awareness of services, fear of child removal, stigma and unresponsiveness of perinatal mental health services. Whereas most barriers were related to access, fear of child removal, remote appointments and mask-wearing during COVID-19 affected the whole pathway. Recommendations include service promotion, screening and enhanced cultural understanding.
Conclusions
Women in this study, an underrepresented population in published literature, face societal, cultural, organisational and individual barriers that affect different aspects of the perinatal pathway.