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Despite the urgent need for support interventions for families facing parental life-threatening illness, research is limited – particularly in progressive neurological diseases. This scoping review aimed to systematically map existing interventions to inform the development of tailored support in the neurological context.
Methods
A scoping review was conducted, including articles published between 2013 and 2025, identified through searches in PubMed, CINAHL, PsycINFO, and Web of Science, along with manual screening of reference lists. Extracted data were systematically charted and descriptively summarized.
Results
Of 5172 articles, 15 were included, describing 6 unique interventions aimed at supporting children (0–25 years) and/or parents in families where a parent had a life-threatening illness. While cancer was the predominant diagnosis among ill parents, progressive neurological diseases, such as amyotrophic lateral sclerosis (ALS) and Huntington’s disease, were represented to a limited extent. The interventions targeted children (n = 4), parents in their parenting role (n = 4), or the entire family (n = 7) and were primarily based on psychosocial, psychoeducational, or peer support. Overall, the interventions were positively received by both children and parents and perceived as helpful in navigating their challenging life situations in various ways.
Significance of results
This review confirms a particular lack of knowledge and tailored support for families affected by progressive neurological diseases. While support interventions for other life-threatening illnesses are also limited, those that exist may offer valuable insights to inform the development of support within neurological care contexts. The findings underscore the need for early, proactive, and accessible approaches that address both individual and family needs across the disease trajectory, aligning with core principles of high-quality palliative care.
Cooperatives are built on principles of democracy and equity, yet women continue to be underrepresented in their governance structures. This Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) scoping review synthesizes 25 peer-reviewed empirical studies on factors enabling or hindering women’s participation in cooperative boards. Across studies, individual enablers include qualifications, prior performance, and collaborative leadership, whereas stereotypes, heightened expectations to overperform, and internalized bias constrain access and legitimacy. Organizational enablers include inclusive recruitment, mentoring, and flexible arrangements; barriers include male-dominated cultures, restrictive bylaws, and informal networks. At the environmental level, quota legislation, training initiatives, and support networks can foster change, but weak enforcement and entrenched social norms often limit impact. Anchored in a Justice, Equity, Diversity, and Inclusion (JEDI) lens, the review argues that advancing gender diversity requires structural and cultural reforms beyond “fix-the-women” approaches, and offers implications for cooperative leaders and policymakers. These insights support efforts to align cooperative governance with SDGs 5, 10, and 16.
The rapid evolution of digital health technologies (DHTs) presents distinct challenges for health technology assessment (HTA). Existing HTA frameworks, largely designed for conventional health interventions, may not sufficiently address these unique complexities. This scoping review provides an overview of existing assessment frameworks for DHTs, analyzing their purpose and the guidance they offer within the domains of the EUnetHTA Core Model.
Methods
The review followed the Joanna Briggs Institute methodology and PRISMA-ScR guidelines. The literature was identified through searches in PubMed and Embase, covering publications from 2015 to 2024 in English or German, and was complemented by a manual hand search. The studies were screened and analyzed using Covidence, with data categorized inductively based on the EUnetHTA Core Model domains.
Results
Of 3,576 screened records, 15 met inclusion criteria; an additional 45 frameworks were identified through hand searching, resulting in a total of 60 frameworks. Most frameworks focused on digital health applications (68 percent), while only a few addressed technologies such as artificial intelligence (2 percent). The frameworks primarily provide guidance on assessment, with varying focus on evidence requirements. The domains of the EUnetHTA Core Model were variably represented across the frameworks. Technical characteristics were most frequently addressed, while ethical, legal, and organizational domains received limited attention.
Conclusions
This review highlights the diversity of existing frameworks for DHT assessment. This emphasizes the potential relevance of a future standardized framework that contains explanations of the methodological approach to the assessment of DHTs and is modularly customizable depending on the type of technology.
This study aimed to examine how food processing is addressed within indices/tools used to assess healthy and sustainable diets.
Design:
A scoping review was conducted following the PRISMA-ScR protocol. Peer-reviewed studies developing or applying indices/tools for assessing sustainable diets were included. Two independent reviewers performed the selection, with disagreements resolved by discussion, and, when necessary, a third reviewer was consulted to reach a consensus.
Setting:
The review included studies published in English, Portuguese or Spanish, without time restrictions and indexed in PubMed, Scopus, Web of Science and SciELO databases.
Participants:
A total of fifty-seven studies about sustainable diets were analysed.
Results:
Most studies showed significant gaps in addressing food processing and other food system components when assessing sustainable diets. The majority of studies were conducted in recent years and primarily in high-income countries, and while environmental and health dimensions of sustainability are widely explored, economic and sociocultural dimensions remain underrepresented.
Conclusions:
The assessment of diet sustainability remains incomplete without accounting for the role of food processing and the broader food system. There is a need for comprehensive methodologies that integrate all sustainability dimensions while also considering local contexts, particularly in low- and middle-income countries.
Generalized anxiety disorder (GAD) is characterized by persistent worry and physical symptoms, with prevalence estimates ranging from 0.8% to 8%. Researchers utilize various tools, such as standardized diagnostic interviews and self-report questionnaires, to estimate GAD prevalence in population-level studies. However, the diagnostic accuracy of these tools varies greatly. This scoping review aimed to identify the tools used for GAD prevalence estimation and assess the extent to which diagnostic tool accuracy is reported.
Methods
A systematic search was conducted in MEDLINE, Embase and PsycINFO using MeSH terms and keywords related to GAD prevalence. No date restrictions were applied. Studies were eligible if they used nationally or regionally representative samples and defined GAD based on DSM-5, ICD-11 or older case definitions. Studies focusing solely on specific sub-groups were excluded. Data extraction included study characteristics, diagnostic tools and reporting of test accuracy.
Results
A total of 537 studies were initially identified, with 48 meeting inclusion criteria, published between 1994 and 2024. Most studies were conducted in Europe (43.75%) and employed cross-sectional designs (92%). Structured diagnostic interviews were the most commonly used tool (77.08%), although self-report questionnaires gained popularity after 2005. Among the included studies, 62.5% reported test accuracy, often addressing validity and reliability.
Conclusions
Despite the widespread use of diagnostic tools in prevalence studies, test accuracy is not consistently reported, which may impact the reliability of prevalence estimates. The variability in agreement between self-report questionnaires and structured diagnostic interviews highlights the need for transparent reporting of test characteristics to improve the validity of GAD prevalence assessments across populations.
The aim of this scoping literature review is to conceptualize Policy Advocacy Effectiveness (PAE) within the sphere of nonprofit advocacy, responding to recent calls for research on NPO advocacy outcomes. We focus our analysis on the criteria and indicators used in empirical studies to measure NPO-driven PAE. Our findings identify five main categories of outcome criteria: policy cycle outcomes, organizational capacity outcomes, constituent outcomes, public salience outcomes and societal outcomes. Each operationalized with a diverse set of indicators that are seldom replicated across our sample. Despite this apparent multi-dimensional conceptualization of PAE throughout the studies, our review reveals a dominant trend toward unidimensional assessments, a focus on policy cycle outcome criteria and a methodological preference for perceptual methods in evaluating PAE. Moreover, our analysis exposes a significant lack of theoretical grounding in the reviewed studies, with minimal integration of political or policy process theories. In light of these findings, this paper advocates for a future research trajectory that could deepen the understanding of PAE. We recommend fully embracing the complexity of PAE, encouraging researchers to adopt a multi-dimensional perspective and to diversify their methodological approaches to enhance the robustness and relevance of PAE-related findings.
Research on older people’s civic engagement has increased significantly in the last two decades, as have policy and practice initiatives aimed at promoting civic engagement among older adults. However, the growing interest of researchers and policy-makers in older people’s civic engagement has not been mirrored by a parallel effort to define what civic engagement means in later life. To contribute to ongoing debates regarding the definition of civic engagement, this paper aims to examine the extent to which the concept has been defined in the ageing literature (RQ1), the ways in which it has been defined (RQ2), and the activities that have typically been associated with the concept (RQ3). We conducted a scoping review and content analysis of gerontological definitions of the concept of civic engagement and related concepts, such as volunteering and political participation. Our study reveals the diversity of ways in which older people are engaged, with some forms of activity, such as volunteering, more commonly featuring than others, such as informally helping others. A typology of civic activities among older people arose from the analysis of definitions, which permits their hierarchical differentiation and ordering, and thus contributes to a more nuanced and complex understanding of what we mean by being civically engaged in later life.
Approximately 96 per cent of older adults in Australia live at home and one-third of older people aged 65+ are of culturally and linguistically diverse (CALD) backgrounds. Despite recognising that aged care experiences are shaped by sociocultural and institutional systems, there are no scoping reviews of Australia-based research to advance understanding of how family care is provided and received in CALD families. This scoping review fills the research gap by systematically synthesising research on the experiences of family carers of older migrants in Australia to broaden the literature on how sociocultural context shapes care experiences. Using Arksey and O’Malley’s five-stage framework, we searched data on seven electronic databases to solicit journal articles published from 2014 to 2024. After assessing 5,004 studies meeting the eligibility criteria, 15 articles were included and analysed. Thematic analysis identified four themes: (1) cultural expectations of family care; (2) emotional and instrumental burdens of family care; (3) generational gaps in understanding family care; and (4) barriers to accessing services beyond family care. The findings showed strong cultural expectations of filial support among both older migrants and their family carers across cultural groups. However, balancing filial obligations with job commitments proved challenging, and language and system barriers prevented access to needed external care services. This study recommends policies and practices to integrate community and family care. This can improve carers’ experiences and facilitate the delivery of culturally appropriate care to meet care needs.
Ultra-processed foods (UPF), defined using frameworks such as NOVA, are increasingly linked to adverse health outcomes, driving interest in ways to identify and monitor their consumption. Artificial intelligence (AI) offers potential, yet its application in classifying UPF remains underexamined. To address this gap, we conducted a scoping review mapping how AI has been used, focusing on techniques, input data, classification frameworks, accuracy and application. Studies were eligible if peer-reviewed, published in English (2015–2025), and they applied AI approaches to assess or classify UPF using recognised or study-specific frameworks. A systematic search in May 2025 across PubMed, Scopus, Medline and CINAHL identified 954 unique records with eight ultimately meeting the inclusion criteria; one additional study was added in October following an updated search after peer review. Records were independently screened and extracted by two reviewers. Extracted data covered AI methods, input types, frameworks, outputs, validation and context. Studies used diverse techniques, including random forest classifiers, large language models and rule-based systems, applied across various contexts. Four studies explored practical settings: two assessed consumption or purchasing behaviours, and two developed substitution tools for healthier options. All relied on NOVA or modified versions to categorise processing. Several studies reported predictive accuracy, with F1 scores from 0·86 to 0·98, while another showed alignment between clusters and NOVA categories. Findings highlight the potential of AI tools to improve dietary monitoring and the need for further development of real-time methods and validation to support public health.
Older adults aged 75 and older (75+) represent the fastest-growing demographic in the USA yet remain underrepresented in prevention-focused clinical research. This scoping review evaluated recruitment strategies used in healthy aging clinical trials targeting this population, with particular attention to technology-enabled and belonging-focused approaches.
A PubMed search initially identified only four US-based studies focused on adults aged 75+. To broaden the scope and enrich the analysis, additional studies involving adults aged 65+ and those with pre-existing conditions were included, yielding a total of 23 relevant studies. Recruitment strategies were analyzed using the Design for Belonging framework to assess how inclusion and engagement were fostered.
Findings revealed that adults aged 75+ preferred traditional methods – targeted mailings, phone calls, and in-person outreach – due to barriers related to digital access and usability. In contrast, adults aged 65+ showed greater receptivity to digital tools such as electronic health records, social media, and web-based enrollment. Community engagement and culturally tailored materials are effective across all age groups. However, few studies addressed later-stage engagement strategies like advocacy and trust repair.
These results underscore the importance of tailoring recruitment strategies to aging subgroups, combining personalized outreach with inclusive design to enhance equity and retention in clinical research.
The evaluation of usual food intake is of central importance in nutritional epidemiology studies. Some authors propose the usual dietary recall (UDR) as a viable method for assessing usual food intake; however, its characteristics remain poorly understood. The objective of this study is to review the literature on the application and performance characteristics of the UDR as a dietary assessment method. Electronic search strategies were conducted using the Excerpta Medica Database, Publisher Medline, Cochrane Central Register of Controlled Trials, Latin American and Caribbean Health Sciences Literature, Coordination for the Improvement of Higher Education Personnel (CAPES) Periodicals Portal, and Google Scholar. Studies published in Portuguese, English, and Spanish were included, with no restrictions on publication date. Eligible studies included those utilising the UDR in experimental or observational designs, as well as literature reviews. A total of 116 studies were included in the review. The most common application method (n 34; 29·3 %) involved reporting foods typically consumed over a 24-h period. However, most studies (n 66; 56·9 %) did not specify the method for applying the UDR. Key limitations identified included under or overestimation (n 9; 7·8 %), memory bias (n 7; 6·0 %) and the lack of instrument validation (n 5; 4·3 %). Findings show that the UDR lacks a standardised application method, and its validity remains unconfirmed. Future research should establish a standardised protocol and assess its psychometric properties to reduce errors and biases, ensuring accurate dietary assessments in nutritional epidemiology.
Early in the SARS–CoV-2 pandemic, most jurisdictions implemented mandatory face covering policies across healthcare settings. This intervention, which lasted multiple years, was unprecedented in psychiatry. Masks may affect the delivery of mental healthcare, given its reliance on nuanced communication and establishing a therapeutic alliance.
Aims
This scoping review aimed to provide an overview of the current literature concerning the impact of face masks in mental health settings beyond infection control and identify research gaps to guide future research and policy.
Method
Systematic searches were completed in the MEDLINE, Embase, PsycINFO, Scopus and CINAHL databases on 14 August 2024. Articles were eligible if they described peer-reviewed empirical studies involving people with mental disorders or mental health clinicians that reported on impacts of face coverings.
Results
Twenty-eight studies were selected for inclusion, involving 5385 participants. There was considerable heterogeneity among studies. Negative effects of face masks were reported in 26 studies in at least one domain. Themes from the survey-based literature included face masks negatively affecting communication, the therapeutic relationship and overall assessment quality. Experimental studies using emotion recognition tasks showed that people with mental disorders were disadvantaged by masks when interpreting emotions from facial expressions. The most commonly studied population was people with autism spectrum disorder. Children and people with severe or acute mental illness were underrepresented. Only two studies expressly recruited psychiatrists.
Conclusions
Policy makers should be aware of adverse impacts of mask-wearing in mental health settings and consider these in evolving risk–benefit analyses. Further research is needed to establish the extent of impacts on population subgroups.
Access to quality healthcare is often limited in rural and underserved areas, leading to higher rates of preventable diseases, avoidable hospitalizations, and mortality. Virtual health clinics, utilizing telehealth and telemedicine technologies, offer a promising solution to bridge these gaps. This scoping review aimed to systematically identify and analyze the benefits, outcomes, and service range of virtual clinics in remote and underserved settings.
Methods
This scoping review was conducted following Arksey and O’Malley’s six-stage framework. Relevant literature was searched in PubMed, Web of Science, Scopus, Google, and Google Scholar. Data were extracted using a standardized charting form and thematically analyzed using Braun and Clarke’s method with MAXQDA software.
Results
A total of 38 benefits of virtual clinics were identified, primarily related to improved access to health services, reduced costs, and decreased patient travel. In the domain of governance and leadership, enhanced governmental support and optimal resource allocation were reported. For human resources, improved communication and training were emphasized. Moreover, the use of local technologies, remote medication ordering, and digital record-keeping demonstrated a significant impact, particularly in middle- and high-income countries.
Conclusions
Virtual clinics can effectively enhance the quality and accessibility of health services in underserved areas and play an important role in reducing health inequities.
Due to an increased awareness of the prevalence and impact of trauma, “trauma-informed care” (TIC) was developed as an organisational framework aiming to centre the needs of survivors of trauma. TIC proposes that organisations can reduce trauma exposure by embedding specific principles (e.g., safety and trust) at every level of an organisation, improving the organisation for both service users and providers. Recent reviews of TIC implementation efforts have demonstrated its use in diverse settings; however, studies are overwhelmingly situated in high-income, predominantly English-speaking countries. Rather than reflecting a lack of TIC efforts in low- and middle-income countries (LMICs), these findings may be a result of the newness of the term TIC. To create a more inclusive evidence map, the current review captures efforts conducted in LMICs that may or may not use the label of TIC but align with the organisational approaches and key principles of TIC. A search of four databases and review of relevant references yielded 3,091 results, of which 255 met the inclusion criteria. Implementation efforts took place across 39 LMICs. The vast majority included involvement of another country, most commonly the United States. Approximately 90% of efforts were implemented within medical settings, and 69% focused on the TIC principle of cultural, historical and gender issues. The results of the current review have both theoretical and applied implications for TIC research. They query how and by whom TIC is conceptualised and defined, and how TIC aligns with other global research approaches. Results also highlight the need for organisational TIC interventions to conduct comprehensive baseline assessments of current efforts before implementing new efforts to avoid unintentional duplication. As the adoption of TIC frameworks becomes more widespread, it is imperative to increase research efforts aimed at developing a more thorough and inclusive definition of TIC.
To map the scope, methods and focus areas of qualitative research in paediatric otolaryngology.
Methods
A Preferred Reporting Items for Systematic Reviews and Meta-Analyses-compliant systematic mapping review searched MEDLINE, Embase, CENTRAL and PsycInfo (August 2025) for qualitative or mixed-methods studies with a qualitative component related to paediatric otolaryngology. Two reviewers independently applied the inclusion criteria. Key study characteristics were extracted; no formal risk-of-bias assessment was performed, in line with the aims of a mapping review.
Results
Eighty-nine studies were included. Publications rose sharply after 2015, with nearly three-quarters from the USA, Canada and the UK. Otology (49 per cent) and laryngology (40 per cent) predominated; common topics were hearing loss, tonsillectomy and tracheostomy. Interviews, mainly semi-structured (73 per cent), were the dominant method, and caregivers were the most frequent participants (62 per cent).
Conclusions
Qualitative research in paediatric otolaryngology is growing but remains geographically and methodologically narrow. Broader stakeholder inclusion and methodological diversity are needed to deepen understanding and support patient-centred care.
Despite growing front-of-pack labelling (FOPL) policy implementation in low-and middle-income countries (LMIC), research approaches for evaluating these policies remain poorly characterized, hindering evidence-based policy development and methodological gaps. This study explored research approaches, frameworks, and methods used in assessing FOPL policy implementation and response in LMIC.
Design:
Systematic search of five databases, including Medline, Web of Science, Scopus, Global Health, and CINAHL, for peer-reviewed articles published between 2014–2025. Studies on FOPL policy implementation or response in LMIC were included. Data on study characteristics, methods, and findings were extracted and synthesized.
Setting:
LMIC.
Participants:
All populations.
Results:
Thirty-one studies revealed significant research imbalances. Implementation studies (n 3) used qualitative approaches with policy theories, while response studies (n 28) predominantly employed quantitative methods including surveys, experiments, and modeling. Pronounced geographical bias emerged, with 24 studies conducted in Latin America while other LMIC regions remained underrepresented. Common limitations included non-representative sampling, self-reported data, and short timeframes. Mandatory FOPL policies achieved higher compliance than voluntary schemes, though implementation faced challenges including inadequate monitoring, limited resources, and industry resistance. Consumer awareness was generally high but varied significantly across population groups, revealing substantial equity gaps.
Conclusions:
This review reveals critical gaps in FOPL implementation research in LMIC, with evidence heavily skewed toward consumer responses and geographically concentrated in Latin America. Future research should prioritize implementation science approaches, geographical diversity, and understanding policy processes in resource-constrained settings to develop effective, context-appropriate FOPL policies.
Chapter 1, the introductory chapter, outlines the development of psychotraumatology or traumatic stress studies, in which the author was also partly involved. It traces how it came about that the author Brave Heart and others have been presenting concepts on historical trauma since the early 2000s. An operationalized definition with two basic criteria and five consecutive criteria is presented. The following eight contexts from all parts of the world are presented and their selection justified. The first four are typical configurations of historical trauma because they fulfil all the criteria without exception. The last four historical traumas fulfil only some of the criteria, but are each particularly revealing, for example when it comes to the minimization of the victim narrative for political reasons. The method of the coupled scoping review for the book is explained and the target groups of readership are described.
Historical trauma is a relatively new yet crucial area of study within psychology, history, and related disciplines. This book introduces the concept of historical trauma by providing a comprehensive overview of the latest vocabulary, seminal psychological concepts, and quantitative research in the field. By drawing together cross-disciplinary threads and examining eight global contexts of historical trauma, the author highlights a wide-ranging and rigorous body of research that further adds to our clinical understanding of the possible long-term effects of collective trauma. The chapters also explore remedies against the historical effects of trauma, which tend to go far beyond psycho-therapeutic interventions, especially when they are dedicated to the culture of remembrance or empowerment for disadvantaged young people. By revealing a wealth of new ideas that point to a pivotal moment in the evolution of social sciences, this volume can help transform the way psychologists serve victimized communities around the world.