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Edited by
Jonathan Cylus, European Observatory on Health Systems and Policies,Rebecca Forman, European Observatory on Health Systems and Policies,Nathan Shuftan, Technische Universität Berlin,Elias Mossialos, London School of Economics and Political Science,Peter C. Smith, Imperial College of Science, Technology and Medicine, London
Chapter 3.1 draws out insights into the way primary care is paid. Primary care delivers first-contact access to health services and seeks to coordinate care. It is paid for in different ways in different settings: through salary, capitation (a fixed payment per enlisted patient), fee for service, pay for performance or blended payments that combine two or more of these methods. Key learning includes that
The way health systems pay for primary care can incentivize treatment that supports wider health systems’ goals, most particularly by
– Reducing avoidable referrals to secondary care, improving efficiency and reducing waste and
– Encouraging adherence to evidence-based clinical guidelines, enhancing quality.
Pay for performance is often used to improve quality but the evidence on how effective it is, is mixed. If performance measures are not carefully designed to be context-specific and adjust for risk appropriately, they can create unintended barriers to and inequalities in access.
The design of primary care payment models needs to be ‘holistic’, to consider the goals of the health system and to underpin quality, access and efficiency.
This study aimed to adapt the Chronic Conditions Physician–Patient Relationship Scale (CC-PPR) into Turkish and to examine its validity and reliability among patients with chronic diseases receiving care from family physicians.
Methods:
A methodological study was conducted with 254 adult patients attending the Family Medicine Centers between May 01-October 01, 2025. The adaptation process followed World Health Organization guidelines. Construct validity was examined using confirmatory factor analysis (CFA), and reliability was assessed through internal consistency (Cronbach’s α, McDonald’s ω) and item–total correlations.
Results:
The CFA supported the original one-factor, 22-item structure with an excellent model fit (χ2[209] = 59.847, p = 1.000; comparative fit index [CFI] = 1.000; Tucker–Lewis index [TLI] = 1.016; root mean square error of approximation [RMSEA] = 0.000; standardized root mean square residual [SRMR] = 0.048). Sampling adequacy was good (Kaiser–Meyer–Olkin [KMO] = 0.970; Bartlett’s χ2[231] = 5934.429, p < 0.001). All standardized factor loadings were high (0.63–0.81, p < 0.001). Internal consistency was excellent (Cronbach’s α = 0.977; McDonald’s ω = 0.976), and corrected item–total correlations ranged from 0.74 to 0.86. Marital status, employment status, and type of health institution were significantly associated with relationship scores (p < 0.05).
Conclusion:
The Turkish version of the CC-PPR is a psychometrically robust, unidimensional, and reliable tool for evaluating the quality of family physician–patient relationships among individuals with chronic conditions. It can be used to assess communication and relational competencies of family physicians, support patient-centred care initiatives in chronic disease management.
We aimed to evaluate patient and clinician experiences of advance care planning (ACP) conversations facilitated by an ACP nurse coordinator (ACP-NC).
Methods
We used a sequential mixed-methods approach that included a patient survey, patient interviews, and clinician interviews at a family medicine clinic. Patients were invited into the study if they had reached a stable point in their ACP decision-making conversations with the ACP-NC or PCP (i.e. their goals and preferences were considered settled at the time) and were not imminently dying. Invitations to complete a survey were sent within 2 weeks of patients completing their ACP conversations. Patient interviewees were purposefully selected to vary on key attributes such as age, gender, and number of ACP conversations. An iterative sampling strategy was used for both patient and clinician interviews.
Results
Ninety-three patients completed the survey, and 10 patients were interviewed. Six clinicians were interviewed. Sixty percent of patient respondents reported being very comfortable having ACP conversations. At the time of the survey, 79% had completed or revised their existing advance directive. The professional groups that patients most preferred to engage with, regarding ACP, were their primary care provider (87%), ACP-NC (70%), and palliative care specialist (61%). Patient interviews indicated that participants appreciated being referred to the ACP-NC within the clinic, describing her as a motivator and generous with her time, which facilitated thoughtful discussion of preferences and wishes. Clinician interviews identified limited time as a key barrier to conducting ACP conversations and saw a dedicated ACP-NC as a major benefit to allow patients to spend more time having these important conversations.
Significance of results
Patients were open to engaging in ACP discussions. Integrating an ACP-NC within primary care teams may represent an acceptable and effective approach to promote the early initiation of ACP in primary care settings.
Continuity of care refers to the consistent and coordinated delivery of healthcare services over time. Continuity has been associated with improvements in morbidity and mortality, yet its decline has been identified as a significant concern amid increasing pressures in primary care.
Aim:
This review aimed to inform current policy initiatives by synthesizing evidence on how continuity of care is measured, the current challenges faced and proposed future interventions in UK general practice.
Methods:
We conducted a literature search for articles published before 15 February 2024, to explore continuity in UK primary care. Screening and data extraction followed PRISMA Scoping Review guidelines, with all studies undergoing double screening to determine eligibility.
Findings:
A total of 180 papers were included (95 quantitative, 76 qualitative and 9 mixed-methods). Across the literature, continuity of care was most commonly conceptualized and measured as relational continuity, the Usual Provider of Care (UPC) Index was the most commonly used metric. Informational and managerial continuity were rarely assessed. Certain patient groups, including those with long-term conditions, mental health needs, and multimorbidity, were reported to place greater value on continuity of care. Higher relational continuity was associated with improved patient satisfaction, care coordination and reduced hospital admissions. However, sustaining continuity was frequently challenged by workforce pressures and fragmented information transfer. Although formal and informal interventions to enhance continuity were described, tensions between continuity and access persisted, and continuity was reported to vary across patient groups.
Conclusion:
The decline in continuity of care has implications for patient experience and system outcomes. This review highlights the need for system-level approaches and national policy reforms to support continuity, while addressing workforce constraints, access pressures and unequal experiences of care. Further research is needed to evaluate the effectiveness and sustainability of continuity-enhancing interventions and to identify any potential unintended consequences.
The aim of this study was to determine the relationship between the physical activity levels and cognitive perceptions of physicians and the frequency of exercise prescribed by primary care physicians.
Methods:
This cross-sectional study was conducted with 221 primary care physicians. A questionnaire of three sections was administered, including questions prepared according to the American College of Sports Medicine (ACSM) recommendations evaluating the current practices of the physicians on the subject of prescribing exercise, the General Practice Physical Activity Questionnaire (GPPAQ), Cognitive Behavioural Physical Activity Questionnaire (CBPAQ).
Results:
A significant relationship was determined between the daily physical activity of the physician and exercise prescribing rates (P = 0.005). From the data obtained from the GPPAQ and the CBPAQ, it was determined that as the activity level increased, so the Outcome Expectation (P < 0.001), Self-regulation (P < 0.001), Total Cognitive Activity (P < 0.001) points increased. The frequency of prescribing exercise was found to be <20% for all chronic diseases for which exercise is known to be effective. A significant relationship was determined between prescribing exercise and the total number of correct responses to the questions measuring the level of knowledge according to the ACSM recommendations (P < 0.001). Mann-Whitney U and Kruskal-Wallis tests were used for non-normally distributed data, while Pearson, likelihood ratio, and chi-square tests were used for analyzing relationships between categorical variables.
Conclusion:
Incorporating exercise prescription training into the core medical and family medicine curricula may increase physicians’ self-efficacy and contribute to overcoming barriers in prescribing exercise.
DIALOG is a patient-reported outcome and experience measure. We analysed anonymised DIALOG scores routinely collected from East London NHS Foundation Trust. We aimed to (a) examine changes in DIALOG scores through the patient journey (‘assessment’, ‘review’ and ‘discharge’); and (b) assess the impact of community mental health (CMH) transformation by comparing pre- and post-DIALOG scores. We analysed 11 198 DIALOG scores from 5007 patients in 2018–2019 and 2021–2022.
Results
DIALOG scores improved across treatment stages in both years. There was no clear difference pre- and post-CMH transformation, although in 2021–2022 there were lower satisfaction scores at referral.
Clinical implications
DIALOG showed sensitivity to change, supporting the utility of this scale in the evaluation of mental health services. The impact of CMH transformation was difficult to assess, due to potential confounders such as the COVID-19 pandemic. Routinely collected DIALOG data can help evaluate patient outcomes over time and inform service improvements.
This study examined gaps in adherence to preventive care recommendations for adults with Down Syndrome (DS) in Connecticut and explored the underlying factors collecting caregiver and primary care physician (PCP) perspectives.
Background:
Primary healthcare plays a vital role in preventing health issues. Despite well-defined clinical guidelines for adults with DS, studies show gaps in preventive care delivery for this population.
Methods:
A mixed-methods study included chart reviews, a focus group and a survey of PCPs. Chart reviews examined records of adults with DS who received care between January 1, 2017, and December 31, 2022, for adherence to recommended preventive services. The focus group explored caregivers’ experiences with preventive care, and the survey assessed PCPs’ knowledge of prevention needs for adults with DS.
Findings:
Chart reviews of 241 adults with DS found low adherence to preventive care guidelines. Only 2.1% met the wellness visit benchmark, and 30.7% met the thyroid test benchmark. Themes from the caregiver focus group included challenges accessing care, clinicians’ lack of DS-specific knowledge and difficulties maintaining health and wellness outside the office setting. Of 81 PCPs surveyed, most reported feeling inadequately prepared to care for adults with DS. Only 27% reported relevant training, and 53% were unaware of annual thyroid function test recommendations.
Results and Conclusions:
The study reveal gaps in preventive care for adults with DS and underlying reasons from a caregiver and provider perspective. Further analysis of care for adults with DS and targeted interventions will contribute to improved preventive care for this population.
This study aims to assess the perspectives of patients with chronic conditions on the use of the Assessment of Burden of Chronic Conditions (ABCC) tool during consultations with their healthcare providers in primary care.
Background:
The increasing prevalence of chronic conditions, including multimorbidity, poses major challenges to healthcare systems today, particularly in primary care where most chronic care takes place. Effective management strategies are crucial for improving quality of life (QoL). The ABCC tool offers a unique approach to chronic disease management by facilitating shared decision-making and self-management.
Methods:
This qualitative phenomenological study involved semi-structured interviews. Fourteen patients with chronic obstructive pulmonary disease (COPD), asthma, type 2 diabetes mellitus (T2DM) and/or chronic heart failure (CHF) were recruited from a previously conducted quasi-experimental study on the effectiveness of the ABCC tool.
Findings:
Participants generally expressed satisfaction with the comprehensive questionnaire, user-friendly design and clear visualisation. They appreciated the opportunity to facilitate discussions with healthcare providers and help with monitoring. However, some confusion around the grey balloons in the tool highlighted the need for clearer explanations. Participants had limited awareness of advanced treatment recommendation functions.
Conclusions:
This study provides valuable insights into patients’ experiences with the ABCC tool. Despite challenges such as recall bias and limited awareness of certain features, participants generally expressed satisfaction with using the tool. Based on these findings, the tool can be further improved and its use should be further supported. However, the ABCC tool shows promise as a valuable instrument for improving consultations in clinical practice.
People with complex emotional needs (CEN) often receive poor care and struggle to access the evidence-based therapy they require. As part of community transformation, the Help to Overcome Personal and Emotional problems (H.O.P.E) team in Northumberland, and the Relational and Emotional Difficulties Service (REDS) in Cambridge, were set up to ensure that people with CEN could receive timely therapy without accessing secondary or tertiary services. Both services focus on providing adapted versions of dialectical behaviour therapy (DBT). The present study aims to understand the process followed to establish the two teams, identify whether they have been able to deliver accessible and acceptable treatment, and reflect on shared learning points for other services to consider. The study provides descriptions of the two service designs, further to quantitative and qualitative feedback from participants that completed treatment with the services. The results confirm that people in Northumberland and Cambridgeshire who accessed the services found the therapy to be acceptable and reported significant improvement in their ability to regulate their emotions, a decrease in symptoms associated with CEN, and a greater sense of progress towards achieving meaningful goals in their lives. However, in line with the broader literature, a high number of people dropped out and did not complete the interventions. The results suggest that the H.O.P.E team and REDS are providing acceptable and accessible evidence-based treatment for people with CEN. Reflections for future services to consider regarding reducing drop-out rates, the length of treatment, inclusion criteria, engaging people from minority groups and the use of online vs face-to-face therapy are provided.
Key learning aims
(1) Understand the process followed to establish two different CEN services in primary care settings.
(2) Identify whether two CEN services have delivered accessible and acceptable treatment.
(3) Compare how two CEN services are structured, and highlight shared learning points for other services.
Mass casualty incidents (MCI) are a challenge for prehospital response. The global response may include primary health care teams (PHCT), even more in remote and rural areas. As training in MCI response is complex, it is essential to simplify it when focused in PHCT as it is a low frequency phenomenon in their context. Our objective is to measure self-perception and the impact of a brief training experience using a mass casualty incident tabletop game with primary care doctors and nurses.
Methods:
Descriptive study of the impact of a training intervention on 27 primary care physicians and nurses in the Principality of Asturias. A 2-h training experience was carried out using a tabletop game. Self-perception was measured using a Likert’s scale on methodology, knowledge and skills, as well as a multiple-choice knowledge test after two months. Strengths and weaknesses of the methodology were also identified using open-ended questions, as well as attitudes towards incidents with mass casualty incidents.
Results:
85% of participants improved their level of knowledge without providing them study material. Self-perception measured 27 items in 3 dimensions: methodology (Median = 9; interquartile range (IQR) = 2), knowledge (Median = 10; IQR = 1), and skills (Median = 9; IQR = 1). All items except one had a median greater than or equal to 9.
Conclusions:
Gamification using the MassCas tabletop game for mass casualty incidents is perceived by primary care doctors and nurses as a useful tool in their training for mass casualty incidents, as well as for acquiring specific knowledge and skills in this area.
The aim of this study was to describe nurses’ experiences of competence development in home care.
Background:
Home care services are increasingly used to support clients’ coping at home. As the number of clients with multiple diseases is growing, continuous competence development is needed.
Methods:
Qualitative cross-sectional study. Four registered nurses (RNs) and seven licenced practical nurses (LPNs) from one well-being services county in Finland participated in interviews. The data were analysed with thematic analysis.
Findings:
Three themes were found in the analysis: having adequate competence to work as a nurse in home care, being a competent and developing licenced practical nurse, and being an improving and developing registered nurse. Competence development requires continuous training. Nurses need various practises to update their knowledge and skills. Managers have an important role in supporting, organizing, and timing competence development opportunities.
Depression is the most common mental illness globally and is a leading cause of years lived with disability. The manifestation of depressive symptoms can vary among ethnic groups. Individuals in South Asian countries experience higher levels of somatic symptoms than those in other regions, but it is not known whether this pattern extends to the South Asian diaspora.
Aims
To provide a qualitative synthesis of what is known regarding depression symptoms among the South Asian diaspora in English-speaking countries.
Method
A systematic scoping review was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews guidelines, based on a pre-registered protocol (doi.org/10.17605/OSF.IO/5E6ZK). The review included qualitative, quantitative and mixed-methods primary research, reporting depression symptoms based on samples of adults of the South Asian diaspora in English-speaking countries with substantial South Asian populations. Qualitative content analysis was used to identify widely reported symptoms of depression among the South Asian diaspora.
Results
Commonly reported symptoms included physical pain, heart-related symptoms and repetitive negative thinking, none of which are included in ICD-11 diagnostic criteria for depressive disorders. Sleep-related disturbances are also widely reported in research into experiences of depression among the South Asian diaspora.
Conclusions
Current diagnostic criteria for depression might not capture symptoms of some South Asian individuals, which may cause missed opportunities for intervention.
This article reports on outcomes and lessons learned from a four-day mhGAP-IG cascade training programme delivered in 2023 to psychosocial support workers from Red Crescent Societies in Iraq, Egypt and Jordan by primary care physicians who had themselves completed mhGAP-IG training. Participants demonstrated significant gains in knowledge, confidence and competence, supported by assessments and qualitative feedback. The training improved preparedness, clarified clinical language and enhanced comfort in addressing mental, neurological and substance use disorders. This experience highlights the feasibility of cascade training as a sustainable model to strengthen front-line mental healthcare capacity in conflict-affected low- and middle-income countries.
A severe earthquake/hurricane has caused devastation to a wide area. Nearly all local infrastructure was damaged, and it will take time to restore function. Several patients arrive days into the deployment to the area. At your medical tent, a pair of patients arrive with complaints of hyperglycemia due to not being able to take their medication and use their insulin, as well as not being able to contact their primary care doctor. One patient is mildly hyperglycemic and can be treated and released. The other patient has developed DKA and must be managed. The patient with DKA is treated with insulin and transferred to a local hospital for ongoing care.
This paper aims to describe what constitutes good-quality, accessible, affordable and acceptable primary care for migrants. This includes identifying system adaptations and offering evidence- and practice-based recommendations and guidance for primary care organizations and professionals on how to deliver such care.
Background:
Migration has significantly diversified European populations. Migrants often face structural, linguistic, cultural, and systemic barriers in accessing appropriate primary care. While these challenges are well-documented, implementation of effective, inclusive care remains inconsistent across countries.
Methods:
This position paper presents a narrative synthesis of existing literature, expert opinions, and recent policy developments. It draws on evidence from healthcare research, policy analyses, and recommendations developed by the European Forum for Primary Care working group on migrants, primarily covering developments from the past decade.
Findings:
High-quality primary care for migrants requires coordinated action across care delivery, capacity building, and system-level structures. Care delivery must be person-centred and comprehensive, supported by interprofessional collaboration and professional interpretation. Capacity building depends on training and education that embed diversity-sensitive care, cultural humility, and structural competency. At the system level, policies should guarantee equitable access, continuity of care, and inclusive quality monitoring, while fostering intersectoral partnerships and community engagement.
Conclusion:
Embedding person-centred, diversity-sensitive, and community-oriented principles into primary care systems is essential for achieving equitable healthcare for migrant populations. This is an urgent plea to healthcare policymakers, organizations, and professionals to undertake action to realise these reforms as they not only improve care for migrants but contribute to stronger, sustainable and more resilient health systems overall.
Medical care treatments can cause harm or even death. Healthcare workers assess vital signs of individuals to gauge their health. Medical care treats cells and organs while ignoring the plight of that person. Improvements in sanitation and standard of living over the last century are responsible for having longer lives. Economic growth leads to longer lives, but after a plateau of around $10,000 per person, more growth does not lead to better health. The US is an outlier with a high GDP but considerably lower health measures than many other countries. Recently, when comparing Americans with their counterparts in other rich nations, Americans demonstrate worse disease outcomes, no matter their skin color or wealth. US life expectancy declines result in almost 800 excess deaths per day here that aren’t present in comparable countries. US well-being and happiness similarly rank behind those of many other nations, despite the happiness industry telling Americans that they can make themselves happy
This study aimed to analyse respiratory infection rates (RI) in a representative cohort and evaluate if tumour size, pre-existing respiratory co-morbidities, smoking history, and tracheostomy predicted postoperative infection.
Methods
A retrospective observational study at a London tertiary head and neck oncology centre reviewed six years of patient data. BMJ Best Practice guidelines for hospital-acquired pneumonia (2022) were applied to medical records alongside postoperative RI prescriptions.
Results
RI occurred in 32% of patients, more often in those with tracheostomy (36%) than intubation (12%). Infected patients were older (p=0.025), had tracheostomy (p=0.045), and underwent bilateral neck dissection (p<0.001). ICU (p=0.008) and hospital LOS (p<0.001) were significantly higher. Age, smoking, respiratory disease, tumour stage, and airway type were not predictors.
Conclusion
RI were more frequent in tracheostomised patients, though assessed risk factors were not predictive. Further research should explore additional contributors and evaluate targeted interventions to reduce incidence.
To identify key factors associated with varying levels of Medicare’s Chronic Care Management (CCM) programme implementation in rural primary care practices in the United States.
Background:
Despite demonstrated benefits for both patients and providers, CCM implementation remains low nationwide. While previous studies have examined payment-related challenges, limited research exists on other implementation factors such as leadership engagement, organizational culture, and provider training, particularly in rural settings.
Methods:
This mixed-methods study examined CCM implementation across six rural primary care practices in Wyoming. Thirteen healthcare professionals participated in semi-structured interviews guided by the Consolidated Framework for Implementation Research (CFIR). Practice performance data collected over three consecutive months were used to categorize sites as high or low implementers based on care coordinator productivity, percentage of care coordinated, and programme sustainability. Interview transcripts were analysed using CFIR constructs to identify factors that distinguished high from low-implementing sites, with each factor rated based on its impact (positive, negative, or neutral) and strength of influence.
Findings:
Three CFIR constructs strongly distinguished between high and low implementation sites: networks and communication, leadership engagement, and reflecting and evaluating. High-implementing sites demonstrated effective team communication, supportive leadership, and regular programme evaluation practices. In contrast, low-performing sites faced poor communication, minimal leadership support, and weak feedback mechanisms. Further research is needed to examine the effectiveness of targeted interventions designed to strengthen these organizational factors in rural primary care settings, particularly focusing on developing scalable strategies that account for resource limitations and geographic isolation.
Depression screening in primary care has been widely discussed, but its economic implications have remained largely unexplored. The GET.FEEDBACK.GP randomised controlled trial evaluated feedback interventions after depression screening in primary care. The study arms were (a) feedback provided to the general practitioner; (b) feedback to both the patient and the treating general practitioner; and (c) a control group without feedback. Analysis of clinical effectiveness revealed that feedback interventions were not associated with decreased depression severity. Their economic implications were the subject of this study.
Aims
To evaluate the economic impact of general-practitioner- and patient-targeted feedback following depression screening for adults in German primary care.
Method
A cost-effectiveness analysis from a societal perspective of feedback interventions after depression screening with a time horizon of 12 months was conducted. Direct and indirect costs were estimated. Quality-adjusted life years were calculated on the basis of the EQ-5D-5L, and incremental cost-effectiveness ratios and cost-effectiveness acceptability curves based on the net monetary benefit were constructed. Sensitivity analyses and post hoc explorative subpopulation analyses were performed. Trial registration: ClinicalTrials.gov, NCT03988985.
Results
In total, 987 participants who screened positive for at least moderate depression were included. Feedback provision was not significantly associated with changes in costs or quality-adjusted life years during follow-up. Cost-effectiveness probabilities of feedback interventions were lower than 50% compared with no feedback. Higher cost-effectiveness probabilities were observed in patients whose suspected depression was confirmed 1 month post-screening and in those with previous depression.
Conclusions
The analysed feedback interventions cannot be considered to be cost-effective for the investigated population. Patient-targeted feedback was potentially cost-effective for subpopulations, particularly patients with a later confirmed depression diagnosis; this requires further research.
Professional burnout syndrome represents a significant occupational hazard within European primary care physicians, impacting their well-being, quality of care, and the sustainability of healthcare systems. This joint European Psychiatric Association (EPA) and the World Organization of National Colleges, Academies and Academic Associations of General Practitioners/Family Physicians- Europe Region (WONCA Europe) viewpoint focuses specifically on primary care physicians, contrasts their risk profile with other specialties, and outlines actionable, system-level recommendations for policymakers, provider organizations, and professional associations. Evidence indicates a wide range in professional burnout syndrome prevalence, influenced by assessment methodologies and specific national contexts. The syndrome manifests through emotional exhaustion, depersonalization, and reduced personal accomplishment, often accompanied by secondary psychological and physical symptoms. A multitude of interacting risk factors at the individual, interpersonal, and organizational levels contribute to its development. Effective mitigation strategies necessitate a multi-pronged approach encompassing individual coping mechanisms and systemic organizational changes aimed at alleviating workload, enhancing autonomy, and fostering supportive work environments.