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Critical illness is a life-altering experience for both patients and families. Although patients and families have shared priorities for recovery, they also have unique lived experiences that require individualized attention and validation after critical illness. Patient and family needs are dynamic and evolve over successive phases of critical illness recovery. In general, patients and families desire structured, proactive supports that address distinct informational, emotional, appraisal, instrumental, social, and spiritual needs. Timely, consistent, and clear communication across all phases of recovery is key to fostering trust and resilience. The “Timing-it-Right” framework is a useful model to guide recovery-oriented care programs from the hospital ward to community setting. Critical illness recovery programs should be holistic, coordinated, and prioritize functional goals and quality of life. Future research on critical illness recovery should engage diverse patient and family perspectives and incorporate quality of life outcomes that matter to patients and families. Common themes in patient and family experience may provide guidance for clinicians, researchers, and health systems looking to support critical illness recovery.
Cardiac arrest survivorship is a burgeoning phenomenon, largely driven by advances in intensive care and widespread public health campaigns aimed at improving resuscitation outcomes. However, the specific risk factors, mediators, and effective interventions that support long-term survivorship and recovery remain insufficiently understood and are the focus of ongoing research. Survivors of cardiac arrest face multifaceted challenges that affect various aspects of health, including physical, cognitive, psychological, and social well-being. Psychological distress, cardiac anxiety, and the stability of the family unit following cardiac arrest emerge as key factors influencing recovery. Targeted interventions that address the distinct phases of critical illness and recovery following cardiac arrest are crucial and warrant further investigation and implementation.
Sleep disturbances frequently precede and are exacerbated by critical illness, persisting well into the recovery phase. These issues are prevalent among ICU survivors and can aggravate physical, cognitive, and psychosocial symptoms associated with Post-Intensive Care Syndrome (PICS). This chapter reviews the outpatient evaluation of patients experiencing sleep problems after ICU discharge, emphasizing the importance of addressing sleep issues as part of a comprehensive PICS assessment. Recent studies reveal high prevalence of sleep disturbances following the ICU, with symptoms such as difficulty falling asleep, poor sleep quality, and nightmares. Insomnia, excessive daytime sleepiness, and obstructive sleep apnea (OSA) are also common post-ICU issues. Evaluation should include assessing sleep quality, reviewing medications, and screening for common sleep disorders. Cognitive Behavioral Therapy for Insomnia (CBT-i) is recommended for chronic insomnia, while imagery rehearsal therapy is suggested for PTSD-related nightmares. Additionally, OSA screening is crucial due to its potential impact on recovery and quality of life. Addressing these concerns through an ICU follow-up clinic may improve patient outcomes, enhance recovery, and mitigate the long-term effects of critical illness on sleep and overall health.
Forensic mental health services need a reliable and repeatable outcome measure to assess the progression of self-rated recovery during the forensic journey. The Questionnaire about the Process of Recovery (QPR) was developed in individuals with psychosis, and has been used to assess recovery in people with severe mental illness; however, its psychometric properties have not been studied in a forensic psychiatric cohort.
Aims
This study aimed to assess the psychometric properties of the QPR in a sample of individuals who currently access, or formerly accessed, high-security psychiatric care, including internal consistency, test–retest reliability, factor structure and criterion validity.
Method
Psychometric analysis was undertaken in a sample of 146 current or former high-security patients. Confirmatory and exploratory factor analysis examined the latent test structure. Non-parametric comparisons of QPR score indices tested for differences according to individuals’ current setting (high-, medium- or low-security or open wards; community) as evidence of criterion validity.
Results
A unique two-factor structure related to self-actualisation/empowerment and growth/insight fit forensic patients’ QPR responses. Internal consistency and test–retest reliability were adequate for QPR all-item scores for the original and shortened scales, as well as for the new forensic factor scores. QPR score indices differentiated patients by current setting (eta2 = 0.03–0.04), although only the forensic factor related to growth/insight was significant in corrected post hoc comparisons.
Conclusions
The original QPR is recommended for use to assess recovery progress in a forensic psychiatric sample. Forensic patients’ scores may be best represented using the unique two-factor structure identified.
One major aspect involved in the development of post-intensive care syndrome (PICS) is muscle wasting and weakness. In health, augmented dietary protein is required for skeletal muscle maintenance or growth. Critical illness is characterised by complex metabolic alterations including initial hypometabolism followed by hypermetabolism and muscle catabolism. Despite the potential role of nutrition in attenuating extensive muscle wasting observed in critical illness, no large-scale definitive interventional trial has tested the impact of augmented protein delivery on muscle wasting, and observational and small randomised trial data are conflicting. This may be due to the extensive physiological response to critical illness that cannot be easily overcome or untested factors including individualised nutrition interventions delivered beyond the first week of critical illness. Despite the lack of definitive answers, prolonged under-provision of nutrition will likely result in nutrition-related consequences and has been associated with negative clinical outcomes. The aim of this chapter is to summarise the current critical care nutrition evidence and make practical recommendations for clinicians with the aim of preventing the development or progression of malnutrition and reducing the development of PICS following critical illness.
This chapter examines early modern expectations of delivery and recovery from childbirth by women. Medical manuals expected women would give birth painfully but without complication, stay in bed (or ‘lie in’) for a month, go to church to give thanks to God for their survival and then return to their normal selves. During this month, they were also expected to bleed away the bodily remnants of pregnancy. Examining doctors’ casebooks reveals that women often sought medical assistance for problems long after delivery. Certain postpartum ailments like breast problems were often perceived as untroubling in medical print, but paperwork reveals that this often meant women could not return to their normal selves for months after birth. Although prescriptive models contained in religious and medical print may have helped to frame women’s experiences of delivery and recovery, they rarely capture the reality of the emotional and bodily difficulties they faced.
This study investigated the prevalence of advance directives among patients receiving community care within the East London NHS Foundation Trust (ELFT), and to identify factors associated with their clinical application.
We analysed data from electronic health records of 4807 patients (aged 18–75 years), managed under the Care Programme Approach (CPA) in ELFT during 2021–2022. Demographic, clinical, service-level and patient-reported measures were analysed (binomial logistic regression).
Results
A total of 31.2% of patients on the CPA had an advance directive. Black ethnicity, treatment in the forensic service or Newham, Luton and Bedfordshire localities, housing in socio-therapeutic facilities, diagnosis of personality disorder, ten or more previous admissions and engagement with DIALOG+ were positively associated with having an advance directive. DIALOG+ is the first approach that has been specifically developed to make routine patient–clinician meetings therapeutically effective. It is based on quality of life research, utilising the DIALOG scale (a patient-reported outcome measure), concepts of patient-centred communication, IT developments and components of solution-focused therapy, and is supported by an app.
Clinical implications
This study highlights a complex interplay of cultural, social and systemic factors that influence advance care plan status. Structured communication, stronger therapeutic relationships and staff facilitation are likely to encourage advance care planning.
This paper describes the 9-step Collaborative Care Pathway (CCP-9), an innovative approach to delivering recovery-focused community mental health care which has been piloted and implemented in a community-based secondary level service in Ireland over the past 14 years. Care planning is mandated in the Republic of Ireland by the Mental Health Act (2001). Subsequent public policy documents require care planning to have a recovery focus, as outlined in the Quality Framework Document (Mental Health Commission 2023). The CCP-9 is a novel approach to delivering community mental health care in which care planning is embedded as one of a sequence of nine steps in a complete pathway of care from referral to discharge, and which has been adapted over time in line with evolving public policy. The CCP-9 is innovative in explicitly taking a graded approach to assessment, in the emphasis placed on collaborative engagement of service users (SUs) and their families, in the detailed psychosocial assessment undertaken in parallel with diagnostic assessment and in the degree of multidisciplinary team (MDT) involvement. The CCP-9 is coordinated by a key worker, involves prospective identification of personal needs and goals by the SU and enhanced MDT involvement in review of assessments, case formulation, care planning and feedback to SUs and families. The CCP-9 emphasises sharing information, documentation and mental health education with SUs and family members throughout the process, as a necessary support for shared decision-making in developing and implementing the care plan. Challenges to the sustainability of the CCP-9 includes the significant time investment to complete the assessment, care planning and feedback.
Well-established within the field of Emergency Management is the Disaster Cycle: Mitigation, Preparedness, Response, and Recovery. Less standard, however, is the inclusion of pediatric considerations in efforts within each of these phases, despite the significant population share that children hold and their unique vulnerabilities to disasters. Building upon a tool designed to spur pediatric inclusion in the “Mitigation” phase of the cycle, the Regional Pediatric Hazard Vulnerability Analysis, this paper introduces a novel Pediatric After-Action Report template. This is an all-hazards template that provides emergency managers and other partners within a region a vital resource to ensure that children are effectively considered in post-event review efforts within the “Recovery” phase, whether those reviews are customary or not. The Pediatric After-Action Report presents critical questions related to pediatric needs in previously established categories, promotes the identification of areas for improvement, and facilitates the creation of actionable plans for future preparedness.
Low self-esteem is an important and potentially modifiable risk factor for the development and outcome of psychotic disorders. The factors involved in low self-esteem in psychotic disorders are not yet fully understood. The current study aims to investigate the cross-sectional and longitudinal associations between (changes in) self-esteem and severity of psychotic symptoms, internalized stigma, negative reaction to antipsychotics, personal recovery, childhood bullying, childhood trauma, and social support in symptomatically remitted first-episode psychosis (FEP) patients.
Methods
Data from the ongoing longitudinal Handling Antipsychotic Medication: Long-term Evaluation of Targeted Treatment study were used. Participants were in symptomatic remission for 3–6 months after the FEP. Cross-sectional associations (N = 299) were investigated through Pearson’s correlations, and longitudinal changes (N = 238) were investigated via linear regressions with inverse probability weighting.
Results
Cross-sectionally, we found that lower self-esteem was related to higher severity of symptoms, higher internalized stigma, higher childhood trauma (specifically emotional neglect), higher childhood bullying, more negative side effects of antipsychotic medication, lower personal recovery, and lower social support. Longitudinally, contrary to our hypothesis, we found that higher baseline internalized stigma, higher childhood trauma (specifically emotional abuse), and a higher baseline negative subjective reaction to antipsychotics predicted an increase in self-esteem after 6 months. Furthermore, a decrease in psychotic symptoms, internalized stigma, and negative subjective reaction to antipsychotics, and an increase in social support predicted an increase in self-esteem.
Conclusions
Early intervention programs for psychotic disorders should target factors related to changes in self-esteem. This might improve self-esteem and thereby promote recovery.
The concept partnership has developed since Sherry Arnstein first created the ladder of citizen participation. Within mental health discourse, this was first acknowledged by “A Vision for Change” (2006) and later, through adopting co-production (2017). In 2011, the College of Psychiatrists of Ireland, created a collective called Recovery Experience Forum of Carers and Users of Services (REFOCUS) which became a leading example of partnership between stakeholders in the organisation. However, REFOCUS’s impact on stakeholders needs to be examined.
Methods:
A qualitative investigation using an autoethnography methodology is proposed. The approach allows for the interweaving of personal experiences with culture to create new knowledge. A focus group was conducted, and transcripts were subject to reflexive thematic analysis.
Results:
Seven out of fourteen participants, representing all three stakeholders, were available at time of interview. From the process of reflexive thematic analysis, five themes were constructed. Each with a number of sub-themes attached, which in turn represented stakeholder perspectives regarding REFOCUS.
Discussion:
This paper highlights several issues that need addressing in future research on REFOCUS. The paper demonstrates the continuous presence of stigma within Irish mental health services. However, it also highlights a number of beneficial aspects to REFOCUS including informal peer support, service users, and family member involvement in college activities as well as increasing meaning and purpose in one’s life along with a renewed identity different to that of the service user or family member.
The recovery model of mental health care is distinct from the biomedical model of mental health care. To promote one runs the risk of marginalising the other. Both approaches have merit. Values of hope and optimism, social inclusion, collaborative decision-making, retaining a personal identity beyond an identity simply defined by a diagnosis of mental illness, are all central to the recovery model. A reorientation of mental health services is required, a change in culture which embodies the principles of a recovery model within which, the perspectives of patients and families are heard together with the perspectives of mental health professionals who have knowledge and expertise to offer. In Meath Community Mental Health Services we have implemented such a recovery model, the model of open dialogue where principles of dialogue, social inclusion, immediate help and collaborative decision-making are paramount. We began this service in 2019 and carried out an audit of the first 6 months of our implementation. The audit illustrated overwhelming satisfaction from service users and their families with the new approach. On foot of our successful pilot project we have extended the model of open dialogue to other teams in Meath and Louth, including the in-patient unit in Drogheda. Our open dialogue project illustrates how a recovery model of mental health care can be successfully implemented in a public mental health system.
We aimed to describe representative activities related to radiation risk management and community-based revitalization in Fukushima following the Fukushima Daiichi Nuclear Power Plant (FDNPP) accident by chronological phase and provide an overview of effective recovery projects and future prospects.
Methods
We systematically reviewed projects and research on the FDNPP accident in PubMed. For convenience, we defined the first, second, and third phases as 2011-2014, 2015-2018, and 2019-2023, respectively. The main project, purpose, organization, core location, and validation in each phase after the disaster were briefly summarized.
Results
We found that lessons learned from the FDNPP disaster have been continuously and professionally conveyed across generations, regions, and nations by effectively disseminating easy-to-understand information, avoiding any misunderstanding and prejudice. A continuous flow of scientists, researchers, and trainees from Japan and abroad to the affected areas will create a positive cycle of attracting people and residents, eventually accelerating recovery and contributing to the development of safe and vibrant communities in disaster-affected areas.
Conclusions
Continued efforts are required to enhance expertise at the field level, strengthen organizational capabilities, and promote international cooperation, thereby ensuring that a similar nuclear accident never happens again.
In this editorial we set out the background to the advent and development of the concept of recovery in mental health care. We follow this with an overview of policy with specific reference to our own locale here in Wales where a recovery-focus is now written into national mental health legislation and policy directions. We briefly summarise our own research in this area and note positive relationships between recovery and social support and quality of life but also limited shared understanding of what recovery might mean alongside gaps in policy aspirations and everyday experiences of using services. The concept of recovery remains contested with concerns it has become a means for neoliberal thinking in services and in effect has been colonised by competing ideas. Despite this (sometimes) conflicting evidence and the polyvalent quality of the concept, recovery retains a sense of vitality and validity as evidenced by contributions to this special issue of the journal. Building on our reading of this growing literature we suggest that recovery necessitates social change, implies an understanding of systems and awareness of complexity and finally must account for and accommodate competing understandings. To achieve its foundational aims, it is imperative that research in this field directly engages and includes people with experience of using mental health services as co-researchers in generating new recovery-focused interventions to address the challenges of severe mental illness experiences.
Spatial neglect is a heterogeneous post-stroke disorder with subtypes differing in reference frames, processing stages, and spatial domains. While egocentric peri-personal neglect recovery has been studied, recovery trajectories of allocentric peri-personal visuospatial and personal neglect remain unclear. This study investigated recovery time courses of egocentric and allocentric peri-personal visuospatial and personal neglect during the first 12 weeks post-stroke; whether initial severity predicts recovery and defines distinct patient clusters; and how subtypes interrelate over time.
Method:
Forty-one first-ever stroke patients were evaluated at weeks 3, 5, 8, and 12 post-stroke using the Broken Hearts Test, Line Bisection Test, Visuospatial Search Time Test, and Fluff Test. Recovery was analyzed using linear mixed models, clustering with Gaussian finite mixture models, and interrelationships using Spearman correlations.
Results:
Significant improvements occurred in egocentric and allocentric peri-personal visuospatial and personal neglect, primarily between weeks 3 and 5, followed by a plateau. The Line Bisection Test detected no changes. Higher initial severity predicted greater residual impairment. Cluster analysis identified near-normal, mild, and moderate-to-severe baseline subgroups with distinct recovery trajectories. Moderate-to-good correlations (ρ = 0.33 – 0.55) emerged between egocentric and allocentric neglect at week 3 and when timepoints were pooled.
Conclusion:
Neglect improved mainly between weeks 3 and 5 after which recovery plateaued, mirroring motor and language recovery and suggesting a shared time-limited window. Initial severity was a determinant of recovery, highlighting the value of early severity stratification to monitor and support recovery potential after stroke. As subtypes are distinctive, assessment should include multiple neglect tests.
To evaluate whether and how drafting psychiatric advance directives (PADs) with the support of a peer worker improves recovery outcomes for individuals with severe mental illness.
Methods:
A mixed-methods design was employed, combining quantitative data from a randomized trial with qualitative interviews. The trial included adults with schizophrenia, bipolar I disorder, or schizoaffective disorder who had experienced involuntary hospitalization in the past year. Participants either completed PADs with peer worker support or without specific facilitation. Recovery was assessed longitudinally using the Recovery Assessment Scale. Thematic analysis of interviews explored mechanisms underpinning the effectiveness of peer facilitation.
Results:
A total of 118 participants completed PADs, 84 with peer support. Mixed-effects regression analysis revealed significantly higher recovery scores for those supported by peer workers (coefficient = 4.77, p = 0.03). Qualitative findings highlighted two key mechanisms: peer workers’ boundary role fostering trust and relational symmetry and their facilitation practices promoting critical reflexivity and addressing past psychiatric trauma. Participants emphasized the flexibility and empathy of peer workers, which enabled deeper reflection and empowerment.
Conclusions:
Peer facilitation enhances the drafting of PADs, significantly contributing to recovery through trust, critical reflection, and trauma-informed approaches. These findings support the integration of peer workers into PAD frameworks and emphasize the need for tailored training and systemic reforms to maximize their impact.
We examined cognitive performance in children with complicated mild-severe traumatic brain injury (TBI) versus orthopedic injury (OI) using the National Institutes of Health Toolbox Cognitive Battery (NIH TB-CB).
Method:
We recruited children ages 3–18, hospitalized with complicated mild-severe TBI (n = 231) or orthopedic injury (OI, n = 146). Cognition was assessed using the NIH TB-CB at six and twelve months post-injury. We used linear mixed models to assess associations of injury group (TBI versus OI), timepoint (six versus twelve months), and the interaction of injury group and timepoint with NIH TB-CB Total Cognition, Fluid Cognition, and Crystallized Cognition composites, adjusted for sex and socioeconomic status (SES), with Bonferroni correction. We evaluated differences in cognition stratified by injury severity (complicated mild–moderate TBI vs severe TBI) using ANCOVA, adjusting for sex and SES.
Results:
Neither injury group nor the interaction of group and timepoint were associated with Total (group: p = 0.50; timepoint*group: p = 0.185), Fluid (group: p = 0.297; timepoint*group: p = 0.842), or Crystallized Cognition (group: p = 0.039; timepoint*group: p = 0.017). However, children with severe TBI performed significantly worse on Fluid and Total Cognition than children with complicated mild–moderate TBI at six months (Fluid: p = 0.004, partial η2 = 0.06, moderate effect, Total: p = 0.012 partial η2 = 0.03, small–moderate effect) and twelve months post-injury (Fluid: p < 0.001, partial η2 = 0.11, moderate–large effect, Total: p = 0.002, partial η2 = 0.06, moderate effect).
Conclusions:
The NIH TB-CB detects worse cognitive functioning in children with severe TBI six-twelve months post-injury, largely driven by differences in Fluid Cognition. Our findings suggest the NIH TB-CB may be suitable for monitoring cognition in children with TBI.
Trauma and Recovery by Judith Herman was published in 1992. This article explores its relevance and legacy for today in the trauma field, particularly with the new ICD-11 diagnosis of complex post-traumatic disorder.
This chapter explores the role of functional connectivity (FC), as measured by FMRI, in the neural processes involved in the recovery from aphasia following left hemisphere strokes. It distinguishes between normalization (restoration of typical connectivity patterns) and compensation (reorganization and recruitment of new regions and connections). The chapter organization is based on two methodological dimensions. One is the type of connectivity measured: resting-state vs. task-based FC. The second is the study design: a single time-point scan, examining the correlation between connectivity and language performance across individuals; or a pre/post-treatment design, examining changes in connectivity within participants. While the results of many studies show that normalization of left hemisphere connectivity contributes to language performance, there is also evidence for compensatory processes in both hemispheres and in interhemispheric connectivity, as involved in language recovery. The chapter also highlights the role of connectivity with domain general networks in aphasia studies, beyond the language network. Studies measuring large scale networks show mixed evidence regarding the contribution of integration across networks vs. segregation and specialization of networks to language recovery. The chapter emphasizes the importance of considering factors like patient heterogeneity, lesion characteristics, and the type of FC analysis when interpreting results.
This chapter explores the economic recovery of Europe following the fall of the Roman Empire, often referred to as the Dark Ages. It highlights the role of technological innovation and the division of labour in revitalizing European economies from the ninth to the fifteenth centuries, building on insights from the work of Adam Smith. The re-establishment of long-distance trade routes and the revival of urban centres were critical factors in this recovery. The chapter also explores the restoration of monetary systems and the development of a more complex economy characterized by the growth of cities and increased production. By focusing on how Europe transitioned from a period of obscurity to one of gradual economic resurgence, the chapter underscores the importance of trade, technology and labour specialization in driving recovery and growth.