Recent highly publicized privacy breaches in healthcare and genomics research have led many to question whether current standards of data protection are adequate. Improvements in de-identification techniques, combined with pervasive data sharing, have increased the likelihood that external parties can track individuals across multiple databases. This article focuses on the communication of identifiability risks in the process of obtaining consent for donation and research. Most ethical discussions of identifiability risks have focused on the severity of the risk and how it might be mitigated, and what precisely is at stake in pervasive data sharing. However, there has been little discussion of whether and how to communicate the risk to potential donors. We review the ethical arguments behind favoring different types of risk communication in the consent process, and outline how identifiability concerns can be incorporated into either a detailed or a simplified method of communicating risks during the consent process.

Palliative care has had a long-standing commitment to teaching medical students and other medical professionals about pain management, communication, supporting patients in their decisions, and providing compassionate end-of-life care. Palliative care programs also have a critical role in helping patients understand medical conditions, and in supporting them in dealing with pain, fear of dying, and the experiences of the terminal phase of their lives. We applaud their efforts to provide that critical training and fully support their continued important work in meeting the needs of patients and families. Although we appreciate the contributions of palliative care services, we have noted a problem involving some palliative care professionals’ attitudes, methods of decisionmaking, and use of language. In this article we explain these problems by discussing two cases that we encountered.

Because the demand for intensive care unit (ICU) beds exceeds the supply in general, and because of the formidable costs of that level of care, clinicians face ethical issues when rationing this kind of care not only at the point of admission to the ICU, but also after the fact. Under what conditions—if any—may patients be denied admission to the ICU or removed after admission? One professional medical group has defended a rule of “first come, first served” in ICU admissions, and this approach has numerous moral considerations in its favor. We show, however, that admission to the ICU is not in and of itself guaranteed; we also show that as a matter of principle, it can be morally permissible to remove certain patients from the ICU, contrary to the idea that because they were admitted first, they are entitled to stay indefinitely through the point of recovery, death, or voluntary withdrawal. What remains necessary to help guide these kinds of decisions is the articulation of clear standards for discontinuing intensive care, and the articulation of these standards in a way consistent with not only fiduciary and legal duties that attach to clinical care but also with democratic decision making processes.

This article examines the implementation of the principles of openness, transparency and public participation in the decision-making regarding the conditions for uranium mining in Greenland from a legal and political perspective. The time frame covers the period from the exploration for minerals before World War II to 2016–2017 when the current Greenlandic authorities prepared a licence for a project of extraction of rare earth elements and uranium in Kvanefjeld. It is shown that the issue of openness, transparency and public participation in Greenland is a longstanding issue and that the current governance does not permit public access to a draft environmental impact assessment report, impairing public participation in decision-making, and preventing the environmental consequences of these activities from being considered as a public concern. It is argued that sovereignty–its consolidation and the accession to it–has impacted the design of governance in Greenland and that the constraints put on the full implementation of the legal principles of openness, transparency and public participation in the governance of uranium mining in Greenland, amongst other factors, point to a current hybrid political and legal order in the context of a political agenda of independence.

This section features original work on pathographies—i.e., (auto)biographical accounts of disease, illness, and disability—that provide narrative inquiry relating to the personal, existential, psychological, social, cultural, spiritual, political, and moral meanings of individual experience. Editors are: Nathan Carlin and Therese Jones. For submissions, contact Nathan Carlin at: Nathan.Carlin@uth.tmc.edu.

This paper discusses Pietro Gori’s charismatic leadership of the Italian anarchist movement at the turn of the nineteenth century and, in particular, the characteristics of his political communication. After a discussion of the literature on the topic, the first section examines Gramsci’s derogatory observations on the characteristics and success of the communicative style adopted by anarchist activists such as Gori. The second investigates the political project underpinning the kind of “organized anarchism” that Gori championed together with Malatesta. The third section unveils Gori’s communication strategy when promoting this project through those platforms considered by Gramsci as being primary schools of political alphabetization in liberal Italy: trials, funerals, commemorations, and celebrations. Particular attention is devoted to the trials, which effectively demonstrated Gori’s modern political skills. The analysis of Gori’s performance at the trials demonstrates Gramsci’s mistake in identifying Gori simply as one of the champions of political sentimentalism.

This study uses data from loanwords in Indonesian to argue for a phonological analysis using Harmonic Grammar (e.g. Smolensky & Legendre 2006, Pater, Bhatt & Potts 2007, Pater 2009). In original data consisting of Arabic and Dutch loanwords containing initial and final consonant clusters produced by 24 native speakers of Indonesian, we find both deletion and epenthesis to resolve word-final clusters, while word-initial clusters sometimes have epenthesis and sometimes are tolerated intact. The adaptations of Arabic and Dutch loanwords reveal the influence of three markedness constraints generally observed in Indonesian (*Complex Coda , *Complex Onset , and MinWord), and support a role for phonology in the analysis of borrowing, rather than a purely perceptual approach. When native monosyllables and borrowed monosyllables without clusters are considered, we find evidence that a standard Optimality Theory strict ranking is inadequate to account for the data; these constraints must be allowed to ‘gang up’, as in Harmonic Grammar, to account for the deletions, epenthesis, and non-adaptations found in the data.