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Chapter 11 summarises the arguments in the book. It concludes that, although the evidence is incomplete, there is little reason to believe that the severe disfigurement provision is inducing positive attitudinal or behavioural change, nor providing an effective remedy for people discriminated against because of the way they look. It concludes by noting that other social changes may bring this issue into sharper focus, and suggests some ways in which holes in the evidence could be filled.
Awareness is the quality of knowing and understanding that something is happening or exists. It means bringing conscious attention to whatever is arising, with as little judgement as possible. On a subconscious level, we respond to what is happening in the moment by applying existing information in our brains to the external event. This response is often habitual or unaware, as we tread well-worn grooves in our brains and follow heuristics which help us to manage the vast amount of information that comes our way every moment. These cognitive shortcuts can be helpful, but they can limit our understanding, undermine our confidence in new situations, and diminish the attention we pay to what our bodies and minds tell us. Deepening awareness involves developing mindfulness, which means paying careful attention to the present moment, simply and directly, rather than being distracted by thoughts, judgements, or interpretations. Traditionally, there are four components or foundations of mindfulness. This framework allows us to develop awareness of all aspects of our experience. These are: (a) mindfulness of the body; (b) mindfulness of feelings or feeling-tone; (c) mindfulness of states of mind or emotions, and (d) mindfulness of thoughts. This chapter offers exercises and guidance for developing deeper awareness and mindfulness in day-to-day life.
The purpose of this ‘Handbook of Compassion in Healthcare: A Practical Approach’ is to help make compassionate care a day-to-day clinical reality for everyone: patients, families, and healthcare professionals. We do not suggest that current health systems are entirely lacking in compassion. All around the world, clinical care is provided by staff who seek to be professional, compassionate, and patient-centered at all times. The very existence of health centres, doctors’ surgeries, outpatient clinics, acute hospitals, daycare centres, dental practices, physiotherapy centres, and many other healthcare facilities is a testament to basic human compassion, to society’s commitment to help the afflicted, and to our fundamental desire to support each other in times of difficulty. We care. At the same time, it is clear that healthcare settings vary widely in relation to compassion, with some already excelling in compassionate care, but others in need of a more conscious or sustained focus on compassion. Many services do well, but most could do better. Improvement is always possible. Health systems are operated by people, for people. Compassion matters deeply. Compassion can be the key value that improves services further and makes our fundamental caring impulses more apparent, more effective, and more human. Always and everywhere, compassion matters.
What is compassion? Although a fundamental value in healthcare, this concept is often misunderstood and difficult to navigate. The authors of this book aim to answer this fundamental question, as well as offer a practical approach to how to use it in medicine. Comprised of two parts, the first part of this book explores the background to compassionate healthcare, examines how it differs from other concepts and outlines its relationship to medical professionalism. The second part offers a practical guide full of strategies and exercises to assist healthcare workers in practicing compassion by cultivating mindfulness and awareness, deepening compassion in care. This book is essential reading for medical professionals and trainees across healthcare, providing a guide to incorporating compassion into daily practice to deliver better, more compassionate care for the benefit of all. This title is also available as open access on Cambridge Core.
Female genital schistosomiasis (FGS) is a chronic disease manifestation of the waterborne parasitic infection Schistosoma haematobium that affects up to 56 million women and girls, predominantly in sub-Saharan Africa. Starting from early childhood, this stigmatizing gynaecological condition is caused by the presence of Schistosoma eggs and associated toxins within the genital tract. Schistosoma haematobium typically causes debilitating urogenital symptoms, mostly as a consequence of inflammation, which includes bleeding, discharge and lower abdominal pelvic pain. Chronic complications of FGS include adverse sexual and reproductive health and rights outcomes such as infertility, ectopic pregnancy and miscarriage. FGS is associated with prevalent human immunodeficiency virus and may increase the susceptibility of women to high-risk human papillomavirus infection. Across SSA, and even in clinics outside endemic areas, the lack of awareness and available resources among both healthcare professionals and the public means FGS is underreported, misdiagnosed and inadequately treated. Several studies have highlighted research needs and priorities in FGS, including better training, accessible and accurate diagnostic tools, and treatment guidelines. On 6 September, 2024, LifeArc, the Global Schistosomiasis Alliance and partners from the BILGENSA Research Network (Genital Bilharzia in Southern Africa) convened a consultative, collaborative and translational workshop: ‘Female Genital Schistosomiasis: Translational Challenges and Opportunities’. Its ambition was to identify practical solutions that could address these research needs and drive appropriate actions towards progress in tackling FGS. Here, we present the outcomes of that workshop – a series of discrete translational actions to better galvanize the community and research funders.
After attempts to target national and international politics stalled, the network of groups concerned with fair trade regrouped around local activism. This chapter shows how paper was a crucial product to understand the strand of activism which emerged in the 1970s: it served as a medium for groups across Europe to keep in contact but was also the main carrier of information about the injustices the movement tried to address through distributing leaflets, posters, and books. Activism in many places was anchored by so-called world shops, which had first emerged in the Netherlands at the end of the 1960s as meeting places for activists with similar concerns. The model quickly spread throughout Europe, offering activists a way to come together around a diverse set of issues, which they first and foremost addressed in their own neighbourhoods. The chapter offers an alternative reading of 1970s activism, claiming that social activism did not subside but rather shifted towards local activities, which has been less visible to contemporary observers as well as historians.
To describe the frequency of prognostic awareness (PA) in a population of advanced cancer patients in a Latino community and to explore the relationship between accurate PA with emotional distress and other covariates.
Methods
In this cross-sectional study performed in Puente Alto, Chile, advanced cancer patients in palliative care completed a survey that included a single question to assess PA (Do you believe your cancer is curable? yes/no). Patients reporting that their cancer was not curable were considered as having accurate PA. Demographics, emotional distress, quality of life, and patient perception of treatment goals were also assessed. Analyses to explore associations between PA and patient variables were adjusted.
Results
A total of 201 patients were included in the analysis. Mean age was 65, 50% female. One hundred and three patients (51%) reported an accurate PA. In the univariate analysis, accurate PA was associated with not having a partner (p = 0.012), increased emotional distress (p = 0.013), depression (p = 0.003), and were less likely to report that the goal of the treatment was to get rid of the cancer (p < 0.001). In the multivariate analysis, patients with accurate PA had higher emotional distress or depression, were less likely to have a partner, and to report that the goal of the treatment was to get rid of the cancer.
Significance of results
Half of a population of Latino advanced cancer patients reported an accurate PA. Accurate PA was associated with increased emotional distress, which is similar to what has been reported in other countries. Weaknesses in prognostic disclosure by clinicians, local cultural factors, or higher motivation to seek prognostic information among distressed cancer patients could explain this association. Strategies to emotionally support patients when discussing prognostic information should be implemented.
This chapter explores the foundations of emotions from empirical research in neuroscience, biology, psychology, multiculturalism, and primatology. The phenomenon of emotional experience is depthless and ever complex. The reader learns to appreciate how social and emotional intelligences are necessary if one is to learn the nature of emotions. Cultural meanings, languages, and world paradigms may seek to define emotions. However, this chapter argues that by developing a multicultural humanistic psychology approach to understanding emotions, readers can appreciate their flowing nature that is not known by definition, but through relationship.
Since the 1950s, the United Nations (UN) has designated days (e.g., World Wetland Day), years (e.g., Year of the Gorilla) and decades (e.g., Decade on Biodiversity) with a commonly stated goal to raise awareness and funding for conservation-oriented initiatives, and these Days, Years and Decades of ‘…’ (hereafter ‘DYDOs’) continue. However, the effectiveness of these initiatives to achieve their stated objectives and to contribute to positive conservation outcomes is unclear. Here we used a binary analysis change model to evaluate the effectiveness of UN conservation-oriented DYDOs observed between 1974 and 2020. We also examined four case studies to understand the different strategies employed to meet specified conservation goals. We found that DYDOs apparently contributed to positive conservation outcomes when they were tied to social media campaigns and/or when they were strategically situated in current events or global discourse. Although the outcomes of DYDOs were varied, those with longer timescales and those that engaged local communities were more likely to be successful. We suggest that DYDO organizers should identify all possible paths of action through the lens of the change model outlined in this paper to strengthen the value and effectiveness of these initiatives in the future. Using this approach could help ensure that resources are used efficiently and effectively, and that initiatives yield positive conservation outcomes that benefit people and nature.
To investigate dispositional mindfulness (DM), interoceptive awareness (AI), and the occurrence of panic-agoraphobic spectrum signs and symptoms in a non-clinical population.
Methods
The study involved a general population sample (n = 141), aged between 18 and 40, evaluated with the Panic-Agoraphobic Spectrum Self-Report Lifetime Version (PAS-SR-LT), the Mindful Attention Awareness Scale (MAAS), and the Multidimensional Assessment of Interoceptive Awareness (MAIA). Instruments were administered with an online procedure (Microsoft Forms). The Bioethics Committee of the University of Pisa approved the study (protocol #0105635/2023).
Results
Panic-agoraphobic spectrum was detected in more than 50% of our sample (PAS-SR Total Score ≥ 35). According to the MAIA assessment, subjects who scored above the PAS-SR threshold were more afraid and less able to distract attention from their bodily sensations. A binary logistic regression analysis was performed to evaluate if MAIA and MAAS dimensions were able to predict the presence of a more severe panic-spectrum symptomatology. The PAS-SR cut-off score <35 versus ≥35 was adopted as the dependent variable. “Age” and “gender” (categorical), MAAS, and MAIA scores were inserted as covariates. MAAS “Total Score” (OR = .955; CI = .924–.988; p = .007), and MAIA “Not worrying” (OR = .826; CI = .707–.964; p = .016) predicted for a less relevant panic-agoraphobic spectrum phenomenology, resulting as “protective” factors.
Conclusions
Progression from interoceptive processing to mindful abilities to resilience against panic catastrophizing of bodily sensation is far from being clarified. However, our study provides information on a panic-agoraphobic spectrum phenotype characterized by low levels of mindful attitudes and less interoceptive abilities.
Awareness of courts has long been theorized to engender enhanced support for judicial independence, but this is a logic that works only under the best of circumstances. We argue that interbranch politics influences what aware citizens know and learn about their court, and we theorize how awareness interacts with individual-level and context-dependent factors to bolster public endorsement of judicial independence in previously unappreciated ways. We fielded surveys in the United States (US), Germany, Poland, and Hungary, countries which diverge in the extent to which the environments are hospitable or hostile to high courts, and whose publics vary greatly in both their awareness of courts and perceptions of executive influence with the judiciary. We suggest that in hospitable contexts, awareness correlates with support for judicial independence, but said association depends on perceptions of executive influence. In hostile contexts where executive interference is common, more aware citizens are more apt to perceive this meddling, and although it might undermine trust in the judicial authority, it does not diminish their demand for judicial independence. Together, these findings underscore that public awareness and support for judicial independence are greatly informed by the political environment in which high courts reside.
To explore patients’ awareness levels of palliative care (PC) and how this awareness shapes their preferences regarding the timing and approach for discussing it.
Methods
The study, conducted at a prominent institution specializing in oncology care, enrolled women aged 18–75 years who had been diagnosed with breast cancer. Patients completed guiding questions: Do you know what PC is?, When is the most appropriate time and the most appropriate way to discuss PC?. The interviews were conducted exclusively via video call and were recorded, transcribed, and then deleted.
Results
The study involved 61 participants, averaging 49 years old. Almost half (47.5%) had completed high school. Qualitative data analysis revealed 9 thematic categories. Regarding the first question, 2 divergent categories emerged: care for life and threatening treatment. For the second question, opinions diverged into 4 categories: At an early stage, mid-course of the disease, as late as possible, and no time at all. For the third question, 3 categories emerged: communication and support, care setting and environment, and improving the PC experience.
Significance of Results
This study reveals diverse perspectives on patients’ awareness and preferences for discussing PC, challenging the misconception that it’s only for end-of-life (EOL) situations. Comprehending PC influences when and how patients discuss it. If tied solely to EOL scenarios, discussions may be delayed. Conversely, understanding its role in enhancing advance support encourages earlier conversations. Limited awareness might delay talks, while informed patients actively contribute to shared decision-making. Some patients prefered early involvement, others find mid-treatment discussions stress-relieving. Community support, quiet environments, and accessible resources, underscoring the importance of a calm, empathetic approach, emphasizing the importance of understanding its role in advance support and providing valuable implications for enhancing patient care practices, theories, and policies.
High-risk Human Papillomavirus (HPV) infections are a leading cause of cervical diseases among Han Chinese women of reproductive age. Despite studies like Mai et al. (2021) addressing HPV prevalence in Southern China, awareness remains low, especially in Southwest China. Our study addresses this gap.
Objective:
This hospital-based, retrospective study analyzes the prevalence of high-risk HPV and its association with cervical intraepithelial neoplasia (CIN) among Han Chinese women of reproductive age in Southwest China.
Methods:
Data were collected from 724 women undergoing routine health exams from December 2022 to April 2023. A total of 102 women with high-risk HPV infections were identified. A survey assessed HPV awareness, CIN incidence, and socio-demographic factors influencing awareness.
Results:
Of the 724 women, 102 (14.1%) were diagnosed with high-risk HPV, with HPV-16 being the most common subtype (22.5%). Awareness was significantly lower among unmarried women (OR: 6.632, p = 0.047), those with high school education or less (OR: 20.571, p = 0.003), and rural residents (OR: 19.483, p = 0.020). HPV-16 was detected in 54.55% of women with high-grade CIN.
Conclusion:
There is an urgent need for targeted education and HPV vaccination in Southwest China, particularly for women with lower education, rural residents, and older individuals. Subtype-specific strategies are essential for preventing and managing CIN.
Is it possible to acquire a sensitivity to a regularity in language without intending to and without awareness of what it is? In this conceptual replication and extension of an earlier study (Williams, 2005) participants were trained on a semiartificial language in which determiner choice was dependent on noun animacy. Participants who did not report awareness or recognition of this rule were nevertheless above chance at selecting the correct determiner in novel contexts. However, further analyses based on trial-by-trial subjective judgments and item similarity statistics were consistent with the possibility that responses were based on conscious feelings of familiarity or analogy to trained items rather than unconscious knowledge of a semantic generalization. The results are discussed in terms of instance-based approaches to memory and language, and the implications for the concept of “learning without awareness” are considered.
In this chapter, we argue that differences in problem-solving experiences can be traced to differences in the activation of brain structures involved in the unconscious processing of information (what we refer to as “the backstage”). Scientists commonly distinguish between two major types of problem-solving experiences: via insight and via analysis. Three properties are often mentioned when describing how insight solutions differ from analytic solutions: (1) Solvers are unable to report much of the processing that leads to the solution which comes to mind in an off–on manner; (2) Solvers experience their solutions together with a feeling of pleasure and reward; (3) Solutions via insight feel correct and they actually are. This is captured by a distinctive response: the Aha! This chapter focuses on these three properties and argues that unconscious processes are important for problem-solving in general, but especially important for insight experiences because most of the processing that leads to the solution happens below awareness. It also argues that the positive affect associated with insight serves an adaptive function.
Poor menstrual health literacy is a factor that contributes to females not seeking medical help for abnormal menstrual symptoms that may impact their mental, social, and physical health(1). Few studies have focused on testing baseline functional knowledge of the menstrual cycle (MC) outside the context of pregnancy and menopause. The primary objective of this study was to investigate MC knowledge levels of physically active females residing in New Zealand. A secondary objective was to understand where females get their MC information from, what sources they consider to be trustworthy and what information on the MC they would like to know more about. A MC knowledge questionnaire was developed by the research team (n = 3), and reviewed by academics (n = 4), medical experts (n = 4), sporting organisation staff (n = 5), and target population (n = 10) to ensure content validity. Active females (n = 203) between the ages of 16-40 years completed an online questionnaire. The questionnaire included a total of 25 knowledge questions and was split into four categories: menstrual cycle (Q = 9), menstruation (Q = 7), symptoms (Q = 5), and health outcomes (Q = 6). Responses (single and multiple answer multi-choice questions) were analysed using descriptive statistics which were presented as mean, SD and frequency (%). The overall knowledge score was 51.8% (22.8 ± 3.4). The highest knowledge scores were noted for symptoms (80.5%), followed by menstruation (79.8%), and the menstrual cycle (64.2%). Females scored poorly when asked about health outcomes related to the MC (20.4%). 61.5% of participants (n = 123) identified the internet as their main source of MC information. Friends (n = 82, 41%), school sex education (n = 73, 36.5%) and social media (n = 73, 36.5%) were the next most common sources of MC information. The most trustworthy sources of information were doctors/GPs (n = 96, 48%) and healthcare professionals (n = 70, 35%). The most common topics that females wanted to know more about were diet and the MC (n = 115, 57.5%), training and the MC (n = 115, 57.5%), MC tracking (n = 78, 39%), MC and mood (n = 75, 37.5%) and RED-S/LEA/Female athlete triad (n = 71, 35.5%). Overall functional knowledge levels of the MC and associated health outcomes is low in active females. Healthcare professionals and doctors are the most trustworthy sources of information; however, they are not the most common sources of information that females will engage with. Developing online educational resources on the MC, associated health outcomes and lifestyle factors (diet, physical activity) with medical and healthcare professionals may be considered in future female health education.
Chapter 7 discusses liminality from a pragmatic point of view. All interactionally complex rituals take the participants through a threshold to some degree, in that the rights and obligations and related conventions of pragmatic behaviour holding for rituals tend to differ from their counterparts in ‘ordinary’ life. Yet, it is relevant to study fully-fledged liminal rituals with a sense of irreversibility. For example, ritual public apologies are liminal in the fully-fledged sense because the person who realises such ritual apologies passes a threshold with no return. Liminal rituals come together with strong metapragmatic awareness: if the moral order and the related frame of the ritual are violated, both the participants and the observers tend to become alerted and engage in intensive metapragmatic reflections. Chapter 7 will present a case study focusing on the liminal rite of workplace dismissal. Such dismissals represent typical liminal rituals in the very sense of the word: they change the life of the recipient and as such they are very meaningful and irreversible. Because of this, perceived ‘errors’ in the realisation of this ritual tends to trigger particularly intensive metapragmatic reflections and evaluations.
La qualité des soins apportés aux personnes vivant avec la maladie d’Alzheimer (MA) dépend en partie de la capacité des professionnels à déterminer le degré de conscience de la maladie chez les patients. La présente recherche s’est intéressée aux représentations des soignants concernant la conscience des troubles chez les résidents d’établissements de soins de longue durée présentant un diagnostic de MA. Le pouvoir prédicteur de l’anosognosie sur le fardeau soignant a également été examiné. L’anosognosie des troubles de la construction (r = 0,40, p = 0,0164) et de l’initiation (r = 0,32, p = 0,052) était corrélée au fardeau soignant. Les professionnels se représentaient les résidents comme ayant une conscience altérée de leurs capacités, même en l’absence d’anosognosie. Les scores réels d’anosognosie ne prédisaient pas les estimations soignantes, hormis le score global sous forme de tendance (χ2 = 3,38, p = 0,066). Les soignants surestimaient pourtant les performances cognitives des résidents, telles que mesurées au moyen du protocole Misawareness (prédictions aidants/performances réelles : DC = 12,32, p < 0,0001).
To determine the level of awareness of health technology assessment (HTA) and its predictors among clinical year medical students in public universities in Klang Valley, Malaysia.
Methods
A cross-sectional study using the stratified random sampling method was conducted among clinical year medical students in four public universities in Klang Valley, Malaysia. Data on the level of awareness of HTA and its associated factors were collected using a self-administered online questionnaire. Descriptive, bivariate, and multivariate analyses were performed using IBM SPSS version 27 to determine the level of awareness of HTA and its predictors.
Results
Majority (69 percent) of participants had a low level of awareness of HTA. The predictors of high-level awareness of HTA were attitude toward HTA (adjusted odds ratio (AOR) = 7.417, 95 percent confidence interval (CI): 3.491, 15.758), peer interaction on HTA (AOR = 0.320, 95 percent CI: 0.115, 0.888), and previous training on HTA (AOR = 4.849, 95 percent CI: 1.096, 21.444).
Conclusions
Most future doctors in public universities exhibit a low awareness of HTA. This study highlights the interplay between attitudes toward HTA, peer interaction, and previous training as influential predictors of HTA awareness. An integrated and comprehensive educational approach is recommended to cultivate a positive attitude and harness the positive aspects of peer interaction while mitigating the potential negative impact of misconceptions. Emphasizing early exposure to HTA concepts through structured programs is crucial for empowering the upcoming generation of healthcare professionals, enabling them to navigate HTA complexities and contribute to evidence-based healthcare practices in Malaysia and beyond.
Chapter 2 builds a comprehensive framework explaining how nondemocracies use participatory technologies to shore up their regimes. The chapter argues that participatory technologies act as a means of information gathering and dissemination and mitigate principal–agent problems. Moreover, the chapter details how participatory technologies can strengthen legitimacy – and who is most likely to buy into them.