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Shared decision-making is essential to patient-centred care, but remains underutilised in psychiatry, particularly when deciding whether to continue, reduce or stop antipsychotic medication after remission from first-episode psychosis (FEP). Existing decision aids do not fully address recovery goals such as autonomy, identity and social reintegration.
Aims
To co-develop a patient decision aid (PDA) prototype that supports individuals in making the decision to continue, reduce or stop antipsychotics following remission from FEP.
Method
We used a patient-centred design process informed by International Patient Decision Aid Standards (IPDAS), User Centered Design (UCD-11) and the CHIME framework. A multidisciplinary steering group – including individuals with lived experience, clinicians, and researchers – co-developed the PDA. Iterative feedback was collected from an external advisory group of patient partners, caregivers and healthcare providers (n = 7). Acceptability was evaluated with structured questionnaires.
Results
The final prototype, structured into five sections (decision overview, personal values, risks and benefits, planning and real-life experiences), demonstrated strong acceptability across stakeholders. Ratings improved with each iteration, with version 3 receiving near-perfect scores on clarity, usefulness and balance. Users described the tool as relatable and empowering. The inclusion of real-life stories and visual decision exercises were particularly valued. However, some clinicians expressed concerns about time constraints and workflow integration.
Conclusions
This recovery-oriented PDA prototype offers a practical, evidence-based resource to facilitate shared decision-making with respect to continuing, reducing or stopping antipsychotics after FEP. Although early feedback is promising, pilot testing is needed to evaluate its impact on decision quality, satisfaction and treatment outcomes.
Although peer support is increasingly used in mental health services worldwide, service users’ experiences have been studied mostly in high-income countries. The current study examined service users’ experiences of peer support in the UPSIDES Trial, delivered across diverse cultural and resource contexts, including high, middle and low-income countries. Semi-structured interviews were conducted with 33 service users across six study sites (Germany [two sites], Uganda, Tanzania, Israel, and India) and analyzed using thematic analysis to identify patterns in participants’ experiences. To capture diverse perspectives, service users were purposively sampled based on pre–post changes in social inclusion and personal recovery, with participants randomly selected from the top and bottom 20% (‘high’ and ‘low’ responders). Four themes emerged: (1) adaptable settings and intervention flexibility; (2) ‘active ingredients’ such as mutuality, reciprocity, and role-modeling; (3) positive intra-personal, inter-personal, and behavioral outcomes; and (4) barriers, including mismatches, unmet expectations, unclear boundaries and challenges to continuity. The study highlights shared relational elements of peer support alongside context-specific adaptations. Findings reinforce its value as a complementary, person-centred service with global relevance, while pointing to challenges including improving matching, reducing dropout, and clarifying expectations. Site-specific aspects are discussed, offering insights for global implementation.
Inspired by teaching Black kindergarteners at the White Rose Mission in New York City in the 1890s, Alice Dunbar-Nelson wrote 12 stories about children in an urban neighborhood targeted for uplift. Around 1900, she drafted a table of contents for the collection, The Annals of ‘Steenth Street. The collection was never published as such, but some of these stories were published individually in multiple periodicals over several decades. Dunbar-Nelson’s stories center on the neighborhood’s children and their perspectives. This was literature intended, at least in part, for a child audience. Both the content and the publication history of Dunbar-Nelson’s stories raise important points for scholars of African American children’s literature. Our discussion focuses on the story Dunbar-Nelson intended to appear first in her collection, “The Revenge of James Brown,” published in the Chicago Daily News in 1899 and in the Methodist Episcopal Church School Publications’ weekly paper, the Classmate, in 1930. This story extends notions of where we might look for children’s literature of the Harlem Renaissance to include print venues not often examined with Black children in mind. Moreover, Dunbar-Nelson’s revisions of this story allow for complex considerations of her representations of Black childhood. This essay’s authors are co-founders of the Black digital humanities project, Taught by Literature, the work of which includes creating a freely available digital edition of “The Revenge of James Brown” and Dunbar-Nelson’s other ’Steenth Street stories, working with K-12 educators to create materials to facilitate teaching these stories to children in the present.
Rural communities face unique challenges after a disaster as a result of overlapping vulnerabilities related to limited housing and transportation infrastructure, employment or income loss, and fewer emergency response and recovery resources. Hurricane Helene (Southeast Coast, USA; 2024) made landfall in Florida as a Category-4 hurricane, later impacting Western North Carolina with severe flooding, landslides, and hurricane-force winds. Communications and transportation were interrupted for months, leading to disinformation, recovery disruptions, and a loss of trust. To assess household impacts and recovery from Hurricane Helene in two rural Western North Carolina counties, a 29-question survey was adapted from a Community Assessment for Public Health Emergency Response (CASPER) conducted in Buncombe County, a nearby urban county. Thirty clusters were selected with probability proportionate to population across the two counties. Survey teams completed 183 interviews (completion rate = 87.1%). More than 35% of households evacuated because of Hurricane Helene, with nearly 18% evacuating in the week after due to on-going communication and utility outages. Less than 10% of households experienced new or worsening environmental health or chronic diseases. However, 40% reported anxiety, 30% reported trouble sleeping and depression, and 60% reported worrying about another disaster affecting their home. Nearly one year after the direct impact of the hurricane, much work remained as part of continued long-term recovery and resilience building. Because of their small populations and limited infrastructure, restoration of services necessary for response and recovery can be hindered in rural areas which often lack options such as public transportation, affordable short-term housing, and broadband or Wi-Fi.
Fruit-derived flavonoids may enhance exercise performance and/or improve recovery due to their antioxidant and anti-inflammatory activities. Evidence in humans suggests that supplementation with about 300 mg of flavonoids before exercise may affect exercise performance and recovery. The aim of this study was to evaluate the plasma metabolomic response to a 1-h cycling trial after twelve participants had consumed either a high or low dairy milk-based flavonoid (490 or 5 mg) pre-workout beverage for 15 d. A randomised, double-blind, placebo-controlled design was used, and subjects completed a submaximal cycling trial (45 m 70 % VO2 max, 15 m time trial). Plasma was collected before and after the exercise trial and at 1-h and 4-h post-exercise. No statistically significant difference was observed (P = 0·051), but a small effect size (d = 0·16) suggests a marginal trend towards increased power output during cycling with the treatment. Plasma samples were extracted, derivatised and subjected to GC-MS-based metabolomics analysis. Sixty-two metabolites were measured, of which forty-two were identified, and twenty are unknowns. A two-way repeated ANOVA with log-transformed and auto-scaled values indicated that 56 of the 62 features were significantly different with respect to time, but no significant treatment effects or treatment-by-time interactions were observed. Using the Euclidean distance measure and Ward clustering algorithm, a heatmap was generated that divided the metabolite response into eight groups and sixteen subgroups. Metabolites (carbohydrates, lipids and amino acids) changed to varying degrees in response to exercise, suggesting that multiple fuel substrate pathways were activated throughout exercise and recovery.
In 2009, numerous manuscripts, previously thought to be lost, were rediscovered in what was once Florence Price’s summer home. The rediscovery narrative that followed, especially in white mainstream media discourse in the United States, focused more on the rediscovery of Price herself, rather than on the rediscovery of her manuscripts. Not only did this distort Price’s meaning to a modern-day, mainstream audience; it also erased the scholarly and archival efforts of practitioners, which can be dated back to the era of Price’s activity. Black classical communities in the United States kept Price’s musical legacy alive through the twentieth century and into the twenty-first. This chapter therefore asks: How do we listen to Price today? The Price archives, the narratives of community embedded in her musical manuscripts, and the ensuing recovery work emerge as important factors in this new era of Price scholarship.
The reawakening of the Black Lives Matter movement in the summer of 2020 ignited a wave of racial and social consciousness that prompted many arts-based organizations to consider the larger implications of their programmatic visions. As a composer known to, but under-programmed in, the mainstream classical music establishment, the music of Florence Price was thrust into an even greater spotlight. This chapter considers what it means to meaningfully celebrate the rediscovery of Price’s manuscripts and her revival in the mainstream. It models discourse that ensures that more African American composers are recognized and that the communities that kept names and works alive are remembered in the historical record.
Recovery Colleges are adult education initiatives supporting personal recovery for individuals with mental health difficulties. We characterised a national (England) inception cohort of mental health service users, students from the Recovery Colleges Characterisation and Testing 2 programme, and compared those attending different Recovery College types on sociodemographic, clinical, service use and student-reported outcomes over the 4 months prior to enrolment. Mixed-effects regression models were used to assess differences.
Results
The cohort comprised 498 students from 36 Recovery Colleges across England; 77.7% attended strengths-oriented Recovery Colleges. Mean age was 39 years (s.d. 12); most were female (72.1%) and White (81.5%). Common diagnoses were mood (31.3%) and anxiety disorders (29.7%). No significant differences were found between students attending strengths- versus community-oriented Recovery Colleges.
Clinical implications
Strengths- and community-oriented Recovery Colleges have similar service user student populations. Certain groups that may be underrepresented in Recovery Colleges and Recovery College research include older adults, men, those with developmental disorders and ethnic minority populations.
Critical illness is a life-altering experience for both patients and families. Although patients and families have shared priorities for recovery, they also have unique lived experiences that require individualized attention and validation after critical illness. Patient and family needs are dynamic and evolve over successive phases of critical illness recovery. In general, patients and families desire structured, proactive supports that address distinct informational, emotional, appraisal, instrumental, social, and spiritual needs. Timely, consistent, and clear communication across all phases of recovery is key to fostering trust and resilience. The “Timing-it-Right” framework is a useful model to guide recovery-oriented care programs from the hospital ward to community setting. Critical illness recovery programs should be holistic, coordinated, and prioritize functional goals and quality of life. Future research on critical illness recovery should engage diverse patient and family perspectives and incorporate quality of life outcomes that matter to patients and families. Common themes in patient and family experience may provide guidance for clinicians, researchers, and health systems looking to support critical illness recovery.
Cardiac arrest survivorship is a burgeoning phenomenon, largely driven by advances in intensive care and widespread public health campaigns aimed at improving resuscitation outcomes. However, the specific risk factors, mediators, and effective interventions that support long-term survivorship and recovery remain insufficiently understood and are the focus of ongoing research. Survivors of cardiac arrest face multifaceted challenges that affect various aspects of health, including physical, cognitive, psychological, and social well-being. Psychological distress, cardiac anxiety, and the stability of the family unit following cardiac arrest emerge as key factors influencing recovery. Targeted interventions that address the distinct phases of critical illness and recovery following cardiac arrest are crucial and warrant further investigation and implementation.
Sleep disturbances frequently precede and are exacerbated by critical illness, persisting well into the recovery phase. These issues are prevalent among ICU survivors and can aggravate physical, cognitive, and psychosocial symptoms associated with Post-Intensive Care Syndrome (PICS). This chapter reviews the outpatient evaluation of patients experiencing sleep problems after ICU discharge, emphasizing the importance of addressing sleep issues as part of a comprehensive PICS assessment. Recent studies reveal high prevalence of sleep disturbances following the ICU, with symptoms such as difficulty falling asleep, poor sleep quality, and nightmares. Insomnia, excessive daytime sleepiness, and obstructive sleep apnea (OSA) are also common post-ICU issues. Evaluation should include assessing sleep quality, reviewing medications, and screening for common sleep disorders. Cognitive Behavioral Therapy for Insomnia (CBT-i) is recommended for chronic insomnia, while imagery rehearsal therapy is suggested for PTSD-related nightmares. Additionally, OSA screening is crucial due to its potential impact on recovery and quality of life. Addressing these concerns through an ICU follow-up clinic may improve patient outcomes, enhance recovery, and mitigate the long-term effects of critical illness on sleep and overall health.
Forensic mental health services need a reliable and repeatable outcome measure to assess the progression of self-rated recovery during the forensic journey. The Questionnaire about the Process of Recovery (QPR) was developed in individuals with psychosis, and has been used to assess recovery in people with severe mental illness; however, its psychometric properties have not been studied in a forensic psychiatric cohort.
Aims
This study aimed to assess the psychometric properties of the QPR in a sample of individuals who currently access, or formerly accessed, high-security psychiatric care, including internal consistency, test–retest reliability, factor structure and criterion validity.
Method
Psychometric analysis was undertaken in a sample of 146 current or former high-security patients. Confirmatory and exploratory factor analysis examined the latent test structure. Non-parametric comparisons of QPR score indices tested for differences according to individuals’ current setting (high-, medium- or low-security or open wards; community) as evidence of criterion validity.
Results
A unique two-factor structure related to self-actualisation/empowerment and growth/insight fit forensic patients’ QPR responses. Internal consistency and test–retest reliability were adequate for QPR all-item scores for the original and shortened scales, as well as for the new forensic factor scores. QPR score indices differentiated patients by current setting (eta2 = 0.03–0.04), although only the forensic factor related to growth/insight was significant in corrected post hoc comparisons.
Conclusions
The original QPR is recommended for use to assess recovery progress in a forensic psychiatric sample. Forensic patients’ scores may be best represented using the unique two-factor structure identified.
One major aspect involved in the development of post-intensive care syndrome (PICS) is muscle wasting and weakness. In health, augmented dietary protein is required for skeletal muscle maintenance or growth. Critical illness is characterised by complex metabolic alterations including initial hypometabolism followed by hypermetabolism and muscle catabolism. Despite the potential role of nutrition in attenuating extensive muscle wasting observed in critical illness, no large-scale definitive interventional trial has tested the impact of augmented protein delivery on muscle wasting, and observational and small randomised trial data are conflicting. This may be due to the extensive physiological response to critical illness that cannot be easily overcome or untested factors including individualised nutrition interventions delivered beyond the first week of critical illness. Despite the lack of definitive answers, prolonged under-provision of nutrition will likely result in nutrition-related consequences and has been associated with negative clinical outcomes. The aim of this chapter is to summarise the current critical care nutrition evidence and make practical recommendations for clinicians with the aim of preventing the development or progression of malnutrition and reducing the development of PICS following critical illness.
This chapter examines early modern expectations of delivery and recovery from childbirth by women. Medical manuals expected women would give birth painfully but without complication, stay in bed (or ‘lie in’) for a month, go to church to give thanks to God for their survival and then return to their normal selves. During this month, they were also expected to bleed away the bodily remnants of pregnancy. Examining doctors’ casebooks reveals that women often sought medical assistance for problems long after delivery. Certain postpartum ailments like breast problems were often perceived as untroubling in medical print, but paperwork reveals that this often meant women could not return to their normal selves for months after birth. Although prescriptive models contained in religious and medical print may have helped to frame women’s experiences of delivery and recovery, they rarely capture the reality of the emotional and bodily difficulties they faced.
This study investigated the prevalence of advance directives among patients receiving community care within the East London NHS Foundation Trust (ELFT), and to identify factors associated with their clinical application.
We analysed data from electronic health records of 4807 patients (aged 18–75 years), managed under the Care Programme Approach (CPA) in ELFT during 2021–2022. Demographic, clinical, service-level and patient-reported measures were analysed (binomial logistic regression).
Results
A total of 31.2% of patients on the CPA had an advance directive. Black ethnicity, treatment in the forensic service or Newham, Luton and Bedfordshire localities, housing in socio-therapeutic facilities, diagnosis of personality disorder, ten or more previous admissions and engagement with DIALOG+ were positively associated with having an advance directive. DIALOG+ is the first approach that has been specifically developed to make routine patient–clinician meetings therapeutically effective. It is based on quality of life research, utilising the DIALOG scale (a patient-reported outcome measure), concepts of patient-centred communication, IT developments and components of solution-focused therapy, and is supported by an app.
Clinical implications
This study highlights a complex interplay of cultural, social and systemic factors that influence advance care plan status. Structured communication, stronger therapeutic relationships and staff facilitation are likely to encourage advance care planning.
This paper describes the 9-step Collaborative Care Pathway (CCP-9), an innovative approach to delivering recovery-focused community mental health care which has been piloted and implemented in a community-based secondary level service in Ireland over the past 14 years. Care planning is mandated in the Republic of Ireland by the Mental Health Act (2001). Subsequent public policy documents require care planning to have a recovery focus, as outlined in the Quality Framework Document (Mental Health Commission 2023). The CCP-9 is a novel approach to delivering community mental health care in which care planning is embedded as one of a sequence of nine steps in a complete pathway of care from referral to discharge, and which has been adapted over time in line with evolving public policy. The CCP-9 is innovative in explicitly taking a graded approach to assessment, in the emphasis placed on collaborative engagement of service users (SUs) and their families, in the detailed psychosocial assessment undertaken in parallel with diagnostic assessment and in the degree of multidisciplinary team (MDT) involvement. The CCP-9 is coordinated by a key worker, involves prospective identification of personal needs and goals by the SU and enhanced MDT involvement in review of assessments, case formulation, care planning and feedback to SUs and families. The CCP-9 emphasises sharing information, documentation and mental health education with SUs and family members throughout the process, as a necessary support for shared decision-making in developing and implementing the care plan. Challenges to the sustainability of the CCP-9 includes the significant time investment to complete the assessment, care planning and feedback.
Well-established within the field of Emergency Management is the Disaster Cycle: Mitigation, Preparedness, Response, and Recovery. Less standard, however, is the inclusion of pediatric considerations in efforts within each of these phases, despite the significant population share that children hold and their unique vulnerabilities to disasters. Building upon a tool designed to spur pediatric inclusion in the “Mitigation” phase of the cycle, the Regional Pediatric Hazard Vulnerability Analysis, this paper introduces a novel Pediatric After-Action Report template. This is an all-hazards template that provides emergency managers and other partners within a region a vital resource to ensure that children are effectively considered in post-event review efforts within the “Recovery” phase, whether those reviews are customary or not. The Pediatric After-Action Report presents critical questions related to pediatric needs in previously established categories, promotes the identification of areas for improvement, and facilitates the creation of actionable plans for future preparedness.
Low self-esteem is an important and potentially modifiable risk factor for the development and outcome of psychotic disorders. The factors involved in low self-esteem in psychotic disorders are not yet fully understood. The current study aims to investigate the cross-sectional and longitudinal associations between (changes in) self-esteem and severity of psychotic symptoms, internalized stigma, negative reaction to antipsychotics, personal recovery, childhood bullying, childhood trauma, and social support in symptomatically remitted first-episode psychosis (FEP) patients.
Methods
Data from the ongoing longitudinal Handling Antipsychotic Medication: Long-term Evaluation of Targeted Treatment study were used. Participants were in symptomatic remission for 3–6 months after the FEP. Cross-sectional associations (N = 299) were investigated through Pearson’s correlations, and longitudinal changes (N = 238) were investigated via linear regressions with inverse probability weighting.
Results
Cross-sectionally, we found that lower self-esteem was related to higher severity of symptoms, higher internalized stigma, higher childhood trauma (specifically emotional neglect), higher childhood bullying, more negative side effects of antipsychotic medication, lower personal recovery, and lower social support. Longitudinally, contrary to our hypothesis, we found that higher baseline internalized stigma, higher childhood trauma (specifically emotional abuse), and a higher baseline negative subjective reaction to antipsychotics predicted an increase in self-esteem after 6 months. Furthermore, a decrease in psychotic symptoms, internalized stigma, and negative subjective reaction to antipsychotics, and an increase in social support predicted an increase in self-esteem.
Conclusions
Early intervention programs for psychotic disorders should target factors related to changes in self-esteem. This might improve self-esteem and thereby promote recovery.
The concept partnership has developed since Sherry Arnstein first created the ladder of citizen participation. Within mental health discourse, this was first acknowledged by “A Vision for Change” (2006) and later, through adopting co-production (2017). In 2011, the College of Psychiatrists of Ireland, created a collective called Recovery Experience Forum of Carers and Users of Services (REFOCUS) which became a leading example of partnership between stakeholders in the organisation. However, REFOCUS’s impact on stakeholders needs to be examined.
Methods:
A qualitative investigation using an autoethnography methodology is proposed. The approach allows for the interweaving of personal experiences with culture to create new knowledge. A focus group was conducted, and transcripts were subject to reflexive thematic analysis.
Results:
Seven out of fourteen participants, representing all three stakeholders, were available at time of interview. From the process of reflexive thematic analysis, five themes were constructed. Each with a number of sub-themes attached, which in turn represented stakeholder perspectives regarding REFOCUS.
Discussion:
This paper highlights several issues that need addressing in future research on REFOCUS. The paper demonstrates the continuous presence of stigma within Irish mental health services. However, it also highlights a number of beneficial aspects to REFOCUS including informal peer support, service users, and family member involvement in college activities as well as increasing meaning and purpose in one’s life along with a renewed identity different to that of the service user or family member.